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Topic: My Epilepsy Diary

Created By: gamijo | 2011-05-15 10:42 | 133 Views | 0 Comments

I just now am discovering the My Epilepsy Diary and am trying to put my son's information in. My problem is that he is 4 years old and does not take pills. The form does not have a way to change '...

Created By: rutski89 | 2011-04-14 05:14 | 481 Views | 2 Comments

Hey there,

I'm new here and just looking for some casual thoughts on getting off of medication (Keppra in specific). I'm 21 at the moment, and my case of epilepsy is very mild (or so my...

Created By: arinelexi | 2011-04-05 17:58 | 264 Views | 2 Comments

To whomever maintains & Designs the Epilepsy Diary...

For those of us who have a VNS it would be really nice if there was a way to track our VNS settings and the occasions we have to...

Created By: stagger43 | 2011-03-21 13:02 | 145 Views | 0 Comments

Hello all! I am looking for a little direction, as I...

Created By: craig1aprildog | 2011-03-20 00:02 | 232 Views | 1 Comment

Does anyone know what fragrances/smells can cause seizures

Created By: kittykatt | 2011-03-15 04:05 | 170 Views | 0 Comments

I have been back on my medication for a total of 6 month and I'm sure that it is affecting my behaviour. I have always been a worrier and an overthinker but I am feeling quite depressed when...

Created By: iforgot | 2011-03-09 05:36 | 136 Views | 0 Comments

If your new to Epilepsy be careful about the treatment you get & who your getting it from.
Show this document to your doctors if you can understand it after reading

here's the...

Created By: Macmac3334 | 2011-03-05 22:55 | 169 Views | 1 Comment

Back on this, I havn't been on a while. New stories to tell i guess. My seizures are no longer under control due to baseball accident 4 years ago. I have had muliple seizures within the last...

Created By: Macmac3334 | 2011-03-05 22:52 | 146 Views | 0 Comments

Back on this, I havn't been on a while. New stories to tell i guess. My seizures are no longer under control due to baseball accident 4 years ago. I have had muliple seizures within the last...

Created By: Kris Tierney-Sword | 2011-03-04 12:25 | 209 Views | 0 Comments

My 14 year old son, Noah had the VNS device implanted in 2005. It saved his life. He went from having dozens of seizures per week to only a few every couple of months. But now it seems to be...

Created By: OliviaBiggers | 2011-02-14 17:23 | 501 Views | 9 Comments

Hi, I need help with a school project with epilepsy, I need to compare sleep habits with people with epilepsy then people who don't.  If you were to be so kind and answer a few questions for me...

Created By: butterfly123 | 2011-02-09 13:32 | 159 Views | 0 Comments

I was diagnosed with JME (juvenile myoclonic epilepsy) when I was 14 years old. I used to drink a excessively, which would lead to seizures. Recently, I quit drinking and I have been seizure free...

Created By: Sinatra26 | 2011-02-08 17:00 | 159 Views | 0 Comments

Hi...

I'm twenty six ,and I have had simple partial seizures for eleven years. I feel good for awhile, and then I'll get one and I'm out for about a week. When I say I'm out I mean I'm...

Created By: kellie1968 | 2011-02-06 20:38 | 271 Views | 3 Comments

I have had seizures since I was 14. I am 42 now. Just recently my seizures have started to occur about once a month or more often. I live alone and I have had my seizures while alone at home. What...

Created By: danni-x-lynn | 2011-02-04 09:31 | 155 Views | 0 Comments

Let me first start off by saying I'd really appreciate it if someone could help me with this.

Last night, I woke up to the feeling of wind or air or something rushing into my ear. Then,...

Created By: allegroismyhorse | 2011-02-01 21:17 | 281 Views | 2 Comments

Hi everyone!!  I have seizures; however, they have not yet been
diagnosed as epilepsy.  They have been proven to not be psychological,
but the doctors are not yet sure as to whether...

Created By: brcburner | 2011-01-28 05:08 | 157 Views | 0 Comments

I wrote a memior/autobiography of my life with epilepsy, but my SSI case will get dropped if I publish it. Does anyone have any suggestions? I thought about just passing it around through email...

Created By: ckidd2000 | 2011-01-19 18:12 | 273 Views | 1 Comment

I am getting ready to start NeuroFeedback Therapy on Monday...Has anyone tried this and what kind of success have you had with it? I am currently on Keppra for my absence seizures. I hate this med...

Created By: ckidd2000 | 2011-01-15 21:51 | 201 Views | 1 Comment

I am 32 years old and have had absence seizures my entire life. In high school and in my early twenties I was on depakote and did fine. When I got married and had kids I took myself off the meds...

Created By: Robb G | 2011-01-07 14:29 | 9790 Views | 2 Comments

  I don't have E., but my wife does. I posted here, instead of family and friends 'cause I wanted the "siezure-haver's" point of view :) When my wife has a gran mal, I try to catch her and help...

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