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Topic: Parents & Caregivers

Created By: sfc10orio@gmail.com | 2014-04-15 21:32 | 275 Views | 3 Comments

On February 2014, my daughter (15 yrs) had her first Tonic Clonic Seizure. At the ER, the doctor said everyone is allowed one seizure in their life. Two weeks later she had another TC on the couch...

Created By: Amy Kate | 2014-04-12 14:29 | 348 Views | 0 Comments

With all due respect to the painful days and nights we often have with our children, we need a little break.  Will you share what you do to keep your sense of humor? Here is my offering:   ...

Created By: ilovemyson2014 | 2014-04-10 23:20 | 200 Views | 10 Comments

My son had his first seizure at school during P.E. It was a tonic clonic (grand-mal). We have went to see a neurologist and had a EEG done and it came back abnormal. The neurolgist recommened that...

Created By: Member3671 | 2014-04-07 16:34 | 308 Views | 3 Comments

My chilld is almost 10 years old and already I've discussed the severity of having children should they decide to marry after college. My child's father suffers from epilepsy and my child has...

Created By: JKtap | 2014-04-02 17:34 | 140 Views | 6 Comments

How do you handle this?  My son is 24 and was diagnosed with epilepsy 18 months ago after a bad car accident.  He doesn't always take his meds, therefore he's had over a dozen grand mal seizures...

Created By: Mallory's Hope | 2014-03-30 19:31 | 119 Views | 0 Comments
Created By: mochicrunch | 2014-03-28 15:38 | 324 Views | 3 Comments

Hello,

I am new to these boards. Our 4.5 year old son has GEFS+, and has had relatively short tonic clonic seizures with infections since he was 11 months old. They usually last less than...

Created By: Amy Kate | 2014-03-27 17:44 | 276 Views | 8 Comments

My son is now 17.  We've been through a dozen meds, seven surgeries and non traditional treatments of all kinds.  But still, epilepsy is part of our family.  I've been dealing with it quietly,...

Created By: Crickets_mom | 2014-03-26 16:56 | 192 Views | 5 Comments

Hi everyone, 

it has been a long time since I have been on. My sons seizures seem to have stabilized.  He still has many absence a day but he hasn't has a long one in over two years. He is...

Created By: Amy Kate | 2014-03-26 16:34 | 401 Views | 9 Comments

Years past the shock and slow acceptance of epilepsy, I'm trying to learn how to be cordial with this uninvited guest in our family.  My son is 17 now and still seizes weekly.  To say it is taking...

Created By: Rluhn | 2013-11-28 15:33 | 3456 Views | 5 Comments

Hi all-needing some support over this long holiday weekend before I google myself into submission...
My son is almost 2, and received a diagnosis of hypotonia around 1 year old. He has been...

Created By: kevinandjenny7 | 2013-11-27 15:11 | 2492 Views | 1 Comment

Hi,

 

I am looking for others who have a smart watch. I was curious how the pricing works. Do you pay a monthly fee forever or do eventually you have it paid for? For those who...

Created By: jennquest | 2013-11-24 02:24 | 265 Views | 1 Comment

My son is 4 and has been having focal seizures for a year. We were switched from tegretol to valproate about two months ago with good results initially. His seizures have returned and so his dose...

Created By: tashyluv | 2013-11-21 09:14 | 499 Views | 3 Comments

My daughter had her EEG today, I am so proud of her she was so well behaved. She reacted to hyperventilation (which we knew) and it also happened without any stimulis. She did'nt react to the...

Created By: Whysgirl | 2013-11-18 14:29 | 773 Views | 8 Comments

Good afternoon,

Apologies in advance for the lengthy post. I really need help/suggestions/experiences from which to pull. I have a 13 year old who was diagnosed with Epilepsy (focal...

Created By: mommaklm | 2013-11-12 15:18 | 431 Views | 4 Comments

Hello,

I am new to this website and have just been viewing stories, comments, etc. I recently responded to a comment, but feel I have more questions I would like to ask. I am finding it...

Created By: christillotson | 2013-10-20 11:57 | 289 Views | 3 Comments

my daughter is 4 years old. she has been hospitalized at least 10 times because of febrile seizures that last 1 to 3 hours. she has been on 3 meds for a while and she has used two others in the...

Created By: ollieray10 | 2013-10-17 07:37 | 541 Views | 8 Comments

My 4 year old has had epilepsy for 1 year and has been controlled fairly well with Keppra. He has been taking b6 in the am for behavioral problems and we recently started him on melatonin (1.5mL)...

Created By: ollieray10 | 2013-10-17 07:37 | 147 Views | 0 Comments

My 4 year old has had epilepsy for 1 year and has been controlled fairly well with Keppra. He has been taking b6 in the am for behavioral problems and we recently started him on melatonin (1.5mL)...

Created By: tashyluv | 2013-10-16 11:14 | 186 Views | 1 Comment

Well we are currently waiting on an eeg for my (nearly) 4 year old daughter.  She has been having these episodes where her head shakes briefly for a few seconds. This happens many times a day. ...

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