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Topic: My Epilepsy Diary

Created By: ZOOMA65 | 2011-07-22 03:24 | 138 Views | 1 Comment

this a call for help for however can help ,cause we knocked every possible door but without any help
we feel lost and so disappointed we feel helpless and guilty.

Thanks for your...

Created By: frith_p | 2011-07-16 11:59 | 103 Views | 0 Comments

i am having somekind of seizures on a daily basic or al least every other day  where i have a feeling come over me then i don't remember what happens.  my husband says i get a blank stare and...

Created By: screwupinthehead | 2011-07-15 21:23 | 87 Views | 0 Comments

Hello my name extreme epilespy

I have had it for 5 year's already and its not getting better isntead worse

I take 900mg of Dilatin Phenytoin because the epilespy i have...

Created By: vinnybock34 | 2011-07-12 13:40 | 107 Views | 1 Comment

Hello everyone, my name is Vincent and I'm new to the community. I have a unique situation and I'm just trying to figure out my best course of action. I'm 31 years old, I had my first siezure...

Created By: Csauntie | 2011-07-06 15:02 | 123 Views | 0 Comments

Hi,

I've been using My Epilepsy Diary iphone app for about a month and all was fine until a week or so ago when it stopped syncing with the on-line diary.  It doesn't matter where I make...

Created By: liberty19 | 2011-07-01 00:56 | 124 Views | 3 Comments

Hello,

I am only new to this site, I have had epilepsy for over a year I am 19 years old, the sezuires started as grand mal sezuires and this continued for most of the year, they became...

Created By: liberty19 | 2011-07-01 00:56 | 181 Views | 4 Comments

Hello,

I am only new to this site, I have had epilepsy for over a year I am 19 years old, the sezuires started as grand mal sezuires and this continued for most of the year, they became...

Created By: Robertok | 2011-06-19 18:53 | 108 Views | 1 Comment

Hello,

I have been using the Epilepsy Diary for over a year now, but I have been keeping electronic records of my seizures in an excel spreadsheet since 2008.

I use the Android...

Created By: B208 | 2011-06-09 12:41 | 898 Views | 10 Comments

Hi! :) i'm new to the site!
I have been having what I call "episodes" since I was little. I never told anybody about them until I got in high school, and then finally went to the doctor...

Created By: horsesforhealing | 2011-06-05 16:27 | 324 Views | 0 Comments

Friends, family and fellow epileptics. My name is Ashlee Lecompte. I am 21 years old and suffer from epilepsy. I am a pre-med student at Hillsdale College and I have decided to conduct a cost-free...

Created By: Chelsie217 | 2011-06-03 17:03 | 160 Views | 2 Comments

I am 24 and have never experienced anything like this before. I had just put my children to bed and had an intense feeling of deja vu. I kept telling my husband That I was feeling really weird,...

Created By: Jdoe0412 | 2011-05-30 23:07 | 95 Views | 2 Comments

Okay well I am 18 and I have been diagnosed with a form of epilepsy since I was little. I have never had a full out seizure, but only "episodes" where I black out and lose consiousness/memory...

Created By: patzh | 2011-05-21 18:32 | 146 Views | 3 Comments

For the last two months I have been feeling really dizzy most of the time and am having short-term memory loss at times. I am on 200mg of Lamictal at the moment and I wonder if people at the same...

Created By: shogirl1212 | 2011-05-19 17:56 | 469 Views | 6 Comments

Hey everyone-

I was diagnosed with epilepsy in November of 2010. I was also told that I only have the seizures while sleeping; particularly grand mal. I wake up feeling very drained,...

Created By: gamijo | 2011-05-15 10:42 | 83 Views | 0 Comments

I just now am discovering the My Epilepsy Diary and am trying to put my son's information in. My problem is that he is 4 years old and does not take pills. The form does not have a way to change '...

Created By: rutski89 | 2011-04-14 05:14 | 288 Views | 2 Comments

Hey there,

I'm new here and just looking for some casual thoughts on getting off of medication (Keppra in specific). I'm 21 at the moment, and my case of epilepsy is very mild (or so my...

Created By: arinelexi | 2011-04-05 17:58 | 141 Views | 2 Comments

To whomever maintains & Designs the Epilepsy Diary...

For those of us who have a VNS it would be really nice if there was a way to track our VNS settings and the occasions we have to...

Created By: stagger43 | 2011-03-21 13:02 | 90 Views | 0 Comments

Hello all! I am looking for a little direction, as I...

Created By: craig1aprildog | 2011-03-20 00:02 | 150 Views | 1 Comment

Does anyone know what fragrances/smells can cause seizures

Created By: kittykatt | 2011-03-15 04:05 | 117 Views | 0 Comments

I have been back on my medication for a total of 6 month and I'm sure that it is affecting my behaviour. I have always been a worrier and an overthinker but I am feeling quite depressed when...

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