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momof1

The feelings after a seizure.

Hi. I wonder if anyone can relate to how I'm feeling. 2 nights ago I had a bad seizure in my sleep. Almost all of my seizures are nocturnal. If I have them for a few nights straight I will start to have them while awake. Well the next day I just layed down. When ever I got up I got a strange feeling. Just like before I do have a seizure. So of course this is terrifying. I'm sure if anyone has felt like this that you can understand. Does this happen to anyone else??? Here is one more question. It's 2 days later and nothing tastes right. Could this be a result of biting my tounge?? Today has been a hard day. Nothing feels right. Just to hear that I am not crazy would help so much. I've stated before that I don't know anyone else who suffers seizures.Thank you.Stacey.

Comments

RE: The feelings after a seizure.

Yes I know exactly how you feel. All of my seizures are in my sleep, grandma seizures. I always bite my tongue and it taste awful from infection. Almost every time I have one, when I wake up I cant move, its like I'm paralized for almost a week. It is very hard when you have kids. I get so scared that my kids will get this and I dont want that, cause I know how hard it is.

RE: The feelings after a seizure.

You're not crazy. You feel like you are, that's all. I know the feeling very well. I just wish I could put it into words. I would love to be able to describe what it feels like. Your three words "Nothing feels right" is the closest description I've heard. Stacey, I've been trying to describe it to my family for 30 years. You can take one thing to the bank, your family doesn't think you're crazy either. Food not tasting right could be a result of biting your tongue. I'm not a doctor, but I have a lot of experience with eating. I've bitten my tongue more times than I can remember. Food does taste different. I thought it was me at first too. Good luck. I know it ain't easy. I just wanted you to know that you aren't crazy and you're not alone.

RE: The feelings after a seizure.

Thank you. Just knowing someone else can relate helps. My family is very understanding. Just as they can't imagine what a seizure feels like I can't imagine watching somone I love having one. As I am writing this I can picture my 13 year old daughter describing me during a seizure. I can't help but smile. I've met some nice people on this site. I'm grateful Stacey

RE: The feelings after a seizure.

Thanks for posting. My teenaged son had noctunal seizures. His dr would always say that he could go to work that same day but he would always be too worn out to work. He would feel totally zapped the day after a seizure. After reading posts on this site I realized that ds was not the only one who needed a 'recovery' time. I wish that doctors would give some useful information regarding recovery time after seizures. Its almost like the dr felt that since medically ds was ok - he could do his normal activities - while ds always felt he needed a day off. Thanks for posting & letting me gain a little insight into ds's world.

RE: The feelings after a seizure.

I can totally relate. I'm new to these forums. I've been diagnosed with epilepsy just this week (2 days ago).I've had a feeling that I had epilepsy for a while. Started back around Sept. '03. Woke up one morning feeling like a steamroller had rolled over me a few times. I figured I might have just turned the wrong way during sleep and strained my back. So I made my way to work...Well, since that time I bit my tongue a few times and had a few more morning feeling like "beep". Then, in early Feb. '04 I woke up on my bedroom floor. With the computer monitor next to me, flat on the screen. Went to the bathroom and noticed I had 2 black eyes and blood red eyes. Turns out I had a concussion.My co-workers at work convinced me to go see a Doctor, which I did. He refered me to a Neurologist... did an EEG. While I was waiting for my result (which is next Monday) I had another seizure, again, woke up on the floor but I had cut myself that time. I had about 8 cuts around my right eye browe (?!? don't know if that's the right word since I'm french) and there was a puddle of blood...Made my way to the hospital emergency. They kept me there for two days. Did an ECG, CAT Scan and EEG. No tumor which is good... probably gonna do an MRI in the near futur.Anyway, sorry for the blah blah... this is my first time really speaking out on this scary subject. Mine are also nocturnal seizures. Except for a few (maybe 3 or 4) "auras" when I get up fast. I have a feeling of having a tunnel vision and can't say if I semi-blank out for one second or one hour. I really loose the notion of time. It's really an odd fealing (turns out it's not a long duration from what witnesses said).As for food tasting weird, I don't know. I just know that I feel so burned out that just putting on a sock is quite a task.- Stef.

RE: The feelings after a seizure.

Hi again, Stacey~~No you are not alone. I have seizures as well, only I have 4 types.Having a strange feeling like you are about to have a seizure, could in itself BE a seizure. Simple Partial seizures create all kinds of stuff. Including the foul taste you were experiencing. That is VERY common.During a Simple Partial seizure, the person remains fully conscious and is completely aware of the seizure. It can cause such things as jerking on one side of the body, numbness, tingling, or a pins and needles sensation down one side of the bosy. They usually last for a minute, sometimes less. It can cause sudden emotions such as joy, anger, or sadness for no reason. The person can experience a multitude of strange feelings and sensations, as well as have an unusual smell, usually unpleasant, a taste that is off or unpleasant, visual hallucinations of people who are not there, auditory hallucinations of music or voices that are not there, see flashing lights or patterns, or have some phenomenom that makes things look larger than they are or smaller than they are.So, you could very well be having a bunch of simlpe partial seizures. That happens to me. I can have days where I can not walk in a straight line, I fall over all the time, I feel shaky, and have that stupid smell on and off all day long. That just tells me that my brain is producing seizure activity that has not stopped all day, and that I am "in-seizure" at the point in time.If I miss one dose of my Neurontin, I am in deep trouble.I smell urine and dust for my seizures.My brain damage is mostly on the right side, so when I fall over for any reason, seizure or not, I always fall to the left.Nancy

RE: RE: The feelings after a seizure.

So it is true that you can have several types of seizures at once?  Sometimes i feel symptom of complex partial, but some are auras or simple partial.  some have felt like general (according to the symptoms).  sometimes i will just stop and stare THROUGH some point on the floor.  My head rolls to the left and my eyes go up and leftward.  But when i stop, it's like i stop and slow down like a machine until i come to a full stop.  other times i just stare, but i can still resume what i was doing, but really slowly, almost like a dance.  This will also explain the times i had my whole left arm totally numb (feeling nothing, not even pressure) and i couldn't explain why. My feet too.  sometimes when i am walking, i'll ust get weak all of a sudden, and i have to struggle to sit down.  but i don't know whether to report to my doctor about my "seizure" because i thought that maybe i just can't concentrate (this is just the staring, which lasts about 5 to 10 secs, i guess, because no one's timed it. )  if this is so, then either the meds don''t work (the dose i'm supposed to take my body can't handle so i have to take about half.  My bAC is at 11, which to them is ideal but then is this enough meds to control it?) or the dose is too low, and i should not come off the meds like i was scheduled to do this Christmas.  i do't know what to do.  when i stare, my vision turns double, like my eyes cross (unfocused), but not really crossed.  most of the time i feel like staring (like almost the whole day) but i only succumb whe i can't take it any more and it's too strong to fight back.  ist this a sezure, or is it just a concentration problem?   Sorry, but i am new to this.  i was diagnosed 2 yr ago but i took the diagnosis and left it at that.  i recently started developing more and more staring, so i became curious.

RE: RE: RE: The feelings after a seizure.

For me the feelings and behavior after a seizure were usually rudeness on my part and such total exhaustion that all I wanted to do was sleep.  I didn't want anybody to touch me, try to help me or bother me - I was nasty - I'd sleep about 6 hours and then wake up groggy and feel a little like I had a hangover.  That would pass in about an hour and if everybody kind of left me alone until I came out of the mood on my own and I would be back to normal - but if they bugged me I got defensive and nasty again and it could take a couple of hours or more for me to get back to some degree of normal.Our minds and our bodies can be under such stress and tension for that minute or so that the seizure lasts that total exhaustion results.  Our organs are also affected and therefore blood may not get to everywhere as well as it should causing some of the after-effects.  We also can get in to positions that further slow blood flow.  You know how your foot goes to sleep if you sit on it too long?  It is similar to that.Talk to your neuro about what is happening and how you feel.  If the neuro has no answers for you then maybe you want to see an Epileptologist.  That is a neuro who has taken additional training in epilepsy and it's effects on the body, the psyc and the emotions.  There are also whole clinics with specialists from several fields working together on the issues that epilepsy cause for us.If there is anything I have learned in the last few years it is that this doesn't end with the diagnosis or even with meds that do work.  Life changes us.  Our bodies under go changes and then our seizures begin to manifest themselves in new or different ways.  We slow down and we begin to notice things that we would have ignored or not even noticed when we were chasing kids around the house or stuggling to make ends meet.New challenges come up like age, menopause or other illnesses.   Each day is a new day and a different day.  Talk to your doc about what is happening for you.  I wish you the best...................Lee 

RE: The feelings after a seizure.

Dear friend, I really feel for you when I saw what you wrote. Well, I would like to tell you that my girl friend just got cured last two months when we where told by our travel agent here in Egypt about some herbal treatment and we have to try it and I am happily tell you that she is a free as air now as the doctor confirmed that she is not having any trace of epilepsy again in her.If you would like to have the drugs, tell me so that I will give you the man contact email.Bye,Greg.gregrb232@yahoo.com

RE: RE: The feelings after a seizure.

When i come down from a sez i'm a little unsteady on my feet. I have slurred speech, and i'm only just in contact with reality. Been arrested for being drunk twice so far, then released with apologies after.And there is no such thing as a herbal cure for epilepsy, in any way shape or form.

RE: RE: RE: The feelings after a seizure.

DEAR, I DON'T LIKE PEOPLE HOW DOUBT SO MUCH. OK, TRY AND WRITE HIM WITH THIS EMAIL ADDRESS OK: doctoryarsi@yahoo.comBYEGREG.

RE: RE: The feelings after a seizure.

Thanks fo the post.  I have my seizures at night as well.  My problem is I try to walk afterwards and of course, I have no balance.  I am lucky I have not hurt myself to bad other some bumps and bruises.  I have bitten my cheek and tongue numerous times.   Afterwards I would rather not eat.  Food looses it appeal for awhile.    Just one more side effect from seizures.    

RE: RE: RE: The feelings after a seizure.

HI, I WOULD LIKE YOU TO TRY THIS DOCTOR OK. HIS EMAIL ADDRESS IS: doctoryarsi@yahoo.comBYEGREG.

RE: RE: The feelings after a seizure.

Hi GregPlease, pul-leaze realize I am not personally launching an attack on you okay? I am also just happier than a lark that your (is it?) girlfriend is currently sz free after using some herbs. I saw an "Eastern Practitioner" (Chinese medicine) for several years in the US. He had me drink the most putrid tasting tea twice a day. It tasted SO bad I had to drink it at the sink and just gulp and gulp to keep it down but I do think it might have had, for a short period of time, some reduction of sz effect for me but it didn't seem to continue. But before I drank it? I found out the ingredients, checked it out with my epileptologist who said can't hurt so I tried it. I also got accupuncture treatments from him that would stop my absences for about 5 days. I tried 2 other accupuncturists who didn't have the same result though so I figured the first one had excellent technique or it just stop working for me. I would still be seeking accupuncture if I could afford it but the treatments were too expensive. I'm relating these two things to let you know my epilepsy is bad enough, I have a real problem taking AEDs, that I've also turned to safe alternatives in treating sz's. Two with good success (the other was diet). Some with no changes. One made me loopy as heck, I was worse.BUT and a very big BUT, if there were a cure for epilepsy? Trust me, thousands would be at this guy's doorstep and with the statistics of 1 out of every 100 people having epilepsy - the very import of that many people getting "cured" from an herb? That would rank right up there with the Salk vaccine that stopped the spread of polio. SO, what I would say is your friend has had a tremendous sz reduction. And I sincerely am very happy for you both. In a lot of ways who cares if it's a "cure" or an absence of symptoms? Heck, I'd settle for even half of what I have. But if an herb cured epilepsy? Just think of the worldwide impact, the noteriety, how much that would change all treatments, so many things for epileptic's lives, what it would give back to us who have often lost so much. There's also a big economic impact a cure for epilepsy that would be felt. In my country Medicare/Medicaid, disability, many social programs federal and state funded, church pantries and shelters, homelessness, serious depression, the list is endless, all of which is tremendously expensive, all of which is paid for by the government, private health ins. companies or written off by facilities, IOW a big financial burden just from epileptic treatment and support of epileptics which is borne by places that are always fighting to reduce costs or expensive medical treatment is written off by already straped facilities. I know all these 3 would love to dump that expense and would aggressively pursue the "cure" you spoke of, if it existed. Our gov't has very big ears too for news of that type. Pharmaceutical companies are the second largest lobbyist's in our Congress last I heard. They spend millions of dollars trying to get more just lobbying on their own behalf, often for research money, and it's all to make more of a buck. These are not good will companies. They are for profit. Pharmaceutical companies have botanist out in the field all over the world all the time testing barks, berries, leaves, all types of bugs and plants looking for new medicine and that's of course where a good deal of our medicine now was originated. Their ears are always to the ground for things such as you mentioend in fact I wouldn't be surprised if a pharmaceutical company read your post, probably did. That's their business. I've had several professional dealings with pharmaceutical companies and I'm not meaning to put them down, they're a business just like any other but they make a lot of money thus can spend a lot of money and they do on research and development of new drugs (R&D) watching in every venue possible for anything new they can bottle and sell. Tamoxifen for example which has changed the face of some forms of breast cancer was first found from the bark in a small stand of trees only found in in Oregon. There was no way to realistically start growing these trees rapidly in large enoug numbers, to reach enough maturity to strip the bark, for the demand. But the discovery of this, and it's not even a cure but more of an aid to prevent spread of breast cancer but when Tamoxifen hit the news this was BIG news. Effected many women, not nearly as many though as would something that would even slow epilepsy down. Until scientists could synthesize Tamoxifen? You had to apply to be dispensed this precious drug and only about 1 out 10 women were approved and for very short periods of time that was not considered a therapeutical length of time but at least gave them a boost. The pharmacy companies were wild to synthesize it for PROFIT. The bottom line for companies who make drugs is PROFIT. With people always all over the world searching and reserching many naturally occuring substances for medicinal use such as botanists, biologists of all kinds, and probably others? As powerful as pharmacy companies are? They'd have found this herb by now. We'd ALL know about it. That could not be kept in the bag. I've been on epilepsy forum boards for several years and it's worrisome to me when I see potential misinformation because there are a lot of new people who are really desparate, read about "cures", trying to learn, trying to get help, sometimes I've read some alternative methods of sz reduction that make me really worry if it's even safe PLUS there are a lot of parents with extremely sick children who are extremely desperate. I was one of those parents once. I know the desperation a person can feel. I know the feeling of feeling let down or rejected by doctors whose treatments aren't working and they seemed to then loose interest in my child. I'm touchy about claims of "cure" because so far, none has been documented and even the finest neurosurgeons won't tell a patient removing well docmented foci by surgery ever promise, or shouldn't, that a patient can expect a complete cure but reduction of symptoms.A firm diagnosis for epilepsy is for life. That's a stark statement but so far that is what is stated by all that work with it as their careers. I've read a lot of literature. I've asked experts. There is not one known person who was totally cured of epilepsy, ever. From any resource. My son had sz's for 19 years. Then they just quit. No known reason, for 6 years. He got off AEDs for the first time since infancy. Then they started up again. He had started to feel it was a "childhood" illness. He was "cured". It was crushing to him when his sz's started again and by then he was married with a child, job responsibilities, so having sz's took on a whole new context and he took a very big emotional/financial hit. If you read very many posts you'll read it isn't unusual for people to seem to have a remission of symptoms. But it's a remission of symptoms, not cure, and these people are posting usually because of their frustration the symptoms returned, often after years of being symptom free. I was controlled, no sz's, for 5 months. I'm intractable now, sz daily and now my realistic goal is for reduction of symptoms. I doubt I can ever be sz free. I wonder often though why my symptoms disappeared taking AEDs for 5 months. In fact the same AEDs I take today. The answer to that is - no one knows.Again please don't consider this a personal attack. I'm posting out of concern for those who are newly diagnosed, in shock and fear, just learning, feeling desperate, but most for parents that truly have very sick children and may get too desperate and try things that could hurt their children. Plus and again if there were any herbal remedies to "cure" epilepsy? Trust me, we'd all be hearing about it. That would be published, quickled bottled up, and sold. If for no other reason? The profit for some company would be way too great to be ignored.How I wish......I'm very happy for you and your friend's reduction in symptoms though (smile).

RE: RE: RE: The feelings after a seizure.

(Weird - the post I wrote right before this one I didn't post on this thread! Oh well)I think this is a great thread because so many threads are started on sz's and AEDs that post ictal feelings and mild to severe disabling effects aren't discussed enough, at least to me. I tend to have status t/c's. Recover for about 4-6 hours afterwards in the ER and stagger out than home. I think I have perfected walking and talking well enough so I'm not admitted usually but in truth - I rarely even remember walking out, getting in the car, to collapse in bed dead asleep for hours at home. I got mad recently when in a hospital not used to treating me insisted I stay in ICU but there wasn't a staff member in there. Once I was recovered enough to go home why stay when no staff was watching me anyway? A nursing assistant did stick her head in the door and asked if I needed anything and I said yes, I needed help to the bathroom and she asked if my husband could help me, she was real busy. Then she said he probably knew more about epilepsy than she did any way (giggle giggle) so if we needed anything - juz holler! So I went to the bathroom, got dressed, with help from a friend and my husband, and we proceeded to leave. A male nurse grabbed my arm rather hard in the hallway to stop me, got angry sounding at least to me, and I tore off my PAPER hospital bracelet and threw it at him. I don't consider having a small piece of paper thrown at me, missing by miles, a real big threat, and I'm a nurse too. My aim for sure was really bad (I threw it on my own foot), said a few profane words, and left. That jerk reported me to my doctor for extreme, prolonged, loud profanity effecting other patients who then FIRED me. I know I didn't do all of that, two others were with me and while I admit he got two sentences rather loud that were profane it was at the back door not even near patients. Still that's not the point. As a nurse I'd never grab a patient like that particularly PI, it could actually be construed as assault, and if they have an ICU they should staff it. NO medical personnel can restrain ANY patient in ANY way without a doctor's order BTW. I'd seen this doctor one time! We were new in the community. Maybe that was good she fired me. She sure didn't know much about post ictal and combativeness. I do not like being grabbed by the arm and yanked hard by a nurse or forced to do things when I'm that post ictal (PI). I'll get equally or more so combative. Many do. It's the nature of this beast. Emotions are very "basic", and in me only I'll say reactionary and immature when I'm freshly PI. I will say though as often as I've been hospitalized and in the ER I've had far far more personnel that are educated and treat me well than thin skinned uninformed nurse's such as that man.I have several kinds of sz types and each little sz type has it's own little post ictal after shock, or none. I got a kick from the poster who had his first sz apparently right before he woke up and was fuzzed up because that's the first time I was aware I had a sz too and it was on my second day of a new job and I couldn't get dressed, couldn't find my way to work which was close, left my car running and left it parked in the driveway and knew I was "off" but didn't realize how "off" I was or why. If I've had a particularly nasty t/c? Like a status t/c? I can feel the aftershocks for 1-2 days but sometimes for 5 days or so. Sometimes I don't have real recognizable symptoms but I can't get my mind engaged well. My memory is shot. I topic hop. Can't remember things. My interest can be gotten but not held. I think at least in my case too if I have a status or very long t/c my brain seems to get excited sometimes. Although I'll sleep an incredible amount even up to several days after on and off, I'll also be more prone to simple partials, drops, jerks, absences.And yes I can have more than one type of sz at once or happening all grouped together sparking one type then another rapidly and so forth. I have absences and jerks at the same time frequently. I have jerks when I'm down for the count with drops. As far as the "am I nuts"? I went through several years of wondering about a lot of things - was I becoming nuts? Was a question I often secretly asked myself. I had Alice in Wonderland syndrome long before my diagnosis, as a child into my late 20's. That's a simple partial where you either feel extremely small or extremely big and it's a very weird feeling. I have heard very distinctly in my husband's voice "I'm home" when he's not. Those are also called auditory hallucinations. One problem I do get is an aura that is also I guess in the strictest sense a simple partial but it also signals a sz coming on always and that is an olfactory hallucination or I get over whelming smells of something. I'll smell the same thing for months up to over a year then change to something else. The first was burning chicken feathers, one was beer, "basement" or dust and mold. One great RN in an ER once put some essence of violet on a cotton ball for me that diluted that overwhelming odor, so I have some of that now. Also smelling coffee grounds was suggested to me and that helps.One of the problems I have? I might be recovered but I'm not sure if I am or I think I am and I'm not fully. The person who said they become "rude"? I think that's a nice way of putting I can get very combative. Have a very quick trigger, do things uncharacteristic of me like let loose with a string of profanity, I've struck at people who try to force me physically to do something. That combativeness in me is from fear. Sometimes immediately post ictal from a t/c I break down in wracking sobbing. It's upsetting to those around me, I'm asked why are you so upset? I don't know. I wonder too. Other times right after I recover from a t/c I'm manic like. Extremely talkative, inappropriate in the ER, talking very loud, making comments about people not rudely just observations, asking the same question over and over - LOUDLY then I always sink into my characteristic deep sleep - which is I'm sure a big relief to others. I know I'll be repeatedly asked by one person or another to settle down. I forget, start the loud manic like talking again. That lasts about 15 minutes before I crash into slumber land.I've gone back and read emails or posts I've written at times and nearly die over things I've said. Either I've been way too candid about my personal life, or I've gotten vicious in a post or email. Thankfully posts can be edited. Unfortunately once a very nasty email has been sent it can't be retracted. I tend to have an overwhelming desire to write after some sz's. Someone said that's hypergraphia. I don't know if I'm hypergraphic or not, I do write a lot, feel a need to but it's one of my emotional outlets too. I wish to heck I'd stop that PI posting and emails tho. I have never had the taste problem. I can't feel things with my fingertips though. It's not a hindrance to anything, just annoying. I know what pins and needles are but I can't remember having those. Lately I developed this all over periodic feeling I'm having little exploding sparks in my body. Just call me Sparky I guess! I don't bite my tongue, although I have but don't routinely. However I've bitten the inside of one cheek and the inside of my lower lip so often that I have a scar in both of those places that now are hypertrophic or stand out and I'm supposed to have them surgically excised because of course now I always bite them because the scar is so prominent. Since they are so prominent now I tend to bite down on the one in my cheek when I'm eating too so I guess I need to take care of that. Which I'll do after I get the front tooth replaced that I knocked out! (Anyone having fun yet?!)I think a lot more education needs to be given to employers, schools, people we live and interact with about post ictal conditions. Explaining it is a recovery period. Thinking about all of this I would say my biggest problem after a long cluster or long t/c is incredible sleepiness that can last for days and my mind is very slow. Very aggravating too. I'll listen to what someone says? And I'll have to ask them to stop after a couple of sentences. Let that sink in, before they continue. I'l read the same paragraph in a book over and over and it just won't sink in or make any sense. Like, isn't having the sz enough?Oh well. My world has gotten narrow since I got epilepsy and I think luckily for me people who are around me a lot are far more aware when I'm still PI a lot more so than I am and make allowances, thankfully.

RE: The feelings after a seizure.

All of my seizures occur during night time. I'm a teenager an dmy mother sleeps with me for a while, until I fall asleep because most of my seizures occur before I fall asleep completely. I feel when it is coming and all I want is hide it. I tried going to the bathroom twice, but I fell on the floor and fainted both times. During the seizure, I don't want anyone to help me. I don't like my mom or my dad talking to me or touching me. I want to suffer alone. While it is happening, I want to stop it. It lasts around 1.5 minutes. When it stops, I want to get myself in a comfortable position but I can't. My right arm gets numb because that's where the seizure affects the most and my whole body is half numb. I can move if I try really hard but it's almost impossible. I'm very tired after the seizure and want to sleep. Very often, I start to cry during or after the seizure. During and after the seizure I can't speak. I make pig-like noises during my seizure. Those noises really scare me but I can't control it. Sometimes I think I should go to special school or that I'm different. I can't accept the fact that I'm "the chosen" to have epilepsy with billions of people out there.

RE: The feelings after a seizure.

Hi, the seizures I had were different because they were from tetanus, but they were terrifying because of the pain. What I want to say, is that vitamin C helps a lot in reducing the infection... the doctors refused to look at my great toe where I got the darning needle in because they said I was just paranoid, I guess they thought that because I'd been screaming from the extreme pain when the contractions hit, and there wasn't any swelling or fever.So I never had enough antibiotic to make the infection go away, and I had and keep having red lines under my great toe nail.I had to find something to take because my muscles were getting so tight.. and when it was the worst it was hard to breath... so I took vitamin C in huge doses. Then I found an article about a study in Bangledesh where tetanus is more common, and it said that of the people who had vitamin C, the disease was not as harsh. (I forget the exact words .. I have some brain damage.)So I think that if there tends to be infection from biting your tongue, that Vitamin C would help. The other thing is that when I was living over an old outhouse pit and there was hydrogen sulfide in my house that affects the nerves and also causes soft tissue swelling, my gums swelled so much they bled, and that gave a peculiar taste all the time.The other thing that is helping me survive this, is vitaming B12. The methylcobalamin sublingual lozenges is easy to take... but I still use shots because I'm familiar with what results to expect, adn when.www.health-boundaries-bite.com/Fingernails.html     Your fingernails reflect your health --     Learn what warning signs to look for --                                Karen Kline

Re: The feelings after a seizure.

Hi, i'm fairly new to all this. I got either viral encephalitis which caused seizures or just developed seizures. The Drs were never really able to figure it out but basically with my first seizure at 30yrs old i went into status. I was in a coma for 4 mos trying to get the seizures to stop, had surgery and everything else. i am now on 4 different AEDs and still having mostly CPSs and simple seizures as long as my levels are good. Lately after a CPS i have an extreme burning sensation in my fingertips and in my toes. Has anyone else experienced this?

Re: The feelings after a seizure.

I would always have similar feelings/sensations when I would have nocturnal seizures. Kinda like I could't understand what was happening around me but I was aware that things were happening.

I've also always had a yucky metalic taste after having a seizure. It is caused by a chemical released by the brain during the seizure. It can take a few hours after the seizure to go away so I always swish with mouthwash a few times until the taste goes away.