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Topic: Parents

Created By: Moenjoejr | 2014-07-22 12:03 | 30 Views | 1 Comment

I'm new here.  My son who is 6, was diagnosed at 4 with generalized myoclonic seizures.  He's been on various meds, currently onfi and depakote though still having some seizures.  Hes very tired,...

Created By: cassandran | 2014-07-22 00:07 | 53 Views | 6 Comments

Posted in the wrong category the first time and I don't know how to change it. . . My 3.5 year old son was just diagnosed with epilepsy.

He had his first tonic clonic seizure back in March...

Created By: OKmama | 2014-07-20 22:21 | 32 Views | 2 Comments

A little over a week ago my 4 yr old had a grand mal seizure in her sleep. At the er she had a blood, urine and CT, all came back clear. We followed up with our pediatrician the following Monday...

Created By: eggzrliquidchikn@aim.com | 2014-07-16 22:30 | 67 Views | 6 Comments

My daughter will be 10 months in two days. 5 days ago she began to have, what I believe to be, seizures. When it began her jaw clenched and every muscle in her body tightened. It only lasted a...

Created By: Mschmitt75 | 2014-07-15 19:00 | 55 Views | 1 Comment

After 10 years of dealing with Petit Mal seizures with my son, he is now 15, Sunday night became a whole different game!! He had his first Gran Mal Seizure ever. Talk about a scary night. Knowing...

Created By: Adi | 2014-07-13 07:51 | 45 Views | 2 Comments

I am new around the forums here and I was hoping we can get some assistance.

Our girl (3.5 years old) was diagnosed with occipital epilepsy  / rolandic epilepsy , she had two seizures so...

Created By: hope123 | 2014-07-12 07:22 | 65 Views | 1 Comment

Hi I'm a mother of a very serious sick child, I understand how difficult it is to watch your baby and not able to help. I am now helping a mother we knew in hospital to look for help and answer, I...

Created By: bgrube | 2014-07-11 13:10 | 61 Views | 2 Comments

It has been two years since my daughter (now 6 ) continously convulsed for three hours before my eyes. It is an image that will forever will be seared in my memory. Throughout the past two years,...

Created By: Stella Beach | 2014-07-05 08:19 | 111 Views | 3 Comments

Can any parents offer any advice on how to make peace with my recently-diagnosed six-yr-old son, sleeping in his own bed at night? The neurologist hasn't named his type of epilepsy, but he has...

Created By: perie5@sbcglobal.net | 2014-07-05 00:49 | 45 Views | 0 Comments

Hello, I'm also new to this my daughter just diagnose with double cortex syndrome an she is 7 years going 8 next month she start her first seizure last April, she never get sick. My husband and  I...

Created By: lrelgart | 2014-07-03 14:22 | 106 Views | 3 Comments

Hi.

I am new to the forums. Delilah had her first seizure that I knew of at the end of May. I am taken aback by the possible implications of how how our lives are changing and overwhelmed...

Created By: CFMom | 2014-06-30 23:29 | 74 Views | 0 Comments

My son recently had an EEG  (6 hours) that came back as abnormal but no seizures detected.  The neuro said he is at risk for seizures because of the spikes on his EEG.  He has had the same thing...

Created By: Eric110798 | 2014-06-25 12:48 | 73 Views | 0 Comments

My son was diagnosed when he was 10 with BRE.  He had his 1st seizure in July and then his 2nd seizure in February.  (At that time, HE had decided that he did not need the medicine and just did...

Created By: roddick | 2014-06-24 17:08 | 68 Views | 1 Comment

Hi, I'm new to this and wanted to see if someone had a similar experience. My 5 year old has been having different test because of his speech delay and some sensory issues. He recently had an EEG...

Created By: langlandc82@gmail.com | 2014-06-22 00:53 | 108 Views | 3 Comments

Hello everyone, I am new here and seeking any help and advice I can find. 

Our lives changed on Thursday afternoon when my son began having a seizure. We called 911 and when they arrived he...

Created By: danielleg | 2014-06-19 20:20 | 86 Views | 3 Comments

Back story: 

My son is 4. He has various issues including Apraxia, sensory processing disorder, delayed milestones, and most recently we have found out that he may have diminished hearing....

Created By: mrsgrumpykore | 2014-06-18 14:22 | 88 Views | 1 Comment

My son has had monthly migraine headaches since he was about 6. Migraines run in the family and both his pediatrician and a Neurologist were adamant that this is what they were. He would wake up...

Created By: Christine Greenwood | 2014-06-17 21:44 | 102 Views | 1 Comment

I do not know where to turn.  My son was diagnosed with epilepsy (generalized seizure disorder) at age 4. He is now 7 1/2 yrs old. 

He was put on Depakote initially.  Last year began to...

Created By: RenitaRob | 2014-06-16 15:35 | 114 Views | 2 Comments

Hello Everyone,

My name is Renita and I have a 12 year old son who was just diagnosed with Epilepsy. I am overwhelmed. I am trying to learn about it as much as I can, but I think the best...

Created By: little mack | 2014-06-16 13:03 | 96 Views | 1 Comment

My daughter started having seizures when she was just barely 2. She is now 13. We have had plenty of ups and downs. Seizure types changing, medications not working, side effects that only other...

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