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birdwingblue

epilepsy and "rage episodes"

hello,I'm wondering if anyone has any input or experience with this. My brother has epilepsy diagnosed in his early 20's. Seizures are mostly controlled by medication. However, he has episodes of extreme, nearly violent rage where he seems out of control and screams at people in a way that is pretty scary. I have always noticed that he has what we called a "bad temper" but really it was always alot more than that. Now though, these episodes are becoming more frequent. (3-4 times weekly)We are wondering if this has anything to do with his epilepsy. The episodes are so extreme that it seems not right. He screams and throws things though he has not been physically violent. If anyone has any input it would be great to hear. Does this sound at all familiar to anyone else?Thanks.

Comments

RE: epilepsy and "rage episodes"

what med is he ? and do you think it could be a mood diorder I have a son that is very moody and would go into rages but with his seizure med lamictal this has helped that we are trying to see if his rages are bipolar or seizure related.

RE: RE: epilepsy and "rage episodes"

i can relate. im not physically violent or throw things but i have so much rage. i scream and yell and pick fights for the most stupid reasons and i cant controll it, it just comes out. I feel like a bad person but i do believe its the medication or just the epilepsy in general. but ive never been liek this until i turned 18. ive been on lamictol for the p[ast 5 years or so and this has just come up in the past year year and a half or so. i have so much rage and anger i just cry. and it really sucks but im in the same boat. i have no reason what so ever to be angry so it muyst be an effect of the medication in my opinion.

RE: RE: RE: epilepsy and "rage episodes"

NANCY? thank you for posting that information! That was new to me, helpful and data I want to add to my storage banks. One of my 9 daughters has Bipolar II. She also has self mutillating OCD (currently controlled) and ADD. She no longer self mutilates. I know as bad as that sounds, and is? She could no more help it than I can stop sz'ing. My husband was diagnosed this year with Bipolar III. My daughter was diagnosed in her junior year in HS, she is now 24. Anyway we had a horrible time with all of her diagnoses finding medication for all these things that didn't intercat or even would work for her. This one incident INFURIATED me. After it happened we were told by a prescribing psychiatrist that a definitive test for Bipolar is a paradoxical reaction to Prozac. My daughter took ONE Prozac capsule? She became violent, she attacked me, like a wild lion. Talons out, biting, kicking and I had to wrestle her to the floor, call an ambulance for help, she was hospitalized for 3 days and THEN I'm told - well she definitely has bipolar because the Prozac trial with such a strong paradoxical reaction proved it. I was furious. To do that to a child? We weren't warned? I've always been one to look up anything that any of us put in any of our mouths. I hadn't read anything like that about Prozac, but I have since been told the same by other psychiatrists.NANCY - Can I ask you a big favor. I think this is VERY important. I'm trying to find your email address too again BTW. Could you post the difference between extreme anger and rage? There is a huge difference. But I don't have your knowledge and abilities to explain that and I think it important in this discussion. I will say this for my explanation anyway: extreme anger means I do know how I feel, I am aware of what I'm saying, I remember it afterwards. Anger for me is borne of something that has some sort of logical base. Rage? For me it's nonsensical. No one can rationalize with me and the best anyone can do for me, for themselves is to get clear away for me, for me and for them. I can't be rationalized with, talked down or anything close. Rage for me needs to sputter out with as little stimulus as possible.In the last couple of months? My husband has been on several medicines for Bipolar III? A tentative diagnosis. He has attacked me repeatedly, verbally in such a malicious way, yelling so loudly, he's had the sheriff called - twice and not by me, others who have heard and seen him and are afraid forme. I am always his target. No one at work, not neighbors, no one - but me. He went off all medications last week. He said he felt like he was going crackers and I thought, under my breath, he could have asked me. YES, he was definitely going crackers but so was I. When someone is yelling and yelling in my face, saying damaging things, and it's provoked easily and horribly painful things are said and then you're told or you find out it's because of medicines or mood disorder or epilepsy or whatever? But you've been the victim? I'm still raw I guess with open sores but my feeling was through these tirades - WHO CARES KNOCK IT OFF! On the other hand? I've had rage seizures diagnosed - and they are not pretty. More than once I have become violent. Now "rage seizures" have been renamed to me as - gelastic seizures and were caught on a VEEG as "seizure activity", possibly gelastic. My epileptologist told me this, and this may be for me specifically too. Whatever is my predominant emotion or perhaps state of mind when I have a gelastic sz, is the emotion that is displayed during the sz.Several years ago, almost 2 now, I was severely assaulted by two men. The assault lasted for 14 hours. 3 men are now in prison because of that and other crimes they committed. Besides just that event which left me injured, and starting in a sz BTW, I felt many people let me down. People who could have but didn't stop it. The Blind Public. I had excellent and immediate psychiatric care and without it I'm not sure how I would have faired but I'm doing well now and have at last gotten rid of the constant, never letting up simmering anger I had for well over a year. I felt I deserved that anger and it felt protecting too so I was reticent to give it up. And that's when I started having - rage sz's. My predominant emotion at that time was anger, rage.Description of one of my rage szs: I always had the same aura, very strong feelings of tunnel vision, ears went dead or a loud sound of air whooshing past them. Adrenaline charges, a feeling I was so light I might start floating. Interesting to me is that I was incredibly strong and athletic beyond my normal abilities. I've tried some of the things I did during rage sz's, when not in a sz, and couldn't do them. My rages were so strong that if i walked I can remember feeling like I was on springs, I bouonced with anger and rage. All of these memoriesin the middle of that sz too are vage, more lilke impressions coupled with descsriptions from others afterwards. The people I was around when I had one were really victims. I finally learned to recognize those strong auras, what they did to me and others and if I could get myself isolated, if peolpe LEFT ME ALONE? The storm would blow over eventually. Post ictally I'd be extremely exhausted. I had a pounding headache and slept profoundly for several hours. I had the shakes. I felt really rotten. Now? I don't have many gelastic sz's. I seem to get them in groupings but the last grouping I got was a sudden explosion of laughter, hilarious laughter following a drop. Over nothing. Nothing was funny yet I was splitting a gut. The aura wasn't as strong but was there and similar to when I had rage. I would have the feeling I was about to get hiccups, often did and I'd laugh and laugh at nothing and after awhile, even though laughter is infectious and those around me would start laughing too, often I'd be laughing while at the same time start to cry it was that miserable. I couldn't get it stopped. Those lasted about 5-20 minutes. The other morning after a CP? I was starting to recover and had a gelastic. I burst into huge sobbing, wracking sobbing and I had this bare little remnant memory later wondering why I was crying so hard. I asked my husband later if I told him. He said no, he tried to ask me what was wrong and I didn't talk, respond to him. I just barely remember this extreme sadness, wracking sobbing. I hope this now isn't going to start up in groupings but that occurred while he was having medication problems and was yelling at me constantly, frighteningly. I wonder if I had a gelastic and my prevailing mood was one of fear and sadness.I also know since I got epilepsy my moods swing. I don't think I'm nearly as aware of it as those around me because often I feel justified, so justified I don't see it as mood swings. I'm trying very hard right now, a goal I'm working very hard at, to be tuned into myself more. I'm sick of being emotionally unreliable at times. Three comments:1. When I was having "rage siezures" there were many serious negative things going on in my life and it's impossible to think that wasn't a contributor.2. I have received a "probable" diagnosis of gelastic seizures. I was told they are not well understood and usually seen in children. But so are drops and I'm a big dropper and an adult. My adult son is a dropper too. I do believe the rages, wraacking sobbing, uncontrollable laughter were seizures since they were caught on a VEEG and because of the auras and post ictals of all. 3. It is very hard to have epilepsy. Many AEDs screw around with your emotions or can. Many people with TLEs have mood disorders. Many things about epilepsy are not well understood. When my epilepsy became full blown there were a lot of ramifications that came out of it: I could no longer work and I loved my work, had just hit the apex of my career. I lost my home, my cars, my ability to drive, work, some I lived avoided me, I often felt sick, AED trials were misery. I was depressed. Epilepsy didn't just hit me either but all of my family in one way or another and that has produced ongoing guilt. Who could not have swinging moods with all of that going on?My point being there can be many reasons for mood swings, rages, damaging behaviors one person to another. I still think though if at all possible if, like in my case, I had damaging to others, sometimes myself rages? I was still responsible for them because I felt that miserably strong aura I'd get beforehand. I had to learn how to defuse them and did by isolating myself and asking people to respect that. No one could talk me out of them, talk me down. It made it worse. The BEST thing anyone could do - was leave me totally alone because any touch, any words, anything provoked my rage to escalate. And I hated it. That's not normally who I am.So my suggestion is this: no matter where rage, extreme anger is coming from and if it's directed at you? When someone is yelling, screaming at me all I hear is that anger. I remove myself from that person. I don't need to be a victim to someone's bipolar for instance anymore than they need to be a victim of my rages and I also found if people did let me isolate I didn't have all the guilt, grief, emotional clean up to do aferwards. Twas not fun for me - or anyone around me.It is embarassing for me to admit and state I have had periods of extreme rage, never experienced before my diagnosis. It's not nice for me to know that epilepsy is most likely the cause. Sometimes? during those times? I felt nearly possessed.

Re: RE: RE: RE: epilepsy and "rage episodes"

Hiya all

I hope your all as well as can be expected.  Besides alot of the "rage" as we call it is a side effect from some of the epilepsy anti-convulsant drugs such as keppra and topamax.   I also think alot of it stems from the way if society or family members treat you disrespectfully and by that I mean if they provoke you in anyway and it then leads to alot of stress and depression in the epilepsy persons life.

Take Care. 

 

Re: RE: RE: RE: epilepsy and "rage episodes"

Hi, my name is Betty.  I will try to make this as short as possible. I have had Epilepsy for almost 21 yrs. I have always been 'feisty', mainly due to my Cuban father. Yeah, I'll play the blame game on that one. :P

Anyway, my seizures have never been fully controlled, therefore they have changed my meds after they stop working. They put me on Keppra about almost two years ago and I noticed that I was beginning to lash out at my coworkers verbally. One day I even grabbed a coworker by the neck. Needless to say, I was fired.

I went to my doctor and demanded they take me off of the Keppra. I was doing better, no more lashing out. I ended up going to the hospital last year after having over ten seizures in one day. After a plethora of tests, they had no idea why I was having so many. The doctors put me on Primidone and I am no longer having angry fits, no more lashing out. To say that my husband is ecstatic about it is an understatement. I also take Xanax for my anxiety, which helps tremendously.

Anger/Rage could be a combination of E, meds, and possible mood disorder. I would suggest taking your brother to a psychiatrist to determine if he has a mood disorder along with E. Once that is ruled out, think about the medication he is on. The moral to my story is that Keppra was evil to me and I would not be the first one to say so. Meds do alter a person's mood regardless of what some people may say. Primidone has altered my mood, but at least it is for the better.

Re: RE: RE: RE: epilepsy and "rage episodes"

If anyone is taking Keppra, there is a side effect known as the "Keppra Rage." Do a search for Keppra rage, there is plenty of information out there about it. I don't know if it applies to other AED's.

Re: RE: RE: RE: epilepsy and "rage episodes"

I WAS PUT ON KEPPRA 5 YEARS AGO FOR SEZIURES THAT WERE STARTING BUT DID NOT GO INTO THE COMPLETE GRAN MAL SEIZURE THAT I WAS HAVING YEARS AGO BUT I DO NOT EXPERENCE ANY RAGES FROM IT I HAVE A BAD TEMPER WHICH I PICKED UP THREW MY PUERTO RICAN MOM BUT I DO NOT START THROWING THINGS OR HITTING MY WIFE OR DOGS I HAD BRAIN SURGERY IN 1991 HAD 1 GRAND MAL SEIZURE AFTER SURGERY AND NO MORE SINCE BUT I STILL TAKE DIALANTIN, AND KEPPRA I DO GET TIRED BUT I TRY TO FIGHT IT OFF FROM TAKING A NAP SOME DAYS IT GETS ME AND I HAVE TO TAKE THAT NAP I AM 49 YEARS OLD I HAD SEIZURES WHEN I WAS BORN UNTIL I WAS 5 YEARS OLD THEN THEY STOPPED I WAS NEVER TOLD I HAD SEIZURES UNTIL I JOINED THE ARMY AND HAD A GRANDMAL DURING BASIC TRAINING WHEN I WAS DISCHARGED I GOT BACK HOME MY MOM TOLD ME THAT I HAD EPILEPSY WHEN I WAS BORN SO NOW I KNEW, GOD BLESS YOU ALL THAT SUFFER FROM EPILEPSY STAY STRONG I KNOW IT IS A HARD THING FOR PEOPLE TO DO WHO SUFFER FROM EPILEPSY BECAUSE I AM ONE ALSO,SOMEDAYS I AM HAPPY SOMEDAYS UPSET SOMEDAYS TIRED,SOMEDAYS DO NOT CARE, BUT I AM STILL HERE FIGHTING EPILEPSY.

Re: RE: RE: RE: epilepsy and "rage episodes"

What I would like to know, however, is whether or not this is
something that DOCTORS actually legitimise? I mean, do they support this
theory, that rage is a type of seizure, and if so, is there medication
for it? Has anyone had this experience, please?

 I don't have time to get through all the replies, but I'm so grateful to be reading the ones I have read, all of them validating something I never knew. I have been struggling with rage for years. I was diagnosed when I was 13, and living with my parents, I wasn't "allowed" to express strong emotions. I have memories, however, of fully losing control outside of the home, and as I got older, the rage finally and fully unleashed itself in my early thirties, with intermittent episodes prior to that all throuh my twenties, depending. It is like a lightning bolt. I would say volcano, but it's not a slow and steady simmer. It really is very sudden, like a seizure would be.

RE: epilepsy and "rage episodes"

THis one can be a v ery tricky one.The violence that seems to be going on at your end, is called Episodic Dyscontrol, and is not related to epilepsy in any way.People who have Complex Partial seizures can get a bit on the agresive side bfore or during a seizure, but the aggressiveness is NOT person-directed.  THey don't thrwop things at someone, they don't shout nasty cold things at another person, they don't attack them physically, or be violent in any way.In Episodic Dyscontrol, it is always person-directed, and they DO physically hurt people, and throw things at them, or at other things mearby to destroy it, they say crude things, they get REALLY ANGRY AND AGGRESSIVE AND VIOLENT.People who are in-seizure when they do their bizarre thing, do not have the where-with-all, or the conscious abioity to purposely do something. They ONLY time a person having a CPS will fight back and get aggressive towards someone is if they are cornered or held down in any way--restrainded.Agressiveness and anger for the little child on the other post can go with BiPolar Disorder.  I minored in Psychology.  It is tricky to weed it out from behavior problems associated with epilepsy, and he needs to be taken to a psychiatrist to be put on Lithium at a low dose.  Once that gets into his system, you will be able to tell wether it is epilepsy-related or BiPolar-related, thus getting the right meds for him. His blood level may need to be checked on his AED.  It may be too high, or too low, causing a change in behavior related to that.Nancy

RE: epilepsy and "rage episodes"

My wife has seizures and every now and then she starts screaming and yelling at the kids about cleaning the house.  Really tyrannically like.  It's pretty scary.  It might be real but I just don't know anymore.  Her seizures use to be only at night but it started happening during the day about 4 years ago.  She's on a bunch of medicine but until she has a car accident or something she is going to think she is OK.  She's 45 and now expecting to go back to work.

RE: epilepsy and "rage episodes"

My wife was an epileptic and a bipolar,  the anger and rages that your brother is experiencing reminds me a lot of what she went through.My wife took a lot of meds to control both her seizures and to stabilize her mood disorder.  You should speak with whomever provides your brother with his epilepsy meds and tell the doctor about your concerns regarding his temper.A word of caution however,  my wife died in 12/03 from a seizure disorder in what I believe was a contraindication in her meds,  some of the antidepressants that are used to control moods in bipolar lower seizure thresholds and are only used in strict supervision.Good luck and God bless

RE: RE: epilepsy and "rage episodes"

My personal experience with anger/rage in conjunction with epilepsy (TLE) concurs with what an earlier contribution (Nancy's)outlined. It was always directed at one person, not random, andwas exhibited in violent shouting at that person. My doctor recognized the behaviour as part of a mood-disorder associated with with my epilepsy and prescribed Celexa. Now my mood(s)are under control EXCEPT just before I menstruate! Now that I recognize that fact I watch my caffiene intake, practice self-calming techniques, and stay away from what could escalate to a"angry" scenario. I, personally, advocate keeping a journal of seizure activity and the surrounding behaviour, and that is how I was able to determine that the menstrual hormone cycle was a factor. (Note - this activity is called "Catamenial seizures.")

RE: epilepsy and "rage episodes"

Does epilepsy affect mood? It's strange because, though it's no excuse it seems to occur more when he's tired. the problem now now is that he has small children and they have witnessed these scenes. we are afraid of what it must be doing to them. I don't know how to intervene and neither does anyone else because he is so defensive and sure of his righteousness. He is truly abusive there is no doubt about that. He seems not to understand the damage he leaves in his wake because last time he did it to me I said I needed a break from him for awhile and his wife said he was hurt.If anyone does think it's epilepsy related that would at least give us a clue as to why he's like this. He does work (trial lawyer) but there are lots of people who want nothing to do with him anymore because of how they've been treated.

Epilepsy and "rage episodes"

I know this posting is from a few years ago - have you had any luck in finding a answer or connection b/w the rage and the epilepsy?

Epilepsy and "rage episodes"

I have had a lot of personal experience with this situation, and I may be able to commiserate or offer some advice.  Have had MANY visits with neurologists about two members of my family.  Please feel free to write me; perhaps I can offer some help to you.

 heyitsme_di@yahoo.com

RE: epilepsy and "rage episodes"

HI-- MY NAME IS  MIKE AND I HAVE BEEN HAVING SEIZURES FOR ABOUT 24 YRS  AND EVERY ONCE IN AWHILE  I GO IN A RAGE---THE  SLIGHTEST THING WILL START IT---BUT IT FEELS LIKE I  CAN KILL SOMEONE   I HAVE ACTUALLY HIT MYSELF IN THE HEAD WITH A COFFEE MUG TO STOP IT SO I WOULD NOT HURT MY CHILDREN IT IS VERY SCARY  I HAVE NEVER HURT ANYONE  DURING IT  BUT REALLYU FEEL LIKE I  COULD   I HAVE BEEN ON TEGRETOL FOR ABOUT   8 YRS NOW  AND I DON'T THINK IT COULD BE THE CAUSE  AND NEVER CONSIDERD IT TO BE EPILEPSY UNTIL I JUST READ THIS -------------

RE: epilepsy and "rage episodes"

Rage and anger - is it because of epilepsy or meds or mood disorder or depression or hormones or other things in my life that I have not fully faced and deldt with?  Damned if I know but I know I have always felt it to one degree or the other.  Thanks for asking the question of whether there is a connection or not.  I am planning a re-eval in the future and this gives me one more thing to find out about!As kids my brother and I used to fight a lot - we were competing for attention.  As a teen I am sure that hormones had a lot to do with it - along with feelings of not being good enough, feeling fat, not feeling wanted and not feeling loved as much as I seemed to need.  As a young adult those issues remained.  I acted out and did things that I was later very ashamed of.  Pile the guilt on top of all the other emotions that were taking place and it was the perfect recipe for rage and self-doubt.  That, of course, is when I had the accident that eventually lead to the seizures and the diagnosis of aquired epilepsy.  The long struggle and frustration to discover what was wrong and why lead to more acting out and more guilt and deeper self-doubt and greater rage.  My first real rage (not directed at myself as depression or in a bottle) was at the neuro who told me to be satisfied to get my seizures under control because he had no desire to find out why I was having them.  I blew up and he walked out on me.  I suffered an emotional breakdown leaving me heaving huge sobs and crying like I would never stop.  My poor husband had to witness all this and wonder if he would be my next target.  An intern remained and waited for me to calm down.  Then he asked me what a seizure felt like.  Wow.....He listened and he wanted to know!!!  He stuck it out and we found out why I was having the seizures and what the probable cause was.  I have never had a rage of that intensity since but I do still have them and it is my husband who catches the brunt of them.Anger is an emotion I know well.  Sometimes I don't even know why.  I will wake up from a dream or I will be cleaning house or driving to work and find myself rehearsing an arguement with someone who isn't there (and who I won't see that day anyway) over something that is past history, rediculous or not really even important.  It just seems that I need to have an arguement with somebody over something.  When I recognise that happening I can sometimes scream and yell and relieve some tension on the spot.  I am on guard the rest of the day.  Some days that is enough - other days it just delays the inevidable.The inevidable is a totally irrational and absolutely unnecessary shouting match with (or at) my husband.  I do recognise that it is happening - but never until after it has started.  I can hear myself and I even scare myself.  I try to quit but sometimes he is on the defense (he has had to live with this for 30 years) and so it doesn't always end when I want to quit.  I feel myself torn in two ways - the one that wants to go and hide under the bed until the ugliness is gone and the one that feels the need to fight back.  Nobody wins either way and there is never a resolution because there was never a rational reason for it to begin in the first place.  I think we both know what has happened when it is over and we let it be over and things get normal again.  (Normal?  How can that be normal?)  We generally go on as if it didn't happen.....but I do hurt inside that it happened and I know that all of the apologies in the world won't change that it did.  I feel a strain for a while but it is sadness rather then anger or guilt.  Our kids grew up watching this scene and hearing my outbursts and it did affect them.  Then I couldn't recognise it happening and I couldn't take myself out of it........  We don't bank the unfinished business for later........I think we have learned that what was happening wasn't what it was about although neither of us knows what it is about.   We are getting better at avoiding it or getting out of it when it occures.I note in my journal whether it was a depression day, an irratable day, a short fuse day or a no fuse day or a tired day or a busy day or whatever.  Started doing this when I went on HRT because the Doc thought maybe the mood swings had something to do with hormone levels and maybe we could figure out which hormones they were related to - well it turns out that they are hormone related to some extent but they are also related to sleep, to food, to energy and to the continued emotional hangover from years before.........in other words - I don't know if there is a single trigger or not.   It has been several weeks now since there has been a rage but there have been many tense times - alone and with my husband.Alone I will try the shouting and screaming thing.  With my husband I will try to just shut up and refuse to participate.  Sometimes that works......sometimes I just keep feeling it going on inside of me even if he isn't participating either.  Yes I have had counciling and I work a 12 step program so I still have to wonder where the anger keeps coming from and why.  We'd all like to know!Best to you all..............................Lee 

Re: RE: epilepsy and "rage episodes"

HI lee! my name is alina, and i would like to tell you my experience to see if it helps you. My boyfriend had epilepsy too, though he did not know and was diagnosed at 18. However he'd always been very violent and angry. When mad sometimes as a kid he'd do serious stuff like break another kid his finger, or step over another kids face (breaking his nose ofcourse...). When he was found he was epileptic,and that had other strage disorders-he had a rage seizure at a birthday party- his parents put im in a psych ward-the worst moments of his life, and went he got out, he tried to commit suicide of pure anger and sadness (when he is mad, he always cries, and was diagnosed of a severe depression along with the epilepsy. His parents decided to put him on electroshock. Imagine... All the stuff he had to live.
but after the electroshock therapy he was like other person. This is when i met him. I never knew the guy before. He tells me he was a psycho, ready to kill all his mates that bullied him. But the guy i know has never engaged on a fight, or even screamed at me or anything.I can not imagine how he was before as i've never seen him screaming at anyone at all. All the more he has so much patience with me, he always shows to me his love. People that used to know him tell me he was other person. ofcourse he has the same personality, but he no longer has the anger or the sadness, and was cured of the epilepsy if im not mistaken. I dont know if i would put my sons or daughter into electroshock.. because of the experience itself. but then, I always think that the beautiful person that is my boyfriend would never had showned itself hidden under all the anger he used to have.
I hope this experience helps you!

Rage

There are times, from what I'm told, that sometimes during a seizure, I become combative when someone is trying to move me to a safe place so I don't hurt anyone, or myself. Other times, I scratch at my arms or legs and leave myself with deep scratches if I don't keep my nails cut short. I'm not sure if it's my meds, or just a symptom of my E.

Re: epilepsy and "rage episodes"

I had an incidence with rage at myself today, I've been sleeping too much. My Dr recently upped my dosage of Lamictal from 200mg a day to 400mg a day. I woke up angry, and my Father was in the house and thought I was mad at him, and I told him, "I'm not angry at you or anyone else, I'm just mad at the machine." The machine being my E, my meds, my sleep schedule, my life, just about anything you can think of that I'm letting live my life for me and I'm not on top of it. I had already awaken earlier, eaten, taken my meds, and didn't want to go back to sleep as long as I had. Lately, my meds, and drowsiness from them has been controlling my life. I guess the good news is, I haven't been having seizures, and I'm eating but that's only between times I can manage to crawl out of bed.  

Re: epilepsy and "rage episodes"

I can totally relate to this, I get "ticked off" at myself as well as others all of the time.  I can't tolerate the side effects of AED's so my Dr. has taken me off all meds and it seems like I'm getting worse at it! 

Re: epilepsy and "rage episodes"

I was diagonsed with epilepsy in 1994 and never noticed any problems with anger/rage until now. I have family members that say I have been very hateful with them in the last couple of months. I do not mean to and when they tell me this I get annoyed with myself. Does anyone out there have any advise/suggestions on what I could do to control this? I don't want to get out of control and I am afraid of hurting my baby neices or other family members. Please if someone out there is or has went through this PLEASE give me some suggestions.

Re: epilepsy and "rage episodes"

My son has rage aggressive episodes which are mesial temporal lobe epilepsy. They are difficult to treat with meds alone. Depakote, risperadol and inderal are the drugs we use.

My son screams and gets very violent. Then after he is remorseful and perplexed. These are seizures and psychosis can follow a seizure.

Re: epilepsy and "rage episodes"

was your son violent before the seizures started? or were the seizures there before

Re: epilepsy and "rage episodes"

Can you have rage seizures without having actual epilepsy itself? My son was just diagnosed with rage seizures, but the drs are saying its not the same as having actual epilepsy itself...?? He is on depakote celexa and are fixing to wean the depakote and put him on lamictal...

Re: epilepsy and "rage episodes"

I've had rage issues and still do from time to time. Sometimes it can be just a small thing that can tick me off and I'll just explode at whoever did the small thing that got me annoyed. I've actually had short temper problems since I was young. But when I was diagnosed with epilepsy at the age of ten, my short temper became worse. And as they were trying different meds on me to see which one worked, my temper went really bad. I even threw a chair at a councilor and hurled a desk at one of my classmates in school. Sometimes I'm able to control my temper, but other times.. my rage can just explode at anyone near me who "annoyed" me. It can be such a small thing as asking me an innocent question while I'm listening to the television.

Re: epilepsy and "rage episodes"

This could be several things but I can relate to this.  I was diagnosed with epilepsy at 11 and after years of coping just fine even though my epilepsy has been almost impossible to control, I found myself being told by friends and family that I just wasn't myself anymore.  I was taking 450mg of Topirimate a day and 400mg of Lamotragine a day and had suffered a miscarriage just a few months previous so I put it down to that.  I began to realise within myself though that things just weren't quite right.  I would get angry for no apparent reason and if I had nothing to vent that anger out on I would break things and just go into a fit of rage.  Often I would find it hard to get out of bed and just felt like a dark cloud was following me around everywhere.  After suffering like that for a year I decided to look further into my condition and medication and it said that depression can becaused with my combination of drugs but it is also a common 'side effect' you could say of epilepsy.  I decided to go to a doctor wo said: "do you go out?" when I answered yes he said "well your not depressed then".  I felt like an idiot and this made me so angry that when I went home I trashed my room up and made myself sick from anger then I crawled into a space and started crying.  A few month later my boyfriend told me he was going out and for no reason what so ever I went mad and trashed the house and broke every dish there was and lay there crying.  I phoned NHS24 who talked me through all sorts of stuff then got a doctor to call me back, they said it was obvious that I was suffering from severe depression and it's not uncommon in people of my age who have had this condition and who have had to deal with it to suddenly just feel stuck and that my medication will be pushing that depression along as will everything that has happened in the past few years.  She sent a fax through to my regular doctor who could instantly tell that something wasn't right who put me on Fluoxetine 20mg capsules right away and referred me to a Cognitive Behaviour Therpay course both which have done wonders.

I don't know if this could help you at all, but it's worth thinking about.

Re: epilepsy and "rage episodes"

I am a 48-year-old male with epilepsy, which has gotten
worst over the last few years. I have been having rage attacks. I stay in a low
amount of anger all the time, but some things really bring out the rage in me.
I have noticed that when my Dilantin level goes to high the rage is much worst.

 

One time the level got really high and that morning I
started hearing I little tune in the back of my mind that keep getting louder
and louder driving me nuts. Later that day is was still nervous and we went to
a restaurant for my wife’s work’s Christmas party. When numbers were handed out
for gifts they missed giving my wife one and the lady on the other side of the
table noticed. She started trying to get the attention of the ladies that
handed them out and we said, “That is OK”. She keep trying and we keep saying “That
is OK” after about the eight time of saying it I actually felt my conscious
mind move out of the way, lost vision in one eye, my body rouse up and the left
side of my lips were moving and I said loudly “that’s OK” and my legs took me
out of the room we were in. After I was out my conscious mind returned but I
was in panic. I told my wife I need to go to the emergency room, and they gave
a shot and later two pills before I claimed down. I needed Xanx to keep my
panic under control of a few months after that episode.

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Re: epilepsy and "rage episodes"

I totally freak out when I realise the person I am dealing with does not understand epilepsy and is accusing me of all kinds of things.  This is usually my husband. I have now threatened people with court action for slander. What AED is your brother on. The side-effects can be rage. Keppra is known for that especially. Try and find the trigger for the rages. Epilepsy is physiological impairment not psychological impairment. Sometimes I dont realise I am shouting either and people especially my husband will take huge offence. There is such a lack of understanding of our condition it makes it hard to get through the day.

Re: epilepsy and "rage episodes"

It's troubling to realize I'm a middle-aged, TLE refractory adult with the emotional dyscontrol of a kindergartner denied access to a box of Twinkies.  This past Wednesday I threw a tantrum at work that alarmed and angered everyone, and filled me with an enormous sense of guilt, not to mention dread over the possibility of losing my job.  Most likely your brother is very scared over his inability to regulate his moods and needs your support and understanding.  

Several years ago, I noticed that my medications had stopped controlling my simple partial seizures.  Like your brother, I've always been irritable, but since my epilepsy has become refractory, the crabbiness has turned into frequent, unpredictable attacks of rage. I feel for him.

I'm thinking about trying some non-drug treatments, like relaxation techniques, more vigorous exercise, proper nutrition (especially B vitamins), writing, massage, and prayer.

Re: epilepsy and "rage episodes"

When my son had his first Epilepsy seizures he was 16 and the doctor had prescribed Keppra.  The medication is what caused him to exhibit anger to the extreme.  Screaming and hitting doors or walls and sometimes himself.  It was scary for me as he was also very aware in the change of his own behavior/mood swings.  We spoke with the doctor and changed to a different medication...Poof the anger outbursts were gone...except within 48 hours of having a seizure.  I found it repeatedly happening when he would begin to show outbursts of anger shortly after having recovered fom his seizure. (He has Grand Mal seizures which take 1-2 days to recover).  During his recovery time he would have his friends around and they might go somewhere, I had to make it clear to them he was NOT to drive.  He would beg them and act like they were holding him back, he would start yelling at them then they would give in and let him drive.  Until, they came home and everyone was screaming at each other then he realized after a lot of talking and (fortunately having empathetic friends) re-enactment of his behavior he realized and got a hold of himself.  But other than that and the time he was on Keppra, there have not been any additional anger episodes.  I think it is because; as exhausting as it was for us to continue communicating about the behavior and the details of the interaction with his friends, I stuck to talking it through until he truly could see his behavior and understood it was not acceptable.  It was very very difficult to get to this point, but I felt it imperative to beat that horse til it was dead....

Re: epilepsy and "rage episodes"

hi, my mother has had epilepsy for several years. Most recently she has eperenced the rage that you are talking about and was wondering if you had any further information you could give me about it. Thanks