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Post Partum Seizures

After I had my first child one year ago Aug. 11th. I was doing good for about a month. And, then a month later I would start to get some seizures every once in a while. They have always been controlled by my meds. But when I do have them they are always when I wake up, all of a sudden, from a deep sleep. Or, when I didn't get enough sleep. Did anyone else have more seizures than normal after they had their baby?

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Re: Post Partum Seizures

After years of ttc, I became pregnant with my son. I had a picture perfect pregnancy then woke up from a nap to my water breaking. My son was born at 20 weeks gestation within the next 24 hours (April). One week after giving birth to my son I had my first seizure that I've ever had in my life. It happened in my sleep and my husband woke up to it around 8am. I don't remember anything that happens during but am in a lot of pain when I come out of them. My second seizure happened one week from then and happened in my sleep as well. I started taking seizure medicine within the next week. I had my third seizure in June while taking a nap. I thought my seizures only happened in my sleep. I didn't have another seizure from June 3rd-September. I read online about stress, etc and I thought I only had them since I lost my son/stress/depression from that. I quit taking my seizure medicine and thought I'd be alright since the severe depression was starting to go away and it'd been so long since I had one. In September I was standing in our kitchen cooking with my husband when I had my first seizure while awake. I never remember anything about my seizures but my husband says that was the worst one he seen. The only other seizure I have had since was literally this morning. I rode along to take my husband to work and I was fully awake in the car but ended up having a seizure on the way home.
I haven't received any answers to my questions on 1:why? 2:is it because of my son/birth? 3:is this permanent? 4:Will this happen with every pregnancy I have? I've been to a neurologist and he said he seen nothing wrong in my brain at all and that he believes I have "complex partial" seizures.

Re: Post Partum Seizures

 

 

Re: Post Partum Seizures

Okay, finally someone with the same questions as myself.  I've searched for 19 years.  Mine started 2-3 days after a c-sec delivery. I've tried many meds but choose none of them as I would rather feel energetic between episodes rather than dizzy and sleepy consistently.  I want to know why! I've been told genetics over and over again. I'm not buying that. Is there a connection with the epidural or childbirth itself?  Let me know if you find anything out.  I've been searching for years and met another woman just a month ago that experienced the same problems after the birth of her child.  This needs to be studied!

 

Re: Post Partum Seizures

My story is a little different.  I had never shown signs of seizures until my first son was born in February 2004.  2 months after his birth, I experienced the first of 4 seizures.  The only time they occurred was when I was completely stressed and exhausted.  My doctor ran tests and found out my TH levels were high, so that caused them to think I had an over active thyroid.  By the time I saw a specialist in January, my TH levels were back to normal.  I also visited a neurologist where everything came back normal.  I quit taking the medicine and never had a seizure again, until March 2006, 2 months after the birth of my second son.  My doctor immediately ordered tests again, which all came back normal.  I was on medication for my seizures for about six months, when again I quit taking them.  I have since had zero seizures.  My husband and I have figured out that the only time I have the seizures is the first 6 months after our children are born.  I want to have more children, but I am afraid that I will have to go through this again.  The only reason that worries me is when I had the first seizure after my second son, I was breast feeding him and dropped him.  The weirdest part about my seizures were, they only happened when I would doze off from being so tired.  I've never gone into a seizure in a waking state.  I keep trying to find the cause of this, but there is nothing I can find anywhere.  If anyone can point me in the direction of an answer I would really appreciate it. 

Re: Post Partum Seizures

Hi. Your story sounds so much like mine. My daughter was born on 5/10/06 (I had an epidural and all else was totally normal during pregnancy, labor and delivery) and then I experienced my first seizure on 7/31/06. I have no history of seizures and there are no seizure disorders in my family. To date I have no explanation for what happened to me. I remember telling my husband that I was exhausted and starving but I could not decide what to eat so I was going to go lay down for a while - this was around 10AM. The next thing I remember is being in the hospital. Apparently my husband could hear what he calls 'the fish out of water breathing' coming from our room upstairs (he is a paramedic) and he came upstairs to find me at the end of my seizure. I was combative with the paramedics that arrived and kept trying to roll over and go back to sleep. I repeatedly told them I was tired and to just leave me alone. I do not remember any of this and when I did start to become aware of my surroundings enough to remember them, I was in the ER with a HORRIBLE headache. I had an MRI and nothing was found. Everything appeared to be normal. I was refered to a local Neurologist who said it was caused by sleep deprivation and had me take Magnesium for a while. (We have since switched doctors) I was fine until 1/23/07 when I had my second seizure. The circumstances were similar to the first - exhausted - but I was at work this time. It was the same time of day, too. I have since been put on Trileptal and am still awaiting a diagnosis. I am now seeing an epileptologist at Rush in Chicago. We were in the process of scheduling a 24 hour VEEG and High Res MRI when I found out I was pregnant with #2. Until he can confirm that there is nothing abnormal in my brain (although all previous EEGs and MRIs have come back normal) he will not let me go off of the meds. And, I'm too scared of having another seizure to stop taking them on my own. He has not diagnosed me as epileptic as of yet and it's just the weirdest thing to have happen. I'm going to insist on blood draws to check my hormones and TH levels after the birth of this baby to see if there could have been another cause of the seizures.

Re: Post Partum Seizures

Wow. Noone has had a seizure case quite like mine yet. Until now. Mine started with a pregnancy, which triggered a cyst in my left temporal lobe that seems to love me when i'm ovulating. Thats when the seizures happen. Every month for about 4 or 5 days I have seizures during sleep and waking hours and some during the day, too. I have no idea how the cyst is related to my hormones, it likes to 'turn on' when my hormone flow goes up, every month somehow. It just sits in some tissue behind my ear, not even on the brain. Yet, it causes all sorts of seizures for me that I hate. Most occur during sleep time. When I am in almost awake hours and trying to catch the last half hour in the bed, they happen. And when i'm almost snoring, my boyfriend says they happen too. All hormone sh**. And it all started 11 years ago with my first pregnancy. I was 20 when I had my first seizure. I woke up in the hospital and the doc said 'you're pregnant' and 'you had a seizure.' I said, "Whats a seizure?" I had to have an abortion, nonetheless, and that was tormenting as well. But this is crazy. I'm planning a surgery for this Oct./Nov. We'll get it all finalized this week. I hope you feel better. Keep in touch. Kelly.....:)

Re: Re: Post Partum Seizures

Thank you for your reply. I have a cyst too. I never thought that it might have something to do with my seizure. What kind of surgery are you going to have? Brain surgery? or removing the cyst? I am going to have to mention something to my neurologist. Thank you so much for that insight. :)

Re: Post Partum Seizures

Hi! I had never had a seizure until almost seven years ago. It was six weeks after my third child was born, and I woke up in the middle of the night to find paramedics staring at me. I didn't remember the seizure at all. My husband woke up and called 911. After doing tests they told me I had epilepsy, but, to be honest, I didn't really believe them because I didn't feel any different, and I hadn't remembered the seizure anyway. I took meds for one year and didn't have another seizure. My doctor thought that I had only had the seizure because I was exhausted after having the baby, so I stopped taking meds. I didn't have another seizure until Jan. 2005. This one didn't seem to be related to anything, but I still didn't take meds. Then last June I was four months pregnant and had several seizures. They only happen at night when I am very relaxed, so I usually don't remember them. I decided to get back on meds, and I have taken them to this day. Luckily, I haven't had another seizure since starting the meds. Anyway, the seizures do seem to happen when I am exhausted or when I don't get a good night of sleep for whatever reason. I haven't had enough seizures, and I have irregular periods, so I can't say if my seizures occur more with hormonal fluctuations. I do think that the exhaustion that comes with being a new mom does make me more likely to have seizures, but with my last child I responded well to the meds. Let me know if you need more info.

Re: Post Partum Seizures

I too have had post partum seizures.  I had never had any siezures before.  My first set of seizures was after I had my son in 1993, I was diagnosed with thrombocytopenia during pregnancy, but other than that uneventful.  10 days after I delievered my son I started having problem breathing almost as if I had pneumonia, my husband took me to the hospital where my blood pressure was very elevated I believe 180/110.  They administered a lung scan thinking I had a pulmonary embolis came back with low probabilty, they then sent me home saying I had a pre-pulmonary infection!  Wow I was to young and didn't think to question them, I remeber leaving the ER crying because I still couldn't breath well and I was scared.  That night around 4 am I woke up in the night with a SPLITTING headache so I got up and took some tylenol, when I got the end of the bed, I could no longer feel my legs.  I called for my husband, he said as soon as he scooped me up to put in bed, I went into a full grand mal seizure lasting for about 5 minutes.  He was scared called 911, I was sent back to the ER in which I had another grand-mal seizure.  I ended up staying 4 nights in the hospital and they never diagnosed me with anything, just put me on seizure medication and took my driving license away for a year.  I was devistated and scared knowing I was  a first time mom and scared I was going to hurt my baby if it happened again.  I remained on seizure medicine for 1 year and then neurologist weaned me off..  I was seizure free until..... I became pregnant again 10 years later with our daughter.  I became pregnant in 2003 for our daughter, doctors thought all would be fine this time around and that we had nothing to worry about, once again I fell for it and listened to them!  During this pregnancy I was diagnosed with "Itchy Mom syndrome" or "cholestatis of pregnancy( medical term).  At 36 weeks my blood pressure started to elevate so they decided to induce labor.  We had a wonderful delievery no problems.  I was released 2 days later with a beautiful little girl.  That night I was walking down my hall and became to feel faint and legs week and once again a splitting headache.  My husband took my blood pressure and once again it was elevated, so he rushed me to the hospital.  When arriving at the hospital I was admitted back on maternity ward and within an 1hour I started to seize another grand-mal seizure!  I guess I had 6 grand mal seizures which left me in the hospital for 11 days.  I was very sick.....  I have since recovered from the trama but, was told to have no more children that I am lucky to be alive!  So I understand all of your stories it is so hard not knowing why this happens and in my case why I get so eclampic with pregnancies.