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Topic: Parents & Caregivers

Created By: SleepyParachute | 2014-12-18 15:50 | 46 Views | 2 Comments

Well we're new here, yesterday my 7 year old son was diagnosed with epilepsy...the diagnosis seems sudden to me (not unusual given his medical history just sudden). I'm wondering if there are...

Created By: SleepyParachute | 2014-12-18 15:49 | 41 Views | 0 Comments

Well we're new here, yesterday my 7 year old son was diagnosed with epilepsy...the diagnosis seems sudden to me (not unusual given his medical history just sudden). I'm wondering if there are...

Created By: natz68 | 2014-12-18 08:55 | 8 Views | 0 Comments

I have some KetoCal 4:1 vanilla flavored I would like to donate. I have one unopened can and one almost full case (missing only 2) of the 8oz liquids. The expiration is March 2015. I am hoping to...

Created By: scarter1231 | 2014-12-15 22:43 | 27 Views | 1 Comment

My 4 1/2 old son has been potty trained since a month or so before his 3rd birthday. Never had accidents or even bedtime accidents. He was on lamictal & ethosuximide but had to come off with...

Created By: mammak | 2014-12-15 00:58 | 44 Views | 0 Comments

For those of you who use a sleep monitor with your child, which brand do you use? Any recommendations would be helpful. My daughter's epileptologist recommended one but had no preference of a...

Created By: tanya.leigh13@gmail.com | 2014-12-14 21:44 | 41 Views | 1 Comment

Our son Garrett was diagnosed with absence seizures a month ago.  He was immediately put on the lowest dose and the seizures have been controlled for a few weeks, which is great.  Before starting...

Created By: dramasign | 2014-12-11 11:30 | 103 Views | 1 Comment

We lost our 26 year old son this past Friday due to complications following a seizure. just looking for any other parents who have had to deal with this.

Created By: Chanchan | 2014-12-08 22:29 | 124 Views | 2 Comments

Hi everyone. I was on this site back in May when my 13 year old son had his first seizure (tonic-clonic). His EEG showed clear eliptiform activity. I decided to hold off on meds in hopes we could...

Created By: yadirtrye | 2014-12-07 21:11 | 53 Views | 0 Comments

Hello 

I am a newby here looking for advice, suggestions, help.. My daughter was diagnosed with birth hypoxic ischemic encephalopathy and took seizure medication until she was 3 years old....

Created By: mammak | 2014-12-07 14:20 | 89 Views | 1 Comment

Hi everyone,

My 9-year-old daughter had her first seizure on Oct. 1, 2013, and her second on Nov. 26, 2014. The second took place in her sleep, and I only knew because I had laid down with...

Created By: heartzlove | 2014-12-06 18:50 | 83 Views | 4 Comments

My daughter had her first seizure at 7,it was the beginning of summer and we were having parties that weekend. She was drinking ssips ice tea juice boxes like they were water, not sleeping and...

Created By: lucidendeavor@aol.com | 2014-12-06 00:09 | 60 Views | 1 Comment

My son had his first Complex Partial seizure at the age of 10. I took him to the neurologist and after lots of testing and a million questions, we knew they stemmed from the left side of his brain...

Created By: virgodoglvr | 2014-12-05 18:07 | 47 Views | 1 Comment

Ok I have a lot going on and I need some help. My daughter was diagnosed with petit mals when she was 6 and they have been controlled on zarontin for 4 years. She started having tonic clonic...

Created By: jacquelinekinton@aol.com | 2014-12-05 13:15 | 124 Views | 1 Comment
Created By: elizabeth7 | 2014-12-05 12:44 | 52 Views | 0 Comments

Hi, my 7 year old has suffered with epilepsy since 5 months of age. She had brain surgery as a baby, things appeared to improve but with her last EEG a lot of subclinical activity showed up, 6...

Created By: StephHowwood | 2014-12-04 14:42 | 106 Views | 0 Comments

My lovely daughter is 3 yo. She has never been much of a sleeper; she woke every 20-30 mins until she was 2 yo. She now often sleeps til 1 or 2 am before waking which seems great to me but most 3...

Created By: kb0602 | 2014-12-03 17:58 | 81 Views | 1 Comment

Hi all,

My son was diagnosed with Epilepsy in August at the age of 15 months.  Long story short, he contracted a very nasty virus that brought out his underlying Epilepsy.  At first, the...

Created By: Missy D | 2014-11-22 14:12 | 96 Views | 1 Comment

hello ... this is my first time connenting with the foundation... hoping to connect with people who are going thru some of the same issues i am...   my 12 alomst 13 year son has had seizures since...

Created By: thavamani86@gmail.com | 2014-11-22 12:10 | 94 Views | 4 Comments

I am new to this forum. My 4 years old son having seizures from past one month.we have discussed with pediatrician he asked us to take EEG.The abnormalities found in the report. It seems like...

Created By: golden99 | 2014-11-21 15:21 | 69 Views | 0 Comments

Hello! I am brand ne to this site! My son who turns 5 next weeks was diagnosed with absence seizures with partial onset back in Oct '13. We did get them under control 3 medications later.... Does...

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