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Topic: Parents & Caregivers

Created By: sspitz | 2012-05-07 15:17 | 202 Views | 2 Comments

Hi,

My wife and I were recently married and are moving into our 30s. We currently don't plan to have kids JUST yet, but have discussed it as we are not getting any older. Her current...

Created By: bshawty0102 | 2012-05-06 15:46 | 154 Views | 1 Comment

I am the mother of an 18 month old. She had her first febrile seizure at 7 months and her second within less than 24hrs. The second one lasted 30+ min. She was hospitalized for three days, had a...

Created By: Ashleygordon82 | 2012-04-15 20:40 | 206 Views | 2 Comments

Here is our story:

our oldest daughter had a febrile seizure when she was almost a year and a half (shes 2 now). We went to the ER and talked w the doctors and they assured us that she...

Created By: trbingbc | 2012-04-13 13:08 | 95 Views | 0 Comments

I have an 8 year old son, and I had brain surgery about 6-7 years ago. By the way, it wasn't for me. but I thought at the time it was. Anyway, I thought by having the surgery I would be able to...

Created By: Laurie Lamantia | 2012-04-09 21:09 | 93 Views | 0 Comments

Our son is 17, and has failed 8 meds.  His absences seizures began @ age 5 and we have struggeled ever since. He has been on the modified adkins diet for over 14 months, faithful and committed. ...

Created By: AngelicScars | 2012-04-05 10:12 | 86 Views | 0 Comments

My son has been on a generic Keppra since Feb. 1st of this year. It has kept him seizure free (as far as I know) for 2 months. Then, April 2nd, he showed major signs of post-seizure. I had stepped...

Created By: enidan | 2012-03-31 18:04 | 129 Views | 1 Comment

 

My daughter who is six, was diagnosed with Benign Epilepsy with Centro Temporal Spikes (BECTS) in June 2011. She had had three nocturnal seizures. At the time of diagnosis the...

Created By: meli792004 | 2012-03-27 15:12 | 84 Views | 0 Comments

My 13 year old son was just diagnosed with epilepsy last week. He just started having seizures in January but we didn't even know that is what they were since it seemed more like twitching. They...

Created By: CanuckDan | 2012-03-20 13:41 | 250 Views | 3 Comments

Hi everyone,

My 6 year old son had a seizure on November 6, 2011 at 3am. There were no obvious signs before hand nor was there any activity before hand such as hitting his head or...

Created By: ajssoscia | 2012-03-07 14:59 | 156 Views | 1 Comment

I am looking to connect with others in my general area who have a child with epilepsy. There are no support groups near here and I feel it will be very instrumental in dealing with this if there...

Created By: ajssoscia | 2012-03-07 14:59 | 127 Views | 0 Comments

I am looking to connect with others in my general area who have a child with epilepsy. There are no support groups near here and I feel it will be very instrumental in dealing with this if there...

Created By: avigr | 2012-03-04 07:53 | 88 Views | 0 Comments

Hello Everyone,

My wife has epilepsy, she takes Lamictal, 200 mg a day for a 10 years. She breastfeeds our baby, and everything is fine with him except blood in his stools once in 2...

Created By: AngelicScars | 2012-02-25 19:20 | 141 Views | 1 Comment

Since my last post, my son has had another seizure. This one was scarier since he turned completely blue from not breathing and lasted close to 10 minutes.
He has been put on medication that...

Created By: Veronya7 | 2012-02-20 04:38 | 112 Views | 0 Comments

Our teen daughter was diagnosed with epilepsy last March, 2011. Prescribed 2,000mg Keppra/day. Everything seemed mostly under control, Until November, 2011. Then she started to have seizures...

Created By: TIM_C28 | 2012-02-08 00:30 | 227 Views | 3 Comments

Hi, my 5 year old boy has tonic/clonic seizures round every 5 days, mainly early morning waking up. He used to stop by himself but now keeps going until he gets phenabarb in drip. Has had many...

Created By: Brooke71 | 2012-02-06 13:11 | 99 Views | 0 Comments

Hi,

I am wondering if anyone taking lamictal or its generic is experiencing problems with tooth enamel.  My son has been taking lamictal for three years, the dentist recommended pro-...

Created By: Kaboom | 2012-02-02 17:36 | 90 Views | 0 Comments

Hi, my daughter had a seizure back on November. Her back arched her eyes glazed over and she was making a strange repetitive sound this went on for about 10 min then she went limp and started...

Created By: AngelicScars | 2012-01-28 10:26 | 206 Views | 2 Comments

A couple of days ago my 3 year old (that has had at least 2 seizures that we've witnessed) was on the couch for "quiet time." I was in my older son's room talking to him about his day at school (a...

Created By: Bills_Mom | 2012-01-25 22:18 | 209 Views | 3 Comments

Hello, I am new here and just NEED to write something in order to let out my frustrations with people that have been there and done that; sometimes I think people just don't want to hear it...

Created By: Mom of Rylie | 2012-01-25 17:43 | 290 Views | 5 Comments

Hello,

I am new to the site and really have hit my max on frustration level in regards to my daughter's epilepsy!!!  My daughter...

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