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Topic: My Epilepsy Diary

Created By: Kim4748 | 2013-03-18 18:25 | 244 Views | 0 Comments

hi, I have the latest iPHONE app and I have been using it since it came out. I am all synced up. I obviously am logged in to the website. But I need to print out my entire diary for my doctors...

Created By: butterfly17 | 2013-02-19 19:48 | 354 Views | 1 Comment

   I have been working for McDonalds for three years, In all that time my epiliepsy has been up & dawn... Fanliy the penny dropped Monday. I had a full blown seizure and nealy, fainted lookly...

Created By: Fuzzywheels | 2013-02-12 08:39 | 589 Views | 3 Comments

Well I went and downloaded the iPad app for this diary, as that's where I will use it, but information about the tablets I've taken seems to vanish, it's not just once, each day I update it, then...

Created By: jane66 | 2013-02-09 07:46 | 614 Views | 3 Comments


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Created By: Sophie.t | 2013-01-21 16:59 | 259 Views | 0 Comments

I have had epilepsy since I was 2years old, I first found out I had it after I had a photo taken with my grandma!
I am now 18 nearly 19 and still don't understand it fully. I have phocal...

Created By: Stay_Strong21 | 2012-12-10 04:33 | 546 Views | 5 Comments

I just turned 21 and I was diagnosed with a seizure disorder a little under a week ago. My fiance was there with me when i found out and has supported me through all of it, the past few months...

Created By: Rhoni | 2012-11-18 23:01 | 251 Views | 0 Comments

My son Alex began small twitches in his left hand & giggled for a few seconds. After a week it grew into 10-15 second seizures- his left hand up in the air with extreme tension/muscles &...

Created By: Jun | 2012-11-04 12:33 | 245 Views | 0 Comments

Hi there,

I am new to this forum.

I would be very grateful to hear other people's opinions and experiences as I am not that knowledgeable about epilepsy.
When I was a baby, I...

Created By: c_fly97 | 2012-10-07 01:02 | 179 Views | 0 Comments

1. Is it possible to update the app where you have a month view as well as weekly? When I'm at the doctors and thy ask when I had a seizure last I have to scroll through each week.

2....

Created By: Cfassett | 2012-08-11 20:34 | 187 Views | 1 Comment

On Thursday my family brought me to the ER thinking my appendix was about to rupture. Good news is that it was swollen lymph nodes from a uti that I had just had. While checking into the ER I...

Created By: butterfly17 | 2012-08-08 20:02 | 292 Views | 4 Comments

Hi ya guys,

Its been time, since being on here. Anyway I have had a seizure at work last week it was more like an aura.. I was secord as i am always secord. My boss didnt help beacuse...

Created By: brpedersen | 2012-08-02 11:20 | 136 Views | 0 Comments

We have two sons with epilepsy and I wish to know if it is possible to track seizures and meds for both using the diary app? Or is it limited to one person? The idea of the diary is great, but...

Created By: B208 | 2012-07-23 12:36 | 372 Views | 5 Comments

Hi! :)
I have been having what I call "episodes" since I was little. I never told anybody about them until I got in high school, and then finally went to the doctor later on when I was...

Created By: Autumbs | 2012-06-26 05:53 | 3508 Views | 12 Comments

First off, please do not judge me based off of this title. Of course I know "drugs are bad". I do not do drugs. However I do drink about 3 times a month and I smoke. I'm a 22 year old college...

Created By: rosanna1980 | 2012-05-12 15:01 | 487 Views | 11 Comments

I was diagnosed 5 months ago and I'm not coping well. My family insults me and refuses to educate themselves on my condition (they assume it's "common sense" and they already know). So, I've found...

Created By: rosanna1980 | 2012-05-12 15:01 | 1104 Views | 21 Comments

I was diagnosed 5 months ago and I'm not coping well. My family insults me and refuses to educate themselves on my condition (they assume it's "common sense" and they already know). So, I've found...

Created By: rkay | 2012-05-09 22:36 | 150 Views | 1 Comment

I'm in a study drug trial. It will be more helpful for me to have time of sz listed in military time. I will also like a way to enter future appts. with all Dr.s

Thank you,

...

Created By: dg2e | 2012-04-30 12:46 | 151 Views | 0 Comments

Can the My Epilepsy Diary be improved to eliminate the "click" sounds on the iPhone app? I find that I need to enter information, at times, when I am in a quiet situation (work, library, mall,...

Created By: Jacob0101 | 2012-04-22 12:46 | 143 Views | 0 Comments

I think a BIG help that my epilepsy diary could do for
epileptics and doctors to track seizure frequency is bring
Able to email or send the time periods of seizures from
Each...

Created By: NYU SLOAN FILM | 2012-04-10 02:03 | 155 Views | 0 Comments

Hi my name is Addison Mehr I am a filmmaker studying at NYU and am working on a film for the prestigious Sloan Grant along with a science advisor from NYUs Center for Epilepsy.

In the film...

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