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Topic: Parents & Caregivers

Created By: SleepyParachute | 2015-01-30 17:07 | 7 Views | 0 Comments

My son was recently diagnosed with epilepsy and aortic stenosis...we've noticed that preceding EVERY seizure his legs start aching, then his feet tingle, and then he gets tired and wants to cuddle...

Created By: Vdelcarpio3 | 2015-01-29 03:31 | 25 Views | 0 Comments

Hi, are there other parents out there dealing with this mix of Epilepsy and Autism?

if any advise, please I would apreciated. My son is 10 yrs old now and non-verbal. His seizures are not...

Created By: Mom to Ember | 2015-01-28 23:43 | 32 Views | 1 Comment

my daughter - age 4 - has atonic seizures with myoclonic effect...generalized.  ember will have 60 to 70 per day; each lasting less then 3 seconds; some are drop seizures. currently not on meds,...

Created By: Abby'sHope | 2015-01-28 13:10 | 73 Views | 0 Comments

I'd love to hear how everyone handles school issues.  My daughter is now an 8th grader and is struggling this year.  She missed a lot of days last year and we are on track to miss an equivalent...

Created By: jeanat | 2015-01-27 12:36 | 61 Views | 0 Comments

Hi, we're new to seizures and I need to know if our local neurology clinic is behaving properly. The story is my 18 yo son had his first seizure on sept. 30 hit his head twice from a standing...

Created By: DeRidge | 2015-01-26 15:32 | 36 Views | 1 Comment

My son began having seizures at 4. He had one very long, tonic clonic seizure. Normal EEG at that point and no recurrence. At 7 he began again. After his first very long Grand Mal seizure he was...

Created By: brennan@troutoil.com | 2015-01-24 21:28 | 55 Views | 1 Comment

Hello, My four year old had a seizure while sleeping in October, and then had one a week the past three weeks. The last seizure he had was while he was napping for his sleep-deprived EEG — we were...

Created By: Jbonds0611 | 2015-01-23 15:28 | 73 Views | 3 Comments

Hi, my 6 year old daughter was diagnosed 13 months ago with absence seizues.  We've tried Keppra, Lamictal, Zonegran, Onfi, and are now on Depakote.  So far nothing seems to be working for her. ...

Created By: Missy D | 2015-01-22 18:59 | 36 Views | 0 Comments

my 13 year old son continues to have uncontrolled seizures just finished a round of a valium bridge to settle things down we are heading down to have a 3 day eeg and 2 different mri's trying to...

Created By: Jmcarls5 | 2015-01-22 09:19 | 39 Views | 0 Comments

Hello, My name is Jeffrey Carlson and I am a graduate student in psychology at Arizona State University. I am conducting research on how caring for a child with epilepsy effects parents and...

Created By: Barnes85 | 2015-01-18 15:49 | 59 Views | 2 Comments

My daughter first had a seizure on xmas day 2012 when she was 20 months then went on to have 27 more over next 3 days.  At first thought was febrile convulsion as she had temp caused by a chest...

Created By: Little angels | 2015-01-18 12:28 | 56 Views | 1 Comment

Is it common for a baby to have long seizures? Her seizures are never under 15 minutes, every time we end up in the ER, cause they are over 5 min.  When others have seizures how long do they last...

Created By: HollyLB85 | 2015-01-18 06:42 | 56 Views | 1 Comment

Hi, I am after some advice about my 16 month old daughter. About 2 months ago she was taken into hospital after a choking episode and had to receive first aid to get the food out of her throat....

Created By: Little angels | 2015-01-17 23:41 | 53 Views | 0 Comments

My daughter is 10 months .Her first seizure was the same day as her 4 month shots, it lasted 45 minutes. The emt had trouble pulling her out. The next month (5 months) she had 2 seizures in a week...

Created By: Vicky980 | 2015-01-15 22:20 | 70 Views | 0 Comments

Hi there!  Does anyone have a child with autonomic partial seizures?  My husband and I are taking our child to see neuro next week, but we strongly suspect these as the symptoms match up like a...

Created By: Sammigrant | 2015-01-14 17:00 | 42 Views | 1 Comment

Hi! I, Samantha and my 2.5yr old daughter suffers from seizures. She's had 8 in the past 14 months. She has a rare condition called neurofibromastios (nf1) too. 

Created By: melwang24275@yahoo.com | 2015-01-13 20:02 | 66 Views | 1 Comment

Well, I am back. Cannot remember my user name or password. So now this is who I am LOL. Have a son named Matthew who is 13. We started the journey of Epilepsy when he was 1. At first febrile...

Created By: Rosalvangel | 2015-01-12 08:44 | 86 Views | 1 Comment

My 10yrs old son had his 1st seizure last Nov. had a visit w the neuro. Dr. Said their was not much we could to not even meds till he had a second one. Well 2 month to the date my son had a second...

Created By: charliesmom | 2015-01-10 00:01 | 73 Views | 1 Comment

Hi there,

I'd love to hear from some parents whose kids have been on Depakote. Our doctor is prescribing it for our five-year-old son, as Keppra is no longer working to prevent his seizures...

Created By: Crickets_mom | 2015-01-04 13:03 | 72 Views | 0 Comments

It has been a really long time since I have been on here. Here is a little back story. My son (now almost 14) has epilepsy. He has since he was an infant. Most of his seizures are petit mal with...

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