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Does Epilepsy ever totally go away?

I've read that it does. But I have my own theory on it. I believe that Epilepsy is like a Volcano – it can lie dormant for a very long time and then raise its ugly head again. We all know that some Volcanoes have been dormant for thousands of years but that they can erupt again any day. Now because us humans don't live for that long, some epilepsy may remain dormant for our whole life and others are not so lucky. I've read a few stories when the people have gone 20 years with no seizures or medication and then bang they start having seizures again and need to be put back on medication – now I'm sure they thought that they didn't have it any more! I myself have gone 7 years (between 7 and 14) without any seizures or meds and then start having them and needing meds again. I recently had another seizure my first since 1997 although that was triggered by a drug so I'm just waiting to see if that's all it was. I use to wear a Medic Alert Bracelet before and are going to start wearing it again when I get my replacement one as I lost my first one – I think everyone who has a history of seizures should wear one cause you just never know when you may have another one

Comments

RE: Does Epilepsy ever totally go away?

I think comparing a valcano to seizures is inventive and accurate. Both have the capacity to turn your life upside down! It's actually what happened to me. No seizures for 7 years and BAM! Oh well, I think your post was most creative and wish you well.Maureen

RE: Does Epilepsy ever totally go away?

I think that someone that has even one seizure or even febrile seizures as a child needs to know that the risk of having more later in life is greater. Someone that has had their epilepsy go into remission, needs to realize the potential for future problems. The reason being is that the seizure threshold is lower. People need to be educated of this and need to take greater care of themselves with vitamins and supplements; stress management, etc.

RE: Does Epilepsy ever totally go away?

I think you are right...I didnt have a seizure for 30 years now they are back. I started with very bad migraines a few weeks ago and now they are back full force. I wnet to see my doctor and we thoguht it was anxiety well after todays episode I know they are back the tingling in my face the loss of feeling in my left side same thing that happened 30 years ago...I am not a happy camper at all. I am scared to death the last seiszure I had at six left me paralyzed on my left side for a few weeks.will that happen again definitely a volcano waiting to wreak havoc in my life. :(I wish you well

Re: RE: Does Epilepsy ever totally go away?

I think that statement is completely accurate also. My first neurologist couldnt find anything on an eeg so he said he was all a problem in my (head) not related to seizure activity at all. although everyone ive been around has seen them. I wrecked my car and a man I know but not very well, pulled me out of it. he knew me, but i couldnt remember him at the time, he was a medic, knew what was happeneing and my neurologist still says i probably hit my head in the accident. when the seizures started at 2 from spinal meningitis, they found the problem from high fevers. when i had my daughter, my ex hit me in the head, the doctor then said the hormones and the cat scan showed a blood hemorrage that probably started them again. now 18 years later, the nuerologist says he cant find anything. i dont have a seizure disorder, there is no way it couldnt be seen on their eegs. ive tried to tell him i dont have them all the time, stress, being tired, sometimes out of the blue,,, but usually something triggers it. i cant find anyone who will listen. my kids have seen it. my husband now of 10 years has seen it, while im asleep, awake, how do i pretend with that.?? now what.

Re: Does Epilepsy ever totally go away?

I agree that it can lie dormant for years without any activity. I was told that iI grew out of mine and never had any seizures for 5 years and was off my medication for a year and then i had a seizure. Ive read that there is no real cure for epilepsy that all there is is methods of controlling the seizures.

my MedicAlert bracelet is now permanently on my left wrist because like you said you just never know. I'm already on my 3rd bracelet... i move around alot.

Re: Does Epilepsy ever totally go away?

If only! I had febrible convulsions as a child, I then went on to have grandmal seizures from 15-20 and then at 25 I was diagnosed with TLE, partial seizures, although for some time they thought I just had migraine aura. I spoke to my neuro as to possible causes of this happening at this time in my life and she said that your epilepsy can infact lie dormant for many years and then go through and active period. I hope it goes to sleep on us all soon! Bx

Re: Does Epilepsy ever totally go away?

I was diagnosed with epilepsy around age 2 and around age 3 they said it was gone.  Is it really gone?  One of my greatest fears is that it will come back...

Re: Does Epilepsy ever totally go away?

how old are you now ?

Re: Does Epilepsy ever totally go away?

hi my name is kristen i was born with grandma seizures/epilepsy i stoped around age 10/11 im now 17 im afraid that one day it will come back... but i believe we do still have seizures but there mild and you dont shake. i read up on that... but i also dont take medicine anymore is that bad

Re: Does Epilepsy ever totally go away?

I like the comment too about epilepsy being like a volcano. I started to have grand mal seizures in my sleep 2 years ago in 2009 and I still have them. Doctors have only told me I have a seizure disorder and they never told me what is causing my seizures or what kind or type they are. I believe I have Nocturnal Seizure Disorder and I used to take Dilantin 100 mg 2xaday, then it was changed to Phenytoin 100 mg 2xaday. I really hated taking the med. because I would be sick at least 5-10 times a day every month like I had the stomach flu, and finally I decided to get off my meds. So I slowly weaned myself off them and now I am not taking any meds for my seizures. I feel so much better, more clear headed, I feel better mentally and physically. I hardly get stomach flu like symptoms anymore but I still have seizures. My last seizure was last month and to date I have had 16 seizures that I know of. I have about 1 seizure once a month. With my experience with my seiz. meds, and how sick I felt mentally and physically, I would rather have seizures then take the damn meds. All seiz. meds are bad and cause memory loss, mood changes, personality changes, and are just not good all around.