|
|
For other perspectives and further links related to epilepsy, you may want to visit some of the sites on this list. We cannot be responsible for the content of other sites, but do let us know if you experience problems with any of these links.
The American Epilepsy Outreach Foundation
http://www.epilepsyoutreach.org
The Foundation’s mission is to raise the public’s awareness of epilepsy through advocacy and education, as well as provide support for those living with epilepsy and their families.
The Anita Kaufmann Foundation
http://www.akfus.org/index.php
The Anita Kaufmann Foundation is the only foundation of its kind -- solely dedicated to educating the public about epilepsy and seizures.
BrainTalk Communities
brain.hastypastry.net/forums/
BrainTalk Communities: Online patient support groups for neurology (from Massachusetts General Hospital) -- a large and active site with separate forums for epilepsy and a very wide range of other disorders.
National Center for Chronic Disease Prevention and Health Promotion
www.cdc.gov/nccdphp/epilepsy/index.htm
National Center for Chronic Disease Prevention and Health Promotion: A page dedicated to some general information on epilepsy.
The National Center for Chronic Disease Prevention also has a toolkit for parents of teens with epilepsy:
www.cdc.gov/epilepsy/toolkit/index.htm
CarpeDB
www.carpedb.ua.edu/
CarpeDB is a dynamic epilepsy genetics database sponsored by a National Science Foundation CAREER Award and the Department of Biological Sciences at The University of Alabama.CarpeDB serves as a novel source for both epilepsy researchers and the public by featuring scores of "epilepsy genes" and associated publications in one location.
Epilepsy Bereaved
www.sudep.org
Epilepsy Bereaved is the leading voluntary organisation in the UK and Internationally on Sudden Unexpected Death in Epilepsy (SUDEP) and other epilepsy related deaths.
www.emedicinehealth.com
www.emedicinehealth.com/
A website specifically designed to address health issuse such as epilepsy. The site contains articles written by physicians for patients and consumers.
The Epilepsy Center
www.epilepsycenter.com/
The Epilepsy Center is an organization that provides services in northwestern Ohio. Features safety tips, posters for sale, and extensive links.
Website of The Epilepsy Foundation
www.epilepsyfoundation.org/
Website of The Epilepsy Foundation, the U.S. national organization that works for people affected by seizures. A good place to get reliable information, especially on legal affairs and community services.
The website of The Epilepsy Institute
www.epilepsyinstitute.org/
The website of The Epilepsy Institute, a social-service organization for people with epilepsy in New York City and Westchester County, New York.
Website of Epilepsy Toronto
www.epilepsytoronto.org/
Website of Epilepsy Toronto, a non-profit oragnization dedicated to the promotion of independence and optimal quality of life for all people with epilepsy and their families. They offer a range of epilepsy support services, information programs and education to the public.
Epilepsy & Brain Mapping Program
www.epipro.com
Epilepsy & Brain Mapping Program: A comprehensive healthcare center in Pasadena, California, for treating adult and pediatric epilepsy and other neurological disorders with seizures.
Familydoctor.org
http://familydoctor.org/214.xml
Familydoctor.org, a website created by the American Academy of Family Physicians: General information on epilepsy.
LGS Foundation
http://www.lgsfoundation.org/
The LGS Foundation is a nonprofit organization dedicated to providing support and information about Lennox-Gastaut syndrome while raising funds to help pursue additional research and services for LGS families.
North Shore - Long Island Jewish Comprehensive Epilepsy Center
http://www.northshorelij.com/NSLIJ/Epilepsy+Centers
The website of the North Shore - LI Comprehensive Epilepsy Center.
The International Dravet Syndrome Epilepsy Action League
www.idea-league.org
The International Dravet Syndrome Epilepsy Action League, a volunteer-based nonprofit organization, was founded by parents of children with Dravet Syndrome to promote research and education for the early diagnosis, appropriate treatment, and cure of Dravet Syndrome, also known as SMEI (Severe Myoclonic Epilepsy of Infancy), and related genetic, febrile, sodium channel epilepsies.
Mayo Clinic
www.mayoclinic.com/
MayoClinic.com: Mayo Clinic is a world leader in developing innovative ways to diagnose and treat epilepsy in children and adults.
National Association of Epilepsy Centers
www.naec-epilepsy.org
The website of the National Association of Epilepsy Centers. Find a comprehensive epilepsy center near you!
Epilepsy information
www.neuro.wustl.edu/epilepsy/
Epilepsy information and local resource centers in St. Loius, MO.
National Dissemination Center for Children with Disabilities
www.nichcy.org/pubs/factshe/fs6txt.htm
National Dissemination Center for Children with Disabilities: Epilepsy information and resources.
Website of the NYU Comprehensive Epilepsy Center
www.nyuepilepsy.org
Website of the NYU Comprehensive Epilepsy Center, the largest epilepsy center in the United States. The Center offers testing, evaluation, screening, treatment, drug trials, alternative therapies and surgical intervention for children, adolescents, and adults with all forms of epilepsy.
New York University-Mount Sinai Comprehensive Epilepsy Center
www.nyuepilepsy.org/cec/
New York University-Mount Sinai Comprehensive Epilepsy Center website. Information and useful links. The center includes a special program for people with tuberous sclerosis.
Finding A Cure for Epilepsy and Seizures (f.a.c.e.s.)
www.nyufaces.org
The website of Finding A Cure for Epilepsy and Seizures (f.a.c.e.s.). f.a.c.e.s.is an epilepsy organization that funds epilepsy research, education and awareness, and community building events for people with epilepsy.
Parents Against Childhood Epilepsy
www.paceusa.org/
Parents Against Childhood Epilepsy is an organization that provides support for parents of children with epilepsy. Features information regarding fundraising efforts in support of advances in medical research of epilepsy.
PEP Jobs in San Francisco
www.cpmc.org/pepjobs
The PEP Jobs Program includes an Employment Coordinator and an Employment Specialist who work collaboratively to help job seekers with epilepsy find and maintain employment.
The Ring Chromosome 20 Foundation
http://www.ring20.org
The Ring Chromosome 20 Foundation was created to provide information,resources and assistance to families affected by ring chromosome 20 syndrome. It is both a registered charity in the United Kingdom and a New York City based non-profit organization.
The IRELAND Project
www.rolandic.com
A website for The IRELAND Project, based at Columbia University in New York. The IRELAND Project is a multicenter genetic linkage analysis study designed to look for the genes that cause seizures in Rolandic Epilepsy and associated difficulties in reading and speech.
A list of epilepsy websites
http://specialchildren.about.com/cs/epilepsy/
A list of epilepsy websites primarily for parents of children with epilepsy.
The Strong Epilepsy Center
http://stronghealth.com/services/neurology/epilepsy/epilepsyhome.cfm
The Strong Epilepsy Center offers comprehensive care for people with epilepsy. They strive to improve a patient's life (including employment, driving and personal well-being) by identifying, in children and adults, their particular type of seizure, so they can develop an individualized medical and/or surgical treatment plan.
Suncoast Epilepsy Association
http://pppl.tblc.org/sesweb/
Suncoast Epilepsy Association: A Florida, non-profit organization which provides services to individuals with epilepsy in Pinellas and Pasco Counties.
The Swedish Epilepsy Center
http://www.swedish.org/
The Swedish Epilepsy Center provides multidisciplinary evaluations for patients with adult epilepsy, pediatric epilepsy and new onset seizures. Treatments may include anti-seizure medications, epilepsy surgery, and vagal nerve and other neurostimulator devices.
The Pediatric Epilepsy Project at UCLA (PEP)
www.4pep.org
The Pediatric Epilepsy Project at UCLA (PEP) was formed with a single, all-important mission: to raise funds, provide financial support and increase community awareness to help sustain the Division of Pediatric Neurology at UCLA.
ThinkQuest
http://library.thinkquest.org/J001619/
"Growing Up with Epilepsy" is a ThinkQuest website created by two young, gifted students with their teacher as their coach.
Wake Forest University School of Medicine
http://www1.wfubmc.edu/neurosurgery/
Wake Forest University School of Medicine, Winston-Salem, North Carolina, Department of Neurosurgery: Contains general facts on epilepsy along with links to numerous websites for the epilepsy community of Wake Forest, as well as, various other sites containing helpful information on epilepsy.
University of Washington
http://faculty.washington.edu/chudler/epi.html
University of Washington: Professor's website containing epilepsy information and resources.
A UK website
www.bbc.co.uk/health/epilepsy/
A UK website with information on epilepsy and local resources for UK residents living with epilepsy.
The BC Epilepsy Society
www.bcepilepsy.com/
The BC Epilepsy Society is a non-profit, charitable organization dedicated to serving the British Columbians living with epilepsy, and their families.
The National Society for Epilepsy
www.epilepsysociety.org.uk/
The National Society for Epilepsy provides information and support to people with epilepsy. They also provide care for people with epilepsy through medical and residential services.
A German online museum
www.epilepsiemuseum.de/
A German online museum which features artwork, history and virtual tours.
Epilepsy Canada
www.epilepsy.ca/
The website for Epilepsy Canada, featuring information on Canadian resources as well as general facts. Also includes "Kidz Korner" with reassuring explanations for children.
Epilepsy Ontario
www.epilepsyontario.org/
Epilepsy Ontario: A website with information on epilepsy and support and volunteer opportunities for the local Ontario epilepsy community.
Epilepsy Association Australia
www.epilepsy.org.au
Epilepsy Association Australia: A growing site with information offered separately for adults, children, and teens. Good general information for everyone and offers of many services for people in Australia.
Epilepsy Action
www.epilepsy.org.uk/
The website of Epilepsy Action, the working name of the British Epilepsy Association.
Epilepsy Support
www.epilepsysupport.org.uk/
Epilepsy Support: A British site offering patient-to-patient community support.
Epilepsy Foundation of Victoria, Australia
www.epinet.org.au/
The website of the Epilepsy Foundation of Victoria, Australia. You can participate in rating the websites included in the interesting list of links here, including some in other languages. Also some good practical tips.
International Bureau for Epilepsy
www.ibe-epilepsy.org/
The website of the International Bureau for Epilepsy, a European-based group dedicated to improving the non-medical aspects of life with epilepsy around the world. The site also includes links to groups in many countries.
International League Against Epilepsy
www.ilae-epilepsy.org
International League Against Epilepsy: A preeminent association of physicians and other health professionals working towards a world where no persons' life is limited by epilepsy. This website contains plenty of helpful information on epilepsy.
American Epilepsy Society
www.aesnet.org/
Website of the American Epilepsy Society, which promotes research and education for health care professionals.
Center Watch
www.centerwatch.com/patient/studies/CAT62.html
Center Watch: A comprehensive list of epilepsy clinical studies going on throughout the United States.
Beaumont Hospital
epilepsyprogramme.ie
Group of clinicians, nurses, clinical scientists, engineers and geneticists working to improve our understanding of epilepsy. They are based in Beaumont Hospital, and under the affiliation of the Royal College of Surgeons in Ireland.
National Institute of Neurological Disorders and Stroke
www.ninds.nih.gov/index.htm
The site of the National Institute of Neurological Disorders and Stroke, the part of the U.S. National Institutes of Health that covers brain disorders. News about research developments and clinical trials.
Welcome to the Wiki. This space is created for epilepsy.com members to share their own experiences and expertise to help refine and expand the discussion around important topics.
No members have yet contributed to this topic. If you are not yet an epilepsy.com member, register today to get started on this Wiki topic and the many other advantages of being a member. If you are a member and wish to be the first to edit this Wiki topic, please make sure to login, then click on the orange "Start Wiki" button at the top of this page. Or, learn more about Wikis.
| Title | Posted | |
|---|---|---|
| Seizure Alert Dogs | Aug 8, 2009 | |
| bleedingheart | ||
| Tongue Bitting | Oct 18, 2009 | |
| Son of Cain | ||
| Anti-Suffocation Pillows | Sep 23, 2009 | |
| angel_lts | ||
| info about vicodin | Sep 30, 2009 | |
| daliastanlex | ||
| tryptophan, serotonin and epilespy. A new approch to control seizures | Jul 30, 2009 | |
| PAOLOMAINARDI | ||
| View all Forums | ||
| Title | Posted | |
|---|---|---|
| help ive got pseudoseizures | Mar 18, 2010 | |
| knicknack954 | ||
| AM FREE FROM EPILEPSY...TRY IT TOO | Mar 18, 2010 | |
| kelvin | ||
| Disability... | Mar 18, 2010 | |
| Lexx | ||
| Probable (75%) partial onset (possibly temporal lobe) with secondary generalisation | Mar 18, 2010 | |
| garye | ||
| Military and Epilepsy, my rights | Mar 18, 2010 | |
| bluebaker34 | ||
| Can't find the source | Mar 18, 2010 | |
| evans_mindy | ||
| Epilepsy and Pregnancy | Mar 18, 2010 | |
| jenbren9 | ||
| Lamictal Side Affects and TTC | Mar 18, 2010 | |
| kattatstrophe | ||
| Topamax Dizziness Lasts All Day | Mar 18, 2010 | |
| sonjadupor | ||
| TOPAMAX - Side Effects - Taste Perversion (Soda/Soft Drinks) TRY THIS TRICK !!! | Mar 18, 2010 | |
| OnlineJenny | ||
| View all Forums | ||
| Title | Page Views | |
|---|---|---|
| my.epilepsy.com Updates | 20,444 | |
| epi_help | ||
| topamax and weight loss | 18,977 | |
| alexia mom | ||
| kepra | 18,913 | |
| brian mattingly | ||
| Possible cure for absence seizures | 15,852 | |
| pdl1 | ||
| Epilepsy and marijuana | 15,646 | |
| cjad234 | ||
| Sexual Side Effects | 13,151 | |
| George R | ||
| How exactly do aura's feel | 13,058 | |
| WendyBendy | ||
| MEDICAL ALERT I.D.'s | 11,465 | |
| picnupthepcs | ||
| Over 40 Different Types Of Seizures - Revised | 10,091 | |
| spiz | ||
| electrical shock in head? | 9,477 | |
| Maggie | ||
| View all Forums | ||
| Title | Posted | |
|---|---|---|
| 2112 | Mar 18, 2010 | |
| 2112 | ||
| Specimen for Study Part II - Stupidity of Doctors | Mar 17, 2010 | |
| MichaelK | ||
| Support Groups/Naples | Mar 17, 2010 | |
| pibbs84 | ||
| Doctors and diets | Mar 17, 2010 | |
| Christine86 | ||
| Jillian's Progress | Mar 17, 2010 | |
| jillsmom | ||
| Coughing up a Lung | Mar 17, 2010 | |
| kjeldoran_king | ||
| Seizures and medical marijuana | Mar 17, 2010 | |
| seizureprone134 | ||
| Single Mom Recently Diagnosed With Temporal Lobe Epileptic Seizures | Mar 17, 2010 | |
| ambdab01 | ||
| spiderman | Mar 17, 2010 | |
| DaniellaMT | ||
| gerbera daisies | Mar 17, 2010 | |
| DaniellaMT | ||
| View all Blogs | ||
| Title | Page Views | |
|---|---|---|
| Inspirational Quote - My Own Personal Inner Thoughts | 8,008 | |
| Butterflygrl | ||
| my partial complex seizures | 3,878 | |
| Zanna1211 | ||
| Topomax... The Dreaded......... | 3,662 | |
| Dr Jason | ||
| Brain Zaps, tics & twitches | 3,475 | |
| JudiS | ||
| side effects of phenobarb. | 3,074 | |
| pksmom | ||
| Feeling Sick | 2,934 | |
| JBJ1984 | ||
| How can you tell if a sleep seizure happens? | 2,914 | |
| epl_controller | ||
| Tegretol XR and ANXIETY meds | 2,819 | |
| Butterflygrl | ||
| TYLENOL, AEDs & SEIZURES | 2,754 | |
| cmscribbles | ||
| Nonepileptic "Events" vs. "Seizures" | 2,603 | |
| teft | ||
| View all Blogs | ||
| Title | Posted | |
|---|---|---|
| Absence Seizures in Kids | Mar 17, 2010 | |
| zmommy | ||
| Baytown Texas Epilepsy Support Group | Mar 16, 2010 | |
| cmender1984 | ||
| Mothers With Epilepsy | Mar 16, 2010 | |
| cmender1984 | ||
| Seizures: First Diagnosis Infantile Spasms, Second Diagnosis: Atonic Drop Seizures | Mar 11, 2010 | |
| trey2007 | ||
| DestinyMaker | Mar 10, 2010 | |
| destinymaker | ||
| you are not alone my friend. | Mar 1, 2010 | |
| donnia | ||
| Panayiotopoulos Syndrome | Mar 1, 2010 | |
| valentina | ||
| i have Epilepsy and A career... looking to talk to others of te same | Feb 25, 2010 | |
| krayb450 | ||
| College Students Living and Learning with Epilepsy | Feb 22, 2010 | |
| risingagain13 | ||
| Just Been Diagnosed Of Having Epilepsy? | Feb 19, 2010 | |
| norrmbeam | ||
| View all Groups | ||
| Title | Posted | |
|---|---|---|
| I am a worried Morther | Mar 18, 2010 | |
| spades | ||
| Combo gift packs | Mar 18, 2010 | |
| bobo0 | ||
| Never Grew Out of It! | Mar 17, 2010 | |
| fhsu_recruiter | ||
| Sophies Story- Infantile Spasms | Mar 17, 2010 | |
| sophiesmummy | ||
| MIGUEL'S STORY | Mar 15, 2010 | |
| miguelitos mom | ||
| Not again | Mar 15, 2010 | |
| megan.flore | ||
| Given epilepsy for a reason | Mar 15, 2010 | |
| sissy_girl | ||
| My Story | Mar 14, 2010 | |
| ouize | ||
| miss | Mar 12, 2010 | |
| farakh | ||
| Zoey's Story | Mar 12, 2010 | |
| rina23x | ||
| View all Stories | ||
| Title | Page Views | |
|---|---|---|
| Jessica Roiz | 2,298 | |
| kroiz | ||
| (TLE) seizures, insurance company denies me for health care due to epilepsy | 891 | |
| wenko | ||
| my story | 473 | |
| snoby | ||
| Always Have On Clean Underwear | 449 | |
| crashllama | ||
| Kelly's Life With Epilepsy | 426 | |
| kjcanada1979 | ||
| my brain has died a thousand deaths........... | 406 | |
| banffgirl | ||
| What My Seizures Are Like...... | 382 | |
| javaman | ||
| Temporal Lobe Epilepsy | 353 | |
| Nocturnal grand mal seizures (primary generalized epilepsy) | 343 | |
| karalyeva | ||
| Life......... | 337 | |
| dizzygal | ||
| View all Stories | ||
