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Topic: Living With Epilepsy - Youth

Created By: jdw1343 | 2012-02-02 22:31 | 107 Views | 0 Comments

Hi my daughter had her first seizure march 2010.  she was 6at the time.  (she is 8 now, 2012) she showed me that her jaw was "locking up" and shaking.  she had many of these and my family dr didn...

Created By: soundwav | 2012-01-31 21:36 | 152 Views | 4 Comments

Hi, so I have had epilepsy for five years in June and was diagnosed when twelve, so that makes me 18 soon :)

I am changing medications against my wishes to Topamax soon and so much stuff...

Created By: alexb | 2012-01-24 18:08 | 212 Views | 5 Comments

I am 19 years old. I was diagnosed with epliepsy when I was 11. When I was 11, I was told not to worry because there are plenty of medicines out there and if those don't work, there is surgery....

Created By: Archangel | 2012-01-09 20:48 | 79 Views | 0 Comments

Right, so I'm starting a book about Seizures/Epilepsy, and I was wondering if anyone would like to share their stories about their Epilepsy/Seizures so I can put it in a book? If you do...

Created By: admin1 | 2012-01-04 10:09 | 81 Views | 0 Comments

I'd like to invite everyone to the Epilepsy Therapy Project Family Day - a conference for general public - that means all of us! It's being held in San Francisco on...

Created By: butterfly17 | 2011-12-24 16:42 | 131 Views | 3 Comments

Hi guys!

Well when I was at work yesterday, a child of four had falling into an epilpetic fit... As a an Customer Care assitant I was calm and understanding. But as butterfly 17 I cried...

Created By: butterfly17 | 2011-12-24 16:42 | 73 Views | 0 Comments

Hi guys!

Well when I was at work yesterday, a child of four had falling into an epilpetic fit... As a an Customer Care assitant I was calm and understanding. But as butterfly 17 I cried...

Created By: butterfly17 | 2011-12-24 16:41 | 74 Views | 0 Comments

 

    Hi guys!

   Well when I was at work yesterday, a child of four had falling into an epilpetic fit... As a an Customer Care assitant I was calm and understanding. But as...

Created By: butterfly17 | 2011-12-24 16:41 | 74 Views | 0 Comments

 

    Hi guys!

   Well when I was at work yesterday, a child of four had falling into an epilpetic fit... As a an Customer Care assitant I was calm and understanding. But as...

Created By: Archangel | 2011-12-15 18:13 | 159 Views | 5 Comments

Here's my story :

 When I was about 18 months old, I started having seizures, and the doctor's never knew why I was having them, and as time went on, I started getting head - aches that...

Created By: jimmieD | 2011-11-28 14:00 | 100 Views | 2 Comments

hey there ive recently started going back 2 school an was wondering if epilepsy has effected anybody in school, besides seizures, wheather it be attention span, retaing info, memory or homework....

Created By: scanny11 | 2011-11-28 13:18 | 72 Views | 0 Comments

I am hoping someone can help my family figure out what is going on with our 4.5 year old daughter. She started having eye twitches at age 1. She gets a strange look on her face and then her...

Created By: southy | 2011-11-20 16:33 | 96 Views | 0 Comments

I have these dreams repeatedly where I am trapped in an enclosed space and trying to escape but it's filling up with...something. I've never figured out what, but it expands like mousse and it...

Created By: maria1903 | 2011-10-28 16:05 | 100 Views | 3 Comments

my son is 4 yrs old he's seizure has change he use to shake his whole body and then became limb and it would last 1 mn to 2mn  but now he will stare he will say something  like mommy i love you...

Created By: portialee | 2011-10-20 17:59 | 230 Views | 4 Comments

Hi guys,

So I also have epilepsy (grand & petit mal although luckily i've been seizure free for almost 5 years now) and am currently doing my training to become a secondary school...

Created By: jforce | 2011-10-17 21:47 | 1637 Views | 1 Comment

My 15 yr old son was just diagnosed with epilepsy. He is on Keppra and smokes marijuana. Are there any serious side effects of smoking while on Keppra. Anyone out there smoke and take Keppra? He...

Created By: alyssa18 | 2011-10-11 09:25 | 84 Views | 0 Comments

 

  My Daughter had the VNS since she was 2 1/2 years old, this will be her 2nd replacement.  

  She has grand mal and  petite, and is mentally delayed due to her seizures....

Created By: mom_of_21978 | 2011-10-06 08:17 | 82 Views | 0 Comments

My son is 15 years old. He had a Gran mal seizure almost a week ago today it was different than the last one he had. This time after the seziure the after effect did not go away here it is almost...

Created By: mystic1930 | 2011-09-23 08:34 | 121 Views | 0 Comments

My son has a seizure disorder - no one is calling it Epilepsy - though I guess it is.

 

He is 14 autistic. He has never experiences convulsions. but has staring episodes and...

Created By: nicholas47 | 2011-09-20 07:23 | 173 Views | 0 Comments

My son is 6 years old with LGS and ESES.  His EEG is so active both awake and asleep.  In sleep he has continious spike waves from the minute he closes his eyes.  Awake it spikes between 2-5 sec'...

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