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Topic: Parents & Caregivers

Created By: Sljuco | 2013-08-01 17:43 | 159 Views | 0 Comments

Hello to everyone,

just joined in and could use some advice please!

I have son who is now 4 and half years old, on therapy almoust 2 years, takes Convulex and Frisium,seizure type...

Created By: qpmitchell | 2013-07-30 16:44 | 115 Views | 0 Comments

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Created By: vivaciousgemini22 | 2013-06-14 13:09 | 244 Views | 1 Comment

So I feel like my mother is seriously overreacting simply over the fact that I am very conscious about my epilepsy. She's says that I always focus on the negative and never see the positive...

Created By: angieamesmay | 2013-06-09 21:33 | 169 Views | 0 Comments

We have an EEG this week for our 4.5 year old daughter with Epilepsy. We need to keep her up all night and I am looking for recommendations for suggestions on what to do with a little one the...

Created By: bexter95 | 2013-06-06 08:28 | 203 Views | 1 Comment

My 8 yr old daughter had a so far.very successful left temporal lobectomy to remove part if the hippocampus 3months ago. She has returned to school and so far no seizures, is still on keppra and...

Created By: bingo2628 | 2013-05-29 21:57 | 281 Views | 2 Comments

Hi this is the first time I am posting on this site. I have till now been reading and understanding.

My daughter was on VPA - valproate for about 3 years age 4-7, with complete control of...

Created By: Noomaak | 2013-05-22 19:08 | 411 Views | 4 Comments

My 15 year old son has been diagnosed with complex partial seizures, and has been treated with a number of medications. Most have seemingly had severe stomach pain as a side effect. He has been...

Created By: abhilasha | 2013-05-13 15:41 | 143 Views | 1 Comment

My 6 year daughter is having a marked increase in seizures in the last one month. Her first baby tooth also started wiggling around this same time. Has anyone seen any increase in seizure...

Created By: auz mum | 2013-05-10 19:34 | 850 Views | 9 Comments

my name is janelle and i noticed my daughter having these staring episodes, after a couple of months noticed they where getting more and more frequent, spoke to her teacher and was told that shes...

Created By: Charli | 2013-05-08 23:02 | 153 Views | 0 Comments

Hi all,

       my 16 mth old son has myoclonic sleep jerks, these are quite severe and happen at least every 3 minutes, the large ones look like a newborn startle reflex, and wake him...

Created By: kellyknoah | 2013-04-30 21:47 | 506 Views | 5 Comments

My son started having what I called absence seizures. It took FOREVER to finally get DXed, but that came almost a year ago. However, the dr said they were not conclusive with absence seizures...

Created By: atchristianson | 2013-04-30 19:25 | 740 Views | 8 Comments

Hello everyone!

 

I am writing because I am trying to figure out what's going on with my son. He is 9 years old and is taking 375 mg of Keppra XR per day for left temporal lobe...

Created By: helpe2013 | 2013-04-15 08:15 | 326 Views | 3 Comments

The school picked up on this.  does anyone know if this is epilepsy?

please can someone help me it,s distressing to watch when you don't know whats going on with your child. she's had a...

Created By: helpe2013 | 2013-04-15 08:15 | 126 Views | 0 Comments

The school picked up on this.  does anyone know if this is epilepsy?

please can someone help me it,s distressing to watch when you don't know whats going on with your child. she's had a...

Created By: ladyewolfe69 | 2013-03-30 23:31 | 139 Views | 0 Comments

My son is 11 1/2. His neuro has recommended he be evaluated at Cook's Children's Hospital to see if he is a candidate for surgery. He has an infarct on his left parietal lobe and takes Trileptal...

Created By: alliflats | 2013-03-13 12:39 | 148 Views | 0 Comments

My son had an episode on Monday in school that scared us.

He was sitting in class. The teacher asked him a question and he didn't know the answer. The next thing he knew it was 10-15...

Created By: Pnal | 2013-02-22 15:54 | 332 Views | 3 Comments

My boy was almost seizure free for 9 months while on Trileptal. He grew out of his dosage and started having 1-2 minute seizures every 4 hours. We increased his dosage 2 days ago and since then...

Created By: Anonymous | 2013-02-12 14:33 | 391 Views | 5 Comments

The background:

My, then 4 year old son, had his first 'big' or noticed seizure at montessori school on 09/13/2012. He was then scheduled for an EEG(10/02/2012) and to meet the...

Created By: Jyotsna | 2013-02-06 16:35 | 178 Views | 1 Comment

Hi,
My 18 month old baby started having freezing/ staring spells. It starts with her cheeks going red but her nose, forehead ( T zone) goes pale and then she starts producing a ' clicking'...

Created By: susanss | 2013-02-05 23:32 | 100 Views | 0 Comments

I am glad to have found this resource. My 47 year old stepson had siezures starting 24 hours after birth.  He had many siezures throughout childhood.  He has now been on tegretol for 37 years. ...

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