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Topic: Living With Epilepsy - Youth

Created By: norawahdani | 2015-02-28 17:52 | 21 Views | 1 Comment

I am 21 years old and I live with my boyfriend, also 21, who suffers from epilepsy. He was diagnosed in 9th grade and has kept his seizures quite managed for the years since then. We have been...

Created By: iani | 2015-02-28 17:27 | 22 Views | 0 Comments

Hi all,

This is my first time in here im very desperate to get some information’s from parent who may similar situation.

 

My child had his first febrile convulsion at age 1...

Created By: Kissy426 | 2015-02-23 11:03 | 65 Views | 2 Comments

last Monday my son (8 years old) had his first seizure. We were out to eat when it happened and we took him to the ER. They told us it was a seizure and referred us to a neurologist. We went to...

Created By: Swest | 2015-02-13 14:48 | 68 Views | 1 Comment

Do seizures from Photosensitive Epilepsy only happen at the time you are exposed to the light or can they happen later like when you are sleeping?

Created By: alakazam_ | 2015-01-26 12:31 | 99 Views | 1 Comment

Hi, I'm just wondering exactly when I should do cannabis if I suffer from nocturnal seizures. These seizures are very random as well. I can go 3 months without one or I could have one each week. I...

Created By: Jmcarls5 | 2015-01-23 18:58 | 82 Views | 0 Comments

Hello, My name is Jeffrey Carlson and I am a graduate student in psychology at Arizona State University. I am conducting research on how caring for a child with epilepsy effects parents and...

Created By: jacobsmom12 | 2015-01-20 16:12 | 213 Views | 0 Comments

Has anyone heard of this embrace empatica smart watch to monitor seizures. I was going to ask doc at my sons next appt if she had heard about this.

 

 

Created By: DinaHB | 2015-01-13 16:28 | 128 Views | 2 Comments

I am the worried parent of a 17 year old.  I would like input from current college students or parents.I can learn a lot from both groups.  My son, is 17, and was diagnosed with epilepsy at 15.  ...

Created By: heidijackson96 | 2015-01-02 12:03 | 97 Views | 0 Comments

Hi, newbie here…

 

I was diagnosed with generalised epilepsy on March 17th last year and am on successful medication. Things such as lack of sleep, alcohol and stress are triggers...

Created By: catalinadelray | 2014-12-31 16:25 | 113 Views | 2 Comments

my little brother went to the hospital a year ago for an intense onset of seizures. he was in the hospital for 5 months, lost and regained his abilities to walk and talk & was released right...

Created By: dauberman | 2014-12-30 13:20 | 129 Views | 0 Comments

When our daughter was 6 months old, she had a febrile seizure which lasted nearly 15 minutes. One side of her body shook. She was running a high fever and after a trip to the emergency room and a...

Created By: TannersMom21 | 2014-12-29 12:59 | 148 Views | 0 Comments

My son is 6, he has Complex Partial Seizures. He has very few, maybe 3 per month that we know of. We explain it like "the light is on and no one is home". We have tried Keppra and Trileptal. The...

Created By: Jess98 | 2014-12-17 07:09 | 183 Views | 1 Comment

I am 16 years old and i just finished year 11 at school. I was diagnosed with Complex Partial Blank out seizures. My teachers this year have been emailing my parents complaining of how i have been...

Created By: justin.ponze2@gmail.com | 2014-12-03 12:54 | 271 Views | 2 Comments

I have been diagnosed with Epilepsy for 3 years and have recently been prescribed 500 mg Keppra (Levetiracetam) instead of 100 mg Tegritol (Carbomazapine) around the same time a began using...

Created By: kandacesmith12 | 2014-11-27 03:10 | 151 Views | 3 Comments

Hi I'm Kandace anyways I'm currently on Oxytellar but I used to take Trileptol (I'm not sure if I spelled it right) but I officially was diagnosed with epilepsy when I was in 3rd or 5th grade I...

Created By: soccer4994@tamu.edu | 2014-11-14 01:07 | 228 Views | 1 Comment

Hi all, I am new to this forum and it is comforting to know there are people just like me. A little background information: I was diagnosed with Child Absence Seizures (petit mal) in 2006 as a 6th...

Created By: vampireinitiation@gmail.com | 2014-11-02 01:18 | 300 Views | 0 Comments

I am from Canada, I was diagnosed of Epilepsy in 2004 then i was just 17years, the disease is so disgracing and embarassing because atimes i get seizure in public and fall to the ground, I have...

Created By: psmith72 | 2014-10-28 21:42 | 239 Views | 0 Comments

My son is 11 and was diagnosed with a seizure disorder 5 years ago.  He started having seizures in his left leg only.  While waiting on an initial appt. with a neurologist he had a grand mal at...

Created By: Smilemily | 2014-10-27 08:41 | 204 Views | 0 Comments

Hello,

My name is Emily, I have had seizures for a year and a half, after a tramatic brain injury. Recently, a new problem developed. I believe I am having seizures in my sleep. The other...

Created By: RossiLFC | 2014-10-20 07:02 | 181 Views | 1 Comment

 

Hi everyone,

I have bee on topamax for three years now and I'm still trying to find the correct dosage. Topamax is for migraines which is what causes my epileptic seizures but I...

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