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hmselby2
hmselby2

Myoclonic Seizures

Hi,
I have been trying to learn more about the myoclonic seizures that I have been having. It took me a while to figure out what they were, especially since my doctor is always trying to tell me that they aren't necessarily seizures. But here is the thing: they started when I started getting seizures (about 6 months ago) and they lessen or worsen in direct correlation with my seizure symptoms. It started out as a muscle twitch/jerk in my leg when I was resting in the evenings, and I would occasionaly get them in my face when I was trying to go to sleep. And the more tired I am, the worse, more frequent they are. However, I started taking a supplement recently that had caffeine and ginseng (which I have now learned can be triggers) and the twitch/jerks have gotten much more frequent and pronounced. I get them all the time now, but mostly in my face. Isn't that weird? Will they just continue to migrate around my body? Obviously I stop taking the supplement but the whole experience has been enlightening. Does anyone else have similar symptoms, or experience myoclonic seizures? I am curious to know what other people's experiences with them have been.

By hmselby2 at Fri, 11/03/2006 - 10:07am | 1722 views | 10 comments

Recent Comments on this Discussion

Clonic-Tonic, Petit, Partials, Myoclonic........well were working on defining the rest. Makes for interesting visits to the Doc!
"Dont seize you might have an epiphany"

Heather,

Well I know exactly what you are going through :P, I have many forms of siezure activity lol, guess im a great research project hehehe. Ok I have myoclonic Seizures or "jerks" as one of my many nuero's called them. Simply put, if he/she doesnt directly acknoledge them there IS A DIRECT correlation between them and your other epileptic activity. With me, they are a pre-cursor to my Clonic-Tonic's. When I have them I know im at risk for a massive and painful seizure. And as with yourself and the other poster alchohol, caffiene, sleep(over and under for me) are triggers. Now wheather they trigger the myoclonic seizure or general seizure activity is another story. Simply put the myoclonic activity that occurs in us IS triggered by patters in that "GRAY MATTER" between our ears, and I have seen MY myoclonic jerks triggered by seizure activity on an EEG. SO if youre Doc does not listen to you, push him, if he/she continues to be stubborn, get a second opinion. Take it from me, they are not there to do you favors, it's there job, and part of it is to research all data. As for harm, Im not sure, does throwing my latte(decaffe) on myself count? I generally dont have deja vu much to warn me(occasionaly i do)when the grand mal is comming, and smell even less frequently, but I can always, count on my myoclonic jerks to warn me. Either way, I know i ramble a bit, but Your not alone with the myoclonic activity coupled with other seizures.

Cheers
Frank

scaram...