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Topic: Parents & Caregivers

Created By: lisavmorris | 2006-06-05 05:40 | 1890 Views | 15 Comments

Hi,
I'm new to this, my son (10years old) was diagnosed with temporal lobe epilepsy last week, i believe he has simple partial seizures although the doctor did not go into this. For the past...

Created By: chrisalis | 2006-06-03 08:13 | 256 Views | 9 Comments

our 3 mos. foster baby who was exposed in utero to cocaine at the least, has had two EEGs. the second at a different hospital returned a report " continuous polymorphic delta activity...

Created By: elaine | 2006-05-31 01:19 | 84 Views | 3 Comments

My daughter was dx with Infantile Spasms 3 weeks ago. My world has been turned upside down. She was developing so normally and was just a happy, easy-going baby. All of the sudden, I noticed...

Created By: Keri Kennedy | 2006-05-30 17:36 | 80 Views | 1 Comment

Rebecca was diagnosed at 4 months with Infantile Spasms (she is almost 1 now).
We have recently had 100% seizure control with a combination of Topomax and Phenobarbital. We are now seeing...

Created By: AndrewNJ | 2006-05-26 11:13 | 312 Views | 10 Comments

Hi everyone.

Let me begin by saying I'm scared like I've never been before, and am pretty emotional (and often overreactive). Sorry if this is a little bit of a ramble.

The story so...

Created By: ScottM | 2006-05-26 07:05 | 128 Views | 3 Comments

Ok this is hard enough to talk about being that she is my little girl and all but i know she is growing up and all. my daughter is 13 soon to be 14yro. she has been epileptic since she was btwn 10...

Created By: Brubaha Mom | 2006-05-25 21:18 | 3791 Views | 2 Comments

I need some help/input.

My 2 week old son has been twitching at least once or twice a day for the last week or so. He does it while sleeping or awake. Usually it's just his limbs but...

Created By: ScottM | 2006-05-24 07:02 | 90 Views | 4 Comments

has anyone in here Joined them? they have several medical id bracelets that my daughter likes but you have to join them to buy them. from talking with them if sounds as if they are a middle man...

Created By: zzzzzing | 2006-05-22 12:27 | 199 Views | 5 Comments

My 3 yo had a strange fainting type spell last week, she was with our nanny so I wasn't there to witness what happened. The nanny brought her to me immediately after, and my daughter was...

Created By: jolieweng | 2006-05-21 21:52 | 4625 Views | 33 Comments

Hey, have you other parents out there heard that your child could grow out of their seizure disorder? My Zakry has idiopathic epi, so does that mean that he should be able to grow out of it? We...

Created By: jksmith | 2006-05-19 18:32 | 65 Views | 0 Comments

I am relatively new to epilepsy.com. I am a 33 yr old mom with epilepsy that was diagnosed at age 12. My 4 year old daughter was diagnosed with the same seizure pattern this year.

I have...

Created By: tony73 | 2006-05-13 05:46 | 68 Views | 1 Comment

My 18-yr. old daughter will be traveling to Europe with her school soon and I wonder if there is any advice/info for her as far as managing the time change and meds when she goes. Her seizures are...

Created By: mcccknight | 2006-05-10 15:51 | 122 Views | 2 Comments

Hi I'm new here. My name is Michelle, I have 3 girls (17, 6, and 4 yrs old). My 17 yr old was diagnosed adhd age 7, ODD age 13, and then Bipolar at age 15. My 4 year old has asthma. My 6 year old...

Created By: mamaoffive | 2006-05-09 22:55 | 415 Views | 15 Comments

Hello eveyone. My five year old daughter was just discharged from the hopital after a two day stay. She had her second seizure (that we have witnessed) the other night. Like her first seizure,...

Created By: Eliz | 2006-05-08 10:11 | 63 Views | 1 Comment

Hi, I was interested in a post by Littlebug about her daughter. It sounded like my son, who was diagnosed with complex partial seizures. After adjusting his Lamictal to a good level after 3 years...

Created By: Pamelake | 2006-05-04 23:41 | 134 Views | 3 Comments

My 6 month old grandaughter has been having seizures since 2-3 months of age. They have not found a reason and are continuing to do testing and medication adjustments. She also has hypotonia....

Created By: mom2tnt | 2006-05-03 07:50 | 133 Views | 4 Comments

hi all we are some what new to this my son whos 9 was dinosed in nov 05 . we stated lamictal and did very well on it for about amost 5 mo than came the rash , so then we started the depakote...

Created By: ekoorb | 2006-04-27 19:30 | 80 Views | 3 Comments

My 5 year old is going to camp this summer. Any advice or discussions to have with the camp director regarding epilepsy?

Created By: c.reader | 2006-04-27 18:05 | 64 Views | 0 Comments

thanx Barbie for your imput. my son sees a pediatric neurologist, however he has seen the nurse practioner most of the time. just found out today that the np will be leaving after this week. i...

Created By: c.reader | 2006-04-27 08:13 | 74 Views | 2 Comments

hi all, it has been awhile. i am trying to help my son and everthing his dr tries doesn't work. time for a second opinion? my son never wants to talk about his seizures, so it is really hard to...

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