For some reason I have been getting really bad head aches just out of the blue. do you think it could have anything to due with me taking lamictal, or maybe related to have epilepsy? I would really appriciate any responses!! thanks!-Aly
By aly_m at Sun, 06/05/2005 - 3:15pm | 1877 views | 13 comments
Hi Ali,
and all others who are interested in this subject. I have been taking Lamictal for a year and a half. I have had unusual vision and blurriness. Light sensitivity immediately was so big. It was painful without sunglasses. Also, I couldn't read without getting headaches in this one spot behind my right eye. That's the spot where I always have the headache. Now I wear magnifiers so my eyes don't work as hard when accommodating to close things.
I went to a Epilepsy Foundation Support Group 2 weeks ago. Two of the other people there had terrible migraines. They are on Lamictal also. One girl only takes a small amount of Lamictal but she still had to get glasses for far away vision blurriness. The little boy has to take migraine medicine everyday. Their doctors said it was because of the Lamictal. I thought that was interesting, because I had never heard of it.
I take 800 mg of Lamictal a day, with Clonazepam and birth control to try to control my seizures.
I just had two terrible migraines in the past two weeks. One lasted 3 days, and one lasted 2 days. I said migraine because I only know it to be in one spot, where there is all the pain, I have strange light and vision changes before it, and if I was not in my room in bed with no light, I had way more pain. I also had to treat them with strong pain meds and almost go to the Emergency Room.
I am saying all of these different things because it helped me to know that other people had doctors who told them that their headaches were migraines, not just normal headaches and that it was related to Lamictal. So, when I had mine these past 2 times, I kind of knew what it was. I was also very stressed. The headaches were much worse than they have ever been. I talked to my epileptologist's NP today and she said that there is something called Lamictal Headaches, when I told her I had 2 migraines.
I will learn more, that is why I am looking up Lamictal and headaches to see the types of headaches that go along with Lamictal usually.
I have taken Lamictal for about 2 and a half years and, as my dose increased to stop seizures (complex partial temporal lobe), I began to get headaches. They are always on the left temple, start off a dull ache and then become more and more unbearable. Once I get one, it seems to take ages to go. Is this similar to what you get? It's good to hear other people get them too cos I was worried for a while. I read up about it, and apparently headaches are a common side effect. What dose are you on?
I started Lamictal recently and have not noticed problems yet. I have noticed that I moreso feel like eating on Lamictal as opposed to being on Dilantin. I was on a high dose of Dilantin, and it made me sick to my stomach and I was not eating right. Dilantin, food and I don't get along.
Hi Aly,You know, I've always had a lot of headaches and through all of the medicines, they seem to fluctuate in intensity and frequency. However, now I am on lamictal and they seem to be more frequent...so I'm not sure if it is a lamictal thing or an E thing or just a Toni's got a lot of headaches thing...I can appreciate how frustrating it is to have so many headaches and feel like you are taking tylenol, advil and asprin all day to get rid of them! I have found that for me, some caffeine seems to help--I had stopped drinking caffeine for the longest time but now it seems that I have to have it to balance the med.Also, my dr. prescribed a migrane medicine that also works when they get out of control...good luck, Toni
I have a headache pretty much everday, doc says its most likely the lamictal. Two things though, the daily headache is a piece of cake to handle compared to my migraines ( which seem to come with my other pms symptoms which also include increased sz activity),,the other thing is that the lamictal stopped my grand mal's , so I mean come on lol , hmm...headache or sz... Anyway ya its probably either stress or lamictal, but if they get to be very frequent or hard to handle u may want to get an MRI done just to be safe.
jinx1331xnij (not verified)
By jinx1331xnij (not verified) on Tue, 06/07/2005 - 7:33am
Hi. I'm curious. Not currently taking any AEDs, but I would like to know if "head aches" are related to E? Do the two ever go hand in hand? For the past 2 weeks I have been having more head aches along with seizures. Does anyone know if they are connected? Thanks. Linda.
hey aly im also on lamictal and to others ive been on mine for 4 years now and yet all of a sudden i got a intense heache out of the blue and its been with me for five weeks now ive never had it before and ive tried everything i can think of. i think the headahces could be linked but i can garentee that for each persons story go see your doc if it isnt going away, im doing that.
The headaches you're having are one of the common side effects for people taking lamictal. I, myself, have been on lamictal since September 1997, but never recall having headaches, or other side effects, thinking they were connected to this medication. Basically just felt and looked at the problems as ordinary everyday life.
For the two websites I've displayed below, the first one is the introduction page for Lamictal, but the second is one of the many other informations pertaining to lamictal. Hope they help.
Thanks for the info Bruce! I have been on Lamictal for a pretty long time, and only now have these stupid head aches started, so I think it probably due to stress more than medication. Thanks again for those informative links!
Not affected myself (I take Lamictal/Lamotrigine, sometimes causing problems with sleep) but some lit I have describes a survey of 1100 patients taking L , a test which included some taking placebos, suggesting that headaches are the second most common side-effect (29 %), after dizziness(38%).
Lamictal helps me to sleep like a log. I was getting dizzy when I first started taking it, but my Neuro mis-judged my weight (So he says). Now, I'm eating good, and sleeping maybe too much.
Recent Comments on this Discussion
Hi Ali,
and all others who are interested in this subject. I have been taking Lamictal for a year and a half. I have had unusual vision and blurriness. Light sensitivity immediately was so big. It was painful without sunglasses. Also, I couldn't read without getting headaches in this one spot behind my right eye. That's the spot where I always have the headache. Now I wear magnifiers so my eyes don't work as hard when accommodating to close things.
I went to a Epilepsy Foundation Support Group 2 weeks ago. Two of the other people there had terrible migraines. They are on Lamictal also. One girl only takes a small amount of Lamictal but she still had to get glasses for far away vision blurriness. The little boy has to take migraine medicine everyday. Their doctors said it was because of the Lamictal. I thought that was interesting, because I had never heard of it.
I take 800 mg of Lamictal a day, with Clonazepam and birth control to try to control my seizures.
I just had two terrible migraines in the past two weeks. One lasted 3 days, and one lasted 2 days. I said migraine because I only know it to be in one spot, where there is all the pain, I have strange light and vision changes before it, and if I was not in my room in bed with no light, I had way more pain. I also had to treat them with strong pain meds and almost go to the Emergency Room.
I am saying all of these different things because it helped me to know that other people had doctors who told them that their headaches were migraines, not just normal headaches and that it was related to Lamictal. So, when I had mine these past 2 times, I kind of knew what it was. I was also very stressed. The headaches were much worse than they have ever been. I talked to my epileptologist's NP today and she said that there is something called Lamictal Headaches, when I told her I had 2 migraines.
I will learn more, that is why I am looking up Lamictal and headaches to see the types of headaches that go along with Lamictal usually.
Thanks, hope this info. helps also.
Ariel
Here is some more information on migraines. It may be a combination of the medication that may be causing migraines. Hope this helps.
http://migraines-headaches.org/
Hi aly,
I have taken Lamictal for about 2 and a half years and, as my dose increased to stop seizures (complex partial temporal lobe), I began to get headaches. They are always on the left temple, start off a dull ache and then become more and more unbearable. Once I get one, it seems to take ages to go. Is this similar to what you get? It's good to hear other people get them too cos I was worried for a while. I read up about it, and apparently headaches are a common side effect. What dose are you on?
Ali
I started Lamictal recently and have not noticed problems yet. I have noticed that I moreso feel like eating on Lamictal as opposed to being on Dilantin. I was on a high dose of Dilantin, and it made me sick to my stomach and I was not eating right. Dilantin, food and I don't get along.
hey aly im also on lamictal and to others ive been on mine for 4 years now and yet all of a sudden i got a intense heache out of the blue and its been with me for five weeks now ive never had it before and ive tried everything i can think of. i think the headahces could be linked but i can garentee that for each persons story go see your doc if it isnt going away, im doing that.
Aly,
The headaches you're having are one of the common side effects for people taking lamictal. I, myself, have been on lamictal since September 1997, but never recall having headaches, or other side effects, thinking they were connected to this medication. Basically just felt and looked at the problems as ordinary everyday life.
For the two websites I've displayed below, the first one is the introduction page for Lamictal, but the second is one of the many other informations pertaining to lamictal. Hope they help.
www.epilepsy.com/medications/b_lamictal_intro.html
www.epilepsy.com/medications/b_lamictal_side.html
Bruce J
Not affected myself (I take Lamictal/Lamotrigine, sometimes causing problems with sleep) but some lit I have describes a survey of 1100 patients taking L , a test which included some taking placebos, suggesting that headaches are the second most common side-effect (29 %), after dizziness(38%).
Chris
Lamictal helps me to sleep like a log. I was getting dizzy when I first started taking it, but my Neuro mis-judged my weight (So he says). Now, I'm eating good, and sleeping maybe too much.