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Topic: Parents & Caregivers

Created By: ksmith13 | 2012-10-01 12:19 | 323 Views | 4 Comments

I wish I knew what else to do for my daughter. She is now 8 and take a ton of medications for her seizure disorder. And each time we think she is doing good, BANG! Nope sorry folks! I am so...

Created By: brodg76 | 2012-09-18 22:58 | 206 Views | 1 Comment

I am new to this site and would like to connect with other parents whose children were diagnosed with adult onset epilepsy.  I have many questions about how other parents deal with this.  My...

Created By: rhondachrystine | 2012-08-14 15:14 | 213 Views | 0 Comments

My 5 year old son was diagnosed with epilepsy in 2008 and was put on Keppra. After making adjustments to his medicine, he has been seizure free since Jan. 30, 2009. He is on a very high dosage of...

Created By: erda45 | 2012-08-13 10:32 | 123 Views | 0 Comments

hi there, I am the mom of a 19 month old baby boy who was recently diagnosed with Atonic Seizures. Although he has been on phenobarbital for almost 3 weeks we are not seeing much of an improvement...

Created By: tabbooch1 | 2012-08-04 19:53 | 466 Views | 5 Comments

This week my normally healthy, athletic, happy teenage boy who is leaving for college who (recruited to play lacrosse) was suddenly struck with 2 possibly 3 grand mal seizures. Within the 2 days...

Created By: jimj | 2012-07-30 02:21 | 204 Views | 0 Comments

I'm surprised by the lack of recipes I can find for LGIT (Low Glycemic Index Treatment) for epilepsy.  I can find low GI recipe books and low carb recipes books, but neither of these have exactly...

Created By: Kits mom | 2012-07-27 21:11 | 166 Views | 1 Comment

Ok. Help me get through the weekend, please. To be brief, my ADHD 14year old daughter has been having headaches and staring spells. Recent MRI was normal. EEG done Thursday. Doc calls and leaves a...

Created By: dalipaintedme | 2012-07-25 07:19 | 103 Views | 0 Comments

This is my first port, but have been reading stories for some time now. A little background First.

My 3 year old son began having seizures at 4 months of age, and had a clean work up (EEG...

Created By: mandolin | 2012-07-09 00:36 | 152 Views | 0 Comments

My 10 year-old son was diagnosed with primary generalized epilepsy and intractable absence epilepsy after he starting having seizures 10 months ago.  We have tried Keppra, Klonopin, Lamictal,...

Created By: Adri_Tortladze | 2012-07-06 16:19 | 117 Views | 0 Comments

Hello ,

My 18 month old boy started his medication today . 1ml 2x a day of Keppra . We have not done a MRi yet but will soon .

I keep finding all this articles that describe...

Created By: Adri_Tortladze | 2012-07-01 02:01 | 160 Views | 1 Comment

Hello,

I am so greateful to have found thsi website . I been feeling alone and confuse with my son's 18 month old seizure problem.

He had his first episode in 2011 Xmas ( b4 he...

Created By: babs0217 | 2012-07-01 00:13 | 184 Views | 1 Comment

My daughter was diagnosed with epilepsy at nine months old. Since then it's been a constant battle to control her seizures. She has petite mal, grandmal, drop seizures, and partials. She has been...

Created By: thore | 2012-06-18 03:49 | 161 Views | 1 Comment

HI All,

My 11 year daughter is facing seizures when anyone touches her any portion of her head. Seizure remains for 5-7 seconds and in most of the cases she also passes urine. This...

Created By: CaseyA | 2012-05-31 17:16 | 216 Views | 1 Comment

My 3 year old son was diagnosed a year and a half ago with partial complex seizures. The dr prescribed Keppra. He was up to 4ml 2x a day and had a break thru seizure. His dr now wants to begin...

Created By: Natarina | 2012-05-24 06:07 | 154 Views | 1 Comment

Hi!I'm Natasha,daughter's name is Arina,she is 11 months. Her diagnosis is Symptomatic Local Epi with Infant Spasms. She was treated by- Convulex,Topomax,Sabril,Keppra,Synacten,Hydrocortisonum,...

Created By: AngelicScars | 2012-05-23 09:20 | 123 Views | 0 Comments

My son is 3, will be 4 in July. He has been on a generic Keppra since Feb. 1st. He went to the neuro. yesterday and they increased his dosage due to seizure like activities that have occurred...

Created By: sspitz | 2012-05-07 15:17 | 246 Views | 2 Comments

Hi,

My wife and I were recently married and are moving into our 30s. We currently don't plan to have kids JUST yet, but have discussed it as we are not getting any older. Her current...

Created By: bshawty0102 | 2012-05-06 15:46 | 187 Views | 1 Comment

I am the mother of an 18 month old. She had her first febrile seizure at 7 months and her second within less than 24hrs. The second one lasted 30+ min. She was hospitalized for three days, had a...

Created By: Ashleygordon82 | 2012-04-15 20:40 | 254 Views | 2 Comments

Here is our story:

our oldest daughter had a febrile seizure when she was almost a year and a half (shes 2 now). We went to the ER and talked w the doctors and they assured us that she...

Created By: trbingbc | 2012-04-13 13:08 | 115 Views | 0 Comments

I have an 8 year old son, and I had brain surgery about 6-7 years ago. By the way, it wasn't for me. but I thought at the time it was. Anyway, I thought by having the surgery I would be able to...

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