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A place for parents and caregivers to learn and get support from people taking care of infants, children, and young adults with IS or TS.

Topic: Infantile Spasms & Tuberous Sclerosis

Created By: Free Phoenix | 2014-05-21 17:15 | 72 Views | 0 Comments

My daughter was diagnosed with West Syndrome at 3 months in May 2013 and was given Sabril as the primary method of treatment.  We had tried the ACTH therapy but it was ineffective. In July 2013,...