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nellieandalexis12

refactory epilepsy

hello everyone i am new here. i have had refactory epilepsy since i was a teenager and i dont know when i have seizures or remember when i have them. i just know what my family tells me happens. i have been on sevaral different meds which included depakote, lamtical. i had vns surgery in 2012 and have been zonegran for awhile now. Most recently they put me on onfi and we also tried DILANTIN which didnt work out i had a severe allergic reaction to the med had to be put in the hospital. anyway i got severe itchy rash from the drug. we tried everything i dont know what else to do and i still have seizures.