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Sex drive and seizure medications

Hello everyone,I was wondering if ANYONE has advice on what to do about the loss of sex drive from these dammed seizure meds.I am 44, have had a hysterectomy and on Carbitrol.  I have NO sex drive at all.  Does anyone have advice????Please help!Diana

Comments

RE: Sex drive and seizure medications

It's strange, but I feel like my sex drive is coming back since I started on Trileptal in Jan.  (This is my first anti-seizure medication, so I don't know if it's specific to this medication).I wish I knew what to tell you.  I went for several years with zero sex drive, and I just endured it because my husband is so wonderful. 

RE: RE: Sex drive and seizure medications

thank you for responding.  I am very happy for you!!  My husband is a saint as well, but I miss sex :-(

RE: RE: RE: Sex drive and seizure medications

If your interested in changing meds, I would try Lamictal.  That one shot my sex drive way up! But, your right the rest of them Kill the sex thing.  keppra was the worst for me.E

Lamictal

Please do explain, if nothing else, mine has been the worst on Lamictal.

Re: Lamictal

Hi Everyone!

 

This is my first time posting but I've been trying to read alot about this issue.  I am having the same issues as what I've been reading. (and maybe some others)  I can get sexually arroused, but sex just doesn't last long at all.  Barely five minutes! (If I'm lucky.)  I feel very sensitive during sex and have an orgasm almost right away.  After that I'm spent for the night. :(  My girlfriend is very frustrated with it and so am I.  My seizures aren't stopping; I have at least 3 a night.  On top of that, our sex life is terrible. My hair is thinning too, and I read that Depakote could cause that, though I'm sure it's just genetics LOL.

 

I'm currently taking Divalproex (Depakot), Carbamazepine (Tegretol XR), and Lamotrigine

 

Could any of these medications be at the root of my sexual issues?

Re: RE: RE: RE: RE: Sex drive and seizure medications

It is weird I am reading over and over how tegretol lowers the sex drive...I have been taking that stuff for close to 18 years. Of course when I was 18 the age I am supposed to be peaking I had no care or interest for girls. 21 it started coming around a bit, and I am now 31, every year my sex drive just gets stronger and stronger.  To the point now where I need to relieve myself 3-5x a day.

They say a guys sex drive should be diminishing by now and here I am like a horny 18 yr old. I am curious if the tegretol has a role in all this.

 

Andrew

Re: RE: RE: RE: RE: Sex drive and seizure medications

Hi Andrew,

With epilepsy, that's probably a bad sign neurologically. Many sources regard sensations and orgasm
to be pleasant seizures, with the ease of frequency as a sign of lower threshold for that type of
seizure. A few journal articles cite it as mainly a rare condition most common in women and almost
unheard of in men. One article cited epileptic orgasm triggered by strobing lights, and the excess
voluntary induction that was otherwise medically intractable.

As many forms of epilepsy greatly reduce sex drive, as do AEDs, an increase to a level still low but
nearer normal is regarded as the AED being more effective with the epilepsy than damaging to the sex
drive, which is still unusual as a win-win situation, but much much more frequent than hyper-orgasmic
seizures.

Re: RE: RE: RE: Sex drive and seizure medications

hi Petunia, I saw your entry tonight and noticed when you said "Keppra was the worst for me". I just started taking Keppra and am lacking sexual drive that I once had in abundance. Any further details on how Keppra affected you in this way???

Re: RE: RE: RE: Sex drive and seizure medications

I was on Depakote starting at 15.  I'm now 31 and switched over to Keppra almost a year ago (after a very short stint with Lamictal).  I had very little sex drive with Depakote and practically none on Keppra.  It's getting to the point where my husband is feeling very upset and losing patience with me.  I feel bad for him, but wish he could be more understanding.  Any suggestions to turn this around would be greatly appreciated.  I've had such great results on the seizures with the Keppra and would hate to switch meds again, but I don't see very many options for me.

RE: Sex drive and seizure medications

Hi there, Just replying I am on Tegretol and have had a hysterectomy also. Maybe its because I will be 50 in a couple of months too but sex is not my thing for the moment but I wish it was. I think it is a mixture of all the above and it is bery frustrating. I wish I was wanting it rather just going through the motions.

RE: RE: drive and seizure medications

I am so glad I'm not the only one "just going through the motions". It's frustrating for me and my husband. It's been that way since I was started on Lamictal. Grrrrr!- Ladybug

RE: Sex drive and seizure medications

I am working with a bio identical pharmicist and she is supply progesterone to help. But I am not getting results yet. I am sure mine is from having epilepsy for 35 years and taking the meds. I take trileptal and I dont think that helps with the sex drive at all.Lisahttp://health.groups.yahoo.com/group/EpilepsyApproach/

Re: RE: Sex drive and seizure medications

I take trileptal as well, for 5 years now, and tried the pill in 2003, got pregnant after a violent reaction to the pill, had healthy sexual appetites, even after giving birth, but now, since having my son in 2004, I've had a total of 3, count em 3 periods!! The last one I had was 9 months ago!! I know that trileptal messes with the estogen/progesterone balance, but man!! This is one reason why I just don't feel much passion anymore, cuz I don't feel entirely like a woman! I'd like to have another kid too, before I get too old! I'm already 32!

RE: Sex drive and seizure medications

I just wanted to tell you the same is true from the male side. One real bad thing, I take something for high blood presure so they say you should not take Viagra or a similar product. If anyone ever hearsof a product that is O.K. please let me know.

Re: RE: Sex drive and seizure medications

   I've had seizures since i was 5. I've already taken taking Phenobarbital,Dilantin,Topomax,Tegretol and Depakote for my seizures in the past. I started taking Felbatol since it first came out to the market. No other medication has controlled me better than Felbatol. I only have partial seizures if i stay up too late watching TV. Sometimes if i forget to take the medicine.Even sometimes if I get too angry.Other than that it has done a great job.I just started taking Amlodipine for my high blood pressure, cause my doctor recommended.  My age is 40, I try to live life my fullest. I still lift weights,ride my bike,play sports,go running sometimes + much more. Still today, im sometimes sky high horny. I get an erection in the morning & whenever a woman gets close too close to me. Plus, i still  have a desire to be with a woman and treat her like a queen.  

                                                                                                              Yours Truly,

                                                                                                                Martin

                                                                   

RE: RE: Sex drive and seizure medications

I just forgot to ask for a responce to be sent to me.

Re: RE: Sex drive and seizure medications

Hi, I wanted to let you know that some people take both blood pressure medication and also can take Viagra. I am 53 and I have a "boyfriend" who is 80 and very healthy other than his high blood pressure. He had heart surgery about 20 years ago, also. We have been having sex for 2 years with the help of Viagra and his doctor says that he can take it even though he takes 2 or 3 blood pressure medications. It hasn't caused any problems, but he only uses it about 2 times a week. Sometimes he doesn't need it. See if your doctor will look over your medical history and possibly let you have a try at taking it, even if he only gives you 2 or 3 pills a month to start, it will help your sex life. Even a half of a pill will help enough sometimes. Good luck.

Re: RE: Sex drive and seizure medications

Try the following OTC's. They have helped me.
L-Arginine, Vitamin E, Saw Palmetto, Vitamin World's Viper (There is another similar OTC called Cobra.)

Re: RE: Sex drive and seizure medications

I regularly take the saw palmetto along with some vitamin B's actually the B's are really high in mg, % wise it's around 1500+% daily value i feel fine no crazy amounts of energy but an all around good energetic feeling. One thing i hate about all the herbs and vitamins are the costs from the local stores they charge such a crazy price. I started getting discount vitamins online as well as my herbs and saving about half of what i paid at my local shops.

RE: Sex drive and seizure medications

hi,i have been having seizures since i was ten now im 35.. and unfortunally you are right, this type of med are not good for sex, you have no desire, i have try hormons , but that dosent work either... the doctor told that the best thing to do  is learn to live like that and enjoy the little moment you have desire.. im taking lamictal and pheno...buy before that i was in keppra lamictal and pheno ... sex wise there was no doferrent for me... but i have a question any of you have lack of sleep at night ? good luck joa

Re: RE: Sex drive and seizure medications

hi joa.

my names mel and like u i have a very low sex drive and its driving me crazy, i get so disapointed that i can not orgasm anymore or even get slightly interested in sex with my partner. he says he understands but its just not fair on him or me. we have tried loads of foreplay etc , but nothing works. and when he eventually does have sex with me im in so much pain at times i cry and want it to be over. my gp says this is normal! is it?

and i am having the same problem with u with sleep at night. im lucky to get 4 hrs at the most. i can sleep in the day just not night. i have told my neuro and he now thinks its an underlying problem i have and wants me to see a phycatrist, and get sleeping pills! there has to be a reasonable explaination so please if u have found out anymore it would be most helpful.

hope things are working out for you finally.

cheers mel

RE: Sex drive and seizure medications

Diana - I was reading the board with my wife, and she thinks it may be the hysreectomy that may be causing this. That is HER opinon, she is not a MD, so this may not be true. She is wonding if you are on nay hormones? I know this sound crazy from a guy, and we are not being nosy. I do repect your privacy, and if you want you can send your reply via email to me.Thanks.Erik & Jennifer - 06-29-03

RE: RE: Sex drive and seizure medications

My doc was shocked, but lamictal did wonders after getting off dialantin.

RE: Sex drive and seizure medications

Hi, Thought I'd share a few resources since this is an area that's often not talked about! While some AEDS may affect sex drive, other medical problems or medications can too. Also the problems could be related to the effect that seizure discharges, or underlying disruptions in the brain, are having on key areas involved with hormones and sexual function. If changes in sex drive or function occur, it's a good idea to raise it with your doctor, both neurologist and gynecologist, to see if testing could be helpful to sort it out. For more information, look at the women's issues in this site, or the Women and Epilepsy Fact Sheets from the Epilepsy Foundation. There is also a pretty comprehensive book for women with epilepsy, titled, "Women with Epilepsy: A Handbook of Health and Treatment Issues", published by Cambridge University Press. I hope you find some helpful information there. pattyann

RE: RE: Sex drive and seizure medications

Thank you for the helpful information Patty Ann

RE: Sex drive and seizure medications

Hi, Thought I'd share a few resources since this is an area that's often not talked about! While some AEDS may affect sex drive, other medical problems or medications can too. Also the problems could be related to the effect that seizure discharges, or underlying disruptions in the brain, are having on key areas involved with hormones and sexual function. If changes in sex drive or function occur, it's a good idea to raise it with your doctor, both neurologist and gynecologist, to see if testing could be helpful to sort it out. For more information, look at the women's issues in this site, or the Women and Epilepsy Fact Sheets from the Epilepsy Foundation. There is also a pretty comprehensive book for women with epilepsy, titled, "Women with Epilepsy: A Handbook of Health and Treatment Issues", published by Cambridge University Press. I hope you find some helpful information there. pattyann

RE: Sex drive and seizure medications

Sex-drive...does reverse count?classy1

RE: RE: Sex drive and seizure medications

   I vote reverse counts. My sex drive drove off a long time ago.    When I was on dilantin and clonopin, the sex drive was in full gear. But it didn't control my seizures.After I was switched to Depakote and Tegretol, they brought my seizure activity down, my appetite up and the good ol sex drive gone...and I feel like I've been robbed. Good ol E merri-go-round. Whaddyado?-Spiz 

Re: RE: RE: Sex drive and seizure medications

I am  40 yrs old , my seizures started when I was 15  and was  put on Dilatin and Tegretol and had no problem with my sex drive, My seizures started back regularly when I was 32 and I was taken from Tegertol and Kppra was added,my seizures stopped and so did my erections. I was told not to use no kind of meds for the sex drive but to use a cock ring. As of today I am still using one and I have no problems with erections ,sex drive, or ejaculations.Hope this helps you out.

Thanks,

Rescue

RE: RE: RE: Sex drive and seizure medications

Spiz,My sex drive crashed prior to starting these lovely meds, and guess who was the crash dummy?..lol Now, that I'm on the meds, and menopause has set in, with the lovely hot flashes, I dont know if I'm coming or going! Hell, my hub bought me something last month...I asked him what that was for (can't remember what it was), and he said, cause I gave it up twice in a week! Uhhh...that was news to me!...lmao Maybe I was asleep?...geeesh...so much for short-term memory loss. I just hope that I enjoyed it as much as he did!Keep safe...and happy?classy1

RE: RE: RE: RE: Sex drive and seizure medications

LMAO!!!!  I have missed you Classy!  I got roses last week and couldn't figure it out either.   Oh don't ya just LOVE those Hot flashes?  Blanket on, blanket off, blanket on the floor.  

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  And here I thought he was making that up!!! The fact that I was memorable tells me one thing and the fact that he wasn't tells me another.     Flowers?!  I didn't get flowers! You wait!-Spiz

RE: RE: RE: RE: RE: RE: Sex drive and seizure medications

Flowers? Did I get flowers? Chyt...I can't remember...lmao As long as we can laugh about it, it keeps us sane, right? The hell with the real world, if they don't get it...*winks* I stopped explaining myself, and simply say, I'm firing on 2 brain cells..lolhuggsss,classy

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Hey All,I am on Carbatrol and Depakote, and sad to say i have no damn sex drive. Hell the worst part is that coming up in OCT 31st is 1 year anerversery I WANT SEX LOL :)Joe..

RE: Sex drive and seizure medications

Diana,  I recently found information on an online health tips website or newsletter (maybe Dr Weil or WebMD) that told me that someone has recently found that taking a garlic supplement is quite helpful toward sex drive. I'm a 40-year-old man, and it seems like my daily supplements of garlic might be the herb that gives me sufficient sex drive.  Another thing I learned some time last year about garlic is that it not only maintains great control of cholesterol levels and helps normalize blood pressure, but also has been found to be quite helpful toward seizure control.  You might want to give it a try.David

Sex Drive

 

Hi David,

 

I hope this works for me because I feel bad for my husband.  We had never had this problem until I was switched to Lamictal...  I turned 40 but it's suppose to be your prime and I've had the opposite. 

I'm going to buy that tonight and God I hope it works.  Thanks for the info....

Re: RE: Sex drive and seizure medications

What are the mg that you're taking? I don't have seizure's...I'm Bipolar and on Lamictal .....my sex drive is "gone"  Thanks for any info..Mig54

Re: Re: Sex drive and seizure medications

Sex? Whats sex?

Thats what Keppra does for my bf.

Re: Re: Re: Sex drive and seizure medications

Sex, who said sex? What does that mean? LOL. I am on Carbatrol and Topamax and have absolutely NO sex drive. I am 35 and shoud be at my PRIME right now, but sure don't feel like it!!

meds.. and sex

um hum... this is the way it is ... could be more than meds. Are you in love do u feel 16 again ?? .. if not go out on a date spice it up even if you dont want 2 dont be so fast 2 give up... sex is good 4 you will keep you young and yes I said it SEX is AWESOME .. dont turn it into a job..... worse things could happen .. you need 2 wake up live life to 2 the max .. never stop loven its a must in life

Re: Sex drive and seizure medications

I don't know what is the word "sex" in generally.

I remember, something being many years ago... LOL

____

mobile home loans

Re: Re: Re: Re: Sex drive and seizure medications

My husband is 33.He was on Phenytoin and Keppra. Now he is on Keppra and Tegretol retard and he has no sex drive at all. Not any kind of "feeling".
Im just getting used to live like that....nothing much i can do.

Any suggestion how to help him?

Smile :)

Re: Sex drive and seizure medications

My dr. recommeded DHEA to help with my sex drive. I got some from the pharmacy and it worked a little. Then I got some from my naturopathic dr. It's more pure and doesn't have as many fillers. This works better.

Re: Sex drive and seizure medications

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

I am 41  years old and no I do not have sex, I make love to my husband. We have 2 perfect girls, ages 15 and 6, they were both natural. (well there as perfect as far as having all there fingers and toes they still act like kids)

But I taken all the AED's on the market but one and it causes alot of kidney problems, there is a new med. that my doc. was telling me about, that they have not put on the market yet.

 

 

 

 

 

 

Re: Sex drive and seizure medications

Hi Diana,

I am 32 and on Keppra and I certainly had a dramatic decrease in drive since I began these meds a year ago. I have just recently switched to Zonegran (the Keppra made me excessively fatigued and didn't control my seizures), so I'll see what it has in store. My neuro said there are options like adding in an antidepressant if I still experience the loss of sex drive. I'd suggest talking to your doc for options.

Good luck!

C

Re: Sex drive and seizure medications

Wow. . .

Just read through all these posts and that was my response...Wow. Really? As if we don't deal with enough other side effects to throw this in the picture as well.

Do ALL Epilepsy meds seem to cause these problems? I mean, I know we are all effected differently but I am curious as to if they all have the same dumb side effect?  I currently take Tegretol XR, Keppra, and Vimpat. All 3 are very high doses and seizures are still uncontrolled. It seems to me that most of your doctors think you are making it up or something??? I mean, what the heck?! I think I might be struggling with this myself...but am not sure just yet...sometimes I think its just nerves.

Is there anywhere I can find some info on this as far as Tegretol, Keppra, and Vimpat are concerned?

Thanks!!

Re: Sex drive and seizure medications

I was just trying to come up with answers for the same thing. I have been on Keppra (200mg/day) and Lamictal (500mg/day) for about 4 years. I didnt know what my problem was. I thought it was cuz I've been kind of depressed lately since I lost my job. But I am only 25, am actually getting married TOMORROW, and have almost no sex drive. We still have sex, but usually I just want it to be over with right after it starts. Does anyone know what can be done about this?

Re: Sex drive and seizure medications

I AM EXACTLY THE SAME!  I have much higher dosage than you though but I have the same problem.  I am 21 and it takes me a while to have a sex drive and my body can't produce something I won't say since it may offend you.  I hate it though! 

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