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Topic: Advocate for Epilepsy

Created By: nancyjudy | 2009-11-21 08:16 | 104 Views | 0 Comments

  My name is Nancy and my sister Judy almost died at the hands of a vns device. She is now permanetly disabled because of it, and this is what drives me to do something about the laws that prevent...

Created By: antoinettetjie | 2009-11-08 11:31 | 318 Views | 2 Comments

I have complex partial epilepsy and interictal psychosis. I am a healthcare worker. I see too many people complaining about their neurologists and not understanding their disease. At a 2%...

Created By: remedyseaker | 2009-11-05 02:49 | 516 Views | 5 Comments
Created By: Spike. | 2009-10-14 11:43 | 223 Views | 5 Comments

Hello everyone, I found out about something just last night that I'd like to bring to everyone's attention. On Sunday, October 25, 2009...

Created By: mw | 2009-09-22 12:21 | 86 Views | 0 Comments
Created By: seakats | 2009-07-27 17:38 | 283 Views | 0 Comments

I'm trying to make a project on my computer and need help finding clip art that isn't from a store selling actual ribbons.  It has been extremely difficult as I've googled, yahoo-ed and asked...

Created By: milliec7 | 2009-07-24 00:18 | 183 Views | 6 Comments

Please help me in having the Epilepsy Foundation create a Ribbon Magnet which funds go to them.  Reply to this thread with your name, city and state.  Please help me in making this change.

Created By: katfaerie | 2009-06-22 22:31 | 177 Views | 5 Comments

i just got my hearing date and i am super nervous.  anybody have any advice?  what should i bring with me?  help!  i just want to be able to have health care and get my meds.

kat

Created By: Spike. | 2009-05-21 18:30 | 126 Views | 1 Comment

Yes folks, it appears that the 'International League Against Epilepsy' (ILAE) is soon going to be in the process of making some specific changes to...

VNS
Created By: Anonymous | 2009-04-23 13:44 | 236 Views | 3 Comments

 

HI I am just letting people know tha I am a VNS Ambassador for Cyberonics for the state of AZ. 

if you live in the phx metro area please let me know and what is going on and I...

Created By: seakats | 2009-04-17 14:43 | 220 Views | 7 Comments

I have a friend in Roanoke that has epilepsy that is having problems in her workplace.  I also do and know this is covered by the ADA law.  She is being harassed at work about having epilepsy. ...

Created By: beanadvocate | 2009-03-18 11:14 | 144 Views | 1 Comment

 DON'T FORGET TO WEAR PURPLE ON MARCH 26!!!!

Founded in 2008, by nine-year-old Cassidy Megan of Nova Scotia, Canada, Purple Day is an international grassroots...

Created By: beanadvocate | 2009-03-18 11:11 | 123 Views | 0 Comments

 DON'T FORGET TO WEAR PURPLE ON MARCH 26!!!!

Founded in 2008, by nine-year-old Cassidy Megan of Nova Scotia, Canada, Purple Day is an international grassroots...

Created By: beanadvocate | 2009-03-18 11:08 | 112 Views | 0 Comments

 DON'T FORGET TO WEAR PURPLE ON MARCH 26!!!!

Founded in 2008, by nine-year-old Cassidy Megan of Nova Scotia, Canada, Purple Day is an international grassroots...

Created By: beanadvocate | 2009-03-18 11:07 | 123 Views | 0 Comments

 DON'T FORGET TO WEAR PURPLE ON MARCH 26!!!!

Founded in 2008, by nine-year-old Cassidy Megan of Nova Scotia, Canada, Purple Day is an international grassroots...

Created By: MichaelK | 2009-02-28 06:08 | 18254 Views | 35 Comments

What is the difference between a panic attack and a seizure? The seizure I had this evening started with a sheer panic attack and progressed into a complex partial seizure. I felt sheer terror at...

Created By: kdredske | 2009-02-18 11:52 | 155 Views | 0 Comments

I wanted to check with all of you though and see if any of you have accounts on Facebook. If you do, I want to encourage you to join our Group and our Cause on there and to share it with your...

Created By: 3Hours2Live | 2009-01-14 05:30 | 601 Views | 18 Comments

Whew!!  My concern over the minority of people who were insulted and/or put down when they got advice
to stop wallowing in self-pity at a time when they needed the most support really...

Created By: FreeEpilepsyFD | 2008-12-13 17:42 | 130 Views | 2 Comments

Hello There

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Created By: mfreeman | 2008-12-04 20:29 | 94 Views | 0 Comments

In the Washington Post today there was an article - "Obama Team Seeking Grass-Roots Input on Policy." This is your opportunity to tell your story. You can tell the president-elect's team:

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