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Topic: Parents & Caregivers

Created By: Eliz | 2006-05-08 10:11 | 51 Views | 1 Comment

Hi, I was interested in a post by Littlebug about her daughter. It sounded like my son, who was diagnosed with complex partial seizures. After adjusting his Lamictal to a good level after 3 years...

Created By: Pamelake | 2006-05-04 23:41 | 123 Views | 3 Comments

My 6 month old grandaughter has been having seizures since 2-3 months of age. They have not found a reason and are continuing to do testing and medication adjustments. She also has hypotonia....

Created By: mom2tnt | 2006-05-03 07:50 | 126 Views | 4 Comments

hi all we are some what new to this my son whos 9 was dinosed in nov 05 . we stated lamictal and did very well on it for about amost 5 mo than came the rash , so then we started the depakote...

Created By: ekoorb | 2006-04-27 19:30 | 68 Views | 3 Comments

My 5 year old is going to camp this summer. Any advice or discussions to have with the camp director regarding epilepsy?

Created By: c.reader | 2006-04-27 18:05 | 56 Views | 0 Comments

thanx Barbie for your imput. my son sees a pediatric neurologist, however he has seen the nurse practioner most of the time. just found out today that the np will be leaving after this week. i...

Created By: c.reader | 2006-04-27 08:13 | 64 Views | 2 Comments

hi all, it has been awhile. i am trying to help my son and everthing his dr tries doesn't work. time for a second opinion? my son never wants to talk about his seizures, so it is really hard to...

Created By: Jo2 | 2006-04-27 00:47 | 85 Views | 4 Comments

I'm a newbie & have a 3 month old baby girl who has had seizures since she was 5 days old. Lucky for us, Phenobarb controls these seizures, but they make her very quiet. She is also being put...

Created By: fortune | 2006-04-26 07:35 | 95 Views | 4 Comments

hi ya all,i need some help here.my son is epileletic and he is almost three years old but he cannot construct asentence.he only utters just few words.he's on tegretol,rivotril,pb.could this be...

Created By: judymae | 2006-04-25 17:45 | 158 Views | 1 Comment

what doe this actually mean,mt grand daughter has been diagnose with this she had several febrile seizures before age 5 and now shes 7 and a month ago she had a seizure eeg confirmed misfireing as...

Created By: Missyat | 2006-04-23 18:58 | 56 Views | 0 Comments

It is that time again,

EFNW (Epilepsy Foundation North West) is doing a walk and I have created a ''team''

Check out the Website and give some creative input

...

Created By: ekoorb | 2006-04-19 21:21 | 141 Views | 3 Comments

My daughter was diagnosed with epilepsy in the last 3 months. I was amazed to learn that all the definition is is 2 or more seizures. The term epilepsy has such a stigma to it. When I asked my...

Created By: paisleysmama | 2006-04-18 08:59 | 83 Views | 3 Comments

hi my 15 mth old daughter was just recently diagnosed with epilepsy..they arent saying if its a specific kind..im not sure if she should ahve a label..but they say it isnt grand mal or petit mal.....

Created By: ac420ec | 2006-04-17 14:44 | 83 Views | 1 Comment

Hi -- I just found this forum . My daughter has been diagnosed w/ frontal lobe epilepsy (nocturnal) after 2 years of being misdiagnosed with a sleep disorder. Its good to finally have some...

Created By: Karatanoron | 2006-04-15 08:41 | 169 Views | 6 Comments

My daughter is 2 1/2 y.o. and is taking Frisium and Lamactal ( I am sure I am spelling that one wrong). Ever since she started taking Lamactal, she has been having a really hard time sleeping. She...

Created By: alismom | 2006-04-13 20:23 | 257 Views | 8 Comments

Has anyone experienced they or their child having seizure activity increase while engaged in sports or physical activity or while being very hot from exercise? My 9 year old daughter has mostly...

Created By: ekoorb | 2006-04-13 16:40 | 468 Views | 17 Comments

My 5 year old was recently diagnosed with Panayiotopolous Syndrom/Benign Occipital Epilepsy. For anyone else with the same diagnosis, have your seizures ever appeared during the day? My daughter...

Created By: ytirahc | 2006-04-13 00:30 | 277 Views | 7 Comments

I CURRENTLY TAKE DILANTION 3X PER DAY & TEGRETOL 2X PER DAY. AND I STILL HAVE SEIZUERS. THEY HAVE GOTTEN MILD BUT THEY STILL COME. I HAVE GRAND-MAL, STARE ATTACKS, AND WHATEVER YOU CALL THE...

Created By: ekoorb | 2006-04-10 22:48 | 276 Views | 2 Comments

Has anyone's child had one of these? Is it stressful on the child?

Created By: Karatanoron | 2006-04-10 19:39 | 111 Views | 6 Comments

Hi! In January my daughter was diagnosed with having Epilepsy. I was wondering what the normal amount of seizures is. I mean she had four today. Is that a lot? I have no way to compare. Sounds...

Created By: lestey | 2006-04-10 01:29 | 76 Views | 3 Comments

My daughter is having these episodes where she shakes uncontrollably. the shaking is sort of like a tremor. It usually begins in her legs then travels up her body to her head and affects her jaw....

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