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Topic: Living With Epilepsy - Youth

Created By: Blaine | 2010-02-10 00:28 | 156 Views | 3 Comments

 

Hi my daughter is two and has grand mal seizures, we are on our third med now. We started with Lamictal and had serious side effects, now we are weening off of Keppra - generic and...

Created By: argyle2013 | 2010-02-07 14:16 | 51 Views | 1 Comment

Hi :) last May at the age of 13 i had my first tonic-clonic seizure i went to Cook Children's Hospital and they preformed alot of testing a week later i was told i had Rolandic Epilepsy and that i...

Created By: hairgal | 2010-02-03 15:33 | 73 Views | 0 Comments

My daughter is 14 and has been on zonisamide for a few months and still has problems with her appetite. While on depakote she practically ate us out of house and home! Since that med wasn't...

Created By: Tina Gallegos | 2010-02-02 20:43 | 74 Views | 5 Comments

Hello I have a daughter that is 16! Myranda has been diagnosed with severe epilepsy since 07! She has taken a total of 5 different meds! she is currently max out on Topamax & Lyrica plus she...

Created By: wyboemail | 2010-02-01 14:29 | 81 Views | 3 Comments

I was wondering what types of pain relievers you give your child for headaches, etc if they have epilepsy? Our pedatrician said to give my son tylenol but I just read that the Acetaminophen in...

Created By: Millana1 | 2010-01-26 21:04 | 379 Views | 3 Comments

  I was diagnosed with epilepsy, encephalitis at the age of 9 and have been living with it for approximately 5 years ( I am now 14), having spent 4 months in Hospital and having to frequently...

Created By: pgd | 2010-01-23 16:37 | 62 Views | 0 Comments

If a 12 year old child displays fleeting attention and an imperfect memory consistently yet multiple EEGs are read as completely normal, what could it be if it's not a type of epilepsy?

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Created By: sinns | 2010-01-21 17:06 | 134 Views | 5 Comments

I am new to this site but have been doing research and thought that other people might have some ideas or questions that I should be asking.  My son is 11 years old and has been being treated for...

Created By: jbmom | 2010-01-19 21:10 | 51 Views | 0 Comments

My 6 yr old son had a series of 3 seizures in less then 24 hrs 2 weeks ago, the last was the worst and presented with new symptom, his lips turned blue and his eyes dilated and constricted in and...

Created By: Spike. | 2010-01-19 20:20 | 24 Views | 0 Comments

Wish for 2010 is that people will understand that children with disabilities do not have a disease; children with disabilities are not looking for a cure but ACCEPTANCE........93% of people...

Created By: estephania2182 | 2010-01-18 13:02 | 87 Views | 1 Comment

My 7 week old son was recently diagnosed with seizures. Even before he was born I took my son to have an EEG done after a few episodes he had that I thought were strange. He would be playing or...

Created By: estephania2182 | 2010-01-18 12:36 | 54 Views | 0 Comments

My newborn son who is now 7 weeks old was diagnosed with seizures a week after he was born...My other son, who is 2 years old has all of a sudden started doing something very strange and I'm...

Created By: pgd | 2010-01-16 10:28 | 228 Views | 0 Comments

Symptoms such as involuntary distractibility and involuntary short attention span.  Your experiences with Absence (petit mal) epilepsy vs ADHD Inattentive type?

Created By: becca91280 | 2010-01-08 12:35 | 320 Views | 6 Comments

My 5 yr old was diagnosed with Absence Seizures a year ago this past Christmas.  I have noticed recenlty that when he has an episode, its like he loses control of his bladder and ends up having an...

Created By: ArmyDad23 | 2010-01-07 23:03 | 376 Views | 6 Comments

I had posted this story about my daughter on a different website a while back.  We have since started the drug ACTH, and for the last month, she has been seizure and spasms free.  We...

Created By: survivingmomof2 | 2010-01-07 21:05 | 188 Views | 5 Comments

I have had Epilepsy practically all my life and they believe my son now, who is 17, has it too, after having a seizure last week and a few "staring spells" that have happened over the last year...

Created By: jltischer | 2010-01-04 15:48 | 183 Views | 7 Comments

I am here to try to find out what route I should be on to help my daughter.  She has had seizures since she was 5 months old.  She turned 2 in November and we are still fighting the seizures. ...

Created By: selliott | 2010-01-02 14:58 | 64 Views | 0 Comments

I have an 11 month old who suffers from 0-8 seizures per day.  We've tried 6 medications that have all failed and are now on The Ketogenic Diet.  The diet has been amazing at reducing the...

Created By: Katie A. Thomas | 2009-12-28 04:18 | 229 Views | 2 Comments

PROBLEM:


Hi,  We are the Parents of a 13-year-old girl diagnosed with Autism, mitochondrial disorder, Seizure Disorder (Absent, Partial Complex, Tonic Clonic), Apraxia, Ataxia, Hypo...

Created By: cosgirl1992 | 2009-12-28 00:46 | 253 Views | 4 Comments

Every time I find something out that truly upsets me or get in an argument with someone my entire body shakes and twitches and tremors visibly from my finger tips to my head to my toes and I feel...

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