We're new here, but since I've been searching around tonight... I've found that more than 2 seizures puts one in the category of epilepsy. So, here's hoping that someone can enlighten us. Elizabeth is now 2 1/2. She has a very unusual karyotype with lots of chromosomal rings. She was diagnosed with Turner Syndrome through Peds. Neurology after they explored a reason for her developmental delays.
Anyway, on to the seizures. Feb. 2004, she had a couple of absence ones lasting about 15 seconds or so. Oct. 2004, she had two big seizures - one lasted 30 minutes, the other 4 hours later lasted 20 minutes. We were on the way to the ER and the first one stopped, so we went back home. The second one, my hubby took her in (I had my GS troop sleeping over) and they did a CAT scan - normal. No EEG person was on duty (Columbus Day weekend). These were both a bilateral rhythmic jerking at the elbows & knees - like one of those wooden puppets when you pull the string. She never got stiff & jerked. She only fell asleep after the second one because it was almost midnight & she was going for a car ride. She did make some kind of sound & it looked like she was trying to stop herself. She had another absence two weeks after this. Nothing since until last night - Mar. 05. She was going to sleep after a long day - just after midnight - & she started twitching. This one lasted about 15 minutes. She would put her arms out partway & they would jerk. All these jerks (in Oct. & last night) were once with just 3-5 seconds between them. Her legs didn't move as much as the ones in Oct. She could tell us her name & smile during last nights. We taped her.
Her neurologist had us get Diastat after the Oct. ones to have on hand. We didn't use it. He mentioned if she had another one, that he would put her on meds. 'for years'. She is also supposed to be getting on growth hormone for years through Endocrinology. I'm scared to tell Peds. Neuro. about the one last night. Does this sound familiar to anyone? Does she need to be on meds. if they are 6-7 months apart? Any advice please? Is this epileptic behavior?
Lori, mama to Elizabeth