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Topic: Parents & Caregivers

Created By: bingo2628 | 2013-05-29 21:57 | 320 Views | 2 Comments

Hi this is the first time I am posting on this site. I have till now been reading and understanding.

My daughter was on VPA - valproate for about 3 years age 4-7, with complete control of...

Created By: Noomaak | 2013-05-22 19:08 | 469 Views | 4 Comments

My 15 year old son has been diagnosed with complex partial seizures, and has been treated with a number of medications. Most have seemingly had severe stomach pain as a side effect. He has been...

Created By: abhilasha | 2013-05-13 15:41 | 162 Views | 1 Comment

My 6 year daughter is having a marked increase in seizures in the last one month. Her first baby tooth also started wiggling around this same time. Has anyone seen any increase in seizure...

Created By: auz mum | 2013-05-10 19:34 | 1029 Views | 9 Comments

my name is janelle and i noticed my daughter having these staring episodes, after a couple of months noticed they where getting more and more frequent, spoke to her teacher and was told that shes...

Created By: Charli | 2013-05-08 23:02 | 172 Views | 0 Comments

Hi all,

       my 16 mth old son has myoclonic sleep jerks, these are quite severe and happen at least every 3 minutes, the large ones look like a newborn startle reflex, and wake him...

Created By: kellyknoah | 2013-04-30 21:47 | 578 Views | 5 Comments

My son started having what I called absence seizures. It took FOREVER to finally get DXed, but that came almost a year ago. However, the dr said they were not conclusive with absence seizures...

Created By: atchristianson | 2013-04-30 19:25 | 874 Views | 8 Comments

Hello everyone!

 

I am writing because I am trying to figure out what's going on with my son. He is 9 years old and is taking 375 mg of Keppra XR per day for left temporal lobe...

Created By: helpe2013 | 2013-04-15 08:15 | 372 Views | 3 Comments

The school picked up on this.  does anyone know if this is epilepsy?

please can someone help me it,s distressing to watch when you don't know whats going on with your child. she's had a...

Created By: helpe2013 | 2013-04-15 08:15 | 145 Views | 0 Comments

The school picked up on this.  does anyone know if this is epilepsy?

please can someone help me it,s distressing to watch when you don't know whats going on with your child. she's had a...

Created By: ladyewolfe69 | 2013-03-30 23:31 | 158 Views | 0 Comments

My son is 11 1/2. His neuro has recommended he be evaluated at Cook's Children's Hospital to see if he is a candidate for surgery. He has an infarct on his left parietal lobe and takes Trileptal...

Created By: alliflats | 2013-03-13 12:39 | 169 Views | 0 Comments

My son had an episode on Monday in school that scared us.

He was sitting in class. The teacher asked him a question and he didn't know the answer. The next thing he knew it was 10-15...

Created By: Pnal | 2013-02-22 15:54 | 387 Views | 3 Comments

My boy was almost seizure free for 9 months while on Trileptal. He grew out of his dosage and started having 1-2 minute seizures every 4 hours. We increased his dosage 2 days ago and since then...

Created By: Anonymous | 2013-02-12 14:33 | 454 Views | 5 Comments

The background:

My, then 4 year old son, had his first 'big' or noticed seizure at montessori school on 09/13/2012. He was then scheduled for an EEG(10/02/2012) and to meet the...

Created By: Jyotsna | 2013-02-06 16:35 | 211 Views | 1 Comment

Hi,
My 18 month old baby started having freezing/ staring spells. It starts with her cheeks going red but her nose, forehead ( T zone) goes pale and then she starts producing a ' clicking'...

Created By: susanss | 2013-02-05 23:32 | 117 Views | 0 Comments

I am glad to have found this resource. My 47 year old stepson had siezures starting 24 hours after birth.  He had many siezures throughout childhood.  He has now been on tegretol for 37 years. ...

Created By: RJ577 | 2013-01-30 03:34 | 146 Views | 0 Comments

Our son, has been grande mal (correct term?) free for 8 years. His medication is being changed;  he had a major seizure last weekend and is experiencing many episodes since. He is 33 years old and...

Created By: lco120 | 2013-01-29 14:31 | 475 Views | 5 Comments

Hi everyone, my 31 month old was just diagnosed with generalized myclonic seizures.  He had a grand mal one month ago which was categorized as unprovoked (he had a virus within 24 hours of the...

Created By: Bekyduncan | 2013-01-28 19:47 | 151 Views | 0 Comments

My son, Parker is 18 months old and this weekend was the worst weekend of our lives!!
On Friday he had a Febrile seizure. It was horrible and we called the paramedics. (He's had a febrile...

Created By: sylviag | 2013-01-26 11:36 | 128 Views | 0 Comments

Hi,
I'm a parent of a 4 yr old boy. I have been dealing with my son having anger issues. I'm not sure if it coming from his epilepsy. He has had only one seizure that I could actually see....

Created By: xsaravtsheidi | 2013-01-23 03:37 | 134 Views | 0 Comments

My daughter Alicia is 15 and has had 6 tonic clonic seizures in the last 3 years, 5 of these I have mot witnessed as she has been at her dad's when they occurred. However last Wednesday morning...

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