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Topic: Parents & Caregivers

Created By: Shannonpecchia | 2014-10-29 20:47 | 46 Views | 1 Comment

Hello! I'm new to this, so I guess I'll jump right in. 

My son,8, had a tonic clonic seizure in July. After much testing, he was diagnosed as having benign rolandic epilepsy. As I...

Created By: legal | 2014-10-29 08:16 | 15 Views | 0 Comments

I recently attended a India  foreign film showing in Hindi called Happy New Year that had a character called Tammy who had epileptic seizures for the cruel entertainment of the audience. I hope...

Created By: Cynthia21 | 2014-10-28 00:29 | 30 Views | 0 Comments

My son is 6 years old he also has Down syndrome in the past 6 years he has had 3 seizures the first one was 3 years ago and the 2nd one was 2 years ago he didn't shake on them just blank stares...

Created By: Lainysmom | 2014-10-27 12:42 | 36 Views | 2 Comments

My 17 year old daughter with generlized epilepsy recently completed a 3 day ambulatory EEG to try to determine why she is sometimes completely unresponsive when we try to wake her in the mornings...

Created By: tobias | 2014-10-26 19:03 | 25 Views | 0 Comments

My husband and I have been married for 28 years.  He has been epileptic the entire time.  So nothing new there.  However, in the last few years it has gotten worse.  He can't drive, is depressed a...

Created By: Navywife16 | 2014-10-25 19:45 | 35 Views | 1 Comment

I currently have three children.... And one on the way. When it comes to a chronic illness, I thought our family Socrates  that off the list with my oldest son. He was born with a rare genetic...

Created By: Aclifton | 2014-10-23 04:29 | 42 Views | 0 Comments

My 10 year old son starting having grand mal seizures (during his sleep) back in January. He was very healthy up to that point. MRI finding stated there was a right parietal cortex lesion...

Created By: wandering1 | 2014-10-20 23:09 | 72 Views | 1 Comment

My daughter, 4 years old, was diagnosed with absence seizures just a little over a month ago.  She's taking the generic of Zarontin and the seizures have seemingly been controlled.  However, we've...

Created By: Lbugio | 2014-10-20 20:32 | 60 Views | 0 Comments

Our son was diagnosed with Grand Mal seizures at 17 as a junior in high school it was very difficult to adjust to not being able to drive and the side effects of meds (Keppra) being 20 now he has...

Created By: mwilson@northernforest.org | 2014-10-20 14:49 | 68 Views | 0 Comments

My 10 year old son was on Keppra for a few years following major brain surgery. When he was 7, a 48-hour EEG found no seizure activity so we took him off Keppra at his doctor's suggestion. We...

Created By: Ajaye | 2014-10-11 10:30 | 108 Views | 1 Comment

Thank you first if all for taking the time to read this as I am new to this community and need some support. With that said, here is my story and all replies are welcome.

my son has had one...

Created By: katiepablo@gmail.com | 2014-10-11 10:23 | 82 Views | 1 Comment

My little tiny 3 year old has been diagnosed with Epilepsy after a multiple seizures in one day, and the final seizure of the day being a 4 year SE. I am completely traumatized by the experience,...

Created By: Lainysmom | 2014-10-06 11:34 | 78 Views | 4 Comments

My 17 year old daughter is unable to wake for school. This started in January 2014. Extreme fatigue, unresponsive when trying to wake her, sleeps from about 10pm until 10-11am or later. Currently...

Created By: wandering1 | 2014-09-30 08:57 | 65 Views | 0 Comments

My 4 year old daughter was diagnoses with absence seizures. She's been put on liquid Zarontin since Sept. 11th and it a battle. We've tried it all. Every food item every drink. We've changed the...

Created By: Beans2008 | 2014-09-23 13:31 | 117 Views | 0 Comments

I've been doing this for quite some time and am looking for help again.  About us... my son is 6.  He's had seizures forever, since the day he was born.  Our story has been intractable seizures,...

Created By: carolynw4@yahoo.com | 2014-09-20 23:23 | 88 Views | 0 Comments

We are going to do another EEG for my almost two year old. She had one a year ago but would not nap during it.

 

The EEG lab said no more than 5 hours of sleep for her the night...

Created By: ketalovec@gmail.com | 2014-09-18 21:47 | 106 Views | 6 Comments

My daughter is 6 and so far has had two seizures since she was four. I found out after the first one that her brain is smoother than most children her age. To make matters worse I found that she...

Created By: brittneydulin@cableone.net | 2014-09-18 17:07 | 92 Views | 0 Comments
Created By: brittneydulin@cableone.net | 2014-09-17 19:21 | 126 Views | 8 Comments

At the beginning of the summer my daughter was diagnosed with atypical absence mad clonic seizures ( or epilepsy since the cause of the seizures is unknown.) We went for the first EEG scheduled by...

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