ADVERTISEMENT
ADVERTISEMENT

Topic: Parents & Caregivers

Created By: mochicrunch | 2014-03-28 15:38 | 471 Views | 3 Comments

Hello,

I am new to these boards. Our 4.5 year old son has GEFS+, and has had relatively short tonic clonic seizures with infections since he was 11 months old. They usually last less than...

Created By: Amy Kate | 2014-03-27 17:44 | 376 Views | 8 Comments

My son is now 17.  We've been through a dozen meds, seven surgeries and non traditional treatments of all kinds.  But still, epilepsy is part of our family.  I've been dealing with it quietly,...

Created By: Crickets_mom | 2014-03-26 16:56 | 283 Views | 5 Comments

Hi everyone, 

it has been a long time since I have been on. My sons seizures seem to have stabilized.  He still has many absence a day but he hasn't has a long one in over two years. He is...

Created By: Amy Kate | 2014-03-26 16:34 | 513 Views | 9 Comments

Years past the shock and slow acceptance of epilepsy, I'm trying to learn how to be cordial with this uninvited guest in our family.  My son is 17 now and still seizes weekly.  To say it is taking...

Created By: Rluhn | 2013-11-28 15:33 | 5091 Views | 5 Comments

Hi all-needing some support over this long holiday weekend before I google myself into submission...
My son is almost 2, and received a diagnosis of hypotonia around 1 year old. He has been...

Created By: kevinandjenny7 | 2013-11-27 15:11 | 2809 Views | 1 Comment

Hi,

 

I am looking for others who have a smart watch. I was curious how the pricing works. Do you pay a monthly fee forever or do eventually you have it paid for? For those who...

Created By: jennquest | 2013-11-24 02:24 | 452 Views | 1 Comment

My son is 4 and has been having focal seizures for a year. We were switched from tegretol to valproate about two months ago with good results initially. His seizures have returned and so his dose...

Created By: tashyluv | 2013-11-21 09:14 | 855 Views | 3 Comments

My daughter had her EEG today, I am so proud of her she was so well behaved. She reacted to hyperventilation (which we knew) and it also happened without any stimulis. She did'nt react to the...

Created By: Whysgirl | 2013-11-18 14:29 | 1331 Views | 8 Comments

Good afternoon,

Apologies in advance for the lengthy post. I really need help/suggestions/experiences from which to pull. I have a 13 year old who was diagnosed with Epilepsy (focal...

Created By: mommaklm | 2013-11-12 15:18 | 761 Views | 4 Comments

Hello,

I am new to this website and have just been viewing stories, comments, etc. I recently responded to a comment, but feel I have more questions I would like to ask. I am finding it...

Created By: christillotson | 2013-10-20 11:57 | 569 Views | 3 Comments

my daughter is 4 years old. she has been hospitalized at least 10 times because of febrile seizures that last 1 to 3 hours. she has been on 3 meds for a while and she has used two others in the...

Created By: ollieray10 | 2013-10-17 07:37 | 1035 Views | 8 Comments

My 4 year old has had epilepsy for 1 year and has been controlled fairly well with Keppra. He has been taking b6 in the am for behavioral problems and we recently started him on melatonin (1.5mL)...

Created By: ollieray10 | 2013-10-17 07:37 | 226 Views | 0 Comments

My 4 year old has had epilepsy for 1 year and has been controlled fairly well with Keppra. He has been taking b6 in the am for behavioral problems and we recently started him on melatonin (1.5mL)...

Created By: tashyluv | 2013-10-16 11:14 | 336 Views | 1 Comment

Well we are currently waiting on an eeg for my (nearly) 4 year old daughter.  She has been having these episodes where her head shakes briefly for a few seconds. This happens many times a day. ...

Created By: Sweetpeasmommy | 2013-10-07 14:48 | 208 Views | 0 Comments

Hello everyone! I am looking for some advice. My daughter
was diagnosed with a seizure disorder when she was 8 months old. Finally, after
10 years of trying several medications her...

Created By: Nikkichic | 2013-09-23 18:22 | 214 Views | 0 Comments

Hi There,

Just have a question and was hoping some one on here could help me. I am out of work with my daughter who was recently diagnosed (as of 3 weeks ago) with Epilepsy. She is getting...

Created By: carlye2001 | 2013-09-20 12:24 | 685 Views | 4 Comments

My 12 year old daughter collapsed suddenly Tuesday during class, setting off 3 days of bizarre symptoms and no answers. She gets horribly dizzy very suddenly. Her stomach feels "funny", not...

Created By: JENLUV | 2013-09-19 17:32 | 339 Views | 1 Comment

Hi guys.

My 19 Month old son has been showing signs of seizures. He has these weird eye movements. Not what Ive seen on youtube with seizures, he just looks around for a second, then his...

Created By: amylurn | 2013-09-19 12:21 | 237 Views | 0 Comments

My daughter (7 year old with no...

Created By: littlefrodo | 2013-09-11 08:41 | 1240 Views | 5 Comments

Our son has had different types of seizures since he was less than 3 months old. 

From the time he was 9 months old until he was six, he didn't have any type of seizure (that we noticed...

Pages