|
|
Nonepileptic Seizures are "seizures", plain and simple. They are not considered true "Epileptic" seizures but they are actual seizures. The old term (unfortunately still in use in some areas) is psuedoseizures, which, of course, is outdated and implies "faked" (psuedo) seizures. Nonepileptic Attack Disorder (NAED)is being used in England, but is problematic in its use of the word "attack". A newer term, now in use by some researchers, is Nonepileptic Events. In my opinion this is not a step forwards in the study and treatment of these seizures. This term is meant to clarify that these seizures are not Epileptic in nature. While this may be helpful to researchers it does a diservice to those who suffer from NES. To me it actually downplays the severity of the seizures as well as implying that the seizures are something other than "real" seizures. They are, in fact, exactly as debilitating as Epileptic Seizures. We don't need to isolate those with NES any further than they already have been isolated. We need to make sure that these are "Seizures" we are dealing with, despite the cause. The medical community convienently conveys responsibility for treatment of NES to the psychological community which seems to know next to nothing about them. I beleive that Nonepileptic Seizures is the correct term. It implies that they are not true Epilepsy and yet it retains the seriousness of the main sympton, seizures. Besides, we sometimes seem more interested in labels than we do in solving the problem. Lets just keep Nonepileptic Seizures as the term to use and get on with the treatment and cure. Teft
Add your comments
I agree. I found this info useful. Epilepsy
Hi All,
Been reading through all your posts with interest, and just want to add something.
Although e.com DOES deal with epilepsy & seizures, the original comment about it not being a dedicated non-epilepsy resource is correct.
If anyone's looking for info or a dedicated support group/forum for NEAD, we've recently launched one at http://nead-scotland.org
NEAD Scotland is a voluntary online resource for users anywhere (called NEAD Scotland cos that's where we're based).
I'm a sufferer and run the whole site from home with no financial support from anyone.
Come and pay us a visit, and leave us some comments in the guestbook or join our forum.
Cheers
Gerry