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Topic: Parents & Caregivers

Created By: ilovemyson2014 | 2014-04-10 23:20 | 262 Views | 10 Comments

My son had his first seizure at school during P.E. It was a tonic clonic (grand-mal). We have went to see a neurologist and had a EEG done and it came back abnormal. The neurolgist recommened that...

Created By: Member3671 | 2014-04-07 16:34 | 376 Views | 3 Comments

My chilld is almost 10 years old and already I've discussed the severity of having children should they decide to marry after college. My child's father suffers from epilepsy and my child has...

Created By: JKtap | 2014-04-02 17:34 | 202 Views | 6 Comments

How do you handle this?  My son is 24 and was diagnosed with epilepsy 18 months ago after a bad car accident.  He doesn't always take his meds, therefore he's had over a dozen grand mal seizures...

Created By: Mallory's Hope | 2014-03-30 19:31 | 168 Views | 0 Comments
Created By: mochicrunch | 2014-03-28 15:38 | 422 Views | 3 Comments

Hello,

I am new to these boards. Our 4.5 year old son has GEFS+, and has had relatively short tonic clonic seizures with infections since he was 11 months old. They usually last less than...

Created By: Amy Kate | 2014-03-27 17:44 | 341 Views | 8 Comments

My son is now 17.  We've been through a dozen meds, seven surgeries and non traditional treatments of all kinds.  But still, epilepsy is part of our family.  I've been dealing with it quietly,...

Created By: Crickets_mom | 2014-03-26 16:56 | 251 Views | 5 Comments

Hi everyone, 

it has been a long time since I have been on. My sons seizures seem to have stabilized.  He still has many absence a day but he hasn't has a long one in over two years. He is...

Created By: Amy Kate | 2014-03-26 16:34 | 472 Views | 9 Comments

Years past the shock and slow acceptance of epilepsy, I'm trying to learn how to be cordial with this uninvited guest in our family.  My son is 17 now and still seizes weekly.  To say it is taking...

Created By: Rluhn | 2013-11-28 15:33 | 4892 Views | 5 Comments

Hi all-needing some support over this long holiday weekend before I google myself into submission...
My son is almost 2, and received a diagnosis of hypotonia around 1 year old. He has been...

Created By: kevinandjenny7 | 2013-11-27 15:11 | 2728 Views | 1 Comment

Hi,

 

I am looking for others who have a smart watch. I was curious how the pricing works. Do you pay a monthly fee forever or do eventually you have it paid for? For those who...

Created By: jennquest | 2013-11-24 02:24 | 389 Views | 1 Comment

My son is 4 and has been having focal seizures for a year. We were switched from tegretol to valproate about two months ago with good results initially. His seizures have returned and so his dose...

Created By: tashyluv | 2013-11-21 09:14 | 730 Views | 3 Comments

My daughter had her EEG today, I am so proud of her she was so well behaved. She reacted to hyperventilation (which we knew) and it also happened without any stimulis. She did'nt react to the...

Created By: Whysgirl | 2013-11-18 14:29 | 1157 Views | 8 Comments

Good afternoon,

Apologies in advance for the lengthy post. I really need help/suggestions/experiences from which to pull. I have a 13 year old who was diagnosed with Epilepsy (focal...

Created By: mommaklm | 2013-11-12 15:18 | 666 Views | 4 Comments

Hello,

I am new to this website and have just been viewing stories, comments, etc. I recently responded to a comment, but feel I have more questions I would like to ask. I am finding it...

Created By: christillotson | 2013-10-20 11:57 | 480 Views | 3 Comments

my daughter is 4 years old. she has been hospitalized at least 10 times because of febrile seizures that last 1 to 3 hours. she has been on 3 meds for a while and she has used two others in the...

Created By: ollieray10 | 2013-10-17 07:37 | 887 Views | 8 Comments

My 4 year old has had epilepsy for 1 year and has been controlled fairly well with Keppra. He has been taking b6 in the am for behavioral problems and we recently started him on melatonin (1.5mL)...

Created By: ollieray10 | 2013-10-17 07:37 | 204 Views | 0 Comments

My 4 year old has had epilepsy for 1 year and has been controlled fairly well with Keppra. He has been taking b6 in the am for behavioral problems and we recently started him on melatonin (1.5mL)...

Created By: tashyluv | 2013-10-16 11:14 | 289 Views | 1 Comment

Well we are currently waiting on an eeg for my (nearly) 4 year old daughter.  She has been having these episodes where her head shakes briefly for a few seconds. This happens many times a day. ...

Created By: Sweetpeasmommy | 2013-10-07 14:48 | 178 Views | 0 Comments

Hello everyone! I am looking for some advice. My daughter
was diagnosed with a seizure disorder when she was 8 months old. Finally, after
10 years of trying several medications her...

Created By: Nikkichic | 2013-09-23 18:22 | 183 Views | 0 Comments

Hi There,

Just have a question and was hoping some one on here could help me. I am out of work with my daughter who was recently diagnosed (as of 3 weeks ago) with Epilepsy. She is getting...

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