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Topic: Living With Epilepsy - Youth

Created By: Spike. | 2010-01-19 20:20 | 43 Views | 0 Comments

Wish for 2010 is that people will understand that children with disabilities do not have a disease; children with disabilities are not looking for a cure but ACCEPTANCE........93% of people...

Created By: estephania2182 | 2010-01-18 13:02 | 110 Views | 1 Comment

My 7 week old son was recently diagnosed with seizures. Even before he was born I took my son to have an EEG done after a few episodes he had that I thought were strange. He would be playing or...

Created By: estephania2182 | 2010-01-18 12:36 | 62 Views | 0 Comments

My newborn son who is now 7 weeks old was diagnosed with seizures a week after he was born...My other son, who is 2 years old has all of a sudden started doing something very strange and I'm...

Created By: pgd | 2010-01-16 10:28 | 340 Views | 0 Comments

Symptoms such as involuntary distractibility and involuntary short attention span.  Your experiences with Absence (petit mal) epilepsy vs ADHD Inattentive type?

Created By: becca91280 | 2010-01-08 12:35 | 447 Views | 6 Comments

My 5 yr old was diagnosed with Absence Seizures a year ago this past Christmas.  I have noticed recenlty that when he has an episode, its like he loses control of his bladder and ends up having an...

Created By: ArmyDad23 | 2010-01-07 23:03 | 564 Views | 6 Comments

I had posted this story about my daughter on a different website a while back.  We have since started the drug ACTH, and for the last month, she has been seizure and spasms free.  We...

Created By: survivingmomof2 | 2010-01-07 21:05 | 257 Views | 5 Comments

I have had Epilepsy practically all my life and they believe my son now, who is 17, has it too, after having a seizure last week and a few "staring spells" that have happened over the last year...

Created By: jltischer | 2010-01-04 15:48 | 256 Views | 7 Comments

I am here to try to find out what route I should be on to help my daughter.  She has had seizures since she was 5 months old.  She turned 2 in November and we are still fighting the seizures. ...

Created By: selliott | 2010-01-02 14:58 | 81 Views | 0 Comments

I have an 11 month old who suffers from 0-8 seizures per day.  We've tried 6 medications that have all failed and are now on The Ketogenic Diet.  The diet has been amazing at reducing the...

Created By: Katie A. Thomas | 2009-12-28 04:18 | 392 Views | 2 Comments

PROBLEM:


Hi,  We are the Parents of a 13-year-old girl diagnosed with Autism, mitochondrial disorder, Seizure Disorder (Absent, Partial Complex, Tonic Clonic), Apraxia, Ataxia, Hypo...

Created By: cosgirl1992 | 2009-12-28 00:46 | 350 Views | 4 Comments

Every time I find something out that truly upsets me or get in an argument with someone my entire body shakes and twitches and tremors visibly from my finger tips to my head to my toes and I feel...

Created By: Spike. | 2009-12-27 00:27 | 172 Views | 0 Comments

Hello everyone. I just came across a very recently uploaded video on YouTube, which is about a little girl, probably less than two years old, whose...

Created By: rhcuddles2004 | 2009-12-18 03:32 | 30 Views | 0 Comments

I have a 7 year old who had a tumor removed from his temporal lobe in 2006. My question is how do you teach a child that young (and who is high functioning autistic) about seizures? He doesn't...

Created By: dhamodar | 2009-12-12 04:26 | 48 Views | 0 Comments

Dear All,

My daughter age is 10 years now, while birth she was 1.75Kg and got some Seizures. she was in Incubator for 2 weeks for the treatment.

from that day onwards she has...

Created By: Tracy Ann | 2009-12-09 17:18 | 395 Views | 0 Comments

I am interested in knowing if anyone has had any luck with using Epsom Salt for controlling partial complex seizures.   I am trying to find an alternative to medicines in controlling my daughters...

Created By: Nancy A.J | 2009-12-08 09:29 | 86 Views | 4 Comments

i'm 21 now i had two siezures in my life and since then (1/8/2004) i've started taking Depakine 500 and my sizures were controlled though my EEGs are not normal yet and doctors ideas are different...

Created By: jojocarter | 2009-12-03 00:56 | 552 Views | 6 Comments

Has anyone heard of adrenaline as a trigger for tonic clonic and simple and complex partial seizures? 

My 18 year old son has been having simple and complex partial seizures during...

Created By: Concordia | 2009-11-21 03:03 | 51 Views | 0 Comments

I experince this a lot. It's not serious or anything, at least what I think, but I get tired of my mom saying 'You're not normal! Stop pacing and Running!' my family gets bothered and restless...

Created By: cam and trav | 2009-11-18 21:17 | 141 Views | 2 Comments

Hi

My 8 year old daughter has Epilepsy, she has had it since 8 mths old, managable for several years by epilum. They were short seizures, during the day, anytime. When she turned 8, they...

Created By: Blaine | 2009-11-16 00:43 | 502 Views | 12 Comments

Hi our daughter is two years old and had a 90 minute seizure. We live in a very rural area and it took that long for an emergency airplane to get to us and stop her seizure. She also aspirated on...

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