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Topic: Parents & Caregivers

Created By: karamat | 2014-06-13 23:24 | 192 Views | 2 Comments

I'm new to the epilepsy world, but this afternoon my son's neurologist called to say she had reviewed his ambulatory 24-hour EEG and she is diagnosing him with focal onset epilepsy. I like to...

Created By: Julie Siratt | 2014-06-12 13:41 | 310 Views | 1 Comment

Hi there! A little background, my 5 yo son (will be 6 on monday), was diagnosed with generalized epilepsy in november. Seizures started showing up as myoclonic in august, mostly at sleep onset,...

Created By: Chanchan36 | 2014-06-10 13:38 | 292 Views | 3 Comments

Please help..My 12 year old son (will be 13 in a couple weeks) had a tonic clonic seizure on May 9th.  It lasted less than 1 minute, he recovered very quickly.  He is an honors student, no...

Created By: Sonyaig | 2014-06-06 02:09 | 275 Views | 1 Comment

Hi,

I am having a hard time knowing what to do! Any input would be wonderful. I am sorry this is so long! A year and a half ago - my son - who was 4 and a half years old at the time, got a...

Created By: mgodwin3313 | 2014-06-06 00:31 | 212 Views | 2 Comments

My 8 yr old daughter was just diagnosed this week with atypical absence seizures. We will be starting zarontin tomorrow morning for treatment along with MRI scheduled soon. I am so scared and...

Created By: jrmrs | 2014-06-04 09:50 | 231 Views | 0 Comments

Morning :)

Suggestions for a monitor for my two and a half year old son....I am looking for a monitor I can use at night for my son. Our video baby monitor is not going to do the trick...

Created By: acola76 | 2014-05-31 23:08 | 231 Views | 6 Comments

My 5 year old daughter was recently diagnosed with having what her pediatrician considered to be absense seizures.  After reading the results to a pediatric neurologist, the neurologist does not...

Created By: ajrogers1983 | 2014-05-30 15:01 | 184 Views | 1 Comment

My 3 year old recently started having seizures 3 months ago. I wad advised that it was a febrile seizure and it shouldn't happen again, even at my insistence that something was of with my little...

Created By: jrmrs | 2014-05-29 10:27 | 245 Views | 1 Comment

I have about two years worth of posting for here starting with my son's first seizure about two years ago. I don’t know why I didn't post sooner. I wanted to share his history a little in hopes of...

Created By: fire_emt51@yahoo.com | 2014-05-28 19:24 | 252 Views | 1 Comment

My name is danielle and my son is steven

hello I am new here I have a 22 month old son and sunday he was rushed to childrens national medical center because his wake sleep cycle was way off...

Created By: adamkennard@gmail.com | 2014-05-24 23:20 | 205 Views | 1 Comment

Hi folks. This is an amazing forum. Lots of great caring people and good information. I'm a 37yo medic professional (respiratory therapist) and my wife is also a professional in the health care...

Created By: penprase@hotmail.com | 2014-05-24 10:25 | 208 Views | 0 Comments

My almost 7 y.o. DD  is on Lamictal and Keppra (and B6!) for seizure control.  One of her biggest "tells" for seizure activity without a physical indicator is an increase in her impulsivity.

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Created By: Charise | 2014-05-22 01:21 | 203 Views | 1 Comment

Hello, we're new here and would so appreciate some advice. Our 3 year old is scheduled for an EEG in a week. We live 55 minute drive from the facility (we live in the boonies).  The directions are...

Created By: aam mom | 2014-05-21 01:09 | 318 Views | 0 Comments

Hi All,

I thought I would share Our story since when we were in the thick of it I wanted to see hopeful stories about kids getting better.

When our son was 2 1/2 he had a drop...

Created By: epilepsyquestions | 2014-05-20 04:18 | 187 Views | 0 Comments

If you have a question about epilepsy there's an NHS Choices online Q&A running on talkhealth until Friday 23rd May- you can post all your questions for the experts in this online forum - it's...

Created By: echo | 2014-05-20 00:04 | 270 Views | 0 Comments

hello,

I am wondering if anyone else with a BRE child has experienced a worsening of siezures at the onset of puberty.

My daughter is 10 1/2, and was diagnosed at age 4 1/2 with BRE...

Created By: Vanmeet | 2014-05-19 12:01 | 195 Views | 0 Comments

My 17 year old daughter was diagnosed with juvenile myoclonic epilepsy after a grand mal a year and a half ago. Since then she has withdrawn to the point of refusing to go to sxhool. She has seen...

Created By: dugan1096 | 2014-05-14 16:41 | 338 Views | 1 Comment

Hello everyone,

I have a 5 year old daughter with epilepsy. She takes 2.5ml of Keppra twice a day. She has been on Keppra since her first seizure last July and we have had issues on and off...

Created By: dtdintern | 2014-05-14 15:53 | 196 Views | 0 Comments

~~Are you looking for support, a good time, and creating new friendships? Deliver the Dream is a non-profit organization taking families with children or parents with epilepsy on a retreat the...

Created By: AgapeAdoptions | 2014-05-13 17:01 | 201 Views | 0 Comments

Agape Adoptions is currently advocating for a little boy who has epilepsy. Beautiful Nathan needs a family where he can flourish. Six year old Nathan has lived most of his life in an orphanage in...

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