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Topic: My Epilepsy Diary

Created By: Genevieve34 | 2011-11-30 10:53 | 183 Views | 0 Comments

If I'm writing groggy, it's the clonazapam. I started having "episodes" remniscent of a tonic seizure when I was 17. That was 17 years ago. In that time I had every test under the sun done to...

Created By: djraymx | 2011-11-30 02:06 | 303 Views | 2 Comments

my daughter Emily is 7 years old, and has been having uncontrolled seizures ever since she was 6 months old.  after seeing tens of Doctors at some of the most reputable hospitals and clinics, and...

Created By: lilavootermann | 2011-11-24 00:02 | 265 Views | 1 Comment

I am doing a science fair project over the problems that people with epilepsy have to face in their daily lives. I’m working in a research lab and we are trying to develop a new method to help...

Created By: decimalspace | 2011-11-20 23:31 | 240 Views | 1 Comment

I had a tonic-clonic seizure the other morning, during which I was conscious. I was coming out of a dream like state, in which I'd noticed my inability to speak, and by the feeling of the...

Created By: alyssa18 | 2011-11-18 08:57 | 219 Views | 1 Comment

  This Is for my daughter Alyssa,  that since she was 18 months old started with frebrial seizures.  due to her DPT Shot when she was 18 months old and today is has grandmal seizures,  with...

Created By: Psyche | 2011-11-17 01:43 | 409 Views | 1 Comment

when you have days/hours of feeling weird/ close to seizures/ off/ anxious/ something you now associate with epilepsy but do not define as a definite seizure how would you mark this in the diary...

Created By: Ma Wen Long | 2011-11-15 22:49 | 300 Views | 0 Comments

Hello

For reasons unknown to the pharmacists I have spoken to, twice valproic acid did not show up in my blood, and a few times it well below therapeutic range. My neuro did not seem to...

Created By: jpf566 | 2011-11-15 10:09 | 183 Views | 0 Comments

For the last 8 or 9 years I have been having an odd thing happen to me which I've learned to be a form of simple seizure. Many times when I stand up I will suddenly lose control of the entire...

Created By: Ma Wen Long | 2011-11-09 23:19 | 270 Views | 2 Comments

Hello everyone.

I saw a neurologist for the first time. He told me that one unit of alcohol per day (4 ounces of wine, one beer or 1.5 ounces of spirits) is fine while I am on medicine...

Created By: mariaj86 | 2011-11-02 04:53 | 325 Views | 3 Comments

I am 25 years old girl. I got my first attack when i was in 13 years old. The second attack when i was 18 years old. Since then I have being getting these attacks in around 2 - 5 months gap till...

Created By: Ma Wen Long | 2011-10-24 21:32 | 372 Views | 2 Comments

Hello everyone.

I had my first seizure was in Beijing where my wife is from January 2010. I did not recognize it as a seizure, and thought that it was an anomaly so I did not see a doctor...

Created By: kens mom | 2011-10-16 00:52 | 355 Views | 1 Comment

Hello..I am going to try and make this as breif and simple as possible, in July my son left for boot camp,a bout 4 weeks in he had a locker fall on the back of his head, within a week of that he...

Created By: butterfly17 | 2011-10-04 11:31 | 267 Views | 3 Comments

Hi  Guys

I fell alone anyone  there? I keep having AURA'S, due to my change of med and the heatwave....  Finaly the penny drops with my mum. She ALWAYS  goes into PANIC MODE  everytime I...

Created By: nsoeech | 2011-10-02 17:41 | 167 Views | 0 Comments

I suffered a closed head injury (concussion) about 2 months ago. I did not go to the hospital as I was in Europe. Two weeks later I arrived home and had an EEG which showed slowing in my left...

Created By: equatorlounge | 2011-09-30 16:42 | 232 Views | 1 Comment

Thanks for epilepsy.com for giving me this opportunity to start a discussion thread here... I'm fairly new to the fearful 'grand mal', occurring to me more or less twice a year minimum, ever...

Created By: Raffa22 | 2011-09-26 14:37 | 4499 Views | 9 Comments

Hi everyone, I am really intested in finding out what others feel like after having a major seizure (Grand mal).

For me, they ALWAYS happen in the morning. I wake up dazed and scared....

Created By: Andrew Baker | 2011-09-23 12:26 | 222 Views | 1 Comment

I have registered on this forum in hope that someone can help me. I am from the UK.

My Mum started having "blackouts" in March. Shortly after she started having what were called seizures...

Created By: butterfly17 | 2011-09-22 14:23 | 433 Views | 8 Comments

DEAR FRIENDS,

 I HAVE NOTICED THAT, I GET PITTY AND SORO WHEN EVER I TELL SOMEONE I HAVE EPILEPSY!! HOW WOULD YOU DEAL THIS? IAM FED UP OF THE SAME OLD FEELING..

 

...

Created By: butterfly17 | 2011-09-22 14:23 | 157 Views | 0 Comments

DEAR FRIENDS,

 I HAVE NOTICED THAT, I GET PITTY AND SORO WHEN EVER I TELL SOMEONE I HAVE EPILEPSY!! HOW WOULD YOU DEAL THIS? IAM FED UP OF THE SAME OLD FEELING..

 

...

Created By: butterfly17 | 2011-09-22 10:12 | 203 Views | 1 Comment

I am a mum of one and I was young when i had her... My pregnancy went well due to my condtion. My question is this: When ever I try to  have another child can it effect my epilepsy? And if so...

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