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Topic: Living With Epilepsy - Youth

Created By: soccer4994@tamu.edu | 2014-11-14 01:07 | 48 Views | 0 Comments

Hi all, I am new to this forum and it is comforting to know there are people just like me. A little background information: I was diagnosed with Child Absence Seizures (petit mal) in 2006 as a 6th...

Created By: vampireinitiation@gmail.com | 2014-11-02 01:18 | 57 Views | 0 Comments

I am from Canada, I was diagnosed of Epilepsy in 2004 then i was just 17years, the disease is so disgracing and embarassing because atimes i get seizure in public and fall to the ground, I have...

Created By: psmith72 | 2014-10-28 21:42 | 78 Views | 0 Comments

My son is 11 and was diagnosed with a seizure disorder 5 years ago.  He started having seizures in his left leg only.  While waiting on an initial appt. with a neurologist he had a grand mal at...

Created By: Smilemily | 2014-10-27 08:41 | 58 Views | 0 Comments

Hello,

My name is Emily, I have had seizures for a year and a half, after a tramatic brain injury. Recently, a new problem developed. I believe I am having seizures in my sleep. The other...

Created By: RossiLFC | 2014-10-20 07:02 | 65 Views | 1 Comment

 

Hi everyone,

I have bee on topamax for three years now and I'm still trying to find the correct dosage. Topamax is for migraines which is what causes my epileptic seizures but I...

Created By: Ashleygunther | 2014-10-10 13:01 | 134 Views | 3 Comments

Hi all,

I am new to the group. My son was just diangosed with Epilepsy in Sept. His Epilespy is a direct result of a stroke he survived at birth. 

He has been on Trileptal for 4...

Created By: stacyanmarie | 2014-10-09 12:45 | 86 Views | 0 Comments

I generally take about 3 hours out of my day to go grocery shopping....sometimes longer. :-) I usually go to a store with great organic values, budget and the gluten free diets. My twins and...

Created By: Seairrea | 2014-09-21 20:54 | 153 Views | 1 Comment

Hello, I am a teenager and I have had these feelings as long as I can remember. My grandpa, and my mom has them. So did his mom. My sister use to have them as a baby. My feelings include unable to...

Created By: bluechi286 | 2014-09-16 14:33 | 131 Views | 2 Comments

I have a lot of experience (20 years) with "dealing" with epilepsy. However there are still things that the population that do not have epilepsy (or are not a family member/friend of a person with...

Created By: akidna69@yahoo.com.au | 2014-09-12 07:12 | 141 Views | 1 Comment

Hi our son was diagnosed with epilepsy soon after he was born n has been on medication since.  He had nocturnal seizures lasting 2-3 mins, however in The last 3 years his pattern has changed n he...

Created By: MegBear81 | 2014-09-11 15:17 | 130 Views | 0 Comments

Hi, I'm new here.  My daughter will be 7 this month and last August she was diagnosed with Absence Epilepsy.  She still has several seizures per day.  She is currently on 2 different types of...

Created By: bjwestern@hotmail.com | 2014-09-11 13:05 | 126 Views | 2 Comments

My 6 year old son just strated haveing night seizures about 3 months ago after having  daytime ones for the last 4 1/2 years.  what is your story on night seizures. How as a parent have you coped...

Created By: militarymom | 2014-09-10 18:23 | 100 Views | 1 Comment

We are a military family moving to the Washington DC area to give my son better access to a neurologist. He is three. We have the option of seeing a doctor off-base (such as Dr. Pearl at Children'...

Created By: wkg123 | 2014-09-05 00:24 | 144 Views | 1 Comment

Hello I am william and i am 18 years old. I never have had a seizure that i was aware of until november of last year. First i had to cope without having a car and losing my independance, then in...

Created By: MSullivan9 | 2014-08-29 15:23 | 101 Views | 0 Comments

Hi,

I'm a Girl Scout in the Washington, DC area and for my Girl Scout Gold Award Project, I'm sponsoring a free spa day for teen girls with epilepsy and other illnesses.  This event will...

Created By: shayla_wildcherry@yahoo.com | 2014-08-25 14:45 | 107 Views | 0 Comments

Hello all just wondering if there is a forum for LKS or if anyone has any resonse to our story? Have a great day!

Our son just turned 5 and developed and reached all milestones normally,...

Created By: rferguso | 2014-08-22 15:59 | 157 Views | 3 Comments

I often feel sad and depressed living with JME. I'm nervous and have constant anxiety that I will have a seizure in my sleep. Also I used to be 130 points 2 years ago when I was diagnosed. Now I'm...

Created By: msakumzi@yahoo.com | 2014-08-22 11:32 | 172 Views | 0 Comments
Created By: CRose89 | 2014-08-05 16:09 | 203 Views | 2 Comments

Hi,

I'm a student paediatric nurse, and I am currently working on a presentation about what it's like living with Juvenile Myoclonic Epilepsy - in particular what it is like for a teenager...

Created By: astacy | 2014-08-01 15:32 | 197 Views | 1 Comment

Hello, I am 15 and my name is Ashley! I just wanted to see if anybody could tell me what type of seizure I had or if my experience was common. Really anything, I just want a little feedback! I am...

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