After choosing a camp, you’ll need to prepare staff to manage your child’s seizures.
- Ideally, they will have basic training in seizure recognition and first aid. However, ask the camp director, don’t assume.
- If there are new staff or questions about what seizures look like, offer training materials to the camp director and nurse. Even if they know the basics about seizures, they won’t know about your child and his seizures. That’s your job.
- Share your own observations and how you have managed things at home, in school or other settings. You may need help from the doctor and nurse who treats your child’s seizures to educate the staff. Your local Epilepsy Foundation affiliate is a great resource too!
To prepare camp staff
Print a copy of My Camp Medical Supplement and a Seizure Action Plan or My Seizure Plan to help you organize some key seizure and safety information. These forms are intended for the same purpose – a tool to individualize your child’s seizure information and how to respond when a seizure occurs. The Seizure Action Plan was developed specifically for students in school. The My Seizure Plan is for people of any age in any setting. The camp nurse, doctor or director can use these forms to make sure that all staff will know what to do. Include information on:
- Type and frequency of seizures
- Seizure triggers and how to manage them
- Other medical, social and emotional concerns and any special accommodations or plans to manage these
- Medicines and other treatments used to control seizures on a daily basis- include seizure medicines, dietary therapies such as the ketogenic diet, or therapies such as vagus nerve stimulation
- Plans for responding to seizures, including 'as needed' or rescue medicines to prevent emergency situations. Make sure staff have been properly trained in giving these medicines.
- Side effects of all treatments
- Safety concerns – including risks with seizures, medicine side effects, injuries or other special needs
- Plan for managing safety, including any restrictions on camp participation, adaptive or safety equipment, or lifestyle/activity changes.
- What your child knows about seizures, if and how to tell others, and how your child reacts to the seizures
- Tools on www.epilepsy.com can be used to supplement training of staff.
- Visit the Multimedia Center - there are many short videos about seizures, safety, treatments and first aid.