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Topic: Living With Epilepsy - Youth

Created By: tarnie23 | 2011-06-13 19:05 | 164 Views | 6 Comments

i have had had epilepsy all my life (petti mal) but have only been diagnosed 5 years.

recently ive been having alot of trouble with my epilepsy, ive been having the electric shocks in...

Created By: brenda-sw | 2011-06-04 13:11 | 127 Views | 3 Comments

My almost 5 yr old is supposed to be starting Kindergarten in Sept. 
Full day, 7 hrs, 5 days a week.  She has BRE and is still napping 1-2
hrs mid day.  We live in NJ and the cut off...

Created By: metsek | 2011-05-30 03:14 | 95 Views | 1 Comment

Hi, I’m suffering from an acute case of insomnia since last 4-5 months. My doc...

Created By: Doublell | 2011-05-27 18:30 | 102 Views | 2 Comments

My 10 year old son has been living with my partials since he was born.  Is there any type of pen pal system that kids can use to discuss how epilpesy affects them ( in regards to their parent)  He...

Created By: Medici1014 | 2011-05-24 11:25 | 102 Views | 0 Comments

Hi Everyone,

The Epilepsy Foundation of Florida is participating in the Chase Community Giving Program and they have the chance to win $500K to develop programs for kids...

Created By: metsek | 2011-05-24 08:38 | 139 Views | 4 Comments

I'm traveling abroad with a group of friends (guys and girls) and I haven’t disclosed this problem to anyone other than my family neither do I want to unless circumstances demand. I wanted...

Created By: PLGW | 2011-05-18 02:46 | 398 Views | 5 Comments

In November, I saw my daughter having a seizure in her sleep (arms and legs jerking, foaming at the mouth, etc). Since then, her older sister has seen her have two more. I have felt her have...

Created By: Brandon117 | 2011-05-17 08:06 | 113 Views | 4 Comments

Hi, I just created an account here and I'm going to start of by saying that I think it's great that there is a place for people to talk about epilepsy. Now.. I just turned 16. I had my first...

Created By: ashleybryant82 | 2011-05-16 19:03 | 261 Views | 0 Comments

My 17 month old son has simple partial seizures during the day. We have now notices that he is waking up in the middle of the night and then will have a simple partial shortly thereafter. What I...

Created By: jayjordyn | 2011-05-15 22:38 | 92 Views | 2 Comments

I am a parent of a nine year old boy with BRE. He had his first seizure Feb. 26th 08. The first Dr. Attempted to put him on topamax right away after one episode. After consulting my pediatrician...

Created By: judesmommy | 2011-05-13 02:08 | 182 Views | 5 Comments

Please take time to read this and tell me what you know. I am desperate for answers.

History- My son had his first seizure at 14 months old. Triggered by an unknown. He was sick at the time...

Created By: zarir.karbhari | 2011-05-12 03:47 | 145 Views | 0 Comments

Hello

There seems to some sort of consistency in my child's aura / mild seizures.

It happens about an hour after she wakes up in the morning or after her afternoon nap.

What...

Created By: zarir.karbhari | 2011-05-10 10:01 | 114 Views | 3 Comments

Hello

I am convinced my child getting her auras/epileptic episodes have to do something with her salt or sugar levels. She is on 2100 mg/day of oleptal as well as frisium and I feel the...

Created By: trentonbest | 2011-05-09 12:25 | 135 Views | 1 Comment

Hello, everybody. Since taking Lamictal, my thoughts have become severe. I used to think about suicide before, but now after taking this medication for my Epilepsy, I started having more of these...

Created By: camcam_2 | 2011-05-05 02:54 | 131 Views | 4 Comments

My five year old son was recently diagnosed with absence epilepsy.  We sort of stumbled upon this discovery because he was having regualr "accidents" after being potty trained successfully for...

Created By: sask1 | 2011-05-05 00:53 | 137 Views | 5 Comments

HI! I'm new to this so sorry you will have to bear with me.  September 23, 2009 a day burnt in my mind forever.Sent  my daughter to school like everyother day got a call she had a seizure in art...

Created By: specialneeds | 2011-04-27 14:09 | 82 Views | 0 Comments

Hi

My daughter is 12 and was diagnosised with Fetal
Valproate/Tegretal Syndrome. She also has Autism, developmental delays,
and tourette syndrome.  Up to this point in time...

Created By: ladtbug5 | 2011-04-21 13:10 | 172 Views | 7 Comments

I am about to be 9 and I have epilepsy.  I was diagnosed with it about 5 months ago, I have only had a few seizures once I got on the medicine.  I am afraid that I am going to have to stop...

Created By: Jamieusmc | 2011-04-19 15:45 | 96 Views | 0 Comments

My 19mo had had over 20 FS in 7months all complex all either focal long or recurring. She just had an MRI yesterday and I'm waiting to hear the results.. Why would they do MRI if FS are not...

Created By: brenda-sw | 2011-04-11 10:26 | 138 Views | 2 Comments

y four yr old was diagnosed w/ BRE last summer. We started Keppra in July
2010. This winter has been horrible for us. She has basically been sick since
January. First a 12 day stomach...

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