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Topic: Parents & Caregivers

Created By: aam mom | 2014-05-21 01:09 | 277 Views | 0 Comments

Hi All,

I thought I would share Our story since when we were in the thick of it I wanted to see hopeful stories about kids getting better.

When our son was 2 1/2 he had a drop...

Created By: epilepsyquestions | 2014-05-20 04:18 | 155 Views | 0 Comments

If you have a question about epilepsy there's an NHS Choices online Q&A running on talkhealth until Friday 23rd May- you can post all your questions for the experts in this online forum - it's...

Created By: echo | 2014-05-20 00:04 | 216 Views | 0 Comments

hello,

I am wondering if anyone else with a BRE child has experienced a worsening of siezures at the onset of puberty.

My daughter is 10 1/2, and was diagnosed at age 4 1/2 with BRE...

Created By: Vanmeet | 2014-05-19 12:01 | 167 Views | 0 Comments

My 17 year old daughter was diagnosed with juvenile myoclonic epilepsy after a grand mal a year and a half ago. Since then she has withdrawn to the point of refusing to go to sxhool. She has seen...

Created By: dugan1096 | 2014-05-14 16:41 | 261 Views | 1 Comment

Hello everyone,

I have a 5 year old daughter with epilepsy. She takes 2.5ml of Keppra twice a day. She has been on Keppra since her first seizure last July and we have had issues on and off...

Created By: dtdintern | 2014-05-14 15:53 | 163 Views | 0 Comments

~~Are you looking for support, a good time, and creating new friendships? Deliver the Dream is a non-profit organization taking families with children or parents with epilepsy on a retreat the...

Created By: AgapeAdoptions | 2014-05-13 17:01 | 162 Views | 0 Comments

Agape Adoptions is currently advocating for a little boy who has epilepsy. Beautiful Nathan needs a family where he can flourish. Six year old Nathan has lived most of his life in an orphanage in...

Created By: Amy Kate | 2014-05-11 22:48 | 130 Views | 0 Comments

Today, on Mother's Day and every day we parent these amazing children.

http://itstheepilepsystupid.blogspot.com/...

Created By: marvels angel | 2014-05-07 15:33 | 166 Views | 0 Comments

Hello I have a soon to be 3 year old who just started having seizures on April 11th.  By April 23 he had his 4th seizure and the Emergency Room physician started him on Keppra 1.5 ml twice a day....

Created By: marvels angel | 2014-05-07 15:33 | 132 Views | 0 Comments

Hello I have a soon to be 3 year old who just started having seizures on April 11th.  By April 23 he had his 4th seizure and the Emergency Room physician started him on Keppra 1.5 ml twice a day....

Created By: bizzylizzy | 2014-05-05 18:12 | 168 Views | 0 Comments

Hi I am the mother to a 2 year old and a 3 year old who both have epilepsy. I suffered with epilepsy and convulsive seizures from the time I was 3 and have not had convulsions since about 7 but my...

Created By: kirankb | 2014-05-05 04:57 | 256 Views | 2 Comments

Dear All,
My perfectly healthy son had a tonic-clonic seizure at the age of 6. Same repeated after 3 months. The neuro prescribed Keppra 250mg once in the morning and once at bedtime. EEG at...

Created By: CeeKay | 2014-04-27 05:49 | 198 Views | 1 Comment

My four month old son started having seizures a week ago.  They started with what appeared to be just a stretching motion that was repeated about three times within 30 sec.  Took him to the doc a...

Created By: koala85@gmail.com | 2014-04-26 14:13 | 175 Views | 1 Comment

Hi everyone,

my baby, 8 months old had 2 tonic-clonic seizures. They performed  3 EEGs, the first 2 came out normal and in the third one a small epileptic activity appears in the right...

Created By: TropicalSerenade | 2014-04-21 13:40 | 322 Views | 3 Comments

My son is 5 and has complex partial epilepsy. His EEG showed abnormalities in the left pariatial region. He has a combination of seizures that we see that are all complex partial but manifest in...

Created By: NETEEN | 2014-04-21 10:19 | 218 Views | 0 Comments

My son is outgoing 16 yr old male. Been tested over the years and no one can figure out his condition.

This happened again today. The last time was 2-1/2years ago.

In a high school...

Created By: Mollysmummy | 2014-04-20 22:41 | 207 Views | 0 Comments

My second daughter just 4 months old started having seizures last month. First it was just one (light jolting and tongue popping in and out of her mouth) and then about 5 days later another one...

Created By: lefemmefatale@gmail.com | 2014-04-18 13:03 | 188 Views | 0 Comments

I’m 37 yrs old and since I was 12 yrs old I’ve always had issues with lights (strobe, bright lights..etc) also with rapidly changing intensities of light such as passing trees. When I was going...

Created By: cmcdaniels | 2014-04-17 18:59 | 234 Views | 4 Comments

My now 13 year old daughter was diagnose with epilepsy last Nov after having a grand mal sz inside a haunted house due to the strobe lights. She had a 2nd seizure ( tonic clonic with secondary...

Created By: homemom | 2014-04-17 11:17 | 252 Views | 5 Comments

I have a 21 year old daughter that has suffered from seizures most of her life. We have been on and off different medication, been to unnumbered doctors and hospitals...not getting ANY answers for...

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