I am the mother of a 5 1/2 year old who is progressively getting worse. His name is Danny. He has many types of seizures. He has at least 10 notable seizures a day and probably many more. he often requires interventions such as oxygen, suctioning, extra clonopin or diastat. he is on several medications clonopin, keppra, felbatol, phenobarb, and vigabitrin and several others for gi issues. Danny has tried all the other meds to no avail. We recently were told that there are only options left are to do a surgery that splits the 2 hemispheres or to do nothing. We feel this child is in pain and requires more sedation to be comfortable. The neurologist says that seizures are not painful. Danny is currently functioning at a 0-3 month level. He did progress when he was a baby. He did sit, stand and smile all of that is now gone. I am wondering do seizures cause pain? I think they do.
Do seizures cause pain?