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Topic: Parents

Created By: lpnrn87 | 2006-02-21 17:12 | 82 Views | 3 Comments

My now 18 month old grandaughter has been diagnosed with myoclonic seizures and some degree of mental retardation, yet they still have not given us a name or cause for what she has. Tests have...

Created By: land1968 | 2006-02-20 07:16 | 94 Views | 9 Comments

My 14 year old son has just been diagnosed with simple and complex partial seizures (temporal lobe). He may have been having the simples for several years, intermittently, but suddenly developed...

Created By: abonnier | 2006-02-19 09:42 | 50 Views | 1 Comment

My 19 month old son was diagnosed with epilepsy at 2 weeks of age. He has been on 4 medicines, that have all worked for a period of time (Depakote being the longest 10 mos.), and then stopped. He...

Created By: mikamel | 2006-02-17 20:34 | 107 Views | 8 Comments

My beautiful fourteen year old daughter was diagnosed at ten years old with seizure disorder syndrome after two back to back tonic seizures. She had fever related seizures until she was three...

Created By: clinn67 | 2006-02-17 06:48 | 47 Views | 2 Comments

My 7 yr.old with partial seizures ,on Trileptal since Sept had complained of tremors while she was doing her homework. Her handwriting was definitely shaky toward the end of the page. Anyone else...

Created By: fatima40 | 2006-02-14 15:45 | 53 Views | 2 Comments

I look for an advise because I will not give her any drug. .
I have seen some people who recoverd with out using any drugs

Created By: happycat2 | 2006-02-14 15:02 | 36 Views | 0 Comments

A major mystery in epilepsy research has been why infants are more prone to seizures than adults and how those seizures progress to chronic epilepsy. Now, researchers have discovered that central...

Created By: KELANDV | 2006-02-09 11:47 | 87 Views | 1 Comment

My daughter is 7 and wants to know why she has to take her medication. I have Epilepsy too and take the same medicine, but I have a hard time explaining it to her.
I've said stuff like there...

Created By: macsmom | 2006-02-08 10:52 | 360 Views | 27 Comments

My daughter (9) was just recently diagnosised with absence seizures and has started taking Lamictal. Everyone I talk to looks at me like I am crazy, and has no idea what I am talking about. Just...

Created By: jennifer28 | 2006-02-02 14:29 | 42 Views | 1 Comment

I just recived an e-mail from an angry mother for a comment made on entertainment tonight Mary Hart was doing an interview with Paula Abdoul,Paula was explaing a dance she thought was cute from a...

Created By: dawlew | 2006-01-31 22:11 | 51 Views | 2 Comments

Hi, we have a 14 yr old girl (K) who has been treated for epilepsy for 5-6 yrs now. We are only on drug number 3 but may need to try another.
K has absense seizures, partial seizures and...

Created By: Tommysmom | 2006-01-30 09:30 | 798 Views | 7 Comments

My son has infantile spasms. He is on Topamax and Kolopin right now. We were told that there is still a chance that he may grow out of this condition. Could that be true? Has anyone ever "...

Created By: cheryl2 | 2006-01-27 15:48 | 45 Views | 2 Comments

I just got on this sight today. My daughter Melody has had seizures since 2 months of age. She is fourteen now. At the age of 18 months she seized for 8 and a hafl hours. She is totally...

Created By: jennifer28 | 2006-01-26 19:38 | 53 Views | 1 Comment

HI my daughter Kyla started having seizures at 11weeks old she is now almost 3 and We have tried 6 different meds, and are currently weing off the ketogenic diet, I am supposed to be looking for...

Created By: Mom2Chris | 2006-01-25 20:27 | 119 Views | 5 Comments

Hi:

My bright and beautiful (he'd hate me to use that word...he'd prefer cool), 8 year old son was diagnosed w/E on 12/19/05 (so this is sonew to us!). Up to that point he had 2 simple...

Created By: Tommysmom | 2006-01-25 10:14 | 2916 Views | 26 Comments

My son Tommy was diagnosed with Infantile spasms at 5 months old. We noticed "twitches" that our pediatrician told us may be primal reflexes. After a few more days of seeing my son having "jack...

Created By: KelleyV | 2006-01-23 18:18 | 327 Views | 15 Comments

My son is 15 and just started Lamictal. (First med treatment/started seizures approx 1 month ago)

I have been reading a lot re: Lamictal and Epilepsy online and have not run across anyone...

Created By: tnpeach | 2006-01-20 19:50 | 71 Views | 1 Comment

Hi, I was recently diagnosed with epilepsy. My seizures occur mainly in my sleep. But then I was told it could be hereditary. Anyone have experience with this? My oldest son had what we were...

Created By: colette | 2006-01-18 23:59 | 55 Views | 1 Comment

My daughter was diagnosed with epilepsy last fall. The doctors had previously diagnosed her with depression and we dealt with that for a little over a year. It took almost a year to diagnose her...

Created By: Haileighs dad | 2006-01-12 21:43 | 149 Views | 4 Comments

Hi I’m new here, looks like a great place for information. My 5 and a half year old daughter has had petite mal seizures since she was 3. She has been on Zarontin ever since. Her seizures have...

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