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Topic: Fundraising and Awareness

Created By: CQuindipan | 2014-11-13 15:16 | 21 Views | 0 Comments

If anyone is in the Sacramento area Dr. Chez (neurologist from Sutter Health) and a family speaker from the PCDH19 Alliance group will be giving a talk about epilepsy.  The event will be a dinner...

Created By: yorecent | 2014-11-09 13:10 | 36 Views | 0 Comments

I moved to Kansas City with a family member who has epilepsy. Back home, our local epilepsy foundation director was outstanding at helping people with epilepsy meet each other and create a support...

Created By: vampireinitiation@gmail.com | 2014-11-02 01:23 | 35 Views | 0 Comments

I am from Canada, I was diagnosed of Epilepsy in 2004 then i was just 17years, the disease is so disgracing and embarassing because atimes i get seizure in public and fall to the ground, I have...

Created By: bocefus1983@yahoo.com | 2014-10-26 23:51 | 42 Views | 0 Comments

I am 30 years old and have had seizures since I was a baby. I grew out of them after age 3, but they returned from about age 12 to age 15. After another 4 years passed, I began having them again...

Created By: Lana112 | 2014-10-22 12:49 | 50 Views | 0 Comments

Hi Everyone,

I was wondering if those of us that have Facebook have seen a video called the "Shake Challenge." It's basically the Ice Bucket Challenge but taken further; you have to shake...

Created By: Concerned hubby Mike | 2014-09-19 14:24 | 74 Views | 0 Comments

Saturday, November 15, 2014 at the Sahara Grotto located at 7620 South Madison Avenue in Indianapolis, Indiana.  This will start at 12noon and go until 5:00pm  We plan to have food, raffles, door...

Created By: Lana112 | 2014-09-03 15:55 | 80 Views | 0 Comments

Hi Everyone,

Is there anyone in Fairfield County, CT or the Westchester area that would be interested in starting a group or holding an event? There is an organization WAY upstate in...

Created By: yatesdog 3000 | 2014-08-19 22:15 | 205 Views | 1 Comment

Hello my name is Kyle... I recently joined the forum... i've had generalized epilepsy for 22 years... I've been through some good times and well some average times... i've prolly had 80 tonic-...

Created By: mom with a cause-NJ | 2014-08-18 15:35 | 122 Views | 0 Comments

Hi, I am a mom with daughters who have Epilepsy and this is now my cause.  I am their biggest fan and advocate and I am starting a group called s.e.e.n (seizures and epilepsy end now) but until...

Created By: dunne.a.d@gmail.com | 2014-06-13 07:05 | 188 Views | 0 Comments

Hello all,

 

I am just posting to raise some awareness of the Facebook page that I created "Lets Fight Epilepsy".

A little behind why I set this up. A good friend of mine...

Created By: Blueeyedkay | 2014-06-08 05:04 | 187 Views | 0 Comments

Hello, My name is Kayla and I work as a PCA at Children's. I am hosting a benefit on August, 1, 2014, to raise money for Camp Flame Catcher, which is a camp for kids with epilepsy. The benefit is...

Created By: Blueeyedkay | 2014-06-08 04:59 | 213 Views | 0 Comments

Hello, My name is Kayla and I work as a PCA at Children's. I am hosting a benefit on August, 1, 2014, to raise money for Camp Flame Catcher, which is a camp for kids with epilepsy. The benefit is...

Created By: Blueeyedkay | 2014-06-08 04:46 | 186 Views | 0 Comments
Created By: Polygriz | 2014-05-21 01:25 | 236 Views | 0 Comments

Hey everyone, I found this great website and want to spread the word as far and wide as I can.  Follow this link, ...

Created By: rosanna1980 | 2013-11-03 14:01 | 322 Views | 0 Comments

Hello Everyone!

In honor of Epilepsy Awareness Month, I have created a facebook page
strictly dedicated to epilepsy awareness. It is called "Seize My
Epilepsy". I don't have...

Created By: composer25 | 2013-10-13 09:53 | 761 Views | 2 Comments

Hello everybody.  I am currently working on a major fundraising event for the Epilepsy Foundation.  I am putting together a marathon race to improve the awareness of epilepsy.  I have created a...

Created By: 15042runner2Dreams | 2013-10-05 09:41 | 727 Views | 3 Comments

Hi everybody!

This is my first year being diagnoses with epilepsy. I know March 26 is purple day and everybody should show their support. However, I was wondering if there was a...

Created By: pgd | 2013-09-24 10:21 | 814 Views | 2 Comments

Raising awareness about the epilepsy medicine, Dilantin, and other medicines which work for epilepsy.

How do effective medicines for epilepsy impact cognition, perception, sustained...

Created By: Livyshope | 2013-06-06 15:28 | 441 Views | 0 Comments

Our family has begun the new fundraising campaign Livy's Hope For A Cure. We have twin eight year old daughters, Livy and Hailey. Livy has had epilepsy since the day they were born. We have been...

Created By: collie | 2013-03-14 09:43 | 435 Views | 1 Comment

Ok People. March 26th is Nation Purple Day Awareness Day.

SO get a many people to wear Purple on that day.

We have 12 days to pass the word

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