ADVERTISEMENT

seizures at night

I have a question to ask anyone out there.  I have complex partial seizures.  I do not know what happened, but this morning I woke up and my back was killing me.  I would like to know if it is possible if someone like myself could have a seizure at night, and hurt their back by doing something to it?  Reason I ask this is because I did nothing that I can think of that would have hurt my back this much 

Comments

RE: seizures at night

It is very poosible your seizure made you twist the wrong way and it put a strain on your backHope it gets better soonJen, Mom to Danny Jr who we lost to epilepsy age 3 on 12-26-01

RE: RE: seizures at night

hi how are you i miss the seizure chat i wish they accept me to come back see you soon its tany i hope you are ok see you soon

peace R.C.    hi   

peace R.C.

   hi

   Yes very much so and am only realizing the connections I have bad discs from "work" and went through mo,s yrs, of light duty therapy etc. and wished I would have connected the two then when I was with a lawyer settling a claim on my back because the application for ssi would have been made then by them when I could remember something longer than 24hrs.

  I have and do have gmals that have left me black ,not black and blue but truly black bruised real bad all over but sometimes ecspecially my back shoulders .

  I am know filing a claim and will use this as a big part of it because as others said about days I say 8 days to recover from one sz. ?????

 I just had 3 in one day plus auras , and partials so how long to recover lol. ?????

   Plus the connection to my back which hurt for a week and would still hurt if DID anything like work  very frustrating and may be a bit more painfull to prove .

  I had a gmal in my sleep every weekend /fri. night for yrsand went back to work mon. in the heat ,stress and just general business of being "ME".   I feel lucky because others are hurt bad . but I had a gmal recently and had a fight with the coffee table that beat me real bad ,cut my eye. mouth incontintent, very bad.

   I also slept with my dentures and broke them in 4 places also biting my tonugue real bad ,most recently I had 3 gmals while alseep on a veeg in the hosp. and was incontinent and hit my head real hard on the bed. whew and it has left me with a headache for 2weeks. ???.   Yrs ago I was drunk when I slept and had sz about every time. 

   So yes others do this too. I did think it was always a gmal but now know I have had episodes of all types when in bed or napping ,just sitting up , just getting real hot then cold then sleep , waking with headaches when i know I did not have gmal . going into aura the min caffeine hit my system in the a.m. .

   So don,t feel alone .   Rick
 

 

 

 

RE: seizures at night

Yes, it quite possible. It's also possible to have one in your sleep and know nothing at all about it, especially if it is a particularly mild seizure. My ex used to only have them in his sleep. Over the years he progressed to having them at anytime, though. I hope your back feels better soon, this is a horrible time of year to have anything distract you form the holidays and their preparations!

RE: seizures at night

Hi Jemery This Is Tania And I am in atlanta my mom and me have seizures and i have grand mal my mom as complex partical seizure her seizures are just like yours and i thing you would be come good friends with my  mom if you have and email please email me your email i want to have contact with you always i like to be your friend i started having seizure my first seizure was when i was 10 or 11 years old until now that i am 21 years old so i will be glad to talk to you soon my mom when she is seizure she hurts too but when i have sizure i start crying alot so let me know more abouth yourself i hope to see you in atlanta come here we will invite you thank you bye and merry christmas

RE: RE: seizures at night

Tania and Jeremy,I'm tj, i posted earlier messages "feedback for me", i also have complex partial seizures, and if you guys get this message, i would like to have your e-mail addresses because their probably many things we can associate with, if you read my message i've posted earlier you'll understand where im coming from, but i would love to exchange e-mails so we can talk about about our seizures and the everyday lifestyle that we might have in common.thanks, hope to hear from youtj

RE: seizures at night

hi jemery mom mom is that way too when she has seizure she also says its killing her too

RE: seizures at night

 Hi.  I have complex partial seizures at night too.  At first they were only in my sleep, but depending on how many I had during the night they would happen while I am awake.  Sometimes I wake up sore or bruised, I have very violent seizures at times,  this is how I can tell if I had one.  I woke up 2 days ago feeling a bit sore.  So I asked my husband if anything happened and he said yes,  but it was mild.

RE: seizures at night

 Hi.  I have complex partial seizures at night too.  At first they were only in my sleep, but depending on how many I had during the night they would happen while I am awake.  Sometimes I wake up sore or bruised, I have very violent seizures at times,  this is how I can tell if I had one.  I woke up 2 days ago feeling a bit sore.  So I asked my husband if anything happened and he said yes,  but it was mild.

RE: RE: seizures at night

I have nocturnal seizures and they do hurt in the morning. I'm not sure if I have regular seizures but I do have serious ones every 4 - 6 weeks and when I wake up the first thing I'll do is run to the bathroom to be sick. That'll be a 5 min experience, and then I'll go back to the bedroom to collapse on my bed. It feels like I've run a marathon and there'll be a few moments on shivering. After that I'll spend the whole day sleeping and then through the night as well. The whole experience wastes between 3 - 5 days as they'll be spent either sleeping in bed or watching daytime tv. I'll not be in the mood to talk to anyone either over the phone or face to face.I'm on lamtical (lamotragine) 300mg in 2x150mg doses. I have memory loss, lack of concentration, tremors, and the arms and legs will randomly jerk in the evening. I get a rash on my knuckles and my hands are always drying up.Does anyone else get any of this, or maybe a similar experience?

RE: RE: RE: seizures at night

  As I've said in an earlier post my seizures are usually nocturnal.  I wake up sore and sometimes I have hurt myself quite badly.  I usually sleep the whole next day.  I have been taking Dilantin 300mg for almost 4 years.  Since starting this I haven't hurt myself too badly, but before they had me on no medication so the seizures happened day and night.  When awake I usually felt an aura.  The reason I mention this is because even now if I've had a seizure during the night for the next few days I get that feeling.  Nothing happens, but certain sounds or sights bring on that feeling and I hate it.  It is hard to describe this to someone who has never felt an aura.  I can completely relate to feeling tired and sore for the next few days.  I'm in a bad mood, I don't do anything and then feel I guilty.  Does anyone else feel guilty for being sick?  This I would love to know. 

RE: RE: RE: RE: seizures at night

I have felt very guilty about my seizures. I am a typical CPS. I had them as a child and then at puberty I had no more. I became middle aged and here they are again! As a child, I felt that I was BAD! I was in trouble all the time at school because the teachers did not understand about complex partials! Now, here I am again, feeling guilty. I am a grandmother scaring the dickens out of my grandkids! Also, my husband hates to discuss anything about seizures. I have them at night and have awoken places in the house that I do not know how I got there or why. And have a hard time finding my way back to bed. I usually have 3-4 during the day, but do not know about nights. I used to take Dilantin (but had to stop---liver damage). Dilantin managed the night time ones much better than Lamictal does. My friend and I have started a seizure support group at our church. We are inviting everyone all over the world! We want to do what we do right here----support each other. Morning

Re: RE: RE: seizures at night

well, i can say that i have the same your experiences. I had about 14 seizures in the last 2 years, always nocturnal, after 10-30 minutes I fall asleep. when I wake up the first thing I'll do is run to the bathroom to be sick, and then I'll go back to the bedroom to collapse on my bed. It feels like I've run a marathon. After that I'll spend the whole day sleeping and then through the night as well. The whole experience wastes between 3 - 5 days as they'll be spent either sleeping in bed or watching daytime tv. I'll not be in the mood to talk to anyone either over the phone or face to face.
I'm on Keppra (2x1500mg) + Depakin (750mg), but it doesn't work.

RE: seizures at night

Hi Jeremy!You bet it could be night seizures. I barely have mine under control and I still wake up bruised and sore sometimes. (My wife usually notices these because my jerking around almost kicks her out of bed!)Yuletide Blessings!gsness

RE: RE: seizures at night

Yes, you can have them at night -- my son (age 7) was recently diagnosed. He had his first seizure in July just before waking (it was a tonic/clonic) and then began having a series of partial seizures in October just after falling asleep. It was after the October seizures that we placed him on meds.Our neuro explained that the stages of entering and exiting sleep are similar, which helps join together the odd timing.I've witnessed the ones that start after he falls asleep -- while their frequency can't be predicted, their timing can be -- within the first 5 to 15 minutes of his falling asleep. As parents, we dread that time period -- but we also feel we need to be there for him .........just in case.........to give him a comforting face to see.Our neuro hasn't been able to isolate his condition to temporal lobe or benign rolandic without a more thorough EEG. Since his seizures are generally under control (1 since the start of the meds -- and he is barely at the minimum necessary blood levels) we have not yet decided whether to put him through the more thorough EEG (we live in a very rural area so such a test is an all day drawn out affair). He is handling it remarkably well -- he gets a little scared after he has a seizure but doesn't let it get him down in every day life -- he regularly swims and skis.My question -- has anyone else had the experience of having seizures that occur at a very specific point in time everyday? Does anyone know if this regular timing is unusual or not?

Re: RE: RE: seizures at night

I know you posted this some years ago, but I wanted to know how your son was doing. My son is 8 and has been having night seizures for the last 19 months. His are almost always at 5:30 am. He was seizure free for ten months, but just had another one. He has had the overnight EEG and it showed activity, so he will be on meds until it does not. He is currently taking Keppra. Please let me know how your son is doing. Thanks
Lisa
ewa124@verizon.net

RE: RE: RE: seizures at night

Hi!  Prior to my husbands surgery in September for the last seven years all of his seizures have occured after dinner (usually 9:00 pm on, up to 12 pm)  he had one at 5 pm in those years.  The doctors thought it could be an uneven amount of medicine in his body and started giving him a mid-day dose but that did not make a difference.  I was curious if that was common in other people.  My sister also has epilepsy and all of her seizures were before 1 pm for years.  They related that to school and the stress of tests, etc.  I don't know.  I am curious if others have noticed a certain time connection.Jackie

RE: RE: RE: seizures at night

MY 7 YR.OLD SON WAS DIAGNOSED 2 DAYS AGO WITH HAVING SEIZURES.HE JERKS VIOLANTLY ALMOST EVERY NIGHT SOON AFTER HE FALLS ASLEEP.HIS NEUROLOGIST CALLED ME AND TOLD ME OVER THE PHONE TOLD ME THE DIAGNOSIS

RE: RE: RE: RE: seizures at night

HELLO AGAIN,AS I SAID EARLIER,MY SON HAS SEIZURES DURING HIS SLEEP.WHAT I WANT KNOW IS,ARE THERE ANY OTHER PARENTS OF CHILDREN WITH THE SAME PROBLEM OR ADULTS THAT HAVE SEIZURES DURING THE DAY AND IF SO,WHAT DO THE SEIZURES LOOK LIKE? THANKS

RE: RE: RE: RE: RE: seizures at night

I have had seizures since I was fourteen.  Seizures are a scary thing for loved ones to have to watch, but trust in the fact that they are more scary and painful for you to have to watch than they are for those who have them.  ( Not that they don't freak me out too or anything.)  My mother had a hard time watching me have them as well, any parent would.  My seizures are usually right before bed, while I sleep I have mild ones, or right when I get out of bed.  The ones durring my waking hours are like what you described with your son.  There is a lot of jerking, scary noises, foaming at the mouth and biting of the tounge.  When the worst is over I more or less pass out for a minute or two.  Waking up is the worst part for me personally.  I am pretty much delerious and tend to scream, cry, spit, and run.  If you are standing in my way it's not a pretty picture.  I don't know if this is how they go for everyone.  If your son is only having them durring sleep that's a good thing.  He's safe, not in danger of hurting himself etc.  I wish you all the luck in dealing with this, my mother still calls every day to see that I took my pills and see whethter or not I've had one on that particular day.  Keep in mind, Im twenty five now and married.  A parents love and concern will always be there, but over time it will get easier for you to handle as it did for my mother.  Best wishes and good luck with the new year.

RE: RE: RE: RE: RE: RE: seizures at night

When I first got epilepsy I read someone say they only had seizures in their sleep and I thought - lucky ducky - until I started having seizures in MY sleep. Having said that.....I have what I call "nocturnal seizures". Whether it is during the awake or sleeping hours I just about get used to my seizure patterns and they change. Every single night of my now world right before I'm about to drop off to sleep I'm treated to about 30 minutes of jerks. That I'm used to now and that is the one seizure activity that has remained stable for me throughout this journey. Currently I'm having CPs but only apparently nocturnally. This is difficult to explain but I'll try. When I have a CP, and I'm coming out of it? I start having awareness of thoughts, actions and I'm "stuck" in it for a short while and often I'll be doing something, talking, my latest is wondering around the house calling for my mother, who is deceased. I remembered yesterday I woke up sobbing my lights a few mornings before but couldn't remember what in the world upset me that much. I did some investigating called asking my husband some questions and apparently once again I was coming out of a CP. BUT I do get injured during nocturnals of any sort. If I'm walking around in a CP the dangers are obvious. Here is what more typically happens to me though, frequently. Whatever kind of seizure it is I might have had, and often I don't know and suspect I had a Drop since that's been recorded freqently on VEEGs, at the end of the seizure my bladder sphincter muscles relax as it does in many people, I become slowly aware, with horror, I'm wetting the bed and try to rush to the bathroom but my legs aren't strong enough yet from the seizure and often I've gotten thrown sideways into a wall, fallen countless times and crawled to the bathroom, gone into a walk in closet (taking a left, not a right in confusion after we moved and our bathroom location reversed) and got stabed by a hanger and for the first time I shall reveal that one very special time I came karooming up off the bed too fast apparently, lost my balance and instead of banging my shoudler into the wall? It was summer, I was next to the window and you got it - I dumped myself straight out the first floor bedroom window. I didn't make it all the way out. We still laugh until tears run at my husband's sleepy impression awakening to the clatter to see his wife's legs - hanging in the windows! Yes that really did hurt me but it is a funny memory.Epilepsy is not fun to have. I despise it but some of my funniest moments have happened because of this syndrome. I think it interesting though you brought up injuries because it is my big personal beef. If I have to have seizures isn't that enough? I'm injured constantly and I mean I've had some doozies. Good grief I walk around bruised, stitched, missing a front tooth, broken toes and fingers, casted, splinted, in pain some where all the time and I never hear anyone else say much about the injury potential. Maybe I'm just whiney? I also wear a helmet much of the time.We did put a special sensor pad on my side of the bed for a short period of time that was set to alarm if I left the bed. The alarm was SO loud and alarming I secondized into a grand mal. I think it's a good idea, if it would have had a different alarm. We do have the same sensor pad on my 4 year old's bed although she has been put back into a crib for safety. My son somehow brought the alarm mechanism's wiring into their bedroom so that loud alarm wouldn't scare her.

RE: RE: RE: RE: seizures at night

Stressed Parent, My 6 year old son was diagnosed with BRE (Benign Rolandic Epilepsy) in November 2004. I have been told that his seizures will probably always occur at night - either just as he's fallen asleep or just as he's about to wake up.

RE: RE: RE: seizures at night

My daughter also has seizures at night.  As soon as she starts falling asleep she will have one.  Also if she dozes in the car it triggers a seizure.  Recently her pattern has switched to mostly daytime which i think is worse since she has seizures during school hours.  She is taking carbatrol but it isnt working 100%.  Good luck

RE: RE: RE: RE: seizures at night

If you wouldn't mind, could you share with us your daughter's diagnosis of the type of epilepsy? I'm curious about the pattern switch and was wondering how that might be tied into her type of epilepsy. Thank you & best of luck to you as well

RE: seizures at night

Hello, my name is Tiffany and I am new to the site. I also suffer from Complex Partial Seizures and yes, having them at night is quite common. I once awoke and was completely unable to even stand...my back was completely thrown out. It is a terribly confusing situation considering you more than likely will have no memory of what happened. If you are like myself, with the Complex Partials, I tend to also wander and have found myself waking in strange areas such as the bathroom or hallway, without knowledge of how I got there. It can be very frightening and at times dangerous. The best advice I can give is to just be aware of this and to make others aware also. I wish you the best!

RE: seizures at night

Hi Jeremy!This is gsness again...I just thought I'd share with you that my wife wanted to call me at work late last week and ask if I was all right. It seems that my pillow was soaked with blood when I woke up... apparently I chewed the living you-know-what out of the side of my mouth in my sleep. Probably another CPS.Ah well, E sure can make life interesting, can't it? Hope all is better with your back! Happy New year!~GSN~

RE: seizures at night

Jeremy, I have complex partial seizures and even though most of mine are during the day I have had some at night time. My husband says that I will sometimes situp or get extremely stiff, and smack my lips and that is how he can tell that I am having them. I don't know what your day time seiuzres are like but it doesn't necessarilary mean your night time ones are the same or that afterwards you sleep in a comfortable relaxed position. I always can tell that I've had the next morning by the way I feel. It feels like I just like do after having a seizure. WendyS

RE: seizures at night

I have them at night and sometimes I wake up sore. You probably twisted wrong and hurt your back or back mussles.  Sometimes I take a good hot bath and that helps to relax me when I wake up from a seizure of that kind. You should tell your doctor though. It is good to have it documented. Everyone with seizures should keep a journal -- of how you feel each day etc. It helps to find patterns if they can be found. I have no specific pattern, myself but it helps to remember if you might have had one or not. Hope you feel better.

RE: seizures at night

Oh when I usually have seizures at night I bite my tongue.I have cPs at night some time.And do I ever have a head ache in the morning.Yes you can twist your back during a seizuire just the right way hurt you.Belinda

RE: seizures at night

...I bit my tongue for the first time 2 days back at night, am still not fully healed am scared that any more force & I might have cut it right off. Not to mention I can't lift my right hand up.Its the first time i have had CPS while asleep. In fact, have just figured out what these memory lapses are. I have been having them for almost 3-4 years. I guess i am just really scared & found this website & someone with a similar issue. How do you deal with it? Any input / information will be good, am completely new at this.

RE: RE: seizures at night

Macdaddy,For years I had seizures just about every time I took a nap. I would wake up feeling like I'd been hit by a truck. My hair would be all wierd from the electricity, my muscles and joints ached. I never bit my tongue too bad, though. Just lucky I guess. Some times I wake up in the morning with cuts or bumps because I get out of bed during the seizures, and my 100 year-old railroad flat is on about a 15 degree slant to the north, which keeps me bumping on the walls and things. I have since stopped taking naps. I just sleep later. Even so, I still have my share of night seizures. My meds are 400mg Tegretol XR and 600mg Lamictal and 30mg clonazepam. It's been working well for quite ahile now. I began taking Lamictal when it was still experimental, and it's been a wonder drug for me. Wish I could write longer, but I'm kind of tired tonight. My sister passed away just before Christmas and my sleeping schedule has been very erratic. So I know I'll be having a hefty CP soon.Stay tuned.Bob

Re: RE: RE: seizures at night

Since I went to College I started having night Seizures whenever I went to sleep they happened every once inawhile and I thought I was dreaming and they didnt happen im only 25 and the last year they have been bad they happen every couple of weeks I havent went to a doctor but its really scaring me I only get them when I sleep and once I get them when I fall back asleep they will keep occuring over and over so I cant fall back asleep and have to stay up for the day. I can only snap out of it by moving my head back and forth really hard and will snap out of it. Im awake while it happens but I cant move any part of my body except my head or neck, but my chest will be shaking and the next day my chest hurts when this occurs, also will have a buzzing sound in my head when I get out of it. Was wondering why this is and if people have the same problem as I have.

RE: seizures at night

I have what my doctor calls sleep seizures all the time.  Seizure activity in the brain tends to be more active at night, however mine are usually more mild than a full blown grand mal.  I tend to grind my teeth or click them and have vivid dreams.  If you are experiencing any of these symptoms it is very possible that you could have had a seizure and hurt your back.  Do you wake up and feel like you havn't slept?  Also, the doctor gave me valium to take before bed and it has helped a lot.  It mellows out the brain so seizure activity is less.

RE: seizures at night

And you only thought you were alone!Hi everybody,Yeah, I have 'em too.  I have come awake during some of mine, shaking and not having any control or lately biting my tongue which was only associated with grand mals before.STRESS  is the number one cause of this for me.  A big part of my seizure control is to try to keep the stress levels low.  With so little income now and a teenage kid  this has not been easy lately.  So I have lots of these.  Better these than a grand mal at work or in public.   Tell your doc, learn what triggers your seizures if you can.  Sometimes it takes friends and family to help you remember because these things have to build up for some people.  It can have multiple causes: fighting an allergy, stress, getting too excited, that flash of light and off you go.  Example for me: stress,  using my eyes too much (reading, on the computer, needlework, etc.), polution (which is also a migrane trigger), getting sick with viruses and such.  My doc just said "It'll happen."  So I watch my triggers.  It really compromises my lifestyle more with each passing year, but I am coping. 

Re: Re: seizures at night

Hi, My daughter started having night time seizures about 3 years ago, when she was 16. She takes Lamictal, 200 mg, 2x per day. I just can't find any good information out on the web about why these seizures happen only at night. Are you aware of any information?

Seizures during sleep

Hi, my 16 year old son also has seizures at night (during sleep).  The doctor said they are probably complex partial.  This started about 9 months ago and he has had one about every 4 to 6 weeks (he has actually gone almost 8 weeks now w/o one).   While feeling fortunate that they are only in sleep and so infrequently, I have also not found alot of information on this.  The neurologist isn't much help either, as she just says that they are unpredictable and he could start having them during the day at any time.  He is not on any medication at this time, however we are considering it.   The Doc said that she would lean toward putting him on meds, but we are now trying to weigh the possiblities of side effects of meds vs. seizures only every 4-6 weeks during sleep.  I guess I'm just looking for some opinions or stories from anyone in similar circumstances, particularly anyone with info of sleep seizures staying only during sleep or becoming awake seizures.  Sorry for rambling - just got a lot on my mind........ 

Re: Seizures during sleep

My Wife started having what sounds like the same exact issue when she was 26.  She is 28 now and is still only having them at night.

 Its odd how simular your story and ours seem.  She has them about the same frequency as your son, and they are usually right after we go to sleep, or right before we would normally wake up.  She has had 1 while taking a nap.

 I would love to hear about your experience since this post was made.  Email me jack@lcsnc.org

Re: Re: Re: seizures at night

peace R.C.
Yes ...sorry I thought i posted this before.
I all ready have/had lower disc probs from work and did not realize that the szs in my sleep were agrevating this A LOT .
This is now a constant with me and I am I guess in the progress of proving it . The gal alone leaves me physically sore ,headaches, black n blue, twisted, brain dead, etc.etc. for 8 days and then the "sore" back takes mo,s to heal just to sit properly let alone lift anything .
I am just now figuring a lot of this out and in fact go see a physical therapist tues at the v.a to explain it . any siggestions?
Yes this is a very real . Rick

Yes injury can be a problem

Hi

    I have control of my Tonic Clonic seizures but  when I was not in control I would have seizures and sometimes fall out of bed leaving me with an aching back and extreme fatigue for a few days. There is some possibility that a seizure may cause the body to jerk just the wrong way and pull a muscle. My lawyer once asked me if I had  anything like that when I was considering a lawsuit for a rear end collision.

RE: SEIZURES AT NIGHT AND COMPLEX PARTIALS

HI JEREMY, I HAVE COMPLEX PARTIALS, AND HAVE MANY SEIZURES WHILE I AM SLEEPING. I KNOW THAT THEY WAKE ME UP, BUT NOT ALL THE TIME BECAUSE SOMETIMES I WAKE UP POSTICTAL. AND WHEN YOU TALK ABOUT HURTING YOUR BACK, I AM WONDERING IF THAT IS WHY I HAVE SO MUCH MORE PAIN THAN I USED TO. I HAVE BEEN TRYING TO FIGURE OUT WHY A COUPLE OF DEGEREATIVE DISEASES COULD HAVE GOTTEN SO MUCH WORSE, SO FAST, AND I THINK THE SEIZURES MAY BE THE REASON. I KNOW I JERK AROUND A LOT, BECAUSE AS FAR AS I KNOW, THOSE ALWAYS WAKE ME UP. SOMETHING I AM WONDERING, SINCE MOST REPLYING HERE HAVE C/PS: I WAS TOLD CPS ENCOMPASS ABSENCE, SIMPLE, PARTIAL, CPS, PETIT MALS(C?)  AND T/CS. IS THAT WHAT YOU WERE TOLD, OR ANYONE ELSE WHO RESPONDED? GOOD LUCK, JEREMY. HOPE YOU GET THOSE UNDER CONTROL. JAN

Re: seizures at night

My husband has both complex and partial seizures.  When we had been married about 7 months he started having grand mals in his sleep.  He hurt his back way bad during one of them; just from the seizure alone, and wasn't even able to get out of bed the next morning bc/ of the pain.  We went to the chiropractor and were able to fix most of the damage, but his back still hurts him a little, and he has to do exercises for it every day.

So it's totally possible to get back problems from nocturnal seizures.

Re: seizures at night

My daughter is two years old and was diagnosed with epilepsy last November - no family history on either side and an MRI came back negative for any brain tumors.  She is on Trileptal, but as she goes through growth spurts the medication dosage is not effective enough to keep her seizures at bay until it is readjusted and builds up to a therapeutic level in her system.  Her seizures are also precipitated by any sickness she may have - common cold, stomach virus, etc.  Currently she has been having clusters of three or more seizures at a time - grand mal, tonic clonic - and I have had to give her valium to prevent more from occurring.  I am a nurse and personally knew someone that died in their sleep from having a seizure - so I have been worried sick to let my daughter sleep in her crib by herself.  I do not want her to go through a seizure without me being by her side comforting her, protecting her - I know this is not always possible, but I want to do all in my power to keep my baby safe.  I am wondering if anyone knows if someone manufactures pad sensors that I could put under my daughters mattress so that if she were to have a seizure in her sleep I would be aware of it.

Thanks -- Concerned Mother 

Re: seizures at night

I to have injured myself due to seizures while asleep. Since taking only neuronitn and felbatol my seizures have occurred at night and only in my sleep. I have managed to injury my left shoulder, left jaw, neck and back. A few years ago I told people I thought I was comming out of what I thought  was seizure and had my dog in my arms. I to had no explanation on how I was injured. Last month I decided to get a camcorder and start filming myself while asleep. I was correct, I have am having seizures in my sleep. Now, when I review the night of sleep every movement I make I wonder if it was a seizure. So, why not buy you a camcorder and film your sleep.

Good Luck,

E_Loner

Re: seizures at night

our daughter was recently diagnosed with p-c epilepsy.  besides what she was calling 'dizzy spells' in the day time, she's wake up feeling very sore.  after 3 days of eeg in the hospital, we saw one of these episodes on video cam and then when her medicine wasn't right, saw them ourselves.  Her's come mostly in the early morning when she's just cycling through sleep stages.  She begins to breathe hard, then her eyes open although she does not seem aware of you or of what she's doing.  Then she gets up and wanders the house for a while--10-15 min.  When she wakens, she's completely oriented although has no memory of the episode.  Often needs to sleep a lot after one.  She's on Topamax now and that has helped alot for the nighttime sz.  She's been a night owl all her life and so is working on building better sleep habits, and that too has helped. We have so much to learn and need all the info/advice we can get. 

Re: seizures at night

I know that I am having seizures at night because when I go to visit my mom she has witnessed at least two of them.  Also my son witnessed one when he was visiting for a week over Easter of this year.  During all three of these episodes, I had no idea that I had them, and went right back to sleep after it was over.  All three seizures happened within an hour of me going to sleep.  I would like to know how often I am having these nocturnal seizures, but since I live by myself I am unable to tell for sure.

You bring up an interesting point about filming yourself while you are sleeping.  How exactly do you do this?  I can't sleep in a room that is not dark, and if it is dark, I won't be able to see what is happening when I review the video.  I have seizures during the day as well, which have increased considerably from once every two months to once every ten days.  I sometimes have them a day apart.  I know this sounds insignificant to some of you, but it concerns me that they may get worse yet, and my doctor refuses to do a VEEG.

Thanks,

wildclover

Re: seizures at night

About a month ago i experienced my first seizure. It happened around midnight just shortly after i had fallen asleep. My boyfriend ( who sleeps pretty hard) awoke to me having a grand mal seizure. Of course he thought i was dying and wasn't exactly sure what to do for me all he could do was smack my face to try and make me come to. My eyes were rolled back into my head, I was foaming at the mouth with my back arched and jerking my body. When i finally came to about 5 mins later he instructed me to get my clothes on when i tried to stand up (oblivious to what had just happened) I fell to the floor, as my body was terribly weak after this episode.
When we got into the truck i felt extremely nauseous, and i asked him what was going on why were we going to the hospital, he couldn't tell me because he was driving soo fast and was crying. The ER nurse got me in right away after he described what happened and they put me on IV for fluids. They did a CT scan and blood work all which came back normal. Now i am on a wait list for an EEG and an MRI I have not heard anything about the EEG but have been booked for the MRI 3MONTHS from now!!!! uuugggh if there was actually something wrong with me it will perhaps have progressed by then wouldn't it??? Anyhow they did not put me on any meds as this was my first experience and informed me that 1% of the population will have a seizure during their lifetime and may never have one again.
I am kinda freaked out because before I had it I was getting terrible migraine headaches and i had another one the other day, and now my boyfriend has left until the end of the summer and i have no one to watch over me at night if it happens again. Needless to say i did not drive the day I had the migraine because i was scared i was on the verge of another one. The only sign i had the next day was i felt very "out of it" and my body was extremely tense and sore. So i guess yeah it is totally possible to hurt yourself while having a seizure in your sleep and not even know it.

Re: seizures at night

Wow!  Reading your story made me cry!  I had such a simular experience.  My second seizure just happened about 3 weeks ago and now they put me on Keppa.  It took 14 months before that second one came.  I didn't think I was ever going to have to experience that again!  I feel like I might have been having smaller ones all along.  My memory is so bad and I feel tired a lot.  I am thinking of going to a sleep center and doing another EEG. Good Luck!

Re: seizures at night

Look at my comment kle.

Re: seizures at night

I spent a week in Saint Barnabas Hospital and I had electodes conected to my head for the whole week.  There was a video camera in my room so the nurses could watch me 24/7.  They lowered my medication so the doctor could see where, in my brain they were coming from.   Good Luck everyone!  

 

Pages