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TAKE CONTROL TODAYHi there, I was wondering what the benefits (if any) of taking anxiety medication mixed with seizure meds (I am on Tegretol XR). I just can't take this anymore. The anxiety I feel WILL NOT go away no matter WHAT relaxation technique I try. Its only a temporary solution. I use it mostly when I go to bed to help me sleep. My anxiety started when I found out I had Epilepsy in July 2005. It started with the trouble swallowing, now it's the obsession with "taking a full deep breath" or "overbreathing" which is similar to hyperventilating, which is NOT good for someone like me who has had seizures. Nowadays after being on 200mgs of Teg XR a day, I am starting to feel very light tingly, numbing, "achy" feelings in my lips. The same place I would feel that "buzzy electrical shock" feeling right before a seizure. That now stresses me even more, because now i am wondering, "Is the medication blocking a possible seizure and I am feeling the "facial" symptoms?" as a result of my OBERBREATHING - every single day!?!? I hate anxiety. Part of me WANTS to take something for it, the other part doesn't. I was never one to take pills, but I will have to for awhile. Any thoughts on the benefits?
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Thank you so much everyone! Jill - as for my anxiety, I ALMOST made it to the doctor the other day. I could not bare to wait in the office for more than the hour and a half that I had already waited. But my second attempt shall be sometime this week! I had experienced "overbreathing" obsessions even before I found out I was dx'd with E. I have had this breathing obsession now for about a month. The shortest I ever had it in the past was maybe a week. I have tried so many techniques.
I was taking Teretol and it caused the same issues had a lot of anxiety with it. I had to to switch to Trileptal and have almost no side effects. Get with your doc and get something that you can tolerate and works. Good look I wish the best for you.
For my husband, anxiety is ALWAYS seizure and I bet it is for you as well. Our neurologist has prescribed anti anxiety meds. He told us that depression and anxiety is always present with seizure disorders. It is a chemical thing, not a reaction to living with seizures. So tell your DR you want meds for it.
Interesting article.
Excuse my ignorance but, have you visited a psychiatrist???
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Reading this makes me really feel for you. It's been a while since this post. Would you mind sharing how you are at coping now? Did you find anything that really helped with your anxiety?
James
A few people have serious reactions to Tegretol-XR. These serious problems are very rare but everyone who takes this medicine should at least be aware of them because a very small number of people have died because of them.
On December 12, 2007, the Food and Drug Administration informed healthcare professionals that dangerous or even fatal skin reactions (called Stevens Johnson syndrome and toxic epidermal necrolysis), that can be caused by carbamazepine, the active ingredient of Tegretol XR, are significantly more common in patients who have a particular type of gene, called “HLA-B*1502”. This gene occurs almost exclusively in patients with ancestry across broad areas of Asia, including South Asian Indians. Patients with ancestry from these areas in which HLA-B*1502 is present should have a blood test by their physicians to see if they have the “HLA-B*1502” gene before starting treatment with carbamazepine. If these individuals test positive, carbamazepine should not be started unless the expected benefit clearly outweighs the increased risk of serious skin reactions.
Sounds terrible, hope you have found your ideal medication by now!

I'd like to support the previous author's thoughts speaking about relaxation techniques. personally iI try to use as litlle meds as possible, preferring the so-called not traditional methods. I used to listen to meditation podcast on itunes as well, but later came across some other files which proved to be rather helpful. don't neglect the opportunity, try it, I hope it will help or at least ease your sufferings. my best wishes to you:)
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Hueyloo asked what others are doing to cope with our anxiety. I can tell you what I do, not always in this order. I do use Ativan on bad days, but I try not to use it everyday. I listen to a meditation podcast on itunes. I watch a "you tube" video "Amazon Rainforest Relaxation Video" http://www.youtube.com/watch?v=43yvlrNl3Xc . I listen to a CD called "Anxiety Relief" by Martin Rossman. I do Chi Gong which is light exercise with a lot of breathing. I crochet which is AWESOME! And I write in a journal.
I hope you find out what works for you. I would LOVE to hear what other people do to cope with anxiety. It helps to learn to learn from other people!