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Topic: Parents & Caregivers

Created By: dhemphill | 2006-07-11 14:01 | 384 Views | 4 Comments

My child is currently seeing a neurologist, but everyone on here seems to lean towards visiting an epileptologist. Is there anyone that lives in the Dallas/Fort Worth area that is/or has a child...

Created By: DJsMom | 2006-07-10 22:44 | 86 Views | 1 Comment

Hello reader, my son is 7 and has had seizures since 20 months. First, just an occasional, short seizure, then later after being on Tegretol for a year, frequent myoclonic seizures. We added...

Created By: melissaiba | 2006-07-10 21:20 | 136 Views | 1 Comment

My son was diagnosed with epilepsy at 4 months after a 4 hr EEG. He has partial seizures only in his sleep. His hands and legs jerk slightly and those are the only signs. He is on both...

Created By: fortune | 2006-07-04 05:41 | 205 Views | 9 Comments

hi there, i,ve been away for quite sometime coz of my son's worsening situation. Im really so stressed up. my son's doctor tells me he'll be ok but i think this is just a lie to make me feel...

Created By: laurensmyprincess | 2006-07-02 13:52 | 585 Views | 15 Comments

My dd has been on Lamictal since April and titrating upwards slowly. We have typically seen 1 seizure every 1 or 2 weeks over the past few months.

Over the last several days, she has been...

Created By: sydylo | 2006-06-30 18:27 | 1638 Views | 8 Comments

Hello. My one month old baby is in the hospital with seizures, he was having them with body movement at home, jerking head back, knees up, arching back. He was admitted into the hospital and put...

Created By: coryw | 2006-06-22 22:44 | 130 Views | 1 Comment

My son had a VSD (hole) repair in his heart when he was 1 yo. Post surgery, he had an infection and this led to cardiac arrest for 8 minutes. After arrest, for 4 days he had multitude of seizures...

Created By: jhuey8021 | 2006-06-20 20:56 | 269 Views | 7 Comments

My four year old has had developmental delays and we think it is associated with her various types of seizures. Does this ring a bell with anyone? Is there hope she may catch up?

I know...

Created By: marsden | 2006-06-15 12:48 | 145 Views | 5 Comments

My son is 9 and has absence seizures. He has never had a TC seizure and our neuro said that he could at any time. That spooked my wife and me.

He is having seizures frequently right now...

Created By: kassideysmom | 2006-06-12 09:12 | 147 Views | 6 Comments

Well Kassidey had her first grad mal seizure yesterday. She was getting ready to go swimming and I went to put something up and there she was laying on the floor face down making a terrible noise...

Created By: vrawls | 2006-06-09 14:45 | 105 Views | 3 Comments

I noticed the other day my 2yr old took an unusually long nap of 4 hours. A few hours later, while waiting for my daughter to finish karate class, he becomes limp, semi-lethargic and bites his...

Created By: vrawls | 2006-06-08 20:37 | 115 Views | 5 Comments

Reluctantly, I enrolled my daughter in karate for the summer. I noticed she has great difficulty with her sense of direction. I would love to tell you what type of seizures she has, but...

Created By: dansmom3 | 2006-06-08 17:29 | 7346 Views | 33 Comments

Hi
I am the mother of a 5 1/2 year old who is progressively getting worse. His name is Danny. He has many types of seizures. He has at least 10 notable seizures a day and probably many...

Created By: AndrewNJ | 2006-06-05 11:24 | 148 Views | 3 Comments

Hi everyone.

Thanks to all of you who responded and sent good thoughts to my previous posts.

Well, it probably goes without saying that I am at the low point in my life; we had an...

Created By: lisavmorris | 2006-06-05 05:40 | 2124 Views | 15 Comments

Hi,
I'm new to this, my son (10years old) was diagnosed with temporal lobe epilepsy last week, i believe he has simple partial seizures although the doctor did not go into this. For the past...

Created By: chrisalis | 2006-06-03 08:13 | 285 Views | 9 Comments

our 3 mos. foster baby who was exposed in utero to cocaine at the least, has had two EEGs. the second at a different hospital returned a report " continuous polymorphic delta activity...

Created By: elaine | 2006-05-31 01:19 | 98 Views | 3 Comments

My daughter was dx with Infantile Spasms 3 weeks ago. My world has been turned upside down. She was developing so normally and was just a happy, easy-going baby. All of the sudden, I noticed...

Created By: Keri Kennedy | 2006-05-30 17:36 | 86 Views | 1 Comment

Rebecca was diagnosed at 4 months with Infantile Spasms (she is almost 1 now).
We have recently had 100% seizure control with a combination of Topomax and Phenobarbital. We are now seeing...

Created By: AndrewNJ | 2006-05-26 11:13 | 339 Views | 10 Comments

Hi everyone.

Let me begin by saying I'm scared like I've never been before, and am pretty emotional (and often overreactive). Sorry if this is a little bit of a ramble.

The story so...

Created By: ScottM | 2006-05-26 07:05 | 139 Views | 3 Comments

Ok this is hard enough to talk about being that she is my little girl and all but i know she is growing up and all. my daughter is 13 soon to be 14yro. she has been epileptic since she was btwn 10...

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