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Topic: Parents & Caregivers

Created By: retiredwoman620@cfl.rr.com | 2014-11-18 13:44 | 84 Views | 0 Comments

 i have epilepsy, have had it for years, growing up, I had both Petit Mal and Grand Mal seizures, which inveriably got m into so pretty tight spots, over the years, 

  Now I 'm over 50,and...

Created By: wandering1 | 2014-11-17 06:56 | 118 Views | 1 Comment

We have a 4 year old daughter diagnosed with absenc seizures in September 2014 after an abnormal EEG.  She has been taking zarontin, the generic, since then.  I posted previously about the trouble...

Created By: For.My.Son.Miggy | 2014-11-13 12:43 | 71 Views | 0 Comments

Hello All, 

Does anyone have a great resource for helping me to help my son find a job in the community. He has been epileptic since age 9 and on meds since then, which slow him down and...

Created By: For.My.Son.Miggy | 2014-11-13 12:42 | 43 Views | 0 Comments

Hello All, 

Does anyone have a great resource for helping me to help my son find a job in the community. He has been epileptic since age 9 and on meds since then, which slow him down and...

Created By: robsaari | 2014-11-12 11:05 | 125 Views | 1 Comment

My wife and I have decided it's time to get a seziure alert dog for our 20 year old. We have started looking but don't want to just pick a random training outfit. Do you have an alert dog? Where...

Created By: crlanier | 2014-11-09 10:13 | 119 Views | 1 Comment

My daughter has complex partial seizures and is currently unmedicated due to the side effects of keppra. She just broke out in terrible sweat, became completely flushed and said she had abdominal...

Created By: holland.marisa@gmail.com | 2014-11-07 14:29 | 92 Views | 1 Comment

My daughter will be starting middle school next fall on a campus of around a thousand students.  From her first day of kindergarten on, she has had an emergency walkie-talkie that she carries with...

Created By: wendylim1017@hotmail.com | 2014-11-06 08:23 | 119 Views | 3 Comments

My baby girl is in ICU now, because of epilepsy.

She can't breathe on her own!

She has been suffering seizures since she was 8 month , now she is 4 .WHY ? She!    Lord please save my...

Created By: brighteyes1977 | 2014-11-03 15:46 | 169 Views | 11 Comments

~~My daughter (7 ½) was diagnosed with Epilepsy last week. We have been battling with doctors and specialists for years! Most have said that her clumsiness and poor school work/behavior was all...

Created By: ehamdyzaky@gmail.com | 2014-11-02 03:23 | 112 Views | 2 Comments

My 7 year old daughter has been diagnosed with absence seizure 7 months ago and has been on Zarontin ever since. The medicine stopped the seizures completely within 2 weeks as the doctor said. So...

Created By: vampireinitiation@gmail.com | 2014-11-02 01:18 | 95 Views | 0 Comments

I am from Canada, I was diagnosed of Epilepsy in 2004 then i was just 17years, the disease is so disgracing and embarassing because atimes i get seizure in public and fall to the ground, I have...

Created By: Shannonpecchia | 2014-10-29 20:47 | 141 Views | 1 Comment

Hello! I'm new to this, so I guess I'll jump right in. 

My son,8, had a tonic clonic seizure in July. After much testing, he was diagnosed as having benign rolandic epilepsy. As I...

Created By: legal | 2014-10-29 08:16 | 92 Views | 0 Comments

I recently attended a India  foreign film showing in Hindi called Happy New Year that had a character called Tammy who had epileptic seizures for the cruel entertainment of the audience. I hope...

Created By: Cynthia21 | 2014-10-28 00:29 | 83 Views | 0 Comments

My son is 6 years old he also has Down syndrome in the past 6 years he has had 3 seizures the first one was 3 years ago and the 2nd one was 2 years ago he didn't shake on them just blank stares...

Created By: Lainysmom | 2014-10-27 12:42 | 106 Views | 2 Comments

My 17 year old daughter with generlized epilepsy recently completed a 3 day ambulatory EEG to try to determine why she is sometimes completely unresponsive when we try to wake her in the mornings...

Created By: tobias | 2014-10-26 19:03 | 99 Views | 0 Comments

My husband and I have been married for 28 years.  He has been epileptic the entire time.  So nothing new there.  However, in the last few years it has gotten worse.  He can't drive, is depressed a...

Created By: Navywife16 | 2014-10-25 19:45 | 94 Views | 1 Comment

I currently have three children.... And one on the way. When it comes to a chronic illness, I thought our family Socrates  that off the list with my oldest son. He was born with a rare genetic...

Created By: Aclifton | 2014-10-23 04:29 | 105 Views | 0 Comments

My 10 year old son starting having grand mal seizures (during his sleep) back in January. He was very healthy up to that point. MRI finding stated there was a right parietal cortex lesion...

Created By: wandering1 | 2014-10-20 23:09 | 138 Views | 1 Comment

My daughter, 4 years old, was diagnosed with absence seizures just a little over a month ago.  She's taking the generic of Zarontin and the seizures have seemingly been controlled.  However, we've...

Created By: Lbugio | 2014-10-20 20:32 | 121 Views | 0 Comments

Our son was diagnosed with Grand Mal seizures at 17 as a junior in high school it was very difficult to adjust to not being able to drive and the side effects of meds (Keppra) being 20 now he has...

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