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Seizure after surgery..............

Good morning,

I had my surgery on August 28, 2006. Basically almost 2 months ago. Last night, I had my first seizure since the operation. I was wondering how many of you all experienced this? Also, does this mean that my seizures are back and that the operation wasn't a success? Or did I have this because my brain is still healing? To say I'm upset about this seizure is putting it mildly!!!!

Anyway, hope to hear from you soon.

Keri

Comments

Awww.. I'm sorry, but when I

Awww.. I'm sorry, but when I had surgery the neurosurgeon told me that some people have a seizure as the brain heals.

I searched online and found:
"In one of the largest epilepsy surgery studies ever conducted, Mayo Clinic researchers have found that 81 percent of patients with intractable epilepsy become totally or nearly seizure-free six months following epilepsy surgery."
http://www.medicalnewstoday.com/medicalnews.php?newsid=41041

As it isn't 6 months after yet, I'd suggest you don't let that bother you too much, ok?

~sol

Re: Awww.. I'm sorry, but when I

Thanks Solis! I'm going to check out that website. Sounds like it has quite a bit of info. I think more than anything, it's frustrating!

Take care, Keri

"For I know the plans I have for you," says the Lord. "Plans for good and not for evil, to give you a future and a hope." Jeremiah 29:11

Re: Awww.. I'm sorry, but when I

-DP

Thanks Sol, I just had my surgery two weeks ago and I too have had a few seizures.
I was kind of scared when I had them this soon after surgery....... but thanks for the info.

take care,

David

Re: Re: Awww.. I'm sorry, but when I

Howdee David - tx for the post. Hope this finds you feeling a little better and brighter each day. Amazed your able to jump on the computer and reach out so soon after your surgery!! Nice work and keep up the healing!

I have finally become re-employed after being out of work for almost 12 months. Its time to use my new brain and I am thrilled!

Be Well, Stay Well!

Sherri

Re: Re: Re: Awww.. I'm sorry, but when I

-DP

:-) Thanks Sherri! Wish you the best! Even though WORK is not where many people want to be at all, I too miss it! Congratulations & Good Luck!

take care,

David P.

Re: Seizure after surgery..............

I know this is a hard thing to take. For I have been through it several times. But they say after surgery it can take up to a whole year for the healing process. SO having some seizures is not rare.

Just make sure your doctor knows.

take care
Lisa
http://health.groups.yahoo.com/group/epilepsyapproach/

Re: Seizure after surgery..............

Hi sweetie,

I've had 4 simple partials since my surgery (7 mo's ago), but I haven't had any sz activity in 2+ months. I just saw my epi a couple of days ago, and he feels confident in bringing my phenobarb down to a lower level now. I am a bit nervous about it, as several failed attempts is what made me go for surgery...but I am also very hopeful!

What kind of seizure did you have last night? Were you aware throughout, or was it less intense than usual? Be sure to describe the event to your doctor. I hope that everything goes well. (((HUGS))) to you!! Take care

Heather :)

Re: Re: Seizure after surgery..............

Hi Heather,

It was a tonic-clonic. I didn't even know I had it until the next morning. Apparently, I was asleep while I had the seizure and it didn't even wake me up. My husband told me about it the next morning before he went off to work. He said it lasted about 1 1/2 minutes. Which is a long time for me.

I bet you are a little nervous in decreasing your meds. Right now, I would be telling my epi "no way!!!!" I'll be praying for you.

Keri

"For I know the plans I have for you," says the Lord. "Plans for good and not for evil, to give you a future and a hope." Jeremiah 29:11

Re: Re: Re: Seizure after surgery..............

Keri,

I'm sorry that you had a secondarily-generalized seizure :( You are in the thick of healing, which is a difficult period. I pray that things improve for you! (((hugs)))

I've gone 3 nights on my lower dose of phenobarb, with no ill effects *knock on wood*. Hopefully, things will continue to go well, and I'll get off this med already!

Heather :)

Re: Re: Re: Re: Seizure after surgery..............

I'll be praying for you as you lower your dose. Thanks so much for your encouragement. :)

Keri

"For I know the plans I have for you," says the Lord. "Plans for good and not for evil, to give you a future and a hope." Jeremiah 29:11

Re: Re: Re: Re: Re: Seizure after surgery..............

To Keri and Heather.. :)

I found a page I think you both might want to read:
http://www.epilepsy.com/epilepsy/surgery_expectations.html

Heather..

They are nixing your meds already?
Wow.. I need to wait until a year is up (the neurosurgeon even spoke of a 2 years wait as 'common' before nixing meds)

Know I wish you the very best..and in less than 3 more months (hopefully) I'll be joining you in nixing meds.

~sol

Re: Re: Re: Re: Re: Re: Seizure after surgery..............

Hi Pamela,

I don't think that they're pulling me off meds entirely yet, but trying to switch me onto another AED, since my previous attempts (before surgery) brought up so many sz's. I go back in another 3 months to get blood levels tested and see the epi again. We'll see how it goes, so far so good...and that's encouraging!

((hugs))
Heather :)