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Take control of your epilepsy and seizures. Seizure management has never been easier.
TAKE CONTROL TODAYNonepileptic Seizures are "seizures", plain and simple. They are not considered true "Epileptic" seizures but they are actual seizures. The old term (unfortunately still in use in some areas) is psuedoseizures, which, of course, is outdated and implies "faked" (psuedo) seizures. Nonepileptic Attack Disorder (NAED)is being used in England, but is problematic in its use of the word "attack". A newer term, now in use by some researchers, is Nonepileptic Events. In my opinion this is not a step forwards in the study and treatment of these seizures. This term is meant to clarify that these seizures are not Epileptic in nature. While this may be helpful to researchers it does a diservice to those who suffer from NES. To me it actually downplays the severity of the seizures as well as implying that the seizures are something other than "real" seizures. They are, in fact, exactly as debilitating as Epileptic Seizures. We don't need to isolate those with NES any further than they already have been isolated. We need to make sure that these are "Seizures" we are dealing with, despite the cause. The medical community convienently conveys responsibility for treatment of NES to the psychological community which seems to know next to nothing about them. I beleive that Nonepileptic Seizures is the correct term. It implies that they are not true Epilepsy and yet it retains the seriousness of the main sympton, seizures. Besides, we sometimes seem more interested in labels than we do in solving the problem. Lets just keep Nonepileptic Seizures as the term to use and get on with the treatment and cure. Teft

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I have NES and I have these episodes daily and lose consciencness for about 15 min. up to 2 hours. I don't have shakes often just go catatonic for a while, and the auroa's can last for hours after the episode.
I agree. I found this info useful. Epilepsy
Hi All,
Been reading through all your posts with interest, and just want to add something.
Although e.com DOES deal with epilepsy & seizures, the original comment about it not being a dedicated non-epilepsy resource is correct.
If anyone's looking for info or a dedicated support group/forum for NEAD, we've recently launched one at http://nead-scotland.org
NEAD Scotland is a voluntary online resource for users anywhere (called NEAD Scotland cos that's where we're based).
I'm a sufferer and run the whole site from home with no financial support from anyone.
Come and pay us a visit, and leave us some comments in the guestbook or join our forum.
Cheers
Gerry
Keep trying to find that emotional trigger. I't very difficult to face
past things but my wife is making much progress by doing just that.
Take care
http://garbagedisposalreview.info
There are some links and valuable information of our NES/ PNES FaceBook pages. Please join in our discussions and add your own personal experiances. You are not alone.
http://www.facebook.com/pages/Non-Epileptic-Seizures-NES/130...
I had a non epileptic seizure disorder for almost 4 years. I have had all of the testing and scans there are, seen the top Epileptic doctors in the country, had 2 complete in hospital brain wave sleep studies, tried epileptic medication with no positive results.
Symptoms:
- Dizziness
- Feverish headaches (without actual fever)
- Sluggish, extreme fatigue
- Temporal headaches & migraines
- Trouble walking straight
- Spastic right arm and side with bobble neck
- Fainting at the end of elevator ride or looking up
- Extreme vertigo
- loss of vision, blurred change of depth vision
- Chronic soft stool, Diahrea
- Grand Mall Seizure, 1 large one every 2-4 months
- Small Seizures,spacing out, mouth quivering
- Slurred speech
- Extreme motion sickness
- Depressed Mood
During a bout with the flu, I was very weak for almost an entier week and did not eat much. I knew I needed something, so I began to drink bottled vitamin water to not be dehydrated.
I still felt sick and congested, but the regular daily "fuzzy" fever feeling I had always experienced was much less.
Wow, I felt better and realized that I may have a vitamin deficiency.
I researched all combinations of vitamins. I am not a doctor, however the body has various neuro pathways that need a variety of vitmains and nutrients end electolytes to function properly. You must be your own advocate. Doctors treat symptoms, and symptoms based on what YOU tell them. YOU must speak up and ask questions, YOU must advise ALL your ongoing and current new symptoms whether you think they are related or not.
Before you take any supplements, Have your doctor check your Vitamin levels. Check: Vitamin D, Vitamin B6, Vitamin B12.
You may consult a naturopath or a nutritionist for any nutrient or vitamin deficiency questions. If you have chronic diahrea, you may think nothing of it, as I did, and you may have an absorption issue as well as I did. Do your research. Speak to reliable sources. Do not take any supplements or try any medication without consulting with your regular physician.
With proper nutrition, sleep, exercise, vitamins B6 + D (see your physician) , and regular counseling, I have been seizure free for almost a year.
I do take a mild anti anxiety medication for anxiety.
You can get your life back.
I actually have energy now to get more exercise and I am sleeping better than ever.
Best of luck to all.
Wow that is great. I will see my Dr. and ask about the vitamin test. I have some of the symptoms you had described, so I am definatly going to look into it. I am so happy to hear a positive side to this illness. Stay well.