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Topic: Parents

Created By: ajssoscia | 2012-03-07 14:59 | 128 Views | 1 Comment

I am looking to connect with others in my general area who have a child with epilepsy. There are no support groups near here and I feel it will be very instrumental in dealing with this if there...

Created By: ajssoscia | 2012-03-07 14:59 | 104 Views | 0 Comments

I am looking to connect with others in my general area who have a child with epilepsy. There are no support groups near here and I feel it will be very instrumental in dealing with this if there...

Created By: avigr | 2012-03-04 07:53 | 73 Views | 0 Comments

Hello Everyone,

My wife has epilepsy, she takes Lamictal, 200 mg a day for a 10 years. She breastfeeds our baby, and everything is fine with him except blood in his stools once in 2...

Created By: AngelicScars | 2012-02-25 19:20 | 114 Views | 1 Comment

Since my last post, my son has had another seizure. This one was scarier since he turned completely blue from not breathing and lasted close to 10 minutes.
He has been put on medication that...

Created By: Veronya7 | 2012-02-20 04:38 | 88 Views | 0 Comments

Our teen daughter was diagnosed with epilepsy last March, 2011. Prescribed 2,000mg Keppra/day. Everything seemed mostly under control, Until November, 2011. Then she started to have seizures...

Created By: TIM_C28 | 2012-02-08 00:30 | 175 Views | 3 Comments

Hi, my 5 year old boy has tonic/clonic seizures round every 5 days, mainly early morning waking up. He used to stop by himself but now keeps going until he gets phenabarb in drip. Has had many...

Created By: Brooke71 | 2012-02-06 13:11 | 79 Views | 0 Comments

Hi,

I am wondering if anyone taking lamictal or its generic is experiencing problems with tooth enamel.  My son has been taking lamictal for three years, the dentist recommended pro-...

Created By: Kaboom | 2012-02-02 17:36 | 74 Views | 0 Comments

Hi, my daughter had a seizure back on November. Her back arched her eyes glazed over and she was making a strange repetitive sound this went on for about 10 min then she went limp and started...

Created By: AngelicScars | 2012-01-28 10:26 | 162 Views | 2 Comments

A couple of days ago my 3 year old (that has had at least 2 seizures that we've witnessed) was on the couch for "quiet time." I was in my older son's room talking to him about his day at school (a...

Created By: Bills_Mom | 2012-01-25 22:18 | 167 Views | 3 Comments

Hello, I am new here and just NEED to write something in order to let out my frustrations with people that have been there and done that; sometimes I think people just don't want to hear it...

Created By: Mom of Rylie | 2012-01-25 17:43 | 236 Views | 5 Comments

Hello,

I am new to the site and really have hit my max on frustration level in regards to my daughter's epilepsy!!!  My daughter...

Created By: Cboysmom | 2012-01-14 20:59 | 72 Views | 0 Comments

My 6 year old son was just diagnosed with BRE after having 9 seizures.  It had been 3 years since his last seizure and on New Years Day he had one and we don't know why.  He is not currently...

Created By: admin1 | 2012-01-04 10:12 | 65 Views | 0 Comments

I'd like to invite everyone to the Epilepsy Therapy Project Family Day - a conference for general public - that means all of us! It's being held in San Francisco on...

Created By: EchoRains | 2012-01-04 03:26 | 237 Views | 4 Comments

I know many of you have been diagnosed or have had children diagnosed. I'm here mainly looking for support.
Here is my story.

6 months ago my 3 year old son was playing outside like...

Created By: LittleBirdie | 2012-01-02 18:38 | 208 Views | 4 Comments

Hi, my son is recently diagnosed with and being treated for Juvenile Myoclonic Epilepsy. He has started on Depakote ERIC three weeks ago. The seizures cause some problems with depression. Also...

Created By: ruthcpatton | 2012-01-02 13:06 | 149 Views | 2 Comments

Hi there,

I am new here, my name is Ruth and my daughter is Faith.  She is 4 years old and has been diagnosed with epilepsy since she was 1.  She also has an acquired brain injury from...

Created By: caandahl | 2011-12-29 11:38 | 155 Views | 2 Comments

Hi people,

My son is 9 and was dx'd w/"severe
autism"(non-verbal),DD,hypotonia,"MR",SPD etc etc  when he was 2.He was
dx'd w/type 1 diabetes about a year ago.

About...

Created By: murray780 | 2011-12-13 14:40 | 91 Views | 0 Comments

I am looking for any advice from parents who have children that have gone trought epilepsy surgery. My eight year old daughter was diagnosed with epilepsy four years ago. She continues to have...

Created By: Kes | 2011-12-02 00:29 | 104 Views | 1 Comment

 

 

Hello. I am a mom of 2. My son is 5 and my daughter is 26 months. Back in April my daughter fell down - I thought she hit her head but she began shaking, wasn't breathing[or...

Created By: Lumen | 2011-11-06 03:05 | 132 Views | 2 Comments

Epi

I am in desperate need of talking to someone who has gone through something similar with their childeren. My daughter who turned 6 in August has been having illness related seizures for...

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