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Topic: Parents & Caregivers

Created By: mlgmom | 2014-09-04 10:46 | 125 Views | 2 Comments

Hello everyone,

My 17 y.o. daughter began having seizures 2 years ago. They were 30 minute grand mal seizures. She was finally put on Keppra this past April (2014). Her seizures are now...

Created By: pamela.swader@asu.edu | 2014-08-31 19:45 | 132 Views | 2 Comments

My daughter is 7 and was diagnosed with epilepsy about a year and 1/2 ago. I wanted to ask her neurologist if we could try a 3 day eeg test on her because they still dont know what sets off her...

LKS
Created By: shaylam | 2014-08-25 22:50 | 94 Views | 0 Comments

Hello all just wondering if there is a forum for LKS or if anyone has any resonse to our story? Have a great day!

Our son just turned 5 and developed and reached all milestones normally,...

Created By: seb123 | 2014-08-23 16:50 | 152 Views | 1 Comment

My 10 year old son is newly diagnosed with Epilepsy and is currently taking Kepra.  The medication level has put us to where the visible seizures have stopped, but he is having, 2 or 3 times a day...

Created By: Maydoy | 2014-08-23 09:33 | 102 Views | 1 Comment

Hi,  My 24 year old son has had serious epilepsy for 6 years now after a head injury.  The seizures are mainly of a night time.  We have tried various remedies (mostly alternative remedies with...

Created By: b.epstein@ferrarapmc.com | 2014-08-18 22:05 | 135 Views | 4 Comments

I'm open to ALL suggestions on how to hide the medicine in something.  I was using Danimals Smoothies.  It takes him up to 90 minutes to drink it and he cries the whole time. I feel terrible. ...

Created By: thecombsklan06@yahoo.com | 2014-08-17 00:04 | 154 Views | 2 Comments

My daughter has a rare genetic disorder which the doc's feel are causing her sudden onset seizures.  First witnessed one in April of this year.  They have suggested that she wear a Medical I.D...

Created By: tx_mom | 2014-08-16 19:56 | 171 Views | 1 Comment

My 13 yrs old with no prior seizures history started having tonic clonic seizures last month. His CAT scan, oxygen levels, electrolytes are normal. His MRI was normal while sleep deprived EEG...

Created By: hunnie_bee_79@yahoo.com | 2014-08-15 00:26 | 127 Views | 1 Comment

Hi all. I didn't know where else to turn so I googled and found this forum. My 2 yr old son had a minor seizure at 6 months old then yesterday had a major seizure. He was laying down napping and I...

Created By: Crewby | 2014-08-14 19:53 | 114 Views | 1 Comment

We just had our second EEG in 3 weeks for my 4 yr old son. We got the report from his 23 hr EEG today and it says "extremely frequent independent bicentral temporoparietal BECTS like spike wave...

Created By: tashyluv | 2014-08-14 16:51 | 95 Views | 1 Comment

First of all let me tell you a bit of background.  Last year my daughter was diagnosed with generalised epilepsy and we figured it is more of the "myclonic" type.  She was put on sodium valporate...

Created By: ewilliams1979 | 2014-08-12 11:11 | 156 Views | 1 Comment

I was just curious if there's anyone else out there who has weaned their child off medication (per nuero's request).  We were supposed to wean my 8 year old off Keppra in April, but I have...

Created By: mssmoak07@yahoo.com | 2014-08-11 17:57 | 103 Views | 1 Comment

Hi I'm new to this group. I have a two year old son that has been battling with epilepsy since he was 9months. At one point my son was on six different medications, he's know on three. He's takes...

Created By: cassandran | 2014-08-11 01:35 | 109 Views | 2 Comments

My son was diagnosed with generalized epilepsy just over a month ago. He has t/c seizures and has gone t/c status. They put him on valproic acid, started at 150mg 2x a day and now he is up to...

Created By: Kate5 | 2014-08-10 20:20 | 97 Views | 0 Comments

Hi my name is Kate and my sister started having partial seizures that spread back in March.  Despite numerous trips to the doctors, testing, and medication changes she still is experiencing...

Created By: lagbfn@gmail.com | 2014-08-08 14:30 | 115 Views | 1 Comment

My elder daughter (19 years old) has Juvenile Mycolonic Epilepsy, she was diagnosed 3 years ago, now.  Younger daughter (almost 16) has been having some myoclonic type episodes since about May (...

Created By: skelsey268 | 2014-08-07 12:16 | 92 Views | 1 Comment

My son is 20yrs old and had a stroke in march 2014.  He has been c/o tingling or a buzzing feeling that starts in one part of his head and goes to another part and is gone.  It's really weird when...

Created By: angelhelper | 2014-08-01 15:58 | 117 Views | 1 Comment

My boyfriend, who is 26, was diagnosed with epilepsy roughly 3 years ago. Since we have been together I have been his caretaker. I have been documenting everything as of late, I had the idea to...

Created By: DinaHB | 2014-07-29 15:36 | 153 Views | 1 Comment

My son, 17,  was diagnosed with epilepsy two and a half years ago.  In that time period, he has had six seizures, five of them due to sleep deprivation.  Our current doctor is an epileptoloist at...

Created By: TiffanieJ | 2014-07-27 23:21 | 113 Views | 1 Comment

Hello.. My 5 yr old son was recently diagnosed with Doose Syndrome.. After his 1st Grand Mal seizure on March 20th.. He has between 15-20 head drop and drop seizures per day & his last Grand...

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