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Topic: Parents & Caregivers

Created By: bgrube | 2014-07-11 13:10 | 134 Views | 2 Comments

It has been two years since my daughter (now 6 ) continously convulsed for three hours before my eyes. It is an image that will forever will be seared in my memory. Throughout the past two years,...

Created By: Stella Beach | 2014-07-05 08:19 | 213 Views | 3 Comments

Can any parents offer any advice on how to make peace with my recently-diagnosed six-yr-old son, sleeping in his own bed at night? The neurologist hasn't named his type of epilepsy, but he has...

Created By: Stella Beach | 2014-07-05 07:53 | 114 Views | 0 Comments

Can any parents offer any advice on how to make peace with my recently-diagnosed six-yr-old son, sleeping in his own bed at night? The neurologist hasn't named his type of epilepsy, but he has...

Created By: perie5@sbcglobal.net | 2014-07-05 00:49 | 124 Views | 0 Comments

Hello, I'm also new to this my daughter just diagnose with double cortex syndrome an she is 7 years going 8 next month she start her first seizure last April, she never get sick. My husband and  I...

Created By: lrelgart | 2014-07-03 14:22 | 172 Views | 3 Comments

Hi.

I am new to the forums. Delilah had her first seizure that I knew of at the end of May. I am taken aback by the possible implications of how how our lives are changing and overwhelmed...

Created By: CFMom | 2014-06-30 23:29 | 205 Views | 0 Comments

My son recently had an EEG  (6 hours) that came back as abnormal but no seizures detected.  The neuro said he is at risk for seizures because of the spikes on his EEG.  He has had the same thing...

Created By: Eric110798 | 2014-06-25 12:48 | 132 Views | 0 Comments

My son was diagnosed when he was 10 with BRE.  He had his 1st seizure in July and then his 2nd seizure in February.  (At that time, HE had decided that he did not need the medicine and just did...

Created By: roddick | 2014-06-24 17:08 | 130 Views | 1 Comment

Hi, I'm new to this and wanted to see if someone had a similar experience. My 5 year old has been having different test because of his speech delay and some sensory issues. He recently had an EEG...

Created By: ann.edmonds@verizon.net | 2014-06-24 11:12 | 83 Views | 0 Comments

Has anyone else tried this as an answer to Juvenile myoclonic and Absence/Catamenial seizure?

Created By: langlandc82@gmail.com | 2014-06-22 00:53 | 172 Views | 3 Comments

Hello everyone, I am new here and seeking any help and advice I can find. 

Our lives changed on Thursday afternoon when my son began having a seizure. We called 911 and when they arrived he...

Created By: danielleg | 2014-06-19 20:20 | 141 Views | 3 Comments

Back story: 

My son is 4. He has various issues including Apraxia, sensory processing disorder, delayed milestones, and most recently we have found out that he may have diminished hearing....

Created By: mrsgrumpykore | 2014-06-18 14:22 | 144 Views | 1 Comment

My son has had monthly migraine headaches since he was about 6. Migraines run in the family and both his pediatrician and a Neurologist were adamant that this is what they were. He would wake up...

Created By: Christine Greenwood | 2014-06-17 21:44 | 153 Views | 1 Comment

I do not know where to turn.  My son was diagnosed with epilepsy (generalized seizure disorder) at age 4. He is now 7 1/2 yrs old. 

He was put on Depakote initially.  Last year began to...

Created By: RenitaRob | 2014-06-16 15:35 | 179 Views | 2 Comments

Hello Everyone,

My name is Renita and I have a 12 year old son who was just diagnosed with Epilepsy. I am overwhelmed. I am trying to learn about it as much as I can, but I think the best...

Created By: little mack | 2014-06-16 13:03 | 150 Views | 1 Comment

My daughter started having seizures when she was just barely 2. She is now 13. We have had plenty of ups and downs. Seizure types changing, medications not working, side effects that only other...

Created By: karamat | 2014-06-13 23:24 | 127 Views | 2 Comments

I'm new to the epilepsy world, but this afternoon my son's neurologist called to say she had reviewed his ambulatory 24-hour EEG and she is diagnosing him with focal onset epilepsy. I like to...

Created By: Julie Siratt | 2014-06-12 13:41 | 210 Views | 1 Comment

Hi there! A little background, my 5 yo son (will be 6 on monday), was diagnosed with generalized epilepsy in november. Seizures started showing up as myoclonic in august, mostly at sleep onset,...

Created By: Chanchan36 | 2014-06-10 13:38 | 214 Views | 3 Comments

Please help..My 12 year old son (will be 13 in a couple weeks) had a tonic clonic seizure on May 9th.  It lasted less than 1 minute, he recovered very quickly.  He is an honors student, no...

Created By: Sonyaig | 2014-06-06 02:09 | 210 Views | 1 Comment

Hi,

I am having a hard time knowing what to do! Any input would be wonderful. I am sorry this is so long! A year and a half ago - my son - who was 4 and a half years old at the time, got a...

Created By: mgodwin3313 | 2014-06-06 00:31 | 147 Views | 2 Comments

My 8 yr old daughter was just diagnosed this week with atypical absence seizures. We will be starting zarontin tomorrow morning for treatment along with MRI scheduled soon. I am so scared and...

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