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Topic: Parents & Caregivers

Created By: langlandc82@gmail.com | 2014-06-22 00:53 | 222 Views | 3 Comments

Hello everyone, I am new here and seeking any help and advice I can find. 

Our lives changed on Thursday afternoon when my son began having a seizure. We called 911 and when they arrived he...

Created By: danielleg | 2014-06-19 20:20 | 196 Views | 3 Comments

Back story: 

My son is 4. He has various issues including Apraxia, sensory processing disorder, delayed milestones, and most recently we have found out that he may have diminished hearing....

Created By: mrsgrumpykore | 2014-06-18 14:22 | 185 Views | 1 Comment

My son has had monthly migraine headaches since he was about 6. Migraines run in the family and both his pediatrician and a Neurologist were adamant that this is what they were. He would wake up...

Created By: Christine Greenwood | 2014-06-17 21:44 | 209 Views | 1 Comment

I do not know where to turn.  My son was diagnosed with epilepsy (generalized seizure disorder) at age 4. He is now 7 1/2 yrs old. 

He was put on Depakote initially.  Last year began to...

Created By: RenitaRob | 2014-06-16 15:35 | 229 Views | 2 Comments

Hello Everyone,

My name is Renita and I have a 12 year old son who was just diagnosed with Epilepsy. I am overwhelmed. I am trying to learn about it as much as I can, but I think the best...

Created By: little mack | 2014-06-16 13:03 | 203 Views | 1 Comment

My daughter started having seizures when she was just barely 2. She is now 13. We have had plenty of ups and downs. Seizure types changing, medications not working, side effects that only other...

Created By: karamat | 2014-06-13 23:24 | 177 Views | 2 Comments

I'm new to the epilepsy world, but this afternoon my son's neurologist called to say she had reviewed his ambulatory 24-hour EEG and she is diagnosing him with focal onset epilepsy. I like to...

Created By: Julie Siratt | 2014-06-12 13:41 | 295 Views | 1 Comment

Hi there! A little background, my 5 yo son (will be 6 on monday), was diagnosed with generalized epilepsy in november. Seizures started showing up as myoclonic in august, mostly at sleep onset,...

Created By: Chanchan36 | 2014-06-10 13:38 | 273 Views | 3 Comments

Please help..My 12 year old son (will be 13 in a couple weeks) had a tonic clonic seizure on May 9th.  It lasted less than 1 minute, he recovered very quickly.  He is an honors student, no...

Created By: Sonyaig | 2014-06-06 02:09 | 260 Views | 1 Comment

Hi,

I am having a hard time knowing what to do! Any input would be wonderful. I am sorry this is so long! A year and a half ago - my son - who was 4 and a half years old at the time, got a...

Created By: mgodwin3313 | 2014-06-06 00:31 | 198 Views | 2 Comments

My 8 yr old daughter was just diagnosed this week with atypical absence seizures. We will be starting zarontin tomorrow morning for treatment along with MRI scheduled soon. I am so scared and...

Created By: jrmrs | 2014-06-04 09:50 | 217 Views | 0 Comments

Morning :)

Suggestions for a monitor for my two and a half year old son....I am looking for a monitor I can use at night for my son. Our video baby monitor is not going to do the trick...

Created By: acola76 | 2014-05-31 23:08 | 216 Views | 6 Comments

My 5 year old daughter was recently diagnosed with having what her pediatrician considered to be absense seizures.  After reading the results to a pediatric neurologist, the neurologist does not...

Created By: ajrogers1983 | 2014-05-30 15:01 | 172 Views | 1 Comment

My 3 year old recently started having seizures 3 months ago. I wad advised that it was a febrile seizure and it shouldn't happen again, even at my insistence that something was of with my little...

Created By: jrmrs | 2014-05-29 10:27 | 232 Views | 1 Comment

I have about two years worth of posting for here starting with my son's first seizure about two years ago. I don’t know why I didn't post sooner. I wanted to share his history a little in hopes of...

Created By: fire_emt51@yahoo.com | 2014-05-28 19:24 | 239 Views | 1 Comment

My name is danielle and my son is steven

hello I am new here I have a 22 month old son and sunday he was rushed to childrens national medical center because his wake sleep cycle was way off...

Created By: adamkennard@gmail.com | 2014-05-24 23:20 | 195 Views | 1 Comment

Hi folks. This is an amazing forum. Lots of great caring people and good information. I'm a 37yo medic professional (respiratory therapist) and my wife is also a professional in the health care...

Created By: penprase@hotmail.com | 2014-05-24 10:25 | 198 Views | 0 Comments

My almost 7 y.o. DD  is on Lamictal and Keppra (and B6!) for seizure control.  One of her biggest "tells" for seizure activity without a physical indicator is an increase in her impulsivity.

...
Created By: Charise | 2014-05-22 01:21 | 191 Views | 1 Comment

Hello, we're new here and would so appreciate some advice. Our 3 year old is scheduled for an EEG in a week. We live 55 minute drive from the facility (we live in the boonies).  The directions are...

Created By: aam mom | 2014-05-21 01:09 | 300 Views | 0 Comments

Hi All,

I thought I would share Our story since when we were in the thick of it I wanted to see hopeful stories about kids getting better.

When our son was 2 1/2 he had a drop...

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