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Topic: Living With Epilepsy - Youth

Created By: moushou | 2011-02-01 17:40 | 220 Views | 1 Comment

My son will be three later this month and was diagnosed over the holidays with tuberous sclerosis. He began having infantile spasms at 9months, stopped having spasms for a few months and then...

Created By: metsek | 2011-01-30 03:25 | 684 Views | 11 Comments
I would like to know if carring drugs like encorate and lametec are permitted by the customs while travelling abroad?
Created By: jenai64 | 2011-01-28 21:25 | 924 Views | 6 Comments

I have 3 children. All 3 have had multiple febrile seizures. My oldest is 7 now. Her first febrile seizure was at 11 months old. They are the very typical seizures, in terms of looks.. Eyes rolled...

Created By: cmaclean | 2011-01-28 19:42 | 145 Views | 0 Comments

For anyone in the San Diego area, Sharon's Ride Run Walk for Epilepsy is April 17th !!!! Please visit http://sharonsride2011.kintera.org/ for more...

Created By: stljill | 2011-01-26 15:13 | 181 Views | 2 Comments

Hi.  I am a first time visitor to your forum and appreciate the opportunity to ask a question.  My daughter is 9 years old.  She has some history of brain injury from a fall in early childhood...

Created By: CosmicParadox | 2011-01-23 02:40 | 1479 Views | 12 Comments

Hello all,

I am currently a Junior in high school. I make good grades, have a rigorous secondary school record, and have what I believe to be great extracurricular activities, qualities...

Created By: Jordans Mom | 2011-01-22 23:05 | 442 Views | 6 Comments

My three year old daughter was recently diagnosed with Epilepsy and started on Levetiracetam, and I am wondering if anyone else has a child on this med. that has noticed any changes or increase in...

Created By: svale | 2011-01-20 19:30 | 193 Views | 2 Comments

Little bit of background first...  My now 13 year old was diagnosed with E on 4/12/2010. Started having seizures every 17-20 days while on Keppra and eventually weaned off and put on Lamictal. ...

Created By: kelleymiller | 2011-01-14 10:33 | 470 Views | 3 Comments

My 16 year old daughters has be diaganosed with absent seizures in 4th grade, around 9 years old. Her neurologist said if she can be seizure free for two years, she will be taken off the meds....

Created By: asherraifsmom | 2011-01-11 04:17 | 351 Views | 2 Comments

I am new to this forum, I have a 15 month old daughter, diagnosed one year ago wtih Tuberous Sclerosis and infantile spasms. She has done fairly well this year but in the last few months her...

Created By: brenda-sw | 2011-01-10 14:23 | 170 Views | 0 Comments

Hi,

My 4 yr old was diagnosed w/ BRE in the spring.  She is on 200mg
Keppra 1x per day (bedtime) since July. She's been doing...

Created By: halfpint29 | 2011-01-07 13:04 | 461 Views | 10 Comments

My daughter was diagnosed with petit mal seizures or absence seizures over a year ago. She's been on both lamictal and topomax for the last 8 months. Recently we've noticed that she is starting...

Created By: trinik | 2011-01-03 18:36 | 252 Views | 4 Comments

Our 11 daughter was diagnosed with temporal lobe epilepsy 2 years ago. As well as the episodes she gets long bouts of nausea and headaches that can last months. These are completely dibilitating...

Created By: ZacharysMommy | 2010-12-24 14:11 | 179 Views | 3 Comments

My almost 4 yr old will be starting private school next fall and Im concerned that they will not accept him into the school because of his epilepsy? Im also concerned about recess,PE or even going...

Created By: tcourson | 2010-12-22 15:53 | 202 Views | 2 Comments

My 6 yr old son was diagnosed with BRE in Aug 2010, we saw the neuro and he gave us the option to medicate or not. He told us that BRE does not cause any damage to the brain and that if he were in...

Created By: saredmom | 2010-12-19 15:06 | 191 Views | 6 Comments

Hi, my newly diagnosed 9yr old son seems to have side effects with his meds and I need advice.

 He is on Keppra 500mg 2x a day and Dakapote 125mg 2x a day. He is having a lot of anger...

Created By: kbellmay | 2010-12-18 14:46 | 169 Views | 1 Comment

my son has complex partial seizures but I believe he had a tonic clonic while sleeping last night.. He was having a very off day yesterday.. He explained it like he felt very dulled.. He had...

Created By: gregd2012 | 2010-12-13 11:51 | 1000 Views | 4 Comments

I am new to these forums.  My 5 year old daughter had her first seizure (tonic clonic / grand mal) on Tuesday morning, 12/7 (6 days ago).  All of her tests including CT scan, MRI, EEG, blood and...

Created By: Nerak95 | 2010-12-04 16:32 | 118 Views | 0 Comments
The latest development on Clobazam.
Created By: trentonbest | 2010-11-30 12:18 | 166 Views | 5 Comments

I was diagnosed yesterday with Generalized Seizures.  My doctor put me on Lamictal yesterday.  I was just wondering if anyone has experienced side effects with this medication, any complaints, or...

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