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Topic: Parents & Caregivers

Created By: atchristianson | 2013-04-30 19:25 | 461 Views | 8 Comments

Hello everyone!

 

I am writing because I am trying to figure out what's going on with my son. He is 9 years old and is taking 375 mg of Keppra XR per day for left temporal lobe...

Created By: helpe2013 | 2013-04-15 08:15 | 220 Views | 3 Comments

The school picked up on this.  does anyone know if this is epilepsy?

please can someone help me it,s distressing to watch when you don't know whats going on with your child. she's had a...

Created By: helpe2013 | 2013-04-15 08:15 | 83 Views | 0 Comments

The school picked up on this.  does anyone know if this is epilepsy?

please can someone help me it,s distressing to watch when you don't know whats going on with your child. she's had a...

Created By: ladyewolfe69 | 2013-03-30 23:31 | 96 Views | 0 Comments

My son is 11 1/2. His neuro has recommended he be evaluated at Cook's Children's Hospital to see if he is a candidate for surgery. He has an infarct on his left parietal lobe and takes Trileptal...

Created By: alliflats | 2013-03-13 12:39 | 111 Views | 0 Comments

My son had an episode on Monday in school that scared us.

He was sitting in class. The teacher asked him a question and he didn't know the answer. The next thing he knew it was 10-15...

Created By: Pnal | 2013-02-22 15:54 | 212 Views | 3 Comments

My boy was almost seizure free for 9 months while on Trileptal. He grew out of his dosage and started having 1-2 minute seizures every 4 hours. We increased his dosage 2 days ago and since then...

Created By: Anonymous | 2013-02-12 14:33 | 248 Views | 5 Comments

The background:

My, then 4 year old son, had his first 'big' or noticed seizure at montessori school on 09/13/2012. He was then scheduled for an EEG(10/02/2012) and to meet the...

Created By: Jyotsna | 2013-02-06 16:35 | 117 Views | 1 Comment

Hi,
My 18 month old baby started having freezing/ staring spells. It starts with her cheeks going red but her nose, forehead ( T zone) goes pale and then she starts producing a ' clicking'...

Created By: susanss | 2013-02-05 23:32 | 69 Views | 0 Comments

I am glad to have found this resource. My 47 year old stepson had siezures starting 24 hours after birth.  He had many siezures throughout childhood.  He has now been on tegretol for 37 years. ...

Created By: RJ577 | 2013-01-30 03:34 | 97 Views | 0 Comments

Our son, has been grande mal (correct term?) free for 8 years. His medication is being changed;  he had a major seizure last weekend and is experiencing many episodes since. He is 33 years old and...

Created By: lco120 | 2013-01-29 14:31 | 262 Views | 5 Comments

Hi everyone, my 31 month old was just diagnosed with generalized myclonic seizures.  He had a grand mal one month ago which was categorized as unprovoked (he had a virus within 24 hours of the...

Created By: Bekyduncan | 2013-01-28 19:47 | 96 Views | 0 Comments

My son, Parker is 18 months old and this weekend was the worst weekend of our lives!!
On Friday he had a Febrile seizure. It was horrible and we called the paramedics. (He's had a febrile...

Created By: sylviag | 2013-01-26 11:36 | 78 Views | 0 Comments

Hi,
I'm a parent of a 4 yr old boy. I have been dealing with my son having anger issues. I'm not sure if it coming from his epilepsy. He has had only one seizure that I could actually see....

Created By: xsaravtsheidi | 2013-01-23 03:37 | 81 Views | 0 Comments

My daughter Alicia is 15 and has had 6 tonic clonic seizures in the last 3 years, 5 of these I have mot witnessed as she has been at her dad's when they occurred. However last Wednesday morning...

Created By: xsaravtsheidi | 2013-01-23 03:37 | 72 Views | 0 Comments

My daughter Alicia is 15 and has had 6 tonic clonic seizures in the last 3 years, 5 of these I have mot witnessed as she has been at her dad's when they occurred. However last Wednesday morning...

Created By: 3Hours2Live | 2012-12-28 16:07 | 144 Views | 2 Comments

Well, my 85 year old close relative was transferred to a Skilled Nursing Facility (SNF) rated by Medicare as being at 4 stars out of 5 possible stars.

This SNF is much closer to home than...

Created By: mummytoad | 2012-12-17 10:42 | 158 Views | 2 Comments

Hi Everyone

A brief intro, My name is Alison, I have a 17 month old who has been through the wars since birth, severe allergies, asthma, cleft hand abnormality and yet he always remained...

Created By: Anwestbrooks | 2012-12-16 18:06 | 161 Views | 2 Comments

We finally got in to see a neurologist with my son. He hasn't had a major event since Aug 2010. His pediatrician put him on Tegratol 100mg 2x daily. Since then we believe he is having smaller...

Created By: maus1872 | 2012-12-09 15:21 | 99 Views | 0 Comments

I have started a FB Suport Group for Mommies of Children with Epilepsy. I was looking and looking for a support groups on fb fro Mom's of Children with epilepsy( i just like the layout better...

Created By: janeritter | 2012-11-25 11:08 | 150 Views | 2 Comments

My daughter has JME. Medication was working for several months and she was close to seizure free. Now the seizures are back, more frequent, medication being adjusted. She has been out of school...

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