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Topic: Living With Epilepsy - Youth

Created By: psmith72 | 2014-10-28 21:42 | 25 Views | 0 Comments

My son is 11 and was diagnosed with a seizure disorder 5 years ago.  He started having seizures in his left leg only.  While waiting on an initial appt. with a neurologist he had a grand mal at...

Created By: Smilemily | 2014-10-27 08:41 | 13 Views | 0 Comments

Hello,

My name is Emily, I have had seizures for a year and a half, after a tramatic brain injury. Recently, a new problem developed. I believe I am having seizures in my sleep. The other...

Created By: RossiLFC | 2014-10-20 07:02 | 31 Views | 1 Comment

 

Hi everyone,

I have bee on topamax for three years now and I'm still trying to find the correct dosage. Topamax is for migraines which is what causes my epileptic seizures but I...

Created By: Ashleygunther | 2014-10-10 13:01 | 73 Views | 3 Comments

Hi all,

I am new to the group. My son was just diangosed with Epilepsy in Sept. His Epilespy is a direct result of a stroke he survived at birth. 

He has been on Trileptal for 4...

Created By: stacyanmarie | 2014-10-09 12:45 | 50 Views | 0 Comments

I generally take about 3 hours out of my day to go grocery shopping....sometimes longer. :-) I usually go to a store with great organic values, budget and the gluten free diets. My twins and...

Created By: Seairrea | 2014-09-21 20:54 | 105 Views | 1 Comment

Hello, I am a teenager and I have had these feelings as long as I can remember. My grandpa, and my mom has them. So did his mom. My sister use to have them as a baby. My feelings include unable to...

Created By: bluechi286 | 2014-09-16 14:33 | 88 Views | 1 Comment

I have a lot of experience (20 years) with "dealing" with epilepsy. However there are still things that the population that do not have epilepsy (or are not a family member/friend of a person with...

Created By: akidna69@yahoo.com.au | 2014-09-12 07:12 | 107 Views | 1 Comment

Hi our son was diagnosed with epilepsy soon after he was born n has been on medication since.  He had nocturnal seizures lasting 2-3 mins, however in The last 3 years his pattern has changed n he...

Created By: MegBear81 | 2014-09-11 15:17 | 97 Views | 0 Comments

Hi, I'm new here.  My daughter will be 7 this month and last August she was diagnosed with Absence Epilepsy.  She still has several seizures per day.  She is currently on 2 different types of...

Created By: bjwestern@hotmail.com | 2014-09-11 13:05 | 82 Views | 1 Comment

My 6 year old son just strated haveing night seizures about 3 months ago after having  daytime ones for the last 4 1/2 years.  what is your story on night seizures. How as a parent have you coped...

Created By: militarymom | 2014-09-10 18:23 | 72 Views | 1 Comment

We are a military family moving to the Washington DC area to give my son better access to a neurologist. He is three. We have the option of seeing a doctor off-base (such as Dr. Pearl at Children'...

Created By: wkg123 | 2014-09-05 00:24 | 110 Views | 1 Comment

Hello I am william and i am 18 years old. I never have had a seizure that i was aware of until november of last year. First i had to cope without having a car and losing my independance, then in...

Created By: MSullivan9 | 2014-08-29 15:23 | 77 Views | 0 Comments

Hi,

I'm a Girl Scout in the Washington, DC area and for my Girl Scout Gold Award Project, I'm sponsoring a free spa day for teen girls with epilepsy and other illnesses.  This event will...

Created By: shayla_wildcherry@yahoo.com | 2014-08-25 14:45 | 83 Views | 0 Comments

Hello all just wondering if there is a forum for LKS or if anyone has any resonse to our story? Have a great day!

Our son just turned 5 and developed and reached all milestones normally,...

Created By: rferguso | 2014-08-22 15:59 | 119 Views | 3 Comments

I often feel sad and depressed living with JME. I'm nervous and have constant anxiety that I will have a seizure in my sleep. Also I used to be 130 points 2 years ago when I was diagnosed. Now I'm...

Created By: msakumzi@yahoo.com | 2014-08-22 11:32 | 130 Views | 0 Comments
Created By: CRose89 | 2014-08-05 16:09 | 164 Views | 2 Comments

Hi,

I'm a student paediatric nurse, and I am currently working on a presentation about what it's like living with Juvenile Myoclonic Epilepsy - in particular what it is like for a teenager...

Created By: astacy | 2014-08-01 15:32 | 161 Views | 1 Comment

Hello, I am 15 and my name is Ashley! I just wanted to see if anybody could tell me what type of seizure I had or if my experience was common. Really anything, I just want a little feedback! I am...

Created By: Andrewbluepiano | 2014-07-08 01:33 | 204 Views | 2 Comments

Hi, I had petiete mal seizures when I was a kid, but was declared seizure free when I was 11. A month and 8 days ago I fainted in the middle of a school presentation and woke up in the ambulance...

Created By: dabeana.sc@gmail.com | 2014-07-01 19:32 | 201 Views | 1 Comment

My friend just started doing tripping acid not to long ago. Now ever since he started that he's been having seizures while he's asleep. He was just diagnosed with epilepsy. To remind you this has...

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