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Topic: Parents & Caregivers

Created By: xsaravtsheidi | 2013-01-23 03:37 | 119 Views | 0 Comments

My daughter Alicia is 15 and has had 6 tonic clonic seizures in the last 3 years, 5 of these I have mot witnessed as she has been at her dad's when they occurred. However last Wednesday morning...

Created By: 3Hours2Live | 2012-12-28 16:07 | 251 Views | 2 Comments

Well, my 85 year old close relative was transferred to a Skilled Nursing Facility (SNF) rated by Medicare as being at 4 stars out of 5 possible stars.

This SNF is much closer to home than...

Created By: mummytoad | 2012-12-17 10:42 | 282 Views | 2 Comments

Hi Everyone

A brief intro, My name is Alison, I have a 17 month old who has been through the wars since birth, severe allergies, asthma, cleft hand abnormality and yet he always remained...

Created By: Anwestbrooks | 2012-12-16 18:06 | 275 Views | 2 Comments

We finally got in to see a neurologist with my son. He hasn't had a major event since Aug 2010. His pediatrician put him on Tegratol 100mg 2x daily. Since then we believe he is having smaller...

Created By: maus1872 | 2012-12-09 15:21 | 162 Views | 0 Comments

I have started a FB Suport Group for Mommies of Children with Epilepsy. I was looking and looking for a support groups on fb fro Mom's of Children with epilepsy( i just like the layout better...

Created By: janeritter | 2012-11-25 11:08 | 249 Views | 2 Comments

My daughter has JME. Medication was working for several months and she was close to seizure free. Now the seizures are back, more frequent, medication being adjusted. She has been out of school...

Created By: Rhoni | 2012-11-18 23:03 | 131 Views | 0 Comments

My son Alex began small twitches in his left hand & giggled for a few seconds. After a week it grew into 10-15 second seizures- his left hand up in the air with extreme tension/muscles &...

Created By: momconcern | 2012-11-14 22:21 | 209 Views | 0 Comments

Hello. I am new here as I just found this forum this evening. My daughter is about to reach puberty which means she will start her menses cycle. I am VERY CONCERN about her seizures and menstrual...

Created By: gretchenls | 2012-11-08 02:21 | 130 Views | 0 Comments

Doctors recommend a corpus colosatomy for my 16 year old. Reading about scares the crap out of me but he is so in fear of his seizures he's alienated from the world.
Any surgeon...

Created By: yooyookids | 2012-10-15 07:40 | 125 Views | 0 Comments

YooYoo Kids is a kids e-Learning Portal, which unlocks the power of imagination to create an interactive and educational experience for both you and your kid. YooYoo's
mission is to produce...

Created By: asantana1029 | 2012-10-10 09:39 | 244 Views | 1 Comment

Hello Everyone,

My son Jessiah (three years old) was recently diagnosed with Epilepsy, seizures stimming from his left temporal lobe. He had his first seizure on September 25th and since...

Created By: Trish99 | 2012-10-08 16:56 | 249 Views | 2 Comments

DD has been on Ethosuximide since September 2011 for absence.  She has always had stomach issues from this medicine and every time I had to increase it, she would get sick (vomiting and pain) for...

Created By: skeats | 2012-10-08 15:41 | 312 Views | 0 Comments

My 8 month old started bobbing/nodding her head last week, it's gotten more and more frequent and today happened on 4 seperate occassions but is happening 2-5 times per occassion if that makes...

Created By: skeats | 2012-10-08 15:38 | 706 Views | 0 Comments

My 8 month old started bobbing/nodding her head last week, it's gotten more and more frequent and today happened on 4 seperate occassions but is happening 2-5 times per occassion if that makes...

Created By: Shamrocks_00 | 2012-10-07 15:18 | 261 Views | 1 Comment

My 3 year old son was diagnosed two days ago with absent seizures. At a year and a half, he had a febrile seizure that caused his entire body to convulse. A week later, he had an afebrile seizure...

Created By: owensma | 2012-10-04 15:13 | 196 Views | 1 Comment

Hi,

 I'm new here.  My son had his first seizure last August just after he turned 4.  It was located in the left side of his body and lasted at least 25 minutes.  The neurologist we were...

Created By: ksmith13 | 2012-10-01 12:19 | 377 Views | 4 Comments

I wish I knew what else to do for my daughter. She is now 8 and take a ton of medications for her seizure disorder. And each time we think she is doing good, BANG! Nope sorry folks! I am so...

Created By: brodg76 | 2012-09-18 22:58 | 237 Views | 1 Comment

I am new to this site and would like to connect with other parents whose children were diagnosed with adult onset epilepsy.  I have many questions about how other parents deal with this.  My...

Created By: rhondachrystine | 2012-08-14 15:14 | 258 Views | 0 Comments

My 5 year old son was diagnosed with epilepsy in 2008 and was put on Keppra. After making adjustments to his medicine, he has been seizure free since Jan. 30, 2009. He is on a very high dosage of...

Created By: erda45 | 2012-08-13 10:32 | 145 Views | 0 Comments

hi there, I am the mom of a 19 month old baby boy who was recently diagnosed with Atonic Seizures. Although he has been on phenobarbital for almost 3 weeks we are not seeing much of an improvement...

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