Hello Everyone,

I never had a problem with seizures all my life until after my Meningioma (Benign Brain Tumor) was removed via surgery.  Now I get Simple Partial Seizures.  I always hear of people saying they get Simple Partial seizures and when they describe them they sound nothing like what I get.  

I had successful AVM surgery in 2001.  I was left with epilepsy, and over the years have been treated with Keppra, tripleptol, tegtritol, and a host of others.  Nothing was effective, however, over the years the seizures have, in general, decreased substantially.  These days I can go as long as 10-15 days with absolutely no seizures, then, suddenly, get hit with 3 or 4 in one day.

After 6 years and 5 different meds in 3 or 4 different series I am looking at VNS.  But how much does it cost an insursed person, in illinois with Blue cross blue shield?  About how much?  Or will insure even pay?  Is disability easy or hard to get with seizure disorder?  I was working but a few partial seizures has the boss rethinking my employment.  I'm middle class with my good job but not working would make me poor. 

basically my names rhiannon.

i live in the UK, and im 16.

i have grand mal, drop and petit mal seizures - and have also resently been experiencing hand twitches.

 

i would love to hear from anyone who wants to talk about it, been having a bit of a rough time as moved to a new school resently and just need some friendly chat to make me more confident :)

email me  -  rhiannon_cole@yahoo.co.uk

thanks x

Ironically, I heard on the news that the Juvenile Diabetes Philadelphia branch was moving to new quarters to house their expanded staff. At the very same time, our branch of The Epilepsy Foundation was in the process of laying off employees because of drastic cuts in state and federal funding.

I think in part, the lack of support is because epilepsy is a stealth disorder… You know that even better than most.

Is anyone out there taking Vimpat for Primary Generalized Epilepsy?  If so, what kind of luck did you have with it.  I am just starting it as an add-on to Lamictal for Tonic Clonic Seizures.  My doctor says that even though it is uses for partials, that all medications start out that way and eventually are used for different types of Epilepsy.

I recently lost my insurance and have been on Keppra and generic Keppra for the last six years.  So far I haven't really had any problems with it but my dosage was recently elevated due to memory loss.  After speaking with my doctor, through his nurse, and informing him that I can no longer afford Keppra he is changing my prescription to Dilantin.  Of course I will have a month of adjustment, but I am a little concerned about the transition.  I have had previous discussions with him where he warned me that changing my medication from one that was working was an unwise idea.  I know he is

I have had major surgery 4.5 years ago. Now I have a 4 by 6 plastic on the left side of skull. Recently it has been seen that a aneurysm has grown to a double size since last time it was seen. So I have an appointment in Phila. with a specialist in this area neurologist at Thomas Jefferson. So my guess is that it will be scheduled to have this coiled. I am not sure, but probable.

Hi everyone!

I was diagnosed with epilepsy about 2 years ago (I'm 31 now). My first few attacks were night seizures, the only indication i had was that i had wet the bed both times. Soon after, i had 4-5 seizures in succession in the span of 1 day and have been under the care of a neurologist since.

I wondered if anyone has considered the possibility that their episodes have been non-epileptic seizures and if they knew how to distinguish between the two?

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