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Topic: Parents & Caregivers

Created By: skelsey268 | 2014-08-07 12:16 | 68 Views | 1 Comment

My son is 20yrs old and had a stroke in march 2014.  He has been c/o tingling or a buzzing feeling that starts in one part of his head and goes to another part and is gone.  It's really weird when...

Created By: angelhelper | 2014-08-01 15:58 | 92 Views | 1 Comment

My boyfriend, who is 26, was diagnosed with epilepsy roughly 3 years ago. Since we have been together I have been his caretaker. I have been documenting everything as of late, I had the idea to...

Created By: DinaHB | 2014-07-29 15:36 | 127 Views | 1 Comment

My son, 17,  was diagnosed with epilepsy two and a half years ago.  In that time period, he has had six seizures, five of them due to sleep deprivation.  Our current doctor is an epileptoloist at...

Created By: TiffanieJ | 2014-07-27 23:21 | 82 Views | 1 Comment

Hello.. My 5 yr old son was recently diagnosed with Doose Syndrome.. After his 1st Grand Mal seizure on March 20th.. He has between 15-20 head drop and drop seizures per day & his last Grand...

Created By: patches1202 | 2014-07-25 10:02 | 114 Views | 1 Comment

My boyfriend, 26 years old, was recently diagnosed with epilepsy. I found him having a convulsive seizure during his sleep one morning, and he had another seizure in the ER a few hours later. When...

Created By: cassandran | 2014-07-24 22:46 | 103 Views | 1 Comment

Tonight at dinner time my 3.5 year old son had what I think was a very short seizure. It's the first time this has happened, all his seizures before have been full tonic clinic seizures that last...

Created By: Moenjoejr | 2014-07-22 12:03 | 143 Views | 2 Comments

I'm new here.  My son who is 6, was diagnosed at 4 with generalized myoclonic seizures.  He's been on various meds, currently onfi and depakote though still having some seizures.  Hes very tired,...

Created By: cassandran | 2014-07-22 00:07 | 160 Views | 6 Comments

Posted in the wrong category the first time and I don't know how to change it. . . My 3.5 year old son was just diagnosed with epilepsy.

He had his first tonic clonic seizure back in March...

Created By: cassandran | 2014-07-21 23:23 | 92 Views | 0 Comments

My 3.5 year old son was just diagnosed with epilepsy. He had his first tonic clonic seizure back in March, but at the time we thought he had fallen and hit his head. They did an eeg and he had...

Created By: OKmama | 2014-07-20 22:21 | 86 Views | 2 Comments

A little over a week ago my 4 yr old had a grand mal seizure in her sleep. At the er she had a blood, urine and CT, all came back clear. We followed up with our pediatrician the following Monday...

Created By: eggzrliquidchikn@aim.com | 2014-07-16 22:30 | 124 Views | 6 Comments

My daughter will be 10 months in two days. 5 days ago she began to have, what I believe to be, seizures. When it began her jaw clenched and every muscle in her body tightened. It only lasted a...

Created By: Mschmitt75 | 2014-07-15 19:00 | 135 Views | 1 Comment

After 10 years of dealing with Petit Mal seizures with my son, he is now 15, Sunday night became a whole different game!! He had his first Gran Mal Seizure ever. Talk about a scary night. Knowing...

Created By: Adi | 2014-07-13 07:51 | 107 Views | 2 Comments

I am new around the forums here and I was hoping we can get some assistance.

Our girl (3.5 years old) was diagnosed with occipital epilepsy  / rolandic epilepsy , she had two seizures so...

Created By: hope123 | 2014-07-12 07:22 | 141 Views | 2 Comments

Hi I'm a mother of a very serious sick child, I understand how difficult it is to watch your baby and not able to help. I am now helping a mother we knew in hospital to look for help and answer, I...

Created By: bgrube | 2014-07-11 13:10 | 127 Views | 2 Comments

It has been two years since my daughter (now 6 ) continously convulsed for three hours before my eyes. It is an image that will forever will be seared in my memory. Throughout the past two years,...

Created By: Stella Beach | 2014-07-05 08:19 | 207 Views | 3 Comments

Can any parents offer any advice on how to make peace with my recently-diagnosed six-yr-old son, sleeping in his own bed at night? The neurologist hasn't named his type of epilepsy, but he has...

Created By: Stella Beach | 2014-07-05 07:53 | 107 Views | 0 Comments

Can any parents offer any advice on how to make peace with my recently-diagnosed six-yr-old son, sleeping in his own bed at night? The neurologist hasn't named his type of epilepsy, but he has...

Created By: perie5@sbcglobal.net | 2014-07-05 00:49 | 116 Views | 0 Comments

Hello, I'm also new to this my daughter just diagnose with double cortex syndrome an she is 7 years going 8 next month she start her first seizure last April, she never get sick. My husband and  I...

Created By: lrelgart | 2014-07-03 14:22 | 166 Views | 3 Comments

Hi.

I am new to the forums. Delilah had her first seizure that I knew of at the end of May. I am taken aback by the possible implications of how how our lives are changing and overwhelmed...

Created By: CFMom | 2014-06-30 23:29 | 194 Views | 0 Comments

My son recently had an EEG  (6 hours) that came back as abnormal but no seizures detected.  The neuro said he is at risk for seizures because of the spikes on his EEG.  He has had the same thing...

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