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Hi There,

I am very, very slowly coming off my Keppra (my doctor said to do it over 6 months, I am doing it over 12)

In the last week, I have noticed that I have had more problems from a work perspective in that I am getting the most basic things wrong. I have always encountered problems at the place that I work, and now find that whenever I make a mistake my manager reports it to his manager and I am not sure why they are doing that.

I don't know if I am having absence seizures as I work from home, but don't believe I am.

i take 300mg of dilantin a day have been seizure free for 14 years

but recently i have been worried about seizures obsessivly and making myself dizzy and sick

my levels for 14 years have always been low like 4.7 and 3.7

my last ER visit 3 days ago they were 2.5

today my DR upped my dose to 400mg a day

he said it would also help with the obssive thinking

anyone heard of this or think its a good a good idea

 

also what causes my dilantin level too keep dropping

Hi, my daughter had a seizure back on November. Her back arched her eyes glazed over and she was making a strange repetitive sound this went on for about 10 min then she went limp and started twitching on her left side. First just her cheek but then her whole arm and shoulder. That went on for about 5 more min by this time we were in th ER being examined. Since then she has had nothing like that. We have been to a neurologist and she had an EEG done.

A few months ago, my daughter, 19 months, began having staring spells.  Our pediatrician referred us to pediatric neurologist, who order a short EEG.  Today, she told me that the EEG looked normal; however, based upon the information we had given her, she felt that our daughter was having absense seizures.  We are having a 3 day EEG done in a few weeks and an MRI.  She is also going to begin taking Keppra twice a day (small dosage). 

Hi everyone! I am at thePipelineconference in SanFrancisco. Great speakers talking about what's needed to speed up progress for new treatments. The I'll come into chat tonight for ask epi andfill you in


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