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Topic: Parents & Caregivers

Created By: alismom | 2006-04-13 20:23 | 215 Views | 8 Comments

Has anyone experienced they or their child having seizure activity increase while engaged in sports or physical activity or while being very hot from exercise? My 9 year old daughter has mostly...

Created By: ekoorb | 2006-04-13 16:40 | 429 Views | 17 Comments

My 5 year old was recently diagnosed with Panayiotopolous Syndrom/Benign Occipital Epilepsy. For anyone else with the same diagnosis, have your seizures ever appeared during the day? My daughter...

Created By: ytirahc | 2006-04-13 00:30 | 237 Views | 7 Comments

I CURRENTLY TAKE DILANTION 3X PER DAY & TEGRETOL 2X PER DAY. AND I STILL HAVE SEIZUERS. THEY HAVE GOTTEN MILD BUT THEY STILL COME. I HAVE GRAND-MAL, STARE ATTACKS, AND WHATEVER YOU CALL THE...

Created By: ekoorb | 2006-04-10 22:48 | 259 Views | 2 Comments

Has anyone's child had one of these? Is it stressful on the child?

Created By: Karatanoron | 2006-04-10 19:39 | 97 Views | 6 Comments

Hi! In January my daughter was diagnosed with having Epilepsy. I was wondering what the normal amount of seizures is. I mean she had four today. Is that a lot? I have no way to compare. Sounds...

Created By: lestey | 2006-04-10 01:29 | 68 Views | 3 Comments

My daughter is having these episodes where she shakes uncontrollably. the shaking is sort of like a tremor. It usually begins in her legs then travels up her body to her head and affects her jaw....

Created By: niksmom | 2006-04-09 18:54 | 73 Views | 3 Comments

My 2 y.o. son is on lamicatal--just started a month ago and we are in the slow ramp-up phase. My son is now on 10mg/day (he only weighs 26 pounds) and we are increasing 5mg per two weeks until we...

Created By: LIGHT1 | 2006-04-09 07:47 | 49 Views | 0 Comments

Hi,
Please advise
I have a 2 year old little girl with multiple problems one of which the doctors think is epilepsy. She has been referred for tests etc - (not sure how long that will...

Created By: DenaeAyers | 2006-04-08 17:15 | 77 Views | 2 Comments

My daughter is 6 and has intractable Complex partial with secondary generalization. She is taking 300mg of Topamax and had the VNS implant on Feb 20th, it has been on for about a month.

I...

Created By: laurensmyprincess | 2006-04-08 13:05 | 151 Views | 6 Comments

My daughter is being weaned from Clobazam and Lamictal will be added as an add on to Tegretol. We are having behaviour issues now which we suspect might be in part to the clobazam.

Can you...

Created By: JenCA | 2006-04-07 23:11 | 61 Views | 0 Comments

Hi,

I'm starting my six year-old son on Tegretol this weekend. Due to our very tricky schedule over the next several days, I REALLY want to start him this weekend and deal with any side...

Created By: PJ | 2006-04-06 18:36 | 72 Views | 5 Comments

Hi all,
I have posted before, but I'll give a brief summary here because I am so frustrated right now and I really need opinions.

Bronwyn started having seizures on Feb. 2nd. That...

Created By: skootch1229 | 2006-04-06 15:04 | 212 Views | 8 Comments

Hi. My 4 1/2 year old son was just yesterday diagnosed with childhood absense epilepsy. I have noticed for a while that he at times seems in his own world, or that he doesn't always answer when he...

Created By: jjbeck | 2006-04-05 12:57 | 47 Views | 1 Comment

Can someone help me to understand these EEGs better.
My 23 m/o is left hemi due to a stroke. Here are her last two EEG reports:

Here they are ... both of them:

NOV 05
...

Created By: jagjaglee | 2006-04-03 01:08 | 84 Views | 6 Comments

I am so glad I found this site. My son had his first seizure in July. We were scared out of our wits when it happened. He had a "Grand Mal" seizure before waking up one morning and happened to be...

Created By: bania | 2006-04-01 22:39 | 48 Views | 0 Comments

I would like to contact any other parents that have encountered this
diagnosis.

here's the quick version: NORMAL CHILD, No family History of epilepsy, Normal birth, pregnancy, etc....

Created By: bania | 2006-04-01 22:39 | 53 Views | 1 Comment

I would like to contact any other parents that have encountered this
diagnosis.

here's the quick version: NORMAL CHILD, No family History of epilepsy, Normal birth, pregnancy, etc....

Created By: tchaide05 | 2006-03-27 22:05 | 73 Views | 3 Comments

Well Lauren's Dr finally gave me a diagnosis. She does have confirmed epilepsy. But they still don't know what is causing it. she said it is idiopathic which I guess means that they don't know...

Created By: tchaide05 | 2006-03-27 22:05 | 45 Views | 0 Comments

Well Lauren's Dr finally gave me a diagnosis. She does have confirmed epilepsy. But they still don't know what is causing it. she said it is idiopathic which I guess means that they don't know...

Created By: jolieweng | 2006-03-25 20:38 | 172 Views | 8 Comments

My son has sleep issues. He also has a "seizure disorder" that has not yet been dianosed. I am not sure if he has a sleep disorder, sleep seizures (he has other seizures too) or if he's having...

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