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Topic: My Epilepsy Diary

Created By: Stay_Strong21 | 2012-12-10 04:33 | 360 Views | 5 Comments

I just turned 21 and I was diagnosed with a seizure disorder a little under a week ago. My fiance was there with me when i found out and has supported me through all of it, the past few months...

Created By: Rhoni | 2012-11-18 23:01 | 170 Views | 0 Comments

My son Alex began small twitches in his left hand & giggled for a few seconds. After a week it grew into 10-15 second seizures- his left hand up in the air with extreme tension/muscles &...

Created By: Jun | 2012-11-04 12:33 | 146 Views | 0 Comments

Hi there,

I am new to this forum.

I would be very grateful to hear other people's opinions and experiences as I am not that knowledgeable about epilepsy.
When I was a baby, I...

Created By: c_fly97 | 2012-10-07 01:02 | 113 Views | 0 Comments

1. Is it possible to update the app where you have a month view as well as weekly? When I'm at the doctors and thy ask when I had a seizure last I have to scroll through each week.

2....

Created By: Cfassett | 2012-08-11 20:34 | 108 Views | 1 Comment

On Thursday my family brought me to the ER thinking my appendix was about to rupture. Good news is that it was swollen lymph nodes from a uti that I had just had. While checking into the ER I...

Created By: butterfly17 | 2012-08-08 20:02 | 175 Views | 4 Comments

Hi ya guys,

Its been time, since being on here. Anyway I have had a seizure at work last week it was more like an aura.. I was secord as i am always secord. My boss didnt help beacuse...

Created By: brpedersen | 2012-08-02 11:20 | 77 Views | 0 Comments

We have two sons with epilepsy and I wish to know if it is possible to track seizures and meds for both using the diary app? Or is it limited to one person? The idea of the diary is great, but...

Created By: B208 | 2012-07-23 12:36 | 202 Views | 5 Comments

Hi! :)
I have been having what I call "episodes" since I was little. I never told anybody about them until I got in high school, and then finally went to the doctor later on when I was...

Created By: Autumbs | 2012-06-26 05:53 | 1941 Views | 12 Comments

First off, please do not judge me based off of this title. Of course I know "drugs are bad". I do not do drugs. However I do drink about 3 times a month and I smoke. I'm a 22 year old college...

Created By: rosanna1980 | 2012-05-12 15:01 | 232 Views | 11 Comments

I was diagnosed 5 months ago and I'm not coping well. My family insults me and refuses to educate themselves on my condition (they assume it's "common sense" and they already know). So, I've found...

Created By: rosanna1980 | 2012-05-12 15:01 | 502 Views | 21 Comments

I was diagnosed 5 months ago and I'm not coping well. My family insults me and refuses to educate themselves on my condition (they assume it's "common sense" and they already know). So, I've found...

Created By: rkay | 2012-05-09 22:36 | 78 Views | 1 Comment

I'm in a study drug trial. It will be more helpful for me to have time of sz listed in military time. I will also like a way to enter future appts. with all Dr.s

Thank you,

...

Created By: dg2e | 2012-04-30 12:46 | 82 Views | 0 Comments

Can the My Epilepsy Diary be improved to eliminate the "click" sounds on the iPhone app? I find that I need to enter information, at times, when I am in a quiet situation (work, library, mall,...

Created By: Jacob0101 | 2012-04-22 12:46 | 81 Views | 0 Comments

I think a BIG help that my epilepsy diary could do for
epileptics and doctors to track seizure frequency is bring
Able to email or send the time periods of seizures from
Each...

Created By: NYU SLOAN FILM | 2012-04-10 02:03 | 91 Views | 0 Comments

Hi my name is Addison Mehr I am a filmmaker studying at NYU and am working on a film for the prestigious Sloan Grant along with a science advisor from NYUs Center for Epilepsy.

In the film...

Created By: megkenn001 | 2012-03-05 12:21 | 68 Views | 0 Comments

Hi there...Not new to epilepsy, but new to smartphones and this diary app. I set up a reminder, but for some reason get two every time it sends. any suggestions?

Thanks!

Meghan

Created By: Robertok | 2012-03-04 09:08 | 66 Views | 0 Comments

Hi,

 I have noticed that in the latest revision of the app, or possibly the last two revisions the medicines are duplicated in the medicines tab after making a change or adding a...

Created By: Gui123 | 2012-03-02 02:31 | 182 Views | 9 Comments

No matter how hard I try I can't help but to feel distant. Somehow I always end up being disconnected. I've
Made personal decisions as a person that really destroyed my reputation. There are...

Created By: alyssa18 | 2012-02-10 10:29 | 80 Views | 0 Comments

  I need some feed back if possible,  my daughter had the VNS sinse she was 5 5rs old.  and now she is 18 well be 19 in may,   This would have been the 3rd time that she...

Created By: Pony Princess | 2012-01-17 15:43 | 164 Views | 3 Comments

I have dreamed during seizures that I'm seizing and I've had outside acknowledgement that those are real, but I'm having crazy dreams that I think I'm having during my TLS and I didn't know if it...

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