I live a busy professional life as a consultant and live alone. I've been having grand-mal seizures for 2 years now (about 5-6 episodes). Living alone introduces some complications which I would like to bring up.
1. Sometimes it is extremely difficult for me to figure out whether or not I've had a seizure. This especially happens if I have been unwell, if I had more than 4 beers the night before, or if I am very tired with work. Often, some scattered stuff and a pounding headache is the only sign. At other times, some weird bruises are the only clues.
2. I also find it difficult to judge whether or not I suffer from absence seizures (staring episodes). If there was someone to see me, I could find out. Any alternative suggestions to investigate?
3. I have come to recognize the aura I tend to have. It starts with a feeling that "everything i've done is useless... pointless...". I usually lie down in bed, but have learnt the hard way that too much sleep is a sure trigger for a seizure in my case. Does it work for other like this? What do you all find useful in preventing a seizure if an aura is experienced?
4. Does anyone experience an increase in fidgety behavior for a few days following a serizure? I find myself shaking my legs, jerking my arms.... or a flickering feeling in eyelashes. I am keen to corroborate my theory that this is linked to a seizure because if so, I can use it as a sign to take it easy till these symptoms reduce (implying return to normal state of affairs in my head)
Whew! thats a lots of questions. Please feel free to contact me for more information. I like to lve life to the fullest and am not going to let a disease like this stop me. Others interested in the same goal should connect!