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Topic: Parents & Caregivers

Created By: Adri_Tortladze | 2012-07-01 02:01 | 107 Views | 1 Comment

Hello,

I am so greateful to have found thsi website . I been feeling alone and confuse with my son's 18 month old seizure problem.

He had his first episode in 2011 Xmas ( b4 he...

Created By: babs0217 | 2012-07-01 00:13 | 125 Views | 1 Comment

My daughter was diagnosed with epilepsy at nine months old. Since then it's been a constant battle to control her seizures. She has petite mal, grandmal, drop seizures, and partials. She has been...

Created By: thore | 2012-06-18 03:49 | 109 Views | 1 Comment

HI All,

My 11 year daughter is facing seizures when anyone touches her any portion of her head. Seizure remains for 5-7 seconds and in most of the cases she also passes urine. This...

Created By: CaseyA | 2012-05-31 17:16 | 143 Views | 1 Comment

My 3 year old son was diagnosed a year and a half ago with partial complex seizures. The dr prescribed Keppra. He was up to 4ml 2x a day and had a break thru seizure. His dr now wants to begin...

Created By: Natarina | 2012-05-24 06:07 | 108 Views | 1 Comment

Hi!I'm Natasha,daughter's name is Arina,she is 11 months. Her diagnosis is Symptomatic Local Epi with Infant Spasms. She was treated by- Convulex,Topomax,Sabril,Keppra,Synacten,Hydrocortisonum,...

Created By: AngelicScars | 2012-05-23 09:20 | 89 Views | 0 Comments

My son is 3, will be 4 in July. He has been on a generic Keppra since Feb. 1st. He went to the neuro. yesterday and they increased his dosage due to seizure like activities that have occurred...

Created By: sspitz | 2012-05-07 15:17 | 166 Views | 2 Comments

Hi,

My wife and I were recently married and are moving into our 30s. We currently don't plan to have kids JUST yet, but have discussed it as we are not getting any older. Her current...

Created By: bshawty0102 | 2012-05-06 15:46 | 129 Views | 1 Comment

I am the mother of an 18 month old. She had her first febrile seizure at 7 months and her second within less than 24hrs. The second one lasted 30+ min. She was hospitalized for three days, had a...

Created By: Ashleygordon82 | 2012-04-15 20:40 | 173 Views | 2 Comments

Here is our story:

our oldest daughter had a febrile seizure when she was almost a year and a half (shes 2 now). We went to the ER and talked w the doctors and they assured us that she...

Created By: trbingbc | 2012-04-13 13:08 | 81 Views | 0 Comments

I have an 8 year old son, and I had brain surgery about 6-7 years ago. By the way, it wasn't for me. but I thought at the time it was. Anyway, I thought by having the surgery I would be able to...

Created By: Laurie Lamantia | 2012-04-09 21:09 | 77 Views | 0 Comments

Our son is 17, and has failed 8 meds.  His absences seizures began @ age 5 and we have struggeled ever since. He has been on the modified adkins diet for over 14 months, faithful and committed. ...

Created By: AngelicScars | 2012-04-05 10:12 | 69 Views | 0 Comments

My son has been on a generic Keppra since Feb. 1st of this year. It has kept him seizure free (as far as I know) for 2 months. Then, April 2nd, he showed major signs of post-seizure. I had stepped...

Created By: enidan | 2012-03-31 18:04 | 108 Views | 1 Comment

 

My daughter who is six, was diagnosed with Benign Epilepsy with Centro Temporal Spikes (BECTS) in June 2011. She had had three nocturnal seizures. At the time of diagnosis the...

Created By: meli792004 | 2012-03-27 15:12 | 68 Views | 0 Comments

My 13 year old son was just diagnosed with epilepsy last week. He just started having seizures in January but we didn't even know that is what they were since it seemed more like twitching. They...

Created By: CanuckDan | 2012-03-20 13:41 | 205 Views | 3 Comments

Hi everyone,

My 6 year old son had a seizure on November 6, 2011 at 3am. There were no obvious signs before hand nor was there any activity before hand such as hitting his head or...

Created By: ajssoscia | 2012-03-07 14:59 | 131 Views | 1 Comment

I am looking to connect with others in my general area who have a child with epilepsy. There are no support groups near here and I feel it will be very instrumental in dealing with this if there...

Created By: ajssoscia | 2012-03-07 14:59 | 111 Views | 0 Comments

I am looking to connect with others in my general area who have a child with epilepsy. There are no support groups near here and I feel it will be very instrumental in dealing with this if there...

Created By: avigr | 2012-03-04 07:53 | 76 Views | 0 Comments

Hello Everyone,

My wife has epilepsy, she takes Lamictal, 200 mg a day for a 10 years. She breastfeeds our baby, and everything is fine with him except blood in his stools once in 2...

Created By: AngelicScars | 2012-02-25 19:20 | 118 Views | 1 Comment

Since my last post, my son has had another seizure. This one was scarier since he turned completely blue from not breathing and lasted close to 10 minutes.
He has been put on medication that...

Created By: Veronya7 | 2012-02-20 04:38 | 93 Views | 0 Comments

Our teen daughter was diagnosed with epilepsy last March, 2011. Prescribed 2,000mg Keppra/day. Everything seemed mostly under control, Until November, 2011. Then she started to have seizures...

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