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Topic: Parents & Caregivers

Created By: Veronya7 | 2012-02-20 04:38 | 94 Views | 0 Comments

Our teen daughter was diagnosed with epilepsy last March, 2011. Prescribed 2,000mg Keppra/day. Everything seemed mostly under control, Until November, 2011. Then she started to have seizures...

Created By: TIM_C28 | 2012-02-08 00:30 | 186 Views | 3 Comments

Hi, my 5 year old boy has tonic/clonic seizures round every 5 days, mainly early morning waking up. He used to stop by himself but now keeps going until he gets phenabarb in drip. Has had many...

Created By: Brooke71 | 2012-02-06 13:11 | 82 Views | 0 Comments

Hi,

I am wondering if anyone taking lamictal or its generic is experiencing problems with tooth enamel.  My son has been taking lamictal for three years, the dentist recommended pro-...

Created By: Kaboom | 2012-02-02 17:36 | 78 Views | 0 Comments

Hi, my daughter had a seizure back on November. Her back arched her eyes glazed over and she was making a strange repetitive sound this went on for about 10 min then she went limp and started...

Created By: AngelicScars | 2012-01-28 10:26 | 169 Views | 2 Comments

A couple of days ago my 3 year old (that has had at least 2 seizures that we've witnessed) was on the couch for "quiet time." I was in my older son's room talking to him about his day at school (a...

Created By: Bills_Mom | 2012-01-25 22:18 | 174 Views | 3 Comments

Hello, I am new here and just NEED to write something in order to let out my frustrations with people that have been there and done that; sometimes I think people just don't want to hear it...

Created By: Mom of Rylie | 2012-01-25 17:43 | 246 Views | 5 Comments

Hello,

I am new to the site and really have hit my max on frustration level in regards to my daughter's epilepsy!!!  My daughter...

Created By: Cboysmom | 2012-01-14 20:59 | 75 Views | 0 Comments

My 6 year old son was just diagnosed with BRE after having 9 seizures.  It had been 3 years since his last seizure and on New Years Day he had one and we don't know why.  He is not currently...

Created By: admin1 | 2012-01-04 10:12 | 67 Views | 0 Comments

I'd like to invite everyone to the Epilepsy Therapy Project Family Day - a conference for general public - that means all of us! It's being held in San Francisco on...

Created By: EchoRains | 2012-01-04 03:26 | 246 Views | 4 Comments

I know many of you have been diagnosed or have had children diagnosed. I'm here mainly looking for support.
Here is my story.

6 months ago my 3 year old son was playing outside like...

Created By: LittleBirdie | 2012-01-02 18:38 | 219 Views | 4 Comments

Hi, my son is recently diagnosed with and being treated for Juvenile Myoclonic Epilepsy. He has started on Depakote ERIC three weeks ago. The seizures cause some problems with depression. Also...

Created By: ruthcpatton | 2012-01-02 13:06 | 155 Views | 2 Comments

Hi there,

I am new here, my name is Ruth and my daughter is Faith.  She is 4 years old and has been diagnosed with epilepsy since she was 1.  She also has an acquired brain injury from...

Created By: caandahl | 2011-12-29 11:38 | 162 Views | 2 Comments

Hi people,

My son is 9 and was dx'd w/"severe
autism"(non-verbal),DD,hypotonia,"MR",SPD etc etc  when he was 2.He was
dx'd w/type 1 diabetes about a year ago.

About...

Created By: murray780 | 2011-12-13 14:40 | 95 Views | 0 Comments

I am looking for any advice from parents who have children that have gone trought epilepsy surgery. My eight year old daughter was diagnosed with epilepsy four years ago. She continues to have...

Created By: Kes | 2011-12-02 00:29 | 110 Views | 1 Comment

 

 

Hello. I am a mom of 2. My son is 5 and my daughter is 26 months. Back in April my daughter fell down - I thought she hit her head but she began shaking, wasn't breathing[or...

Created By: Lumen | 2011-11-06 03:05 | 141 Views | 2 Comments

Epi

I am in desperate need of talking to someone who has gone through something similar with their childeren. My daughter who turned 6 in August has been having illness related seizures for...

Created By: calueck | 2011-11-03 19:22 | 231 Views | 3 Comments

Hi -

I have an 8 year old daughter who was diagnosed with Benign Rolandic Epilepsy in January 2009. Its almost been a year since she has had a seizure.

Does that possibly mean...

Created By: sleepy | 2011-10-10 15:38 | 97 Views | 1 Comment

Are there any other parents out there dealing with both Type 1 diabetes & epilepsy?

Created By: thomastrain | 2011-10-06 13:35 | 150 Views | 2 Comments

my son started doing sreames at night would get flush goosebumps eather go on himself or have bad gas and would have suden epesodes of vomiting.He will do this every 1-2 mon. it is now getting...

Created By: echo | 2011-10-06 13:26 | 965 Views | 11 Comments

I am interested in sharing information and stories with other parents whose children have (or had BRE) and have experienced learning or attention problems at school.

I have read a number...

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