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gretchen1
gretchen1

Marijuana: lit. regarding epilepsy

I'm not endorsing any of these articles. But since Marijuana for epilepsy seems to keep coming up here qutie a bit I thought I would post this. Unfortunately I don't know how to do clickables.But if you go to www.webmd.com (I think it's .com) and click on "epilepsy" on the left under health conditions? Then go to "search" and type in "marijuana"? There are many articles about the same.Again for your FYI only. I'm neither condoning or denying it's effectiveness as an AED because I simply don't know. I have worked with THC as an RN with astoundingly good results with patients for other conditions which keeps me interested in helping those with epilepsy. Unfortunately for myself, marijuana, physician directed, didn't help.Gretchen

By gretchen1 at Wed, 06/08/2005 - 2:02pm | 2186 views | 21 comments

Recent Comments on this Discussion

I used to be a heavy user of marijuana years before my introduction to epilepsy so after my diagnosis i did a fair amount of reading. Marijuana can provoke or suppress seizures. Basically you've got a 50/50 shot. Help or make worse. Personally, when i smoke up anymore a get a li'll paranoid, which leads to heavy breathing, which makes me anxious that i'm going to seize. Also constant use of marijuana leads to memory loss, impaired judgement and emotional imbalance, which sounds a lot like the side effects i'm having from the meds i'm on to prevent the seizures to begin with.

ouize

Ouize, your post is good and balanced. I tend to agree - the reading I've done suggest it can be beneficial to some and negative to others. I had a seizure after getting stoned, but I was also at a place where there were laser light guns in use at the time- I still concede it was 'being stoned' that did it as lights had never been an issue before that day. weed, like medication, is a personal choice. If it works for you, great - but theve chances of it working are hard to determine. Have there been any REAL studies done on this?

Eterna...

Marijuana use and epilepsy
Prevalence in patients of a tertiary care epilepsy center
D. W. Gross, MD, J. Hamm, BA, N. L. Ashworth, MD MSc and D. Quigley, BSN
From the University of Alberta, Edmonton, Alberta, Canada.

Address correspondence and reprint requests to Dr. Donald W. Gross, Division of Neurology, Department of Medicine, 2E3.19 Walter C. Mackenzie Health Sciences Centre, Edmonton, Alberta, T6G 2B7, Canada; e-mail: donald.gross@ualberta.ca

The authors sought to determine the prevalence of marijuana use in patients with epilepsy by performing a telephone survey in a tertiary care epilepsy center. Twenty-one percent of subjects had used marijuana in the past year with the majority of active users reporting beneficial effects on seizures. Twenty-four percent of all subjects believed marijuana was an effective therapy for epilepsy. Despite limited evidence of efficacy, many patients with epilepsy believe marijuana is an effective therapy for epilepsy and are actively using it.

Got this off neroulogy.com for your reading pleasure

Go to google plenty of reading medical marijuana, epilepsy marijuana,
I don't have time to wait for studies I have to live my life please support medical marijuana

xgi

I use mj and have had good luck in the control of sez. However being illegal and the price makes it hard to obtain. I have chronic pain as well and the doctors sure don't mind handing out handfuls of pills like candy to kids. Also the smoking weed ain't exactly mother's milk for my body. If I could grow my own I would eat it myself so please vote for medical pot in your state. Thanks.....x

xgi

I was diagnosed with epilepsy about 12 years ago. I was prescribed several different meds including, dilantin, depakote and others I cant really remember. None of the meds seemed to help at all. I was not able to drive because the seizers were happening so often and were very intense. I was also very depressed and tried to commit suicide which is not something I had ever concidered in my life and I am sure will never attempt again. My Dr. at the time said the depression was a side effect of the meds. I started doing some research and the side effects from these meds were scary the birth effects are horrible and I wanted children. So I started searching for an alternative, and what I found was Marijuana. I have not had a seizer in about 4 years and have not had a grandmal in about 9 years so for me it has been my answer and has been fully supported by my dr. I have also had children which is what I always wanted.

bahiyyih

I smoked many years ago, and never experienced a seizure. It was only a couple of years after I quit, epilepsy showed it's ugly face. I was only a 'casual' user, not an abuser. I have not had the opportunity in the past few years to try it but probably would not due to the fear of seizures.

Seruzies
gretchen Im not sugessting anyone use it, especially with out talking to the neurologist first. I have done a good bit of research on the subject. In some cases it seems that it is not helpful at all, in fact in some cases it can bring them on. What I did find out is that the more effective marijuana seems to be higher in canaboids and lower in THC. The THC stimulates the brain. The canaboids are the things that keep you from getting off the couch. I also know it can be grown in such a way that it is higher in canaboids. My nephew did the growing research and also found that the caniboids can help. So he grew a few plants with that in mind. He did grow them with love and care and with the prayers that it would help his uncle. I would use it when I felt a partial coming on and in seconds to a minute all got quiet. Since he has moved away I don't have access to any that was grown for that purpose or with that much love so I stopped cause on the street you never know and most people don't know about the difference either. Elbert Dee
elbertdee
Well Elbert, that was certainly educational and interesting. As a hospice nurse years ago when all conventional medicine failed for cancer patients who had intractable pain, nausea from radiation or chemo? MJ and later more specifically THC worked wonders, especially with the nausea. With ALS patients (Lou Gehrig's disease) and AIDS patients, who can have a tremendous amount of anxiety? When benzo's didn't help like Valium and those in that class? MJ and again later, THC worked wonders. THC was applied topically. Many of my patients didn't like to smoke or couldn't. I was very surprised that in the large metro area where I practiced as an RN there were two pharmacies we used, probably more, that stocked pharmacy grade MJ and THC. You almost had to sign your life away to pick it up for a patient, but it is available by prescription. In fact when I tried smoking maryjane as an AED since I'm AED intolerant? I got it from a pharmacy i.e. pharmaceutical grade. But after reading what you wrote? I'm wondering what the heck "pharmaceutical grade" means. It sure didn't help me. It made me feel like hell. Every time I took a step I felt like my foot was sinking in quick sand and the house was on a tilt. BUT I'm very sensitive to medication, of any kind, and I DO consider maryjane a medication. In fact as an RN I consider Marijuana one of the most effective, versatile medications available and horribly underused. I get criticized every time I post that - I assume by people who are not intractable, sensitive to conventional AEDs, and/or haven't tried it. I wish it would have worked for me. What makes me SO darned angry? A friend of mine also just can not take these poison pills BUT marijuana helps him reduce his seizures tremendously. He's owns a large orchard, using "heavy equipment" (do not use this drug using heavy equipment" hehe). I was jealous. And THEN the federal gov't had a big raid (rade?) in our area. He had his patch far away from his house but they found it, ripped it all out which would be like pouring all my pills down the toilet. And THEN remember, it's sold in pharmacies. For that matter hospital pharmacies carry cocaine that is used in eye surgeries. I don't advocate street drugs though - AT ALL. I did try marijuana from a "friend" in my steamier younger days twice, recreationally, and the last time I went to the emergency room because I had this feeling if I didn't think about it I wouldn't breath and then I got this weird feeling no one could see me so of course - I was going to die because I wasn't going to breath and no one would see it! Turns out the marijuana was laced with PCP. I think that is called a "bad trip". Did you know there is a vast section on the internet where you can order marijuana seeds to grow at home (bet that made me popular with some)? Good grief are those expensive depending upon the quality you buy. I wonder if you wrote to these seed suppliers if they'd know the quantity of the two chemicals you mentioned? I wonder too if they'd lie (I'm a skeptic). Gretchen
gretchen1
On/Off Topic Elbert, this is kind of on and off the topic. It regards attitudes. I have a severely bad back condition - severe degenerative disc disease in all of my discs and until last spring when they surgically fractured them, I had two auto fusions in my lumbar spine that didn't fuse right - all to say - I had chronic and severe back pain. Throw a lot of drops in there and well....I'm sure you get the picture. Doctors do not like to prescribe pain pill, thank you DEA rules and regs. I'm a self professed expert on this. However I have gone to two pain clinics, received modalities as well as pain pills but can those suckers be expensive. The first clinic, long ago before OxyContin got a bad name, I was prescribed OxyContin, which was terrif. Worked. I regained my life. I got rebound headaches from it but not disabling, nagging though. The pinch was the price. For a month it was about $150/month. We moved and got ins. with Kaiser Permanente who had their own pharmacy which equates to you are going to be prescribed the cheapest drug possible for whatever you need it for and in the pain clinic class that was morphine. As an ex-hospise nurse I knew morphine's tolerance grows like a weed in humid hot weather, should never be used on a continuous basis as an outpatient. The addiction is tremendous and immediate. I protested loudly I was not going to take morphine daily and the answer was - it's morphine or nothing. So I got the morphine and used it as little as possible, which was really very little. I didn't know, until I found out the hard way, that the withdrawal ain't no picnic either but that was all that was available through Kaiser. Anyway at the first clinic where I was being robbed blind without ins. on OxyContin? I did some research and found out that Methadone is dirt cheap. Methadone is habituating but with the amount of pain I had i.e. no life, there has to be some trade offs. Methadone if you remember was originally synthisized for people getting off of heroin. The deal with Methadone is it doesn't give you a high like heroin. In fact you feel nothing at all as you would a normal narcotic. People who can't handle the withdrawal of heroin, which can be deadly, can be on Methadone for life. BUT heroin users didn't like it. No high, no fun. As it came to pass the use for Methadone was for pain relief. In fact a study showed that 90% of Methadone users were chronic pain patients. One 5 mg tablet, which is a small dose, is 5 cents. A lot cheaper than OxyContin. I asked my doctor if I could switch. He said sure but he wasn't familiar with it so he'd slowly take me up on Methadone and slowly take me down on OxyContin (which was giving me headaches and making me poor). The rub is when I took that Methadone script to the pharmacy? They laid an egg. Treated me like I was a heroine user, refused to fill it until they called my doctor who of course took all day to call back. Once they finally filled it they treated me like a criminal. Now that is a useful, effective drug, used mostly for chronic pain. NO pharmacist should pass their moral judgment on anyone. Okay - got that out of my system. The ending of this story is I moved before I got built up enough on it to see if it worked BTW. I'm just sick of people judging with such little information. I researched Methadone extensively before suggesting it to my doctor. We were using it in the hospital with end stage cancer patients - so why not as an outpatient? It is also a safer drug than OxyContin BTW. This judgmental thing. If we're going to judge? What about phenobarbitol? That's a barbiturate. The hardest pharmaceutical, except maybe Xanax, to withdraw from. So there. Gretchen
gretchen1

[...] which equates to you are going to be prescribed the cheapest drug possible for whatever you need it for and in the pain clinic [...] Good news. Thanks.

neworl...

I don't really trust pain pills and medics now why they should avoid presicribing them. Prescriptions drug addiction is as dangerous as any other addiction because they are hard to control specially if the pacient gets residential treatment. This was my mothers' case, she became addicted to opiates and she had to go through a hard strugle to get rid of it risking her health.

gordman

Actually, there has never been an adverse side effect in human studies. It was only in studies on rats that the THC brought on seizures. It has also been noted that the potential of marijuana working increases when the entire plant is ingested, not just certain compounds (such as THC or CBD) which is what is normally done in the studies.

Zeke
gretchen, neither do I condone it either but in the home remedies book I have it says in the 1800s marijauna is how epilepsy was treated.As for me,I remember being ateen and messing with it and it actually gave me paranoria and mild seizures.So I personally woundnt use it as treament anymore,terrij
terrij

I think it really depends on the person don't you agree ? I know people who have been taking medicinal marijuana for years without problems.
narconon

mola4ever
Oh my gosh, I also had very bad experiences with brief use of marijuana and mild seizures. I would advise strongly against it. camin
camin

I heard many disputes related to medical use for marijuana. To be honest with you I don't really agree with its use this way or in any other way. Marijuana is a drug that can easily create addiction and I know what addiction means, I just passed through a methadone detox not long ago and in my experience it's better to keep such drugs as far as possible.

gordman

I am twenty years old and had two surgeries when i was 13 for a tumor but it didnt stop. i have gone through many different meds but i found that Erb is the best. and i am not a novice smoker, I will/would smoke on average
2-3 WEEKS on end( wake and bakes,doobie snacks, bowls, bongs, zongs, chillams, one jammers, radiators, blunts Glass and paper and steam rollers) with a day or two in between . (mostly in the winter when there isnt much to do) But i have found that it works the best for immediate treatment , in "MY" opinion i believe it is everyones reaction and the kind of weed because trust me it is very different in all the forms that it comes in because of the THC. For the reaction part i have met a large amount of people that get paranoia that leads to panic attacks and so on. and others it makes them very incoherent and quit frankly stupid, for me i really havn't seen a negative effect and i have been doing it since i was 17 NON-STOP. now when it comes to the different kinds..... you can get the higher (more expensive) type I.E. Dank, Crystal, Sticky, red hairs, Frost, northern lights, raspberry cough, BUDS and so on. the reason for the THC level is the way that it is grown (i don't but hear the tricks) When it is grown inside under constant light with chemicals to enhance the THC level, it has a much higher effect with the least amount consumed. then with the stuff that is grown outside in the yard I.E. Ditch, Skunk, Mids (middle of the stem of the plant, both the good and bad kind have it) and so on; contain a much lower level of THC because they dont contain any forms of buds or hairs unlike the others so they have a much different effect and it takes a considerably larger amount to get you as high as the good kind
. so remember its the person and the kind so do not judge unless you have experienced it all.

SmileKyle

In the last month I have smoked marijuana occasionally about 15 times and nothing bad happened. Im on seizure medication but havent had a serious seizure in almost 4 years. However if I were to go off the meds I definitely would have one. They use to mostly happen at night while I slept. I found that marijuana just calmed me down and made me laugh. The other day I was put on Septra in order to treat a bladder infection. I felt all day like I was gonna have one but I ignored my jumpy wired syptoms and smoked anyway. I immediately had my heart start racing and went into having partial seizures. I had smoked the same weed a couple days before I was on the antibiotic and I was FINE like normal. It turns out the side effects of Septra are seizures, hallucinations, and nervousness. I wanna believe Septra was just a bad combo in my system because Im a seizure patient and the weed just pushed it over the edge!! But now Im worried that when I am antibiotic free and I smoke again like normal I may have another seizure. I like the effects marijuana usually provides but now im scared! I believe it was just the antibiotic and I might of had one anyway but now Im just doubting my decision to smoke!! When I normally smoke I never have become super paranoid or anything. The doctor apparently didn't know the side effects of Septra was seizures and he was giving this to someone on seizure meds

 Wouldnt I have known already if marijuana was going to adversely effect me under normal conditions???

califo...

Gordman Good to hear you made it through detox Congrats.  I have to use MJ to control my sezuires and my doctor knows this as well. Many may not agree but we should all support the right for other to use it if it helps people with their epilepsy. I know I can function a whole lot better by smoking a few times a day than not. As prescription pills go we never know about them anymore? What pill will be pulled off the shelf next time cause it eats your liver up??

 You may not agree with it and that's your right but it really does help us honestly.......x

xgi

[...] I have to use MJ to control my sezuires and my doctor knows this as well. Many may not agree but we should all support the right for other to use it if it helps people with their epilepsy. [...]

COMPHA...

I know of people who have found help with MJ...I think the problem is that since it's also a popular recreational drug it's very difficult to strike a balance and only use it when it's medically justified. having said that, I'm in no position to pass judgement on anyone who is suffering from illness - if you find it helpful then that's that. I was reading an article from a drug treatment center and they said it's getting more and more common that people check in for marijuana addiction

stubru...