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Basal Ganglia Epilepsy?/Paroxysmal dyskinesias

Does anyone have any information on these?  My neuro thinks I might be having them.  I've read up on them and according to him there is no great test out there to prove that I do have them.  It is a form of epilepsy, but not quite epilepsy, as it does not always show up as an abnormal EEG.  And when the EEG does show up as abnormal, it does not read as epileptic.All of my EEG's have been normal so far.  This is what I've read about them.  Just wondering if anyone else on here has these?  My neurologist says they are also known as Basal Ganglia Seizures.  I have highlighted my symptoms.  (They are also known to last from under a minute to several minutes, up to several hours.  Mine typically last between 10-30 minutes) Overview of Dyskinesias (Paroxysmal)Paroxysmaldyskinesias are neurologic conditions characterized by sudden episodes of abnormal involuntary movements (hyperkinesias). These may include any combination of involuntary, rapid, randomly irregular jerky movements (chorea); relatively slow, writhing motions that appear to flow into one another (athetosis); increased muscle tone with repetitive, twisting, patterned movements and distorted posturing (dystonia); and uncontrollable flinging movements of an arm, a leg, or both (ballismus). ... In contrast, in those with non-kinesigenic dyskinesia, the attacks may occur spontaneously while at rest or out of a background of normal motor activity, but may be exacerbated by alcohol or caffeine consumption, stress, fatigue, or other factors. Other types of paroxysmal dyskinesias include episodes precipitated by prolonged exertion (paroxysmal exertion-induced dyskinesia) or sleep (paroxysmal hypnogenic dyskinesia).The transient attacks associated with PKD primarily affect muscles of thearms and legs; however, muscles of the face, neck, and/or trunk may also be involved. PKD episodes may affect muscle groups on one (unilateral) or both sides (bilateral) of the body, but even if bilateral they are usually asymmetrical. Involvement of facial or oromandibular muscles often results in transient facial grimacing, difficulties speaking (dysarthria), or even muteness; however, the episodes are not accompanied by altered consciousness. When leg and trunk muscles are affected, falls may occur, causing a risk of injury. PKD may interfere with walking or standing or conducting other activities of daily living (ADLs), potentially resulting in severe disability.In addition to sudden movement, some episodes may also be provoked by unexpected stimuli (startle), yawning, talking, hyperventilation, anticipation of movement, or light (photic) stimulation. Attacks may be worsened by certain factors, such as stress,cold, heat, or menstruation.Before the onset of such episodes, some patients may experience unusual warning or "premonitory" sensations, such as prickling, tingling, or crawling (paresthesias); dizziness; or muscle tension.    

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Re: Basal Ganglia Epilepsy?/Paroxysmal dyskinesias

I see your posting was a few years ago. Any changes? My daughter, now 9, was diagnosed with PKD at the age of 3. I started to see signs when she was about 9 months.  I have never heard of Basil Ganglia Epilepsy. We have moved to a new area, and I want to get a second opinion. Her symptoms are right on, though. She has also been diagnosed with Asperger's Syndrome, which I have learned comes from injury to the Basil Ganglia. I am also starting to think about my daughter's future, and if she is going to be able to have a normal life, like driving. We tried Tegratol, and she had a bad side effect with it, so we have not tired any other anti-seizure meds. Any info you can give me will be great!

 

Thanks

Laura Morris

Ringgold Ga

Re: Basal Ganglia Epilepsy?/Paroxysmal dyskinesias

it is getting pretty clear that this is what i have. I am 41, male. i have had a lot of strange problems for years  that seem unrelated, but after 2 seizures last year, and an MRI, there was infarcted basal ganglia tissue. no idea how.  stroke cuz of small blood vessels in the family?  is one guess right now.  things are starting to get odd and have accelerated with me; with muscle rigidity, dizziness, tremors, and hands getting useless.  many behavioral problems, wild agitation and emotions; some of this was called bipolar for a long time, but after seizures, even my _psych_ has started calling it epilepsy, especially with all these strange new symptoms popping up.  with that MRI finding, and careful web research, i have read how damage to/dysfunction with the basal gangila can cause _all_ these things; as well as parkinsonsism, obsessive-compulsive disorder, tourettes, the cognitive.behavioral/emotional stuff, tremot, neuopathy feeling, tightening of muscles like CRAZY, .    i have epilepsy along with elements from allthe thinsg on this list, and i wonder if they can be linked by the basal ganglia damage. [part of brain that is a junction for so many of these things? so with a 'dead spot' all this misdirecting of nerve impulses is going on?]   i don't know what step to take;  i am going to get referred to special neurologists ina few days.  i    hope that i will be able to get [non-operative] treatment, and that it wont be progressive.   i have been a concert pianist and i am bummed out at not being able to play;  and i really um _need_ it to get better!!!    or at least stop the progression and embrace teaching other pianists, or something...

 anyone else know than me about all this junk ??

 mike

illinois