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Topic: Parents & Caregivers

Created By: NETEEN | 2014-04-21 10:19 | 221 Views | 0 Comments

My son is outgoing 16 yr old male. Been tested over the years and no one can figure out his condition.

This happened again today. The last time was 2-1/2years ago.

In a high school...

Created By: Mollysmummy | 2014-04-20 22:41 | 213 Views | 0 Comments

My second daughter just 4 months old started having seizures last month. First it was just one (light jolting and tongue popping in and out of her mouth) and then about 5 days later another one...

Created By: lefemmefatale@gmail.com | 2014-04-18 13:03 | 191 Views | 0 Comments

I’m 37 yrs old and since I was 12 yrs old I’ve always had issues with lights (strobe, bright lights..etc) also with rapidly changing intensities of light such as passing trees. When I was going...

Created By: cmcdaniels | 2014-04-17 18:59 | 236 Views | 4 Comments

My now 13 year old daughter was diagnose with epilepsy last Nov after having a grand mal sz inside a haunted house due to the strobe lights. She had a 2nd seizure ( tonic clonic with secondary...

Created By: homemom | 2014-04-17 11:17 | 256 Views | 5 Comments

I have a 21 year old daughter that has suffered from seizures most of her life. We have been on and off different medication, been to unnumbered doctors and hospitals...not getting ANY answers for...

Created By: sfc10orio@gmail.com | 2014-04-15 21:32 | 363 Views | 3 Comments

On February 2014, my daughter (15 yrs) had her first Tonic Clonic Seizure. At the ER, the doctor said everyone is allowed one seizure in their life. Two weeks later she had another TC on the couch...

Created By: Amy Kate | 2014-04-12 14:29 | 429 Views | 0 Comments

With all due respect to the painful days and nights we often have with our children, we need a little break.  Will you share what you do to keep your sense of humor? Here is my offering:   ...

Created By: ilovemyson2014 | 2014-04-10 23:20 | 270 Views | 10 Comments

My son had his first seizure at school during P.E. It was a tonic clonic (grand-mal). We have went to see a neurologist and had a EEG done and it came back abnormal. The neurolgist recommened that...

Created By: Member3671 | 2014-04-07 16:34 | 385 Views | 3 Comments

My chilld is almost 10 years old and already I've discussed the severity of having children should they decide to marry after college. My child's father suffers from epilepsy and my child has...

Created By: JKtap | 2014-04-02 17:34 | 212 Views | 6 Comments

How do you handle this?  My son is 24 and was diagnosed with epilepsy 18 months ago after a bad car accident.  He doesn't always take his meds, therefore he's had over a dozen grand mal seizures...

Created By: Mallory's Hope | 2014-03-30 19:31 | 174 Views | 0 Comments
Created By: mochicrunch | 2014-03-28 15:38 | 431 Views | 3 Comments

Hello,

I am new to these boards. Our 4.5 year old son has GEFS+, and has had relatively short tonic clonic seizures with infections since he was 11 months old. They usually last less than...

Created By: Amy Kate | 2014-03-27 17:44 | 348 Views | 8 Comments

My son is now 17.  We've been through a dozen meds, seven surgeries and non traditional treatments of all kinds.  But still, epilepsy is part of our family.  I've been dealing with it quietly,...

Created By: Crickets_mom | 2014-03-26 16:56 | 259 Views | 5 Comments

Hi everyone, 

it has been a long time since I have been on. My sons seizures seem to have stabilized.  He still has many absence a day but he hasn't has a long one in over two years. He is...

Created By: Amy Kate | 2014-03-26 16:34 | 482 Views | 9 Comments

Years past the shock and slow acceptance of epilepsy, I'm trying to learn how to be cordial with this uninvited guest in our family.  My son is 17 now and still seizes weekly.  To say it is taking...

Created By: Rluhn | 2013-11-28 15:33 | 5008 Views | 5 Comments

Hi all-needing some support over this long holiday weekend before I google myself into submission...
My son is almost 2, and received a diagnosis of hypotonia around 1 year old. He has been...

Created By: kevinandjenny7 | 2013-11-27 15:11 | 2737 Views | 1 Comment

Hi,

 

I am looking for others who have a smart watch. I was curious how the pricing works. Do you pay a monthly fee forever or do eventually you have it paid for? For those who...

Created By: jennquest | 2013-11-24 02:24 | 405 Views | 1 Comment

My son is 4 and has been having focal seizures for a year. We were switched from tegretol to valproate about two months ago with good results initially. His seizures have returned and so his dose...

Created By: tashyluv | 2013-11-21 09:14 | 744 Views | 3 Comments

My daughter had her EEG today, I am so proud of her she was so well behaved. She reacted to hyperventilation (which we knew) and it also happened without any stimulis. She did'nt react to the...

Created By: Whysgirl | 2013-11-18 14:29 | 1183 Views | 8 Comments

Good afternoon,

Apologies in advance for the lengthy post. I really need help/suggestions/experiences from which to pull. I have a 13 year old who was diagnosed with Epilepsy (focal...

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