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Topic: Living With Epilepsy - Youth

Created By: nicholas47 | 2011-09-20 07:23 | 181 Views | 0 Comments

My son is 6 years old with LGS and ESES.  His EEG is so active both awake and asleep.  In sleep he has continious spike waves from the minute he closes his eyes.  Awake it spikes between 2-5 sec'...

Created By: tripletmom | 2011-09-19 21:45 | 249 Views | 6 Comments

Hello All...I have 9 year old triplets, 2 of them have been diagnosed with benign rolandic epilepsy. They both take 300mg of Trileptal  2x's a day. We have noticed a sharp decline in their...

Created By: mohammed10 | 2011-09-17 17:46 | 88 Views | 0 Comments

Iv been diagnosed for 4 years and nothing like this is been happening, recently when I try to say something my mouth stays opening and I can't talk I have no control over it also whenn I was...

Created By: hearingdamage | 2011-09-10 14:52 | 238 Views | 0 Comments

Hey guys,

Lately, during seizures parts of my body have been going numb (my legs, my arms, my face) and my fingers sometimes curl up, which I found odd when it first happen because my...

Created By: jessica_1994 | 2011-08-29 16:16 | 110 Views | 2 Comments

I was diagnosed with absence epilepsy like a month ago, but I've been tired all the time for a yearish now. I am on medication now, and I'm just wondering if maybe it's something to do with my...

Created By: I-hate-my-epilepsy1001 | 2011-08-27 19:52 | 135 Views | 0 Comments

Okay, I've been on Clobazim for a year and half ish and it hasn't worked for my petit mal seizures. I was wondering, how long does it take to work? I'm going to get the medication soon (after...

Created By: 234kelkel | 2011-08-22 03:59 | 106 Views | 2 Comments

Hello...well I am 19 and I have just graduated high school this past year. I'm planning on going to a community college. I am a proud owner of a drivers license (finally after turning 18) and I...

Created By: crisgrullon | 2011-08-16 22:04 | 244 Views | 13 Comments

Im just really wondering if there is someone on this website girl or guy that is fresh out of high school-(seems to me its just worried parents-no offence to the parents) ???And if theres anyone...

Created By: dkatiemom | 2011-08-16 16:40 | 113 Views | 0 Comments

I have a 12 year-old with autism. Last Friday, he began having absolutely shocking behavior outside of the norm (eye's rolling back, lip quivering, inability to control his muscles, etc.). I...

Created By: Juliabrim | 2011-08-13 10:14 | 113 Views | 1 Comment

My daughter is 6 and going for her first video EEG. We are checking into the hospital for three days. Does anyone have tips or suggestions for our hospital stay? Or things they wish they had known...

Created By: I-hate-my-epilepsy1001 | 2011-08-12 18:06 | 101 Views | 0 Comments

I'm 15 and have had petit mal for awhile, I was just curious when will I know when the petit mal seizures are going away? Are there any signs I can watch out for?

Created By: KarenE | 2011-08-11 16:58 | 90 Views | 0 Comments

My name is Karen Egan and I am an Irish student doing a masters Occupational therapy project on the Disclosure of epilepsy in young adult friendships and the decision-making process around this....

Created By: Mikesor | 2011-08-09 03:35 | 116 Views | 1 Comment

Hello. My brother ( 15 years old ) had what I think it was a seizure. That was around 2 months ago. 2 weeks ago he had another one. Now, I wasn't sure how the second one started, we were all...

Created By: I-hate-my-epilepsy1001 | 2011-08-06 17:12 | 217 Views | 4 Comments

I am curious about this, why do I have more seizures in the MORNING than at night. I wake up sometimes and have none but other times a good few. And this drives me freakin...

Created By: kbon90 | 2011-08-03 18:51 | 113 Views | 2 Comments

I have been dealing with Epilepsy and Seizures all my life ever since I was a baby.

Does Epilepsy and Seizures every go away or does it stay with you for the rest of your life

...

Created By: I-hate-my-epilepsy1001 | 2011-08-03 14:25 | 468 Views | 7 Comments

Okay, I'm 15 with peit mal seizures aka absence seizures. And I'm at the point where I'm sick of them, I want them out of my head forever! I'm going to be 16 in Feburary and I want to drive...

Created By: rbarr110 | 2011-08-02 15:05 | 119 Views | 2 Comments

A few months back my son had what appeared to be a stroke.  He had been asleep for about 30-60 min when he was suddenly awake and had complete paralysis of his left side.  He could not move his...

Created By: CaliGirlinSC | 2011-07-30 20:02 | 334 Views | 1 Comment

My son has absence seizurestriggered by hyperventilation and has been taking Zarontin (15ml) for a few months now. Last night, he had a spell of five seizures in a 20-30 minute time span. I have...

Created By: jbmom | 2011-07-27 22:54 | 87 Views | 0 Comments

ok...this is the 2nd attempt to post this so lets see if it works....we saw my son's neuro doc today who finally agreed that nearly 2 yrs of increased seizure activity...88 in 18 months and 3 meds...

Created By: jbmom | 2011-07-27 22:36 | 177 Views | 4 Comments

We just saw my son's neurologist, who finally after nearly 2 yrs of multiple seizures and upping doses of the 3 meds he is on is offering alternatives...does any one have any experience with VNS...

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