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Topic: My Epilepsy Diary

Created By: rosanna1980 | 2012-05-12 15:01 | 1755 Views | 21 Comments

I was diagnosed 5 months ago and I'm not coping well. My family insults me and refuses to educate themselves on my condition (they assume it's "common sense" and they already know). So, I've found...

Created By: rkay | 2012-05-09 22:36 | 226 Views | 1 Comment

I'm in a study drug trial. It will be more helpful for me to have time of sz listed in military time. I will also like a way to enter future appts. with all Dr.s

Thank you,

...

Created By: dg2e | 2012-04-30 12:46 | 205 Views | 0 Comments

Can the My Epilepsy Diary be improved to eliminate the "click" sounds on the iPhone app? I find that I need to enter information, at times, when I am in a quiet situation (work, library, mall,...

Created By: Jacob0101 | 2012-04-22 12:46 | 199 Views | 0 Comments

I think a BIG help that my epilepsy diary could do for
epileptics and doctors to track seizure frequency is bring
Able to email or send the time periods of seizures from
Each...

Created By: NYU SLOAN FILM | 2012-04-10 02:03 | 207 Views | 0 Comments

Hi my name is Addison Mehr I am a filmmaker studying at NYU and am working on a film for the prestigious Sloan Grant along with a science advisor from NYUs Center for Epilepsy.

In the film...

Created By: megkenn001 | 2012-03-05 12:21 | 173 Views | 0 Comments

Hi there...Not new to epilepsy, but new to smartphones and this diary app. I set up a reminder, but for some reason get two every time it sends. any suggestions?

Thanks!

Meghan

Created By: Robertok | 2012-03-04 09:08 | 182 Views | 0 Comments

Hi,

 I have noticed that in the latest revision of the app, or possibly the last two revisions the medicines are duplicated in the medicines tab after making a change or adding a...

Created By: Gui123 | 2012-03-02 02:31 | 641 Views | 9 Comments

No matter how hard I try I can't help but to feel distant. Somehow I always end up being disconnected. I've
Made personal decisions as a person that really destroyed my reputation. There are...

Created By: alyssa18 | 2012-02-10 10:29 | 201 Views | 0 Comments

  I need some feed back if possible,  my daughter had the VNS sinse she was 5 5rs old.  and now she is 18 well be 19 in may,   This would have been the 3rd time that she...

Created By: Pony Princess | 2012-01-17 15:43 | 466 Views | 3 Comments

I have dreamed during seizures that I'm seizing and I've had outside acknowledgement that those are real, but I'm having crazy dreams that I think I'm having during my TLS and I didn't know if it...

Created By: iskonworld | 2012-01-14 02:02 | 200 Views | 0 Comments

I AM SUFFERING FROM LAST EIGHT YEARS & I LOST MY EVERY-THING BUSINESS, ENJOY, PLEASE HELP ME GIVING A JOB ANY TYPE, NOW THERE WAS NO ATTACK FROM LAST SIX MONTH WITH TREATEMENT OF A NEPALI MONK...

Created By: monjanse | 2012-01-12 14:17 | 329 Views | 2 Comments

when i choose seizure type, it doesnt show seizure types.

Created By: admin1 | 2012-01-04 09:56 | 195 Views | 0 Comments

I'd like to invite everyone to the Epilepsy Therapy Project Family Day - a conference for general public - that means all of us! It's being held in San Francisco on...

Created By: butterfly17 | 2011-12-19 14:24 | 179 Views | 0 Comments

Dear Friends,

Talking about epilepsy is very hard, for me... As it's always! Been a durty little secret :0( So I thought. Grwoning with epilpesy was taugh because I was raced in Greece....

Created By: butterfly17 | 2011-12-19 14:24 | 239 Views | 1 Comment

Dear Friends,

Talking about epilepsy is very hard, for me... As it's always! Been a durty little secret :0( So I thought. Grwoning with epilpesy was taugh because I was raced in Greece....

Created By: butterfly17 | 2011-12-18 16:11 | 509 Views | 9 Comments

   Well..... I have had epilpesy since, I was 13 months old. As years have gone by my fits have changed and now I get AURA'S  Which are woring signs.. They only times I get tridgees is when I am...

Created By: richie1 | 2011-12-09 11:57 | 330 Views | 4 Comments

Hi, my name is Rich and I have been dealing with epilepsy since 2004. Before 2004 I smoked marijuana just about every day for about 8 years without a seizure. One morning when I woke up I had a...

Created By: JessxCee | 2011-12-08 22:04 | 183 Views | 0 Comments

Hi.

Last night I was rushed to the er cause I had a seizure, or atleast I believe. I was diagnosed with epilepsy years ago, but have been seizure free for three years. Usually during my...

Created By: magentastraberry | 2011-12-04 14:43 | 681 Views | 0 Comments

I have had my first two grand mal seizures in the past two years. The first one was in August 2010, and the second was was recent, November 2011. My brain was scanned after the first seizure and...

Created By: Trina0201 | 2011-12-02 08:29 | 297 Views | 2 Comments

Hello, I am having a problem with memory loss and focus or as my husband says "air-headed" (just a joke).  I have spoke with my neurologist & he says that the medication will cause it.  My...

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