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tlh64

Keppra and insomnia

Hi to all.
I have a question about Keppra. Have any of you experienced insomnia while on Keppra? I have difficulty getting to sleep and when I do, I do not sleep soundly. However, I do not feel as foggy headed during the day as I did before starting it (newly diagnosed with complex partials). I am also experiencing the depression associated with Keppra, but have had problems with depression for many years. I am also under a lot of financial stress right now, so I am sure that may also be contributing to the insomnia. I also think I may be entering perimenopause (41 yrs old and had 1 ovary removed 2.5 years ago). Any feedback would be greatlyy appreciated. TLH64

Comments

Re: Keppra and insomnia

Hi TLH

I have only just recently started taking Keppra. I have not found any ill effects as far as insomnia goes. It does make me a bit drowsy.

However, one of the side effects is listed as being constipation, and I have been anything BUT for the last 3 days ;) Sorry if that is TMI.

Maybe some people react opposite to what is supposed to be the side effect? I don't really know. You might want to make a note of it, though, and bring it up with your doctor.

I do find I get insomnia when I have a lot of my mind.

Re: Keppra and insomnia

Hi there,
I have been on keppra for over 3 years now and the good news is that since day one of taking it I have been szr free. The first thing I noticed about it is something that you touched on about the fogginess being lifted from your head. It was an amazing feeling like my brain was suddenly wired up correctly. As the other reply to your post says quite often people will have the complete opposite reaction to the listed side effects. A few people have mentioned violent mood swings but again it is something i never encountered. I too have suffered from depression for many years, a problem i had before even being officially diagnosed with E but the keppra never made the problem any worse. I have read a few posts from people that have experienced insomnia when first starting to take keppra but after that initial period of adjustment which always varies from person to person the problem seemed to settle down. So i would be inclined to think that it is your various other problems that are contributing to your sleeping problems although adjusting to medication is always hard, i can testify to that from years of chopping and changing meds. I had sleep problems at some point with every other med i took but none at all with keppra. I also take Epilim and clobazam these gave me problems with sleep in the past but with the Keppra added there are no problems, so i guess in a lot of ways the fact that i have been szr free leads to lack of stress and therefore better sleep. Stress is far and away one of the biggest causes of insomnia.

Re: Keppra and insomnia

i've been on k for almost two years and i've had the same problem. My came with a lil' depression (from K) and I now take trazodone at bed time, the stuff works great..

Sunshine and Daisies,
~Cass
"There is no exquisite beauty without some strangeness in the proportion" -Edgar Allen Poe

Re: Keppra and insomnia

Keppra and insomnia
Hi to all.
It turns out it was the Keppra causing my insomnia and adding to my depression. It was also making me cranky. While it was stopping the seizures, the side effects (or as my neighbor calls them, bad effects) were worse than going through the seizures (complex partials). I discussed it with my doctor on my follow-up visit and we decided that Keppra wasn't for me. He started me on Trieptal and weaned me off of Keppra. I can now sleep and do not wake up in the middle of the night with crying spells. To my knowledge, I still have not had any seizures. While I still have finacial problems, I can cope with the stress of it a little better. Hopefully, that will get better, too, as there is a company interested in talking to me about some better paying positions. tlh64

Re: Re: Keppra and insomnia

Gee whiz, reading these reports on Keppra makes me a little more excited about starting on Keppra--today! Not. I have been on Lamictal since middle of March 2006, and in some ways it has helped and in others it has not helped at all. Why my MD has chosen to try me on Keppra is beyond my comprehension other than it is another "new" drug. When I was first diagnosed with epilepsy in November 2005 (after a massive seizure which was also my first) I was given Depakote. I really hated Depakote as it literally made it impossible for me to function and I lost a job due to its effects (bad effects). At this point (July 22, 2006) I am not sleeping well to start with, and have been taking Zoloft for depression for the better part of 13 years. If I had my way, I would not be taking any of these (expletive) drugs. Of course I would also be having seizures all the time.
Sorry to have gone for so long. I just wish I could go back to having a life and having the epilepsy under control, which it definitely is not.

Re: Re: Re: Keppra and insomnia

Hi wflisa.
I know how you are feeling. I was apprehensive about starting on Keppra, too. I had read the comments here and also read the package insert that came with the medication. I took note of things to look for as far as bad side effects were concerned. I also hoped that I wouldn't have them. As has been written several times here, everyone's body is different and can react differently to medications. As I mentioned in my original post, I did feel more alert and did not feel as "foggy headed." Unfortunatly, the bad side effects soon followed. I discussed them with my doctor. From what I understand, different medications are used for different types of seizures. While I am not completly sure, it is my understanding that Keppra works better on partial seizures than convulsive types. If you, family members, or friends start noticing negative changes, bring it up with your doctor. You might also want to ask your doctor point blank why he switched your medications. tlh64

Re: Re: Re: Re: Keppra and insomnia

Hi tlh64.
I hope I got that right. Is it tlh or tih64 ??
Well last night I took my first 250 mg Keppra. When I woke up to go to the bathroom around 3-3:30 AM I thought I was on the "vomit comet." I thought my head had separated from my body and was floating in outer space. I was so dizzy I did not know which end was up. I had to crawl to the bathroom and crawl back. Needless to say this will come up with my doctor tomorrow.
You said that Keppra works better on partial seizures? I have had nothing but convulsive seizures. I do know WHY I was switched: at 300 mg in the morning and 350 mg in the evening, the Lamictal was still not controlling my seizures. I do not think I will be able to take the Keppra twice a day. If I did that today, I certainly would not be able to attend church, that is for certain!
Thanks again for the information and advice.

Re: Re: Re: Re: Re: Keppra and insomnia

Hi wflisa.

You did get the screen name correct. It is tlh64. You might take a look at the listings of medications on epilepsy.com. Go to the home page and then click on the section that says "treatments". If I remember correctly, then a list of treatments will be listed and choose "medications". Then you should get a list of medications used to treat epilepsy. Just click on Keppra. Then on the righthand side there will be a list of questions. Click on "What is Keppra used for?" There are also a lot of other answers to questions you might have. As I understand the definition of partial seizures, they are in a limited area of the brain and are usually the type where you kind of "zone out" for a few seconds or lose consciousnes all together and have odd behavior for a minute or two. Whether that can include some convulsive types, I am not sure. Glad to help. tlh64

Re: Re: Re: Re: Re: Re: Keppra and insomnia

Hi tlh64,
I wonder how we can get rid of the repeated "Re:" as it is getting a little annoying?!!
Now to something more serious. I began taking 250 mg of keppra only in the evening with 300 mg of lamictal twice a day. The prescription for keppra said to take twice a day, but after just a few nights of keppra it became obvious that if I did take it twice a day I would be either in bed all day or what I call "non-functional." Being a highly educated and intelligent individual, I researched the keppra in a number of places on the internet because I was having problems even sitting at the computer for more than 15-20 minutes at a time. Now I know more than I did and I have been told that most of the side effects I am having should go away the longer I take the keppra. I certainly hope so. I have been unemployed for the better part of eight months, I have no income, and I have no energy. Thank you again for your kind and perceptive words.

Re: Keppra and insomnia

I have been on Keppra for over a year with no bad side effects. I have partial seizures and have not had one since. I had one nocturnal seizure last summer due to my own stupidity (missed meds), but have had very good luck with it.
Christine

yup

yup

Re: Keppra and insomnia

I'll have to say that I have problems with insomnia myself. Not sure if it's related to Keppra, other meds, depression, or stress. But, did tell my neuro about it, and she said that it was OK to take Tylenol PM to help. All I need is one tablet, and I sleep deeply enough to have dreams that I remember when I wake up.
Good luck,
Sally

TLH64......I UNENROLLED FOR

TLH64......I UNENROLLED FOR A WHILE. NOW I AM BACK. CAN'T HELP WITH KEPPRA
I TOOK A CHILD'S DOSE ONCE, AND IT CAUSED MY BLOOD PRESSURE TO DROP SO LOW, I WAS TOLD I WAS SLURRING MY WORDS SO BADLY, IT SOUND LIKE A DRANK A CASE OF SOMETHING ALL BY MYSELF.
I AM WONDERING IF THE C.P., LIKE I HAVE, CAUSE INSOMNIA? HAS ANY ONE TOLD YOU THAT? SOSME NIGHTS I SLEEP LIKE A ROCK AND OTHER TIMES, I GO FOR DAYS AND DAYS WITH NO SLEEP, AND SO TIRED I CAN'T MOVE DURING THE DAY. I NOTICED TODAY WHEN I HAD A SMALL S., THAT I GOT REALLY HYPER AFTERWORDS, AND THE OTHER DAY, I HAD SEVERAL IN A ROW, AND THEN THE PIA, AND COULDN'T SLEEP THE REST OF THE NIGHT EITHER. AND WAS UP RUNNING AROUND AFTER I FINALLY SLEPT ABOUT 3 HOURS DURING THE DAY. HAD MORE S., AND FULL OF ENERGY...TOO MUCH ENERGY FOR THE DAY, AND AMOUNT OF SLEEP I HAVE BEEN GETTING.
I AM GOING INTO THE DIAGNOSTIC LAB. TOMORROW, SO WON'T BE AROUND ALL WEEK.
YOU WERE ON MY BUDDIES LIST, BUT I COULD NEVER FIGURE OUT HOW TO GET AHOLD OF YOU OR FIND YOU ON THIS SITE. COULD YOU PUT MY BACK ON YOUR BUDDIES LIST, AND LET ME KNOW HOW I CAN GET IN TOUCH WITH YOU.....THESE CP'S ARE TOO WEIRD. I AM REALIZING THAT I AM HAVING THEM CONSTANTLY, AND WHAT I THOUGHT WAS BRAIN DAMAGE, THE INABILITY TO SPELL, DO MATH, ETC, IS LINKED TO THESE S. I HONESTLY AT THIS POINT DO NOT KNOW IF I DO HAVE MEMORY LOSS, OR ANY OTHER DAMAGE.......OTHER THAN THE E. AND VISION LOSS. I HAVE REALLY BEEN PAYING A LOT OF ATTENTION TO WHAT IS GOING ON, AND IT ALL SEEMS TO POINT TO MORE E. AND LESS BRAIN DAMAGE THAN I HAVE THOUGHT FOR 15+ YEARS.
GOOD LUCK WITH YOUR MEDS. I STILL DON'T HAVE ANY. DID YOUR S. SHOW UP ON EEG? MINE HAVEN'T SO FAR. STILL DON'T KNOW WHAT AREA OF BRAIN THEY ARE COMING FROM. I HAVE HAD SURGERIES THAT AFFECTED THE FRONTAL, TEMPORAL AND SPHENOID, SO MY DOC.IS GOING TO ADD MORE TESTS THAN THE EEG MONITORING. I WILL BE THERE ALL WEEK, SO THEY SAY.
LET ME KNOW HOW I CAN FIND YOU. I DON'T KNOW WHAT RRS IS, AND HAVEN'T BEEN ABLE TO FIGURE IT OUT.I THINK IT WOULD BE REALLY GOOD FOR BOTH OF US, SINCE WE BOTH HAVE BEEN DIAGNOSED WITH THE SAME TYPE OF S., TO LEARN FROM EACH OTHER. I ALSO AM WONDERING IF SOME OF THE INTENSE MUSCLE SPASM I HAVE IS CAUSED BY THE S. I HAVE BEEN GETTING TREMENDOUS PAIN IN MY FOREHEAD AND TOP OF EHEAD, SOMETIMES ON THE SIDE, BUT NEVER IN ALL THREE PLACES AT THE SAME TIME. LET ME KNOW. I FORGOT TO CHECK WHEN YOU WROTE THAT ABOUT THE TRIEPTAL. THAT WAS A YEAR AGO. HOW IS IT WORKING AFTER A YEAR, AND ARE THE S. CONTROLLED COMPLETELY? I HAVE A HARD TIME READING AL THIS BECAUSE BECAUSE OF MY VISION, SO I MISS WHAT IS GOING ON. JAN

Re: TLH64......I UNENROLLED FOR

I am starting the weening off process of Keppra today!
I NEVER SLEPT!
I am so happy to be done with this drug and moving onto a new one!