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Unusual Postictal State

Hi,

I have been having seizures since I was about 15 years old (I am now 27) and I have them very frequently... like twice or so a month. I have tried several different medicines but nothing has worked for me, but what is the worst part about my seizures is my postictal state.

 

When I wake up from a seizure it is like I have regressed in time. Sometimes I wake up believing that I am 10 years old, and I can't ever get back to normal until I sleep it off. Has anyone else ever experienced this? I am lucky enough to have a friend who really understands me and cares for me when I have seizures, but sometimes I am awake for quite a while before I will go to sleep. I know I wake up exhausted (I have grand mal) because even after I sleep and I come back to my normal state... I can feel the effects of the seizure.

 

It is so frustrating because in addition to being worried about having a seizure, I know that is I have one in public I am going to look like I am crazy when I wake up! They happen so often too, and I have been to doctor upon doctor and neuropsychogists and had every test possible. Surgery is not an option for me... but mostly I was wondering if there is anyone out there who experiences the same thing when they wake up. My postictal state goes way beyond normal confusion.